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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Vulvodynia caused by Bartholin cyst

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Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 05, 2013 5:00 pm

Hi everyone,

I'm writing this in my bed as my pain levels are at 5 out of 10.
I was diagnosed with vulvodynia after a month of uni-lateral pain.
Strangely, my symptoms are very different from the vast majority Sad

I had a small bartholin cyst which ruptured (it was on the upper vulva) and ever since then, I keep having constant pain ranging from 2 to 8.
My symptoms are: Discomfort walking (I feel like there is a bulge on my labia), pressure when standing up still, pain when touching,
painful arousal (10/10), and constant VIBRATINg/PULSATING feeling in labia.
The other one is perfectly healthy though.
I have ZERO burning, redness or irritation. I also have vaginismus, but it was never a very serious issue in previous relationships.
It's more present when I go to the doctor, as I associate the touching with previous Bartholin cyst examinations.

I'm thinking of getting botox
does anyone else have bartholin cysts and vulvodynia ?
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Oct 11, 2013 10:20 am

I am currently taking B12, Magnesium+Calcium and cod liver oil (anti-inflammatory) for my nerve pain and hopefully to calm the pulsating feeling.
A short treatment with Naproxen for my sciatica eased my vestibulitis pain, but not I'm all out.

In the mean time, I have had to wait 3 weeks to see a GP in London. (I'm seeing him on tuesday)
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I found out the reason for my pain

Post  mary jane on Fri Oct 11, 2013 3:41 pm

I found out why Naproxen is helping me with the pain.
I also think I have vulvar vestibulitis, not vulvodynia. (silly doctors)

"In the past ten years, the problem of vestibulitis has been increasingly recognized as a cause of painful sexual intercourse.  Women with this disorder report "burning" pain that is right at the opening (vestibule) of the vagina.  In more severe cases, the pain is present during normal daily activities, as well as during sex.
Careful examination reveals redness and unusual sensitivity of the tissue at the opening of the vagina.  It seems to be what is called a "neuro-inflammatory" condition.
This means that inflammation starts (for any one of a long list of reasons, such as vaginal infection) which causes pain; the nerves involved in sensing the pain then release chemicals that promote inflammation, and this inflammation causes further pain.  Thus, a "vicious cycle" gets started that can last for years."
The regimen we use now is one we have arrived at as the result of over 10 years of experience in treating this disorder, having tried many different treatment methods. Our most successful treatment has been a combination of estradiol (estrogen hormone) and lidocaine (local anesthetic) compounded in a special preparation.  Applied three times daily over 6 to 8 weeks, many women note considerable improvement.


source:med.unc.edu/obgyn /Patient_Care/specialty-services/advanced-laparoscopy-pelvic-pain/vulvar-vestibulitis
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 12, 2013 6:56 pm

sob. small update: my life is hell. I self-tested today to see if arousal still hurts. upon self-touching my bartholin gland swells up pretty fast, and much more than the other. I'm doomed. My only option is probably a vestibulectomy with gland excision
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 4:30 pm

update: I relaised today my vibrating feelings are caused by pelvic floor hypertonicity.
at least now I know the reason for my pain!
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 7:30 pm

I now have a new bartholin cyst on the healthy side.
this means more pain
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 12:47 pm

I am seeing Wendy Reid in 2weeks privately. Am selling some of my designer clothes for it :/
I pray she will help me
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Re: Vulvodynia caused by Bartholin cyst

Post  Lms911 on Fri Nov 22, 2013 2:34 pm

I'm sorry to hear you are in pain Sad praying you find relief love.

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Re: Vulvodynia caused by Bartholin cyst

Post  tinkerbelle2 on Fri Nov 22, 2013 2:46 pm

I just read the thing about a vicious cycle being set up. That definitely sounds accurate for me !
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Re: Vulvodynia caused by Bartholin cyst

Post  Kathy100 on Fri Nov 22, 2013 3:09 pm

Sorry to hear that - I think Wendy Reid is meant to be one of the best - I hope she helps you.

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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 5:43 pm

THANK YOU EVERYONE. HOW SWEET OF YOU ALL !!

I love you 
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Re: Vulvodynia caused by Bartholin cyst

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