Vulvodynia Support
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» Hope to all my suffering ladies
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

2 posters

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Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic Empty Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Fingerscrossed Tue Sep 17, 2013 5:48 am

Hi! My name is Lacey, married since last December (newlywed) and I live in Kentucky for graduate school. I have been suffering from vulvodynia and pelvic floor dysfunction for nearly four years. This issue has been going on for so long that I have lost an exact count. I had back surgery when I was twelve for kyphosis and I wonder if that led to my issues--maybe poked a nerve or something. I've never been able to use tampons and I have always had pain with pelvic exams. When my husband (then boyfriend) and I first had sex prior to the issues coming up, it always hurt upon beginning sex but went away after a short time. About a year and a half later, the pain got to the point that I lost my libido and sex was always painful. I no longer desired to be touched sexually and did not feel an urge. I tried to seek some guidance with my undergrad college's gynecology wing, but they did not really understand and told me to use dilators.

In March of this year, I finally started getting treatment at the Pelvic Pain Center in Louisville, KY. I've been doing weekly appointments there since the middle of May. I'm currently taking amitriptyline (25mg), baclofen (20mg x 3 a day), zovirax cream, Amitriptyline HCl/Baclofen/Gabapentin cream, and testosterone to restore my libido. I was just placed on Lyrica on Friday at my request. I have gotten better through muscle work with the nurse practitioner, but the vulvodynia/nerve pain is not. My doctor and nurse practitioner have both recommended that I get a vestibulectomy. I'm mostly wondering what happens next after you have it and it doesn't work. Do you use botox for the rest of your life? Meds? None of those sound appealing and nerve blocks don't even work on me. I only have pain with penetration of any kind, but it has still affected my life in a negative way. I wish my sex life was not defined by these problems.

Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 34
Location : Kentucky

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Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic Empty Re: Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Alana3 Tue Sep 17, 2013 6:13 am

First I lived in Lexington for 4 years! I had a vestibulectomy and can have sex with absolutely no problems and never had botox. Just pt. Not on any meds either in my case ir worked for me and I'm glad I went thru with it but everyone is different. Let me know if you have any questions about it really worth it in my opinion! Smile

Alana3

Posts : 1093
Join date : 2012-09-25

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