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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


I need advice please.

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I need advice please.

Post  EviE°Bee on Fri Oct 04, 2013 2:06 am

I need some advice, im really stressed and, frankly, paranoid about this. I have a gyno appt in a few days and I need advice on what I should ask for. My gyno isnt very agressive with treatment, whatever type attitude.

I was never prone to yeast infections but i am now. I seem to get one every other month. I use clotrimazole 1% which causes irritation but it seems to help.

How do i differentiate yeast infections from VV?? with VV there is irritation that feels like lemon or salt was sprinkled on my vulva. With yeast it feels more like a sun burn and it seems to spread up the vulva. All in all very bad feelings.

Ive read that a regimen of diflucan/ fluconizole can cause more irritation. I need to know what others have experienced so i can try something more aggressive.

Thanks thanks thanks.

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still there

Post  mushroomvisionlala on Fri Oct 04, 2013 1:07 pm

if your getting yeast infections every month, it means the infection is still there. Believe me, I know this. Its very common for a women to get a yeast infection every month after or before her period, but once my yeast problem was under control, I didnt get yeast infections anymore around that time. I used to think sex CAUSED yeast infections for me, so I spent the majority of my life either avoiding it, Or only doing it when I felt "good" down there. Now I can do it everyday, five times a day, and not have burning and irritation after, for days after. (not that I do it, that much, LOL Smile

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VV, BV, yeast

Post  mushroomvisionlala on Fri Oct 04, 2013 1:09 pm

VV, BV, and yeast are all similar, so its hard to tell

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Re: I need advice please.

Post  EviE°Bee on Fri Oct 04, 2013 5:48 pm

Im leaning more towards yeast because the clotrimazole works, just not good enough.

What do you use to get rid of it?

Whenever they test me, all negative cultures, tissue looks normal.

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Re: I need advice please.

Post  Leslieg on Fri Oct 04, 2013 7:25 pm

Evie cod you be allergic to something? What soaps are you using?

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Re: I need advice please.

Post  Alana3 on Fri Oct 04, 2013 7:29 pm

I mean yeast typically itches smells like crap and has a white clumpy discharge and bv usually has a disgusting discharge do you have any of that and are they actually sending it out to a lab or juat looking and saying yeast?

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Re: I need advice please.

Post  EviE°Bee on Fri Oct 04, 2013 8:58 pm

I had a yeast infection for 8 months, the dr couldnt figure it out. No discharge, no foul smell, no normal yeast symptoms. Dr thought it was dermatitis, It turned out to be a yeast infection.

The current symptoms im having feels like it did during those 8 months, and it makes VV symptoms feel worse.

I use dove sensitive skin bar. No frarance. Its the only soap that doesnt irritate me. Im sensitive to everything.

Im gonna have the dr check on monday but i need to know if nothing shows up on the culture or visually, what should I ask for? I get an appt every 3 months, I wanna make it count :-\

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Re: I need advice please.

Post  Leslieg on Fri Oct 04, 2013 10:08 pm

Keep searching. We can beat this. I asked about allergies because I just had the North American patch series allergy test. They test for chemical irritants. I switched to dove sensitive skin care bar soap 5 years ago after a stubborn yeast infection. Yeast gone but symptoms stayed. My docs said to stop using dial antibacterial because it can disrupt vaginal flora. This made sense to me so i made the switch.
I got the results from my allergy testing yesterday and come to find out I had one significant allergic response (out of 100+). The chemical is cocamidopropyl betaine . It's the 2nd or 3rd ingredient in dove sensitive skin soap and in my shampoo as well. I have mild itchy scalp at times but nothing more. I do however have daily vulvar sx sometimes mild sometimes horrific. I have survived with lidocaine for many years.
I've obviously stopped using the soap and shampoo. The doctor said it can take 6-8 weeks to heal if this is the cause. I'm hoping I will heal. I'll keep you posted. I was astonished that it would take that long to heal. In the paperwork they gave me it stated that it can take 3-6 months if exposure was heavy. I've been using the soap for 5 years. I tried to use minimal soap but that was always hard for me. Maybe that's why my symptoms varied in intensity. The long healing period makes it so difficult to rule out allergies on our own. I realize its difficult to get allergy testing done. I was lucky my doctor referred me and my insurance covered it. I hope my story will help someone. I'll let you know if I feel better in time. For years I thought I had lichen planus so I never pursued much treatment but homeopathy and steroid ointments. my foctor now days i font have ghat. Smile))Love and healing to all the ladies here.....

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Re: I need advice please.

Post  Leslieg on Fri Oct 04, 2013 10:10 pm

iPhone autocorrect.....ugh! Smile)

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Re: I need advice please.

Post  EviE°Bee on Sat Oct 05, 2013 2:00 am

Wow! So what soap do you use to wash yourself now?? I shampoo my hair upside down because i figured it would cause irritation from the perfume alone.

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Re: I need advice please.

Post  Leslieg on Sat Oct 05, 2013 2:19 am

I just bought cetaphil gentle cleanser. It comes in a bar version. This is still all so new.... The new soap is weird but ill try anything at this point. I also wash my hair upside down. It was very difficult to find shampoo without the ingredient. It seems to be in everything. Thankfully many conditioners don't have it. I'm trying to remain positive but trying not to get my hopes up. The doctor said she wasn't sure if this was the answer but it definitely wasn't helping matters. I'm in prayer mode now. Wait and see I guess. I had a mild week for symptoms but suddenly feeling not so good which bursts my bubble for sure. I hope you find answers soon. Never give up. I'll keep you posted. I forgot to mention that the doctor does give a huge list of products that are safe to use.

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Re: I need advice please.

Post  EviE°Bee on Sat Oct 05, 2013 2:50 am

Oh poor baby :-( i understand. Are you on any meds??

I would imagine the soap is probably not too bubbly. What sucks is everything is a factor. Its hard to pin point the irritant. Is your bladder or urethra effected at all?

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Re: I need advice please.

Post  EviE°Bee on Mon Oct 07, 2013 6:30 pm

A little update which freaked me out big time. I have been using clotrimazole for 3 days and 10 mins after insertion i felt little pin pricks all over my body. Ive also been experiencing more irritation with the cream. Im confused as all heck. My gyno appt is today, im going to ask for diflucan 150mg but i want her to examine me first of course.

Im either allergic to the creme or my body is warning me that there is something more serious going on.

Ill update after my appt.

Thanks,
Evie bee

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Re: I need advice please.

Post  EviE°Bee on Mon Oct 07, 2013 7:34 pm

A little update which freaked me out big time. I have been using clotrimazole for 3 days and 10 mins after insertion i felt little pin pricks all over my body. Ive also been experiencing more irritation with the cream. Im confused as all heck. My gyno appt is today, im going to ask for diflucan 150mg but i want her to examine me first of course.

Im either allergic to the creme or my body is warning me that there is something more serious going on.

Ill update after my appt.

Thanks,
Evie bee

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Re: I need advice please.

Post  EviE°Bee on Tue Oct 08, 2013 12:08 am

Was given 4 150mg of diflucan, no exam.

Was told there was nothing else she could do as far as VV was concerned. Referred me to different doc who doesn't have a good track record.

I feel crushed.

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Re: I need advice please.

Post  Leslieg on Tue Oct 08, 2013 2:52 am

I'm sorry. There's nothing more frustrating than a doctors appointment that doesn't offer help. How come she wouldn't examine you? Did she offer insight into the pin prick feeling? Hang in there .....answers will come. Have you used clotrimzole before?
I hope you feel relief from diflucan. I'm wondering if she didn't do exam or culture because the medicine would mask the results. Have you seen a vulgar specialist yet?

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Re: I need advice please.

Post  EviE°Bee on Tue Oct 08, 2013 3:04 am

She said it could be fibromyalgia but she said she was stumped. She said to stop the clotrimazole for 2 days then start again to see if it happens again. She seemed unintereted.

Ive used the cream a couple times before and it never irritated me like this before. Im not gonna use anything right now, im just going to take the diflucan and cross my fingers.

I have to find a gyno that has more experience with VV.

Thanks for responding,
Evie Bee

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Re: I need advice please.

Post  EviE°Bee on Tue Oct 08, 2013 3:05 am

Muah Les!

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Re: I need advice please.

Post  Takver on Wed Oct 09, 2013 8:08 am

I use Oliva soap, which is just saponified olive oil, as basic as you can get. It's a brand sold in the UK. I don't know about brands used abroad. I have terribly sensitive skin and it's the only soap I can tolerate, including washes prescribed by the dermatologist.
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Re: I need advice please.

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