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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Could it be?

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Could it be?

Post  quell183 on Thu Oct 03, 2013 4:06 am

So I've posted a topic before asking if anyoine felt the same way i did, as in the symptoms i have been having but im not sure. Im thinking maybe this could be a really bad yeast infection or something? Ive never had one so i don't really know what they are like, so maybe you can help me out?
I have a burning feeling on the left side of my vagina, i would say its like a really hot feeling inside. At my last appointment the dr said he saw discharge when he inserted the speculum (isnt discharge normal?)He did a culture and nothing showed up. I do get discharge, sometimes its really runny like water and other times its a lot thicker and kind of white. My vagina does not itch or smell or anything and i was told there was a little tiny cut at the entrance and the q tip test showed i was very sensitive in a particular area.I had gotten meds before but they didnt help. Im thinking maybe its a stubborn infection that maybe didnt show up in the cultures because i read stories on here about women who have discovered its just a bad infection. The only thing that makes me think it is something else is the fact that it is only on 1 side.
This first happened may 2013 so 5 months ago. What do you think?

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Re: Could it be?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:37 pm

Hi quell, that is what I am wondering too!

I have had thrush before and this feels like a worse version of that.

But then i don't get why cultures wouldn't show yeast? Ahh it's so confusing and frustrating.
Tomorrow i think i'll buy a canesten suppository and oral tablet and see if anything happens.

Belle
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Re: Could it be?

Post  quell183 on Thu Oct 03, 2013 7:24 pm

Yea it is very confusing. I read some women had to take very high dosages in order for it to go away, not just a one time thing. Hopefully it works for you. Let us know what happens. Good luck

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Re: Could it be?

Post  Sarah001 on Thu Oct 03, 2013 9:19 pm

My experience of yeast infections is they also involve itching and have a cottage cheese type discharge not just the normal milky or clear discharge. I've had loads of them and every time those symptoms have been present.
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Re: Could it be?

Post  tinkerbelle2 on Sat Oct 05, 2013 11:57 am

That is true...when I had thrush it was itchy but also was terribly sore and fiery internally.

No luck with the canesten as yet
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Re: Could it be?

Post  cupcake25 on Wed Oct 09, 2013 3:39 am

Hello, quell! It's tough to say whether it's yeast or not sometimes. I'd suspect that if you had labs done and they came up negative that you don't have an infection, but you should be sure the doctor tested for different strains of yeast. The discharge you describe sounds normal, though. I learned the hard way that our body is supposed to produce discharge (I was incredibly uneducated and over medicated thinking I had an infection when I didn't). Having said all that, perhaps you are having vaginal dryness? Or it could simply be inflammation and irritation from medication- have you been trying a lot of topical creams? My pain was at its worst when I was applying anything and everything the doctors gave me.
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Re: Could it be?

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