Vulvodynia Support
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» Hope to all my suffering ladies
Can you guys tell me your experiences with diflucan/Fluconazole? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Can you guys tell me your experiences with diflucan/Fluconazole? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Can you guys tell me your experiences with diflucan/Fluconazole? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Can you guys tell me your experiences with diflucan/Fluconazole? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Can you guys tell me your experiences with diflucan/Fluconazole? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Can you guys tell me your experiences with diflucan/Fluconazole? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Can you guys tell me your experiences with diflucan/Fluconazole? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Can you guys tell me your experiences with diflucan/Fluconazole? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Can you guys tell me your experiences with diflucan/Fluconazole? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Can you guys tell me your experiences with diflucan/Fluconazole?

+3
Alana3
Sarah001
mushroomvisionlala
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Can you guys tell me your experiences with diflucan/Fluconazole? Empty Can you guys tell me your experiences with diflucan/Fluconazole?

Post  mushroomvisionlala Thu Oct 03, 2013 3:52 am

I was just wondering what you guys experiences were with the anti yeast pink pill Diflucan (Dosage, for how long)..as I was googling and researching on various healthboards and womens chatrooms about their chronic yeast infections and a few of them were on long term Diflucan, and did a dosage like mine to cure their vaginal infections. Some of them were even on maintenance doses for months, etc..this is a candida problem. Oral thrush requires long and strong treatments of Diflucan, even 150mg TWICE a day, everyday, for weeks at a time.

I was on mine (150mg, one pill every day for 3 weeks) but usually they only prescribe like 1 or 3 pills at a time for most people, and thats it. and if that doesnt work for you, your resistant...??
Ofcourse, I cured myself of my own initiative. No Doctor was gonna help me. But the medicine did.

What Im saying is. As part of this healing process. Im pretty f%^$#@! angry/ticked off! that I spent YEARS of my life, suffering with a chronic ONGOING yeast infection that could have been cured, had a doctor CARED or was educated enough to prescribe the proper treatment, or atleast tried to ATTEMPT to cure my problem before giving me a Death sentence diagnoses, or why didnt it dawn on me sooner, same with the Flagyl. You wont meet too many doctors, that will even try to give you a higher than normal dosage if your problem is severe or chronic. Why??

mushroomvisionlala

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Post  Sarah001 Thu Oct 03, 2013 9:14 pm

I'm not sure where you live but here in the UK you can buy Fluconazole tablets online for about £1.25 which is what I do rather than go to the doctors. Have to say I haven't tried the longterm approach as I'm sure that isn't my issue but if I need one I just buy whatever I want online. I seem to think there are a few women who have tried it, can't remember who but I'm sure if you search you'll find their posts.
Sarah001
Sarah001

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Post  Alana3 Thu Oct 03, 2013 9:29 pm

I did it, but it came right back, so I realized it was the probiotic I was taking that caused the yeast, I was doing process and elimination and that's the only thing that I stopped taking (totally by accident went on vacation) and was fine! So you can try it and it might work for you, but for me, it was just something I was taking that created it for a few years and that's about the time I started taking the probiotic. So annoying!

Alana3

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Can you guys tell me your experiences with diflucan/Fluconazole? Empty Is Diflucan the answer?

Post  RainyShay77 Wed Dec 06, 2017 2:37 am

I've been dealing with vulvodynia for 7 years. They've tried everything. The past 18 months they've tried me on medications to target nerve pain. None of it has helped. The only relief I ever get is when I have to take Diflucan. I mentioned this to my doctor a few years ago and we did daily Diflucan for 2 weeks (along with a strict anti-Candida diet) and then backed it down to once a week. A week after backing it down the symptoms would return. We repeated this three times. Each time I would have 90% improvement until about a week after the last daily dose. I spoke with one doctor and she told me Diflucan has anti-inflammatory properties, but I honestly wonder if it is all somehow yeast related. Nothing else (other than some IV steroids about a year after it began) has helped at all.

RainyShay77

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Post  ryn207 Tue Jan 16, 2018 1:29 am

I currently take one per week to prevent yeast infections since an ointment I'm on for this tends to cause them. I haven't noticed my days following it being much better. Is there any issue with taking Diflucan long term?

ryn207

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Post  RainyShay77 Thu Jan 18, 2018 3:07 pm

It has the potential to cause liver damage. As long as your doctor does regular blood work to check for it I don't think it is an issue.

RainyShay77

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Post  Guest Sat Jul 28, 2018 6:22 am


Ladies!!!
I am trying to get the word OUT!!! 20 years of “vulvadynia”, ic, vestibulitis. Whatever the docs want to calll it. It’s been beyond depressing and has made me feel downright crazy at times. Incredibly painful, living in silent pain, going to doctor after doctor just to hear that “my mind is causing my vestibular area to flare up”.
PLEASE INSIST ON GETTING TESTED FOR A MICROORGANISM BACTERIA CALLED UREAPLASMA!!!!!!!!!!!!!!!!!
It’s a VERY hard bacteria to find!! Does NOT show up in urine cultures!! There’s a very specific test to find it and you MUST insist on being tested!!!! PLEASE BELIEVE ME!!! After 20 years of this craziness I FINALLY was diagnosed with this bacterial uti and THIS is what has caused the vulvadynia!!!
Doctors don’t even know about this. My new primary care tested me after showing up with a Walgreens uti rest showing positive leukocytes. The urine culture came back negative as usual. She had a sad talk with me about vulvadynia.
I don’t know what came over her to send the urine off to a lab and get it checked for ureaplasma, but she did. I am SO grateful. I am FINALLY HEALING quickly!!
Ueraplasma only responds to certain antibiotics. I’m on doxycycline. 14 days and it may take several rounds. This is a serious bacteria and it can kill you.
Some doctors will dismiss this test and bacteria and say it’s part of our flora. NO-INSIST. If it shows up as an infection because it’s colonized, it IS the cause of vulvadynia.
GET TO THE BOTTOM OF THIS VULVADYNIA LADIES!!! DO NOT BACK DOWN!! FIND A DOC WHO WILL TEST YOU for UREAPLASMA!!! DO NOT WASTE 20 YEARS OF YOUR LIFE GOING THROUGH THIS HELL LIKE I DID.
I’ve been through biofeedback, neurontin, creams, specialist after specialist.
I’ve found small handful of other ladies on the internet who have posted the SAME about their ureaplasma diagnosis. They are doing cartwheels like I am!!!
I am really trying to get to word out!!! I promise you ladies!!!! There is a CURE!!!
DO NOT GIVE UP!!!!! I will reply to every woman with vulvadynia in every forum for the rest of my life until I get this out !!!

Guest
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Post  Guest Tue Aug 07, 2018 6:01 am

I give up. Uteaplasma infection has been cleared up and I’m as inflamed as ever. I do not understand how we’ve been dealt this sick lonely awful disorder. Any help would be appreciated

Guest
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Can you guys tell me your experiences with diflucan/Fluconazole? Empty Diflucan

Post  flower74 Wed Aug 29, 2018 5:45 pm

I know this is an old post but I wanted to add to the information here.

All of my problems started after 12 days of Flagyl. I have had constant burning, stinging, and rawness around the entrance to my vagina. I have been tested numerous times for UTIs, STDs, BV, and Yeast and tests are always negative.

Over the course of the last 9 months I have taken Diflucan three times and EVERY SINGLE time all of my symptoms resolved. All of the burning, swelling and discomfort went always within 12-24 hours followed by 2 weeks of bliss and normalcy and then all of the symptoms return.

I've never tested positive for yeast. I wish whatever was in Diflucan that is so magical could be made into it's own pill without the anti-fungal.

Of course there is also the possibility that I do have yeast that comes and goes and it's just never been caught. My symptoms are always worst in the latter half of my cycle and I have never been tested for yeast.

flower74

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Post  aspaceodyssey Wed Aug 29, 2018 6:40 pm

flower74 wrote:I know this is an old post but I wanted to add to the information here.

All of my problems started after 12 days of Flagyl. I have had constant burning, stinging, and rawness around the entrance to my vagina. I have been tested numerous times for UTIs, STDs, BV, and Yeast and tests are always negative.

Over the course of the last 9 months I have taken Diflucan three times and EVERY SINGLE time all of my symptoms resolved. All of the burning, swelling and discomfort went always within 12-24 hours followed by 2 weeks of bliss and normalcy and then all of the symptoms return.

I've never tested positive for yeast. I wish whatever was in Diflucan that is so magical could be made into it's own pill without the anti-fungal.

Of course there is also the possibility that I do have yeast that comes and goes and it's just never been caught. My symptoms are always worst in the latter half of my cycle and I have never been tested for yeast.

very likely that it IS yeast, especially if it all started after a round of flagyl. yeast cultures can definitely be inaccurate for whatever reason. once I had a severe, highly uncomfortable yeast infection (also precipitated by antibiotic use) that lasted way longer than it should have because my doctor kept telling me my yeast cultures were negative and it couldn't be that. finally broke down and just tried a yeast kit in desperation and what do you know? huge improvement in symptoms. and as time passed I've pieced together that I do have a problem with chronic yeast which lifestyle changes (diet, supplementation, etc.) has helped immensely. I have learned to trust my own experience, conclusions, and ability to trial and error more than doctors' because sadly, it just seems they're so off base so much of the time, and even the seemingly most straightforward tests can't always be trusted.

if you're having recurring symptoms you think could be yeast, try cutting way back on sugar, eating more probiotic and whole foods and supplementing with probiotics, and using raw organic coconut oil internally and topically. if you notice a significant improvement then it is most definitely yeast.

aspaceodyssey

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