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Yesterday at 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Can you guys tell me your experiences with diflucan/Fluconazole?

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Can you guys tell me your experiences with diflucan/Fluconazole?

Post  mushroomvisionlala on Thu Oct 03, 2013 3:52 am

I was just wondering what you guys experiences were with the anti yeast pink pill Diflucan (Dosage, for how long)..as I was googling and researching on various healthboards and womens chatrooms about their chronic yeast infections and a few of them were on long term Diflucan, and did a dosage like mine to cure their vaginal infections. Some of them were even on maintenance doses for months, etc..this is a candida problem. Oral thrush requires long and strong treatments of Diflucan, even 150mg TWICE a day, everyday, for weeks at a time.

I was on mine (150mg, one pill every day for 3 weeks) but usually they only prescribe like 1 or 3 pills at a time for most people, and thats it. and if that doesnt work for you, your resistant...??
Ofcourse, I cured myself of my own initiative. No Doctor was gonna help me. But the medicine did.

What Im saying is. As part of this healing process. Im pretty f%^$#@! angry/ticked off! that I spent YEARS of my life, suffering with a chronic ONGOING yeast infection that could have been cured, had a doctor CARED or was educated enough to prescribe the proper treatment, or atleast tried to ATTEMPT to cure my problem before giving me a Death sentence diagnoses, or why didnt it dawn on me sooner, same with the Flagyl. You wont meet too many doctors, that will even try to give you a higher than normal dosage if your problem is severe or chronic. Why??


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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  Sarah001 on Thu Oct 03, 2013 9:14 pm

I'm not sure where you live but here in the UK you can buy Fluconazole tablets online for about £1.25 which is what I do rather than go to the doctors. Have to say I haven't tried the longterm approach as I'm sure that isn't my issue but if I need one I just buy whatever I want online. I seem to think there are a few women who have tried it, can't remember who but I'm sure if you search you'll find their posts.

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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  Alana3 on Thu Oct 03, 2013 9:29 pm

I did it, but it came right back, so I realized it was the probiotic I was taking that caused the yeast, I was doing process and elimination and that's the only thing that I stopped taking (totally by accident went on vacation) and was fine! So you can try it and it might work for you, but for me, it was just something I was taking that created it for a few years and that's about the time I started taking the probiotic. So annoying!


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Is Diflucan the answer?

Post  RainyShay77 on Wed Dec 06, 2017 2:37 am

I've been dealing with vulvodynia for 7 years. They've tried everything. The past 18 months they've tried me on medications to target nerve pain. None of it has helped. The only relief I ever get is when I have to take Diflucan. I mentioned this to my doctor a few years ago and we did daily Diflucan for 2 weeks (along with a strict anti-Candida diet) and then backed it down to once a week. A week after backing it down the symptoms would return. We repeated this three times. Each time I would have 90% improvement until about a week after the last daily dose. I spoke with one doctor and she told me Diflucan has anti-inflammatory properties, but I honestly wonder if it is all somehow yeast related. Nothing else (other than some IV steroids about a year after it began) has helped at all.


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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  ryn207 on Tue Jan 16, 2018 1:29 am

I currently take one per week to prevent yeast infections since an ointment I'm on for this tends to cause them. I haven't noticed my days following it being much better. Is there any issue with taking Diflucan long term?


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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

Post  RainyShay77 on Thu Jan 18, 2018 3:07 pm

It has the potential to cause liver damage. As long as your doctor does regular blood work to check for it I don't think it is an issue.


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Re: Can you guys tell me your experiences with diflucan/Fluconazole?

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