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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Bartholin's cyst surgery?

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Bartholin's cyst surgery?

Post  jenn31 on Mon Sep 30, 2013 11:28 pm

Hi ladies!

Wow, it's been a while since I've been on here, hope you are all hanging in there! The good news is that after my vestibulectomy, I am almost 100% pain free!!! That is truly wonderful. Bad news, my stupid surgeon messed up and covered my Bartholin's glands, and I've now developed two big Bartholins cysts. I went to Alana's awesome GYN, and he said my best option is removal of the cysts and both Bartholins glands. Now I'm terrified for a number of reasons. One, I won't be able to get lubricated anymore after the glands are removed. Two, this surgery has a high risk of complications, and pain is the biggest one!! A lot of women develop scar tissue that causes pain with sex. The whole reason I had a vestibulectomy was so that some day I could have pain free sex! I feel really depressed and devastated, like this is a cruel joke. Have any of you ladies had Bartholins cysts? Can you advise me? Thank you!

Jenn

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Re: Bartholin's cyst surgery?

Post  Alana3 on Mon Sep 30, 2013 11:47 pm

Text me

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Re: Bartholin's cyst surgery?

Post  mary jane on Sun Oct 06, 2013 3:18 pm

MY VULVODYNIA WAS CAUSED BY BARTHOLIN CYSTS !
don't do the surgery !!!!!!!!!!!!!!!!
if done wrong, you could suffer from pundendal neuralgia for the rest of your life.
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Re: Bartholin's cyst surgery?

Post  jenn31 on Mon Oct 07, 2013 9:00 pm

Hi Mary Jane,

Oh my gosh, could you tell me what happened? I am really scared because I don't know of other alternatives, my cysts are getting big and causing muscle pain. Did you have yours drained, or the entire gland removed?? What happened?? Did they make a mistake?? Please get back to me!

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Re: Bartholin's cyst surgery?

Post  mary jane on Tue Oct 08, 2013 4:50 pm

lubrication isn't the issue here, you could buy an advanced formula lubricant for post-menopausal women.
Ask you doctor about nerve damage after this surgery. If the doctor is not careful, he/she may leave you in chronic pain for life.
Where do you live? there is an expert doctor in London for this type of surgery.
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Re: Bartholin's cyst surgery?

Post  mary jane on Tue Oct 08, 2013 4:51 pm

I had mine lanced 4 times, and now I have nerve pain after the latest cyst which ruptured on its own.
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Re: Bartholin's cyst surgery?

Post  jenn31 on Tue Oct 08, 2013 9:08 pm

Hi Mary Jane,

Thanks for the reply. I live in Orlando, Florida, and have a good GYN. It is scary, because I've read so many bad things about this cyst stuff, but I don't have a lot of alternatives. Mine are growing bigger, and causing me muscle pain. So yours were all drained, but you didn't have the gland removed? Did they use a catheter after draining? Yes, I am definitely going over all my concerns with my GYN.


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Re: Bartholin's cyst surgery?

Post  mary jane on Tue Oct 08, 2013 9:56 pm

I didn't remove the gland because I simply did not trust the doctors who offered it to me. I only had a catheter placed in once, but it just delayed my healing time.
You need someone with a lot of experience and who actually wants to do this the right way and have patience, because this is basically MICRO SURGERY we are talking about.
This gland from hell has ramifications like nobody's business !

I am so sorry to hear you have BOTH glands turned into cysts, I only have one but my god, does it hurt !

Maybe I sounded paranoid in my first post, now that I look at it again. My illness is making me irrational sometimes, because of despair.
Actually, if you do pelvic floor therapy after the surgery, you have a better chance at pain-free intercourse.

Also, please let us girls know how it went for you.

I really hope you get well, no one deserves to suffer with this.

karma
xxx
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Re: Bartholin's cyst surgery?

Post  jenn31 on Thu Oct 10, 2013 9:45 pm

I'm really sorry you are dealing with so much pain. Did your cyst ever come back after rupturing? It just feels like such a vicious cycle here, because if I don't get the gland removed they say the cyst will just come back over and over. I really don't know what to do, and it is painful! Crying or Very sad 

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Re: Bartholin's cyst surgery?

Post  mary jane on Thu Oct 10, 2013 10:05 pm

yes, once you get a cyst, they always come back. I used to have them once a year.
but this last one might have been infected, and when it ruptured it might have set the gland on fire...nerve pain resulted fromthe ifnection. .... I DON'T EVEN KNOW ANYMORE what I have, I'm not even sure it's vuvldynia.
Bascially, my BARTHOLIN GLAND HURTS. I have non stop PULSATING of my right vulva and when I walk I feel a cyst/lump there which does not exist ! I have zero inflammation on the outside, zero burning, no yeast no itchiness.
MY GLAND HURTS, maybe it's atrophying, god knows what.
I'm currently keeping my pain level under control with Naproxen. I take no other drug. (my pain is a constant 3/10)

I REALLY FEEL for you girls, no one deserves this type of debilitating pain and discomfort.

I never had the surgery because I feared nerve damage and dyspareunia.
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Re: Bartholin's cyst surgery?

Post  mary jane on Thu Oct 10, 2013 10:08 pm

However, if you get a doctor which has done this surgery a lot of times, you should be alright.
Careful if you do get the surgery, you will recover in a few month's time, and after that I suggest you try pelvic floor therapy for the scar tissue.
Also, please buy HEALGEL or something similar. And be very patient.

I really wish you all the best if you go ahead with this!
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Re: Bartholin's cyst surgery?

Post  jenn31 on Fri Oct 11, 2013 7:41 pm

Hi Mary Jane,

Thank you so much for sharing, and I'm so sorry about everything you've been through. I know this might not be good, but if they removed the gland, I'm wondering if it would help your pain? Maybe the gland itself is infected and needs to come out? So sorry, I am not sure if that would help or make it worse. Ughhhh I hate dealing with these stupid cysts! Did you ever have two, or was it always the same side?

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Re: Bartholin's cyst surgery?

Post  mary jane on Fri Oct 11, 2013 8:44 pm

I will discuss this option with my doctor, I'm 100% sure it's the gland that's causing me pain, it feels inflamed, and there is a direct correlation between inflammation and nerve pain. And I clearly see in the mirror it's 5% more swollen and red comparing to the other one, but the doctor did not agree with me (crazy).
I am becoming so obsessed with my illness it's all I can think about. I want the gland out
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Re: Bartholin's cyst surgery?

Post  mary jane on Fri Oct 11, 2013 8:47 pm

mine was always on the same side.
At 19 years old, I went to a chlorinated swimming pool with really cold water. Next thing I know, 1 week later I have a cyst.
I used to get them once a year. Honestly, I would rather have recurring cysts every year than this aching pulsating pain.
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Re: Bartholin's cyst surgery?

Post  jenn31 on Tue Oct 15, 2013 4:15 pm

I know surgery is really scary, but it might help to have the gland out. I also read that pelvic rehabilitative therapy helps after you heal, which keeps the scar tissue from getting bad. Might be worth it! I go to PT, and it has really helped my pain. Hoping you feel better!

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Re: Bartholin's cyst surgery?

Post  mary jane on Tue Oct 15, 2013 4:23 pm

thank you, I am currently trying to find a doc who is willing to help me with this Smile
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