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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Can you guys tell me your experiences with diflucan/Fluconazole?

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Can you guys tell me your experiences with diflucan/Fluconazole?

Post  mushroomvisionlala on Thu Oct 03, 2013 3:52 am

I was just wondering what you guys experiences were with the anti yeast pink pill Diflucan (Dosage, for how long)..as I was googling and researching on various healthboards and womens chatrooms about their chronic yeast infections and a few of them were on long term Diflucan, and did a dosage like mine to cure their vaginal infections. Some of them were even on maintenance doses for months, etc..this is a candida problem. Oral thrush requires long and strong treatments of Diflucan, even 150mg TWICE a day, everyday, for weeks at a time.

I was on mine (150mg, one pill every day for 3 weeks) but usually they only prescribe like 1 or 3 pills at a time for most people, and thats it. and if that doesnt work for you, your resistant...??
Ofcourse, I cured myself of my own initiative. No Doctor was gonna help me. But the medicine did.

What Im saying is. As part of this healing process. Im pretty f%^$#@! angry/ticked off! that I spent YEARS of my life, suffering with a chronic ONGOING yeast infection that could have been cured, had a doctor CARED or was educated enough to prescribe the proper treatment, or atleast tried to ATTEMPT to cure my problem before giving me a Death sentence diagnoses, or why didnt it dawn on me sooner, same with the Flagyl. You wont meet too many doctors, that will even try to give you a higher than normal dosage if your problem is severe or chronic. Why??

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  Sarah001 on Thu Oct 03, 2013 9:14 pm

I'm not sure where you live but here in the UK you can buy Fluconazole tablets online for about £1.25 which is what I do rather than go to the doctors. Have to say I haven't tried the longterm approach as I'm sure that isn't my issue but if I need one I just buy whatever I want online. I seem to think there are a few women who have tried it, can't remember who but I'm sure if you search you'll find their posts.
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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  Alana3 on Thu Oct 03, 2013 9:29 pm

I did it, but it came right back, so I realized it was the probiotic I was taking that caused the yeast, I was doing process and elimination and that's the only thing that I stopped taking (totally by accident went on vacation) and was fine! So you can try it and it might work for you, but for me, it was just something I was taking that created it for a few years and that's about the time I started taking the probiotic. So annoying!

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Is Diflucan the answer?

Post  RainyShay77 on Wed Dec 06, 2017 2:37 am

I've been dealing with vulvodynia for 7 years. They've tried everything. The past 18 months they've tried me on medications to target nerve pain. None of it has helped. The only relief I ever get is when I have to take Diflucan. I mentioned this to my doctor a few years ago and we did daily Diflucan for 2 weeks (along with a strict anti-Candida diet) and then backed it down to once a week. A week after backing it down the symptoms would return. We repeated this three times. Each time I would have 90% improvement until about a week after the last daily dose. I spoke with one doctor and she told me Diflucan has anti-inflammatory properties, but I honestly wonder if it is all somehow yeast related. Nothing else (other than some IV steroids about a year after it began) has helped at all.

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  ryn207 on Tue Jan 16, 2018 1:29 am

I currently take one per week to prevent yeast infections since an ointment I'm on for this tends to cause them. I haven't noticed my days following it being much better. Is there any issue with taking Diflucan long term?

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  RainyShay77 on Thu Jan 18, 2018 3:07 pm

It has the potential to cause liver damage. As long as your doctor does regular blood work to check for it I don't think it is an issue.

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  Guest on Sat Jul 28, 2018 6:22 am


Ladies!!!
I am trying to get the word OUT!!! 20 years of “vulvadynia”, ic, vestibulitis. Whatever the docs want to calll it. It’s been beyond depressing and has made me feel downright crazy at times. Incredibly painful, living in silent pain, going to doctor after doctor just to hear that “my mind is causing my vestibular area to flare up”.
PLEASE INSIST ON GETTING TESTED FOR A MICROORGANISM BACTERIA CALLED UREAPLASMA!!!!!!!!!!!!!!!!!
It’s a VERY hard bacteria to find!! Does NOT show up in urine cultures!! There’s a very specific test to find it and you MUST insist on being tested!!!! PLEASE BELIEVE ME!!! After 20 years of this craziness I FINALLY was diagnosed with this bacterial uti and THIS is what has caused the vulvadynia!!!
Doctors don’t even know about this. My new primary care tested me after showing up with a Walgreens uti rest showing positive leukocytes. The urine culture came back negative as usual. She had a sad talk with me about vulvadynia.
I don’t know what came over her to send the urine off to a lab and get it checked for ureaplasma, but she did. I am SO grateful. I am FINALLY HEALING quickly!!
Ueraplasma only responds to certain antibiotics. I’m on doxycycline. 14 days and it may take several rounds. This is a serious bacteria and it can kill you.
Some doctors will dismiss this test and bacteria and say it’s part of our flora. NO-INSIST. If it shows up as an infection because it’s colonized, it IS the cause of vulvadynia.
GET TO THE BOTTOM OF THIS VULVADYNIA LADIES!!! DO NOT BACK DOWN!! FIND A DOC WHO WILL TEST YOU for UREAPLASMA!!! DO NOT WASTE 20 YEARS OF YOUR LIFE GOING THROUGH THIS HELL LIKE I DID.
I’ve been through biofeedback, neurontin, creams, specialist after specialist.
I’ve found small handful of other ladies on the internet who have posted the SAME about their ureaplasma diagnosis. They are doing cartwheels like I am!!!
I am really trying to get to word out!!! I promise you ladies!!!! There is a CURE!!!
DO NOT GIVE UP!!!!! I will reply to every woman with vulvadynia in every forum for the rest of my life until I get this out !!!

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  Guest on Tue Aug 07, 2018 6:01 am

I give up. Uteaplasma infection has been cleared up and I’m as inflamed as ever. I do not understand how we’ve been dealt this sick lonely awful disorder. Any help would be appreciated

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Diflucan

Post  flower74 on Wed Aug 29, 2018 5:45 pm

I know this is an old post but I wanted to add to the information here.

All of my problems started after 12 days of Flagyl. I have had constant burning, stinging, and rawness around the entrance to my vagina. I have been tested numerous times for UTIs, STDs, BV, and Yeast and tests are always negative.

Over the course of the last 9 months I have taken Diflucan three times and EVERY SINGLE time all of my symptoms resolved. All of the burning, swelling and discomfort went always within 12-24 hours followed by 2 weeks of bliss and normalcy and then all of the symptoms return.

I've never tested positive for yeast. I wish whatever was in Diflucan that is so magical could be made into it's own pill without the anti-fungal.

Of course there is also the possibility that I do have yeast that comes and goes and it's just never been caught. My symptoms are always worst in the latter half of my cycle and I have never been tested for yeast.

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  aspaceodyssey on Wed Aug 29, 2018 6:40 pm

flower74 wrote:I know this is an old post but I wanted to add to the information here.

All of my problems started after 12 days of Flagyl. I have had constant burning, stinging, and rawness around the entrance to my vagina. I have been tested numerous times for UTIs, STDs, BV, and Yeast and tests are always negative.

Over the course of the last 9 months I have taken Diflucan three times and EVERY SINGLE time all of my symptoms resolved. All of the burning, swelling and discomfort went always within 12-24 hours followed by 2 weeks of bliss and normalcy and then all of the symptoms return.

I've never tested positive for yeast. I wish whatever was in Diflucan that is so magical could be made into it's own pill without the anti-fungal.

Of course there is also the possibility that I do have yeast that comes and goes and it's just never been caught. My symptoms are always worst in the latter half of my cycle and I have never been tested for yeast.

very likely that it IS yeast, especially if it all started after a round of flagyl. yeast cultures can definitely be inaccurate for whatever reason. once I had a severe, highly uncomfortable yeast infection (also precipitated by antibiotic use) that lasted way longer than it should have because my doctor kept telling me my yeast cultures were negative and it couldn't be that. finally broke down and just tried a yeast kit in desperation and what do you know? huge improvement in symptoms. and as time passed I've pieced together that I do have a problem with chronic yeast which lifestyle changes (diet, supplementation, etc.) has helped immensely. I have learned to trust my own experience, conclusions, and ability to trial and error more than doctors' because sadly, it just seems they're so off base so much of the time, and even the seemingly most straightforward tests can't always be trusted.

if you're having recurring symptoms you think could be yeast, try cutting way back on sugar, eating more probiotic and whole foods and supplementing with probiotics, and using raw organic coconut oil internally and topically. if you notice a significant improvement then it is most definitely yeast.

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

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