Vulvodynia Support
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» Hope to all my suffering ladies
Could it be? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Could it be? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Could it be? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Could it be? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Could it be? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Could it be? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Could it be? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Could it be? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Could it be? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Could it be?

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Post  quell183 Thu Oct 03, 2013 4:06 am

So I've posted a topic before asking if anyoine felt the same way i did, as in the symptoms i have been having but im not sure. Im thinking maybe this could be a really bad yeast infection or something? Ive never had one so i don't really know what they are like, so maybe you can help me out?
I have a burning feeling on the left side of my vagina, i would say its like a really hot feeling inside. At my last appointment the dr said he saw discharge when he inserted the speculum (isnt discharge normal?)He did a culture and nothing showed up. I do get discharge, sometimes its really runny like water and other times its a lot thicker and kind of white. My vagina does not itch or smell or anything and i was told there was a little tiny cut at the entrance and the q tip test showed i was very sensitive in a particular area.I had gotten meds before but they didnt help. Im thinking maybe its a stubborn infection that maybe didnt show up in the cultures because i read stories on here about women who have discovered its just a bad infection. The only thing that makes me think it is something else is the fact that it is only on 1 side.
This first happened may 2013 so 5 months ago. What do you think?

quell183

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Post  tinkerbelle2 Thu Oct 03, 2013 2:37 pm

Hi quell, that is what I am wondering too!

I have had thrush before and this feels like a worse version of that.

But then i don't get why cultures wouldn't show yeast? Ahh it's so confusing and frustrating.
Tomorrow i think i'll buy a canesten suppository and oral tablet and see if anything happens.

Belle
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Post  quell183 Thu Oct 03, 2013 7:24 pm

Yea it is very confusing. I read some women had to take very high dosages in order for it to go away, not just a one time thing. Hopefully it works for you. Let us know what happens. Good luck

quell183

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Post  Sarah001 Thu Oct 03, 2013 9:19 pm

My experience of yeast infections is they also involve itching and have a cottage cheese type discharge not just the normal milky or clear discharge. I've had loads of them and every time those symptoms have been present.
Sarah001
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Post  tinkerbelle2 Sat Oct 05, 2013 11:57 am

That is true...when I had thrush it was itchy but also was terribly sore and fiery internally.

No luck with the canesten as yet
tinkerbelle2
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Post  cupcake25 Wed Oct 09, 2013 3:39 am

Hello, quell! It's tough to say whether it's yeast or not sometimes. I'd suspect that if you had labs done and they came up negative that you don't have an infection, but you should be sure the doctor tested for different strains of yeast. The discharge you describe sounds normal, though. I learned the hard way that our body is supposed to produce discharge (I was incredibly uneducated and over medicated thinking I had an infection when I didn't). Having said all that, perhaps you are having vaginal dryness? Or it could simply be inflammation and irritation from medication- have you been trying a lot of topical creams? My pain was at its worst when I was applying anything and everything the doctors gave me.
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