Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
Log in

I forgot my password

Similar topics
Latest topics
» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Hello, newbie here

Vulvodynia Support :: New Members

Go down

Hello, newbie here

Post  EviE°Bee on Wed Oct 02, 2013 12:41 am

Hello, I'm Evie.

I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.

I'm lonely and frightened. Meds are not workin'.

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali

View user profile

Back to top Go down

Re: Hello, newbie here

Post  zarli on Wed Oct 02, 2013 1:16 am

Hi Evie,
Every time I read a post when some one says they feel frightened and alone I wish I could give them a big hug!! It is frightening at times and very lonely, Ive suffered for 6 years but have had much relief for long periods of time. You will find something that works for you. You are not alone and any time you like please feel free to contact me. Read as many posts as you can the women on here have so much great advice and treatments to try. Smile 

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: Hello, newbie here

Post  EviE°Bee on Wed Oct 02, 2013 3:24 am

Thanks so much babe. Im glad you have found relief. Muah!

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali

View user profile

Back to top Go down

Re: Hello, newbie here

Post  tinkerbelle2 on Thu Oct 03, 2013 2:30 pm

EviE°Bee wrote:Hello, I'm Evie.

I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.

I'm lonely and frightened. Meds are not workin'.
Hi Evie.

You have had this a long time! Poor you Sad *Hugs*

I was also on Gabapentin 300mg but had to come off it as it was making me nauseous and giving me headaches! I was on it for about 3 months then gave up as it wasn't doing a thing.

I am lonely and frightened too. Even my mum, who is a nurse and has been very supportive, sometimes doesn't understand how bad this is and thinks i'm being dramatic!

There are still many options to try so don't despair! Are you in the UK/US/ elsewhere?
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Hello, newbie here

Post  EviE°Bee on Thu Oct 03, 2013 3:16 pm

Im in the US, California. The Gaba i starting to give mw headaches too. I wanted to try Lyrica but My insurance does not cover it. I'm kinda confused on what Meds to try, and kinda worried about long term effects.

It sucks to not have anyone to relate to. I don't know anyone who has VV personally. My mom, my sisters, friends.... they dont know what to say, unable to relate.

Poor babe, your mom may be frustrated because she can't help you. I wouldn't wish this on anyone.

::hugs:: back at ya babe.

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali

View user profile

Back to top Go down

Try Lyrica

Post  Donna84 on Thu Oct 03, 2013 9:35 pm

Try Lyrica, try to buy it somehow...it helped me! And the dose of 75mg only! So, it will not hurt to try. I never tried gabapentin, but Lyrica gave me no side effects at all...so... Smile I really hope this med can help other women as it helped me.

Donna84

Posts : 3
Join date : 2013-10-03

View user profile

Back to top Go down

Re: Hello, newbie here

Post  tinkerbelle2 on Wed Oct 09, 2013 7:46 am


Hey evie, how you getting on? I agree that you should try lyrica, it seems to help a lot of women.
Hope you're okay lovely! Xx

avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Hello, newbie here

Post  EviE°Bee on Wed Oct 09, 2013 9:44 pm

Hey TiNk, I'm always up and down emotionally, some days positive, some days negative. I will definitely look into getting my hands on some Lyrica.

How are you doing babes?

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali

View user profile

Back to top Go down

Re: Hello, newbie here

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

Vulvodynia Support :: New Members

 
Permissions in this forum:
You cannot reply to topics in this forum