Log in

I forgot my password

Latest topics
» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


I am cured - Lyrica helped!!!

View previous topic View next topic Go down

I am cured - Lyrica helped!!!

Post  Donna84 on Thu Oct 03, 2013 9:24 pm

LYRICA HELPED!
I would like to share my story and try to help some women who also have this terrible disease. My vulvodynia started after I contracted Chlamydia from my first boyfriend, at the age of 20. I was treated for a different types of diseases, fungi, bacterial vaginosis…but there was no treatment which could help me on a long term basis. And I had a constant itching and burning. It lasted for years, with small periods of relief. But my sex life almost diminished. I did not have a firm relationship since then and did not enjoy sex, although I had it from time to time, thinking that maybe my problem is psychological and that it will go away by ignoring it. But it never did. And I forgot I am women.
At the peak of my depression, due to some other negative things which happened to me recently, I was hit by a car and was completely equivocal about will I live or die. Can you imagine that! So I decided to go to a psychiatrist. Previously I also tried this, and different tryciclic antidepressants and Tegretol, but it never gave any results concerning my vulvodynia or depression. I was sleepy, tired and still sore and itchy. This time, I did a research of my own. I talked with psychiatrist for an hour and she gave me escitalopram for depression and Lyrica (pregabalin) for vulvodynia. I started only with escitalopram. And depression went away…life gained meaning again and world was full of colors. I regained belief in people and world and hope that things will get better. But vulvodynia remained. Then I tried LYRICA. With the first pill of 75mg…it almost went away completely!!! I was so happy!!! Now I am 3 weeks on the minimum dose, no side effects and without pain!!! So try it out, nothing to lose and much to gain. I feel like a women again and look forward to sex!! Smile Keep trying and don’t lose faith! Try nerve pain medications – you have nothing to lose. I also had chronic pelvic pain which vanished with Lyrica as well!!!! I am so happy now. 

Donna84

Posts : 3
Join date : 2013-10-03

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  tinkerbelle2 on Sat Oct 05, 2013 11:59 am

Glad to hear it! What is Lyrica and how do you get hold of it?

Belle
avatar
tinkerbelle2

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Sarah001 on Sat Oct 05, 2013 12:55 pm

I take Lyrica however I'm on 450mg a day which only helps the widespread burning and not the soreness and rawness. In the UK it's also referred to as Pregabalin and it is precsribed by any doctor however it is expensive and usually here they try you on Gabapentin first as it's much cheaper. Both are anti-convulsants and used for pain of the nerve variety.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Donna84 on Sat Oct 05, 2013 4:54 pm

Sarah001 explained it very well. My doctor gave me a prescription which enabled me to get the med for free, otherwise, it is expensive in my country (East Europe) as well. Yes, it helps mostly with general burning, however, for me it was a small miracle. My never properly diagnosed pelvic pain - stopped, as well as the vulvar burning. I am very satisfied for now. But it doesn't help if I get bacterial vaginosis or a yeast infection of course, however with Lyrica, after use of proper vaginaletes, I feel healthy. Before Lyrica I used tons of medicines and nothing helped, I always had burning...

Donna84

Posts : 3
Join date : 2013-10-03

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Jacky51 on Tue Dec 10, 2013 11:40 pm

Hi Lyrica worked for me as we'll. 3 months of hell before I saw a pain consultant but within 48 hours the pain had completely gone. I no longer take it and thankfully the pain hasn't returned. Made me put on weight which I am finding hard to lose, but it gave me my life back x x

Jacky51

Posts : 18
Join date : 2010-11-15
Location : East London

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Jo44 on Mon Feb 16, 2015 9:02 am

I know this is an old post but I hope someone will answer my question, I started pregabalin last weds, so been on it for 5 nights. The burning I had experienced had gone several weeks ago but I am left with the redness & it's very sore below. I did have two/three days last week with no pain at all. I'm also using Dermovate cream twice a day but not sure if it's doing anything! I'm also on Amitriptilyne 50mgs which my Gyni wants me to slowly wean off.
What have you ladies found helps the soreness? Did you have it aswell as the burning?

I have bicarbonate of soda baths, wear cotton pants, never use perfumed things below & use sensitive washing powder.

I'd really appreciate some help! I see Sarah mentions Pregabalin helping the burning but not the soreness too. How are you now please?

Jo44

Posts : 28
Join date : 2015-02-10

View user profile

Back to top Go down

taking Lyrica; can't stand the side effects!

Post  OBRN2007sms on Mon Feb 16, 2015 10:41 pm

I too just started Lyrica 75mg and I am only taking it once a day at night because I can't stand the side effects! I am so tired, dizzy and nauseated. It has helped with my symptoms though and I am able to have sex again. Has anyone else had these side effects and have them eventually go away? I am a RN and cannot work with this foggy brain; luckily I only work one day a week but my week is up and I still feel bad! I am contemplating calling off tomorrow or skipping my dosage which I know I shouldn't do.

OBRN2007sms

Posts : 12
Join date : 2015-02-10
Age : 48
Location : Alabama

View user profile

Back to top Go down

Was on lyrica 300mg, just got off it

Post  sgw11 on Wed Feb 18, 2015 4:34 am

I was also on pregabalin (Lyrica) for about 4 months, taking two 150mg tablets per day. I didn't really experience the more common side effects such as fatigue and so on. Unfortunately it didn't change anything for the pain for me and I am now off it, however everyone responds differently so fingers crossed for you! I have been on amitriptyline cream now since my diagnosis of localized provoked vulvodynia (about a year ago), which initially made it go away completely, but after stopping the cream it came back again which is so frustrating. However I am able to have sex with mainly initial pain and minimal soreness after, which is why I am still taking the amitriptyline. Even if the lyrica isn't right for you, there are plenty of more treatment options available so hang in there!

sgw11

Posts : 46
Join date : 2015-02-18

View user profile

Back to top Go down

300-450 mg of Lyrica

Post  sadone on Thu Feb 19, 2015 7:57 pm

I take lyrica too. It keeps me out of pain in everyday activities, but I don't think sex.

I take it for anxiety now. It makes me high and more brave about taking risks like meeting someone new.

I wish it would work for sex.

Then my ex would come back?

sadone

Posts : 53
Join date : 2011-12-12

View user profile

Back to top Go down

taking Lyrica; can't stand the side effects!

Post  OBRN2007sms on Fri Feb 20, 2015 5:53 pm

Some of the side of effects have gotten better, I am still nauseated on and off but my generalized symptoms are returning so I know I need to up my dosage which I am afraid will make the side effects worse! I think I will ask my doctor about this Amitriptyline cream I have an appointment on Tuesday. I wish this nightmare would just end all together! No

OBRN2007sms

Posts : 12
Join date : 2015-02-10
Age : 48
Location : Alabama

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Jo44 on Mon Feb 23, 2015 2:11 pm

Hi Sadone,

You say the Lyrica helps keep you out of pain in day to day activities. Can you please tell me did you just have burning pain or did you have soreness & redness too? Im on Lyrica too & don't have burning (which stopped before starting Lyrica) but have soreness & redness. I was diagnosed with Vulva Vestibulitis just over two weeks ago. The other thing is I seem to get better spells just before my period starts & will have about a week/ten days of feeling fine but then after my period stops & I start my pills again it seems to start to get sore again!! Has anyone else experienced this?

Thanks Jo x

Jo44

Posts : 28
Join date : 2015-02-10

View user profile

Back to top Go down

lyrica helps me as well but I hate the side effects

Post  BpCookie on Tue Feb 24, 2015 3:55 pm

I take Lyrica twice a day. I take 150 mgs twice a day if the burning pain is bad but the side effects are horrible. My concentration is a mess, I can't think, I lose track of time as its ticking away. I also get horrible dry mouth. When my pain isn't as bad I take 100 mgs. Between my surgeries, procedures and Lyrica things are about 50% to 75% better. But all of a sudden its back with a vengeance. I am going crazy with burning and itching. My problem started over 3 yrs ago with horrible burning pain. Now I have burning pain, itching, redness and swelling. I don't know whats going on right now. Need to see my Gyno again to see what other magic tricks he may have.

hugs to all
Cookie

P.S. When I see my Gyno they always ask if a med. student may be in the room. I always tell them that they can bring in the entire class room because every Dr. in Az. has seen my vagina. My vagina gets more attention from Dr.s then my poor husband does.
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Zbrown on Wed Feb 25, 2015 11:05 pm

Does medication ever take away the rawness entrance of vagina :/ its not as bad only odd time or start of intercourse or afterwards sometimes areas feel sore as bruised or raw but there not general.burning at a bare.minimum now zz

Zbrown

Posts : 128
Join date : 2014-02-26

View user profile

Back to top Go down

Zbrown

Post  BpCookie on Thu Feb 26, 2015 3:39 pm

There is one thing that I use before I have sex, its called Lidocaine Ointment USP 5%. You can only get it by prescription. You rub it on the entire area, but not inside, about 15 mins. before you have sex. It will numb the area. Make sure you get the ointment and not the gel. The gel is useless.

Good luck. hugs
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Mariek on Tue Mar 10, 2015 3:50 pm

I too use a lidocaine 2.5 and a prilocaine 2.5 cream,
20 minutes before sex. It did work. They are mixed together in the same tube.

Mariek

Posts : 17
Join date : 2015-03-09

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  drivenbyambition on Sat Mar 14, 2015 4:54 am

I am glad you have found relief. I have been prescribed a similar, but not the same, medicine. I just can't bring myself to take it because there is no long-term studies and can effect fertility. I also wonder how a pill can deal with my extreme redness and irritation. I just don't see that happening.

drivenbyambition

Posts : 8
Join date : 2015-03-02

View user profile

Back to top Go down

Re: I am cured - Lyrica helped!!!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum