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I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Mar 09, 2018 6:17 pm by Tunes25
Hello!
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
Comments: 4
I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Mon Mar 12, 2018 4:33 pm by totallycured
Hi,
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Comments: 3
Hi Im from Australia :)
Sat Jan 08, 2011 1:08 am by emma
Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
Comments: 35
Somebody please help me...
Fri Nov 24, 2017 8:05 am by Andlag
Hey everyone,
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
Comments: 14
Lidocaine with condoms?
Wed Mar 21, 2018 10:44 pm by AEM1
Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks!
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …
Comments: 1
Constant pain, I want to die.
Fri Jun 02, 2017 4:29 am by Meggiemay
I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
Comments: 23
Recently Diagnosed which has motivated my research study
Tue Mar 06, 2018 4:54 pm by ebclose2free
Hi everyone,
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
Comments: 0
MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering
Dear all,
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Comments: 3
New and desperate for advice
Sat Mar 03, 2018 2:37 pm by srbry
Hi everyone,
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
Comments: 3
Hello, newbie here
Page 1 of 1 • Share •
Hello, newbie here
Hello, I'm Evie.
I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.
I'm lonely and frightened. Meds are not workin'.
I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.
I'm lonely and frightened. Meds are not workin'.
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali
Re: Hello, newbie here
Hi Evie,
Every time I read a post when some one says they feel frightened and alone I wish I could give them a big hug!! It is frightening at times and very lonely, Ive suffered for 6 years but have had much relief for long periods of time. You will find something that works for you. You are not alone and any time you like please feel free to contact me. Read as many posts as you can the women on here have so much great advice and treatments to try.
Every time I read a post when some one says they feel frightened and alone I wish I could give them a big hug!! It is frightening at times and very lonely, Ive suffered for 6 years but have had much relief for long periods of time. You will find something that works for you. You are not alone and any time you like please feel free to contact me. Read as many posts as you can the women on here have so much great advice and treatments to try.

zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Re: Hello, newbie here
Thanks so much babe. Im glad you have found relief. Muah!
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali
Re: Hello, newbie here
Hi Evie.EviE°Bee wrote:Hello, I'm Evie.
I was diagnosed a couple months ago, pain originally started in 2008. Currently taking Gabapenton 300mg.
I'm lonely and frightened. Meds are not workin'.
You have had this a long time! Poor you

I was also on Gabapentin 300mg but had to come off it as it was making me nauseous and giving me headaches! I was on it for about 3 months then gave up as it wasn't doing a thing.
I am lonely and frightened too. Even my mum, who is a nurse and has been very supportive, sometimes doesn't understand how bad this is and thinks i'm being dramatic!
There are still many options to try so don't despair! Are you in the UK/US/ elsewhere?
tinkerbelle2- Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.
Re: Hello, newbie here
Im in the US, California. The Gaba i starting to give mw headaches too. I wanted to try Lyrica but My insurance does not cover it. I'm kinda confused on what Meds to try, and kinda worried about long term effects.
It sucks to not have anyone to relate to. I don't know anyone who has VV personally. My mom, my sisters, friends.... they dont know what to say, unable to relate.
Poor babe, your mom may be frustrated because she can't help you. I wouldn't wish this on anyone.
::hugs:: back at ya babe.
It sucks to not have anyone to relate to. I don't know anyone who has VV personally. My mom, my sisters, friends.... they dont know what to say, unable to relate.
Poor babe, your mom may be frustrated because she can't help you. I wouldn't wish this on anyone.
::hugs:: back at ya babe.
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali
Try Lyrica
Try Lyrica, try to buy it somehow...it helped me! And the dose of 75mg only! So, it will not hurt to try. I never tried gabapentin, but Lyrica gave me no side effects at all...so...
I really hope this med can help other women as it helped me.

Donna84- Posts : 3
Join date : 2013-10-03
Re: Hello, newbie here
Hey evie, how you getting on? I agree that you should try lyrica, it seems to help a lot of women.
Hope you're okay lovely! Xx
tinkerbelle2- Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.
Re: Hello, newbie here
Hey TiNk, I'm always up and down emotionally, some days positive, some days negative. I will definitely look into getting my hands on some Lyrica.
How are you doing babes?
How are you doing babes?
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali

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» Newbie from Newcastle region
» Hello, Newbie reporting to Guard Room !
» Newbie to site not shore what doctor to use!
» Day 19 - Too early for body combat? Body pump?
» Newbie from Newcastle region
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» HELP!! Topical cream?
» Please tell me this can get better
» Pressure to have sex.
» Vulvodynia and other neurological diseases?
» I'M NEW - Do I listen to my gyno who I feel has it wrong?
» I wanted to share a resource that has made a huge difference for me
» Loneliness
» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone