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Just Diagnosed with Vulvadynia
Tue Aug 02, 2016 9:11 pm by CherryTree23
Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …
Comments: 7
Vulvadynia
Fri Jul 21, 2017 11:53 pm by Linda Williams
I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …
Comments: 3
Constant pain, I want to die.
Fri Jun 02, 2017 4:29 am by Meggiemay
I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
Comments: 21
Looking for a friend IRL; LA/OC
Tue Jul 18, 2017 2:51 am by crypticcalico
Hello!
I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.
I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.
Comments: 1
Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV
Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.
As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.
I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.
I have moved on from the support world and found a career that allowed
Me to bring my …
I was a leader when there was no help, no forums etc.
As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.
I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.
I have moved on from the support world and found a career that allowed
Me to bring my …
Comments: 0
Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?
Tue Jul 04, 2017 9:01 am by Tired89
Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …
Comments: 2
Clitoris Issues
Tue Apr 28, 2015 8:17 pm by January
I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …
Comments: 1
New member
Sat Mar 18, 2017 7:37 pm by Lisa1627
Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …
Comments: 12
Hello, newbie here
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Hello, newbie here
EviE°Bee on Wed Oct 02, 2013 12:41 am
Hello, I'm Evie.
I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.
I'm lonely and frightened. Meds are not workin'.
I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.
I'm lonely and frightened. Meds are not workin'.
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 33
Location : Southern Cali 
Re: Hello, newbie here
zarli on Wed Oct 02, 2013 1:16 am
Hi Evie,
Every time I read a post when some one says they feel frightened and alone I wish I could give them a big hug!! It is frightening at times and very lonely, Ive suffered for 6 years but have had much relief for long periods of time. You will find something that works for you. You are not alone and any time you like please feel free to contact me. Read as many posts as you can the women on here have so much great advice and treatments to try.
Every time I read a post when some one says they feel frightened and alone I wish I could give them a big hug!! It is frightening at times and very lonely, Ive suffered for 6 years but have had much relief for long periods of time. You will find something that works for you. You are not alone and any time you like please feel free to contact me. Read as many posts as you can the women on here have so much great advice and treatments to try.
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia -
Re: Hello, newbie here
EviE°Bee on Wed Oct 02, 2013 3:24 am
Thanks so much babe. Im glad you have found relief. Muah!
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 33
Location : Southern Cali -
Re: Hello, newbie here
tinkerbelle2 on Thu Oct 03, 2013 2:30 pm
Hi Evie.EviE°Bee wrote:Hello, I'm Evie.
I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.
I'm lonely and frightened. Meds are not workin'.
You have had this a long time! Poor you
*Hugs*I was also on Gabapentin 300mg but had to come off it as it was making me nauseous and giving me headaches! I was on it for about 3 months then gave up as it wasn't doing a thing.
I am lonely and frightened too. Even my mum, who is a nurse and has been very supportive, sometimes doesn't understand how bad this is and thinks i'm being dramatic!
There are still many options to try so don't despair! Are you in the UK/US/ elsewhere?
tinkerbelle2- Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK. -
Re: Hello, newbie here
EviE°Bee on Thu Oct 03, 2013 3:16 pm
Im in the US, California. The Gaba i starting to give mw headaches too. I wanted to try Lyrica but My insurance does not cover it. I'm kinda confused on what Meds to try, and kinda worried about long term effects.
It sucks to not have anyone to relate to. I don't know anyone who has VV personally. My mom, my sisters, friends.... they dont know what to say, unable to relate.
Poor babe, your mom may be frustrated because she can't help you. I wouldn't wish this on anyone.
::hugs:: back at ya babe.
It sucks to not have anyone to relate to. I don't know anyone who has VV personally. My mom, my sisters, friends.... they dont know what to say, unable to relate.
Poor babe, your mom may be frustrated because she can't help you. I wouldn't wish this on anyone.
::hugs:: back at ya babe.
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 33
Location : Southern Cali -
Try Lyrica
Donna84 on Thu Oct 03, 2013 9:35 pm
Try Lyrica, try to buy it somehow...it helped me! And the dose of 75mg only! So, it will not hurt to try. I never tried gabapentin, but Lyrica gave me no side effects at all...so... I really hope this med can help other women as it helped me.
I really hope this med can help other women as it helped me.
Donna84- Posts : 3
Join date : 2013-10-03 -
Re: Hello, newbie here
tinkerbelle2 on Wed Oct 09, 2013 7:46 am
Hey evie, how you getting on? I agree that you should try lyrica, it seems to help a lot of women.
Hope you're okay lovely! Xx
tinkerbelle2- Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK. -
Re: Hello, newbie here
EviE°Bee on Wed Oct 09, 2013 9:44 pm
Hey TiNk, I'm always up and down emotionally, some days positive, some days negative. I will definitely look into getting my hands on some Lyrica.
How are you doing babes?
How are you doing babes?
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 33
Location : Southern Cali -
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» Sorry....newbie here
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» Vulvadynia
» Constant pain, I want to die.
» What is Vulvodynia?
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» Owner of vulvodyniSuppoet.com
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