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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia caused by Bartholin cyst

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Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 05, 2013 5:00 pm

Hi everyone,

I'm writing this in my bed as my pain levels are at 5 out of 10.
I was diagnosed with vulvodynia after a month of uni-lateral pain.
Strangely, my symptoms are very different from the vast majority Sad

I had a small bartholin cyst which ruptured (it was on the upper vulva) and ever since then, I keep having constant pain ranging from 2 to 8.
My symptoms are: Discomfort walking (I feel like there is a bulge on my labia), pressure when standing up still, pain when touching,
painful arousal (10/10), and constant VIBRATINg/PULSATING feeling in labia.
The other one is perfectly healthy though.
I have ZERO burning, redness or irritation. I also have vaginismus, but it was never a very serious issue in previous relationships.
It's more present when I go to the doctor, as I associate the touching with previous Bartholin cyst examinations.

I'm thinking of getting botox
does anyone else have bartholin cysts and vulvodynia ?
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Oct 11, 2013 10:20 am

I am currently taking B12, Magnesium+Calcium and cod liver oil (anti-inflammatory) for my nerve pain and hopefully to calm the pulsating feeling.
A short treatment with Naproxen for my sciatica eased my vestibulitis pain, but not I'm all out.

In the mean time, I have had to wait 3 weeks to see a GP in London. (I'm seeing him on tuesday)
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I found out the reason for my pain

Post  mary jane on Fri Oct 11, 2013 3:41 pm

I found out why Naproxen is helping me with the pain.
I also think I have vulvar vestibulitis, not vulvodynia. (silly doctors)

"In the past ten years, the problem of vestibulitis has been increasingly recognized as a cause of painful sexual intercourse.  Women with this disorder report "burning" pain that is right at the opening (vestibule) of the vagina.  In more severe cases, the pain is present during normal daily activities, as well as during sex.
Careful examination reveals redness and unusual sensitivity of the tissue at the opening of the vagina.  It seems to be what is called a "neuro-inflammatory" condition.
This means that inflammation starts (for any one of a long list of reasons, such as vaginal infection) which causes pain; the nerves involved in sensing the pain then release chemicals that promote inflammation, and this inflammation causes further pain.  Thus, a "vicious cycle" gets started that can last for years."
The regimen we use now is one we have arrived at as the result of over 10 years of experience in treating this disorder, having tried many different treatment methods. Our most successful treatment has been a combination of estradiol (estrogen hormone) and lidocaine (local anesthetic) compounded in a special preparation.  Applied three times daily over 6 to 8 weeks, many women note considerable improvement.


source:med.unc.edu/obgyn /Patient_Care/specialty-services/advanced-laparoscopy-pelvic-pain/vulvar-vestibulitis
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 12, 2013 6:56 pm

sob. small update: my life is hell. I self-tested today to see if arousal still hurts. upon self-touching my bartholin gland swells up pretty fast, and much more than the other. I'm doomed. My only option is probably a vestibulectomy with gland excision
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 4:30 pm

update: I relaised today my vibrating feelings are caused by pelvic floor hypertonicity.
at least now I know the reason for my pain!
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 7:30 pm

I now have a new bartholin cyst on the healthy side.
this means more pain
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 12:47 pm

I am seeing Wendy Reid in 2weeks privately. Am selling some of my designer clothes for it :/
I pray she will help me
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Re: Vulvodynia caused by Bartholin cyst

Post  Lms911 on Fri Nov 22, 2013 2:34 pm

I'm sorry to hear you are in pain Sad praying you find relief love.

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Re: Vulvodynia caused by Bartholin cyst

Post  tinkerbelle2 on Fri Nov 22, 2013 2:46 pm

I just read the thing about a vicious cycle being set up. That definitely sounds accurate for me !
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Re: Vulvodynia caused by Bartholin cyst

Post  Kathy100 on Fri Nov 22, 2013 3:09 pm

Sorry to hear that - I think Wendy Reid is meant to be one of the best - I hope she helps you.

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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 5:43 pm

THANK YOU EVERYONE. HOW SWEET OF YOU ALL !!

I love you 
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Re: Vulvodynia caused by Bartholin cyst

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