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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Vulvodynia caused by Bartholin cyst

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Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 05, 2013 5:00 pm

Hi everyone,

I'm writing this in my bed as my pain levels are at 5 out of 10.
I was diagnosed with vulvodynia after a month of uni-lateral pain.
Strangely, my symptoms are very different from the vast majority Sad

I had a small bartholin cyst which ruptured (it was on the upper vulva) and ever since then, I keep having constant pain ranging from 2 to 8.
My symptoms are: Discomfort walking (I feel like there is a bulge on my labia), pressure when standing up still, pain when touching,
painful arousal (10/10), and constant VIBRATINg/PULSATING feeling in labia.
The other one is perfectly healthy though.
I have ZERO burning, redness or irritation. I also have vaginismus, but it was never a very serious issue in previous relationships.
It's more present when I go to the doctor, as I associate the touching with previous Bartholin cyst examinations.

I'm thinking of getting botox
does anyone else have bartholin cysts and vulvodynia ?
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Oct 11, 2013 10:20 am

I am currently taking B12, Magnesium+Calcium and cod liver oil (anti-inflammatory) for my nerve pain and hopefully to calm the pulsating feeling.
A short treatment with Naproxen for my sciatica eased my vestibulitis pain, but not I'm all out.

In the mean time, I have had to wait 3 weeks to see a GP in London. (I'm seeing him on tuesday)
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I found out the reason for my pain

Post  mary jane on Fri Oct 11, 2013 3:41 pm

I found out why Naproxen is helping me with the pain.
I also think I have vulvar vestibulitis, not vulvodynia. (silly doctors)

"In the past ten years, the problem of vestibulitis has been increasingly recognized as a cause of painful sexual intercourse.  Women with this disorder report "burning" pain that is right at the opening (vestibule) of the vagina.  In more severe cases, the pain is present during normal daily activities, as well as during sex.
Careful examination reveals redness and unusual sensitivity of the tissue at the opening of the vagina.  It seems to be what is called a "neuro-inflammatory" condition.
This means that inflammation starts (for any one of a long list of reasons, such as vaginal infection) which causes pain; the nerves involved in sensing the pain then release chemicals that promote inflammation, and this inflammation causes further pain.  Thus, a "vicious cycle" gets started that can last for years."
The regimen we use now is one we have arrived at as the result of over 10 years of experience in treating this disorder, having tried many different treatment methods. Our most successful treatment has been a combination of estradiol (estrogen hormone) and lidocaine (local anesthetic) compounded in a special preparation.  Applied three times daily over 6 to 8 weeks, many women note considerable improvement.


source:med.unc.edu/obgyn /Patient_Care/specialty-services/advanced-laparoscopy-pelvic-pain/vulvar-vestibulitis
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Sat Oct 12, 2013 6:56 pm

sob. small update: my life is hell. I self-tested today to see if arousal still hurts. upon self-touching my bartholin gland swells up pretty fast, and much more than the other. I'm doomed. My only option is probably a vestibulectomy with gland excision
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 4:30 pm

update: I relaised today my vibrating feelings are caused by pelvic floor hypertonicity.
at least now I know the reason for my pain!
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Mon Oct 28, 2013 7:30 pm

I now have a new bartholin cyst on the healthy side.
this means more pain
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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 12:47 pm

I am seeing Wendy Reid in 2weeks privately. Am selling some of my designer clothes for it :/
I pray she will help me
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Re: Vulvodynia caused by Bartholin cyst

Post  Lms911 on Fri Nov 22, 2013 2:34 pm

I'm sorry to hear you are in pain Sad praying you find relief love.

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Re: Vulvodynia caused by Bartholin cyst

Post  tinkerbelle2 on Fri Nov 22, 2013 2:46 pm

I just read the thing about a vicious cycle being set up. That definitely sounds accurate for me !
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Re: Vulvodynia caused by Bartholin cyst

Post  Kathy100 on Fri Nov 22, 2013 3:09 pm

Sorry to hear that - I think Wendy Reid is meant to be one of the best - I hope she helps you.

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Re: Vulvodynia caused by Bartholin cyst

Post  mary jane on Fri Nov 22, 2013 5:43 pm

THANK YOU EVERYONE. HOW SWEET OF YOU ALL !!

I love you 
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Re: Vulvodynia caused by Bartholin cyst

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