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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Vulvodynia caused by Bartholin cyst

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Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 05, 2013 5:00 pm

Hi everyone,

I'm writing this in my bed as my pain levels are at 5 out of 10.
I was diagnosed with vulvodynia after a month of uni-lateral pain.
Strangely, my symptoms are very different from the vast majority Sad

I had a small bartholin cyst which ruptured (it was on the upper vulva) and ever since then, I keep having constant pain ranging from 2 to 8.
My symptoms are: Discomfort walking (I feel like there is a bulge on my labia), pressure when standing up still, pain when touching,
painful arousal (10/10), and constant VIBRATINg/PULSATING feeling in labia.
The other one is perfectly healthy though.
I have ZERO burning, redness or irritation. I also have vaginismus, but it was never a very serious issue in previous relationships.
It's more present when I go to the doctor, as I associate the touching with previous Bartholin cyst examinations.

I'm thinking of getting botox
does anyone else have bartholin cysts and vulvodynia ?
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Oct 11, 2013 10:20 am

I am currently taking B12, Magnesium+Calcium and cod liver oil (anti-inflammatory) for my nerve pain and hopefully to calm the pulsating feeling.
A short treatment with Naproxen for my sciatica eased my vestibulitis pain, but not I'm all out.

In the mean time, I have had to wait 3 weeks to see a GP in London. (I'm seeing him on tuesday)
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I found out the reason for my pain

Post  mary jane on Fri Oct 11, 2013 3:41 pm

I found out why Naproxen is helping me with the pain.
I also think I have vulvar vestibulitis, not vulvodynia. (silly doctors)

"In the past ten years, the problem of vestibulitis has been increasingly recognized as a cause of painful sexual intercourse.  Women with this disorder report "burning" pain that is right at the opening (vestibule) of the vagina.  In more severe cases, the pain is present during normal daily activities, as well as during sex.
Careful examination reveals redness and unusual sensitivity of the tissue at the opening of the vagina.  It seems to be what is called a "neuro-inflammatory" condition.
This means that inflammation starts (for any one of a long list of reasons, such as vaginal infection) which causes pain; the nerves involved in sensing the pain then release chemicals that promote inflammation, and this inflammation causes further pain.  Thus, a "vicious cycle" gets started that can last for years."
The regimen we use now is one we have arrived at as the result of over 10 years of experience in treating this disorder, having tried many different treatment methods. Our most successful treatment has been a combination of estradiol (estrogen hormone) and lidocaine (local anesthetic) compounded in a special preparation.  Applied three times daily over 6 to 8 weeks, many women note considerable improvement.


source:med.unc.edu/obgyn /Patient_Care/specialty-services/advanced-laparoscopy-pelvic-pain/vulvar-vestibulitis
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 12, 2013 6:56 pm

sob. small update: my life is hell. I self-tested today to see if arousal still hurts. upon self-touching my bartholin gland swells up pretty fast, and much more than the other. I'm doomed. My only option is probably a vestibulectomy with gland excision
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 4:30 pm

update: I relaised today my vibrating feelings are caused by pelvic floor hypertonicity.
at least now I know the reason for my pain!
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 7:30 pm

I now have a new bartholin cyst on the healthy side.
this means more pain
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 12:47 pm

I am seeing Wendy Reid in 2weeks privately. Am selling some of my designer clothes for it :/
I pray she will help me
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Re: Vulvodynia caused by Bartholin cyst

Post  Lms911 on Fri Nov 22, 2013 2:34 pm

I'm sorry to hear you are in pain Sad praying you find relief love.

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Re: Vulvodynia caused by Bartholin cyst

Post  tinkerbelle2 on Fri Nov 22, 2013 2:46 pm

I just read the thing about a vicious cycle being set up. That definitely sounds accurate for me !
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Re: Vulvodynia caused by Bartholin cyst

Post  Kathy100 on Fri Nov 22, 2013 3:09 pm

Sorry to hear that - I think Wendy Reid is meant to be one of the best - I hope she helps you.

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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 5:43 pm

THANK YOU EVERYONE. HOW SWEET OF YOU ALL !!

I love you 
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Re: Vulvodynia caused by Bartholin cyst

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