Vulvodynia Support
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» Hope to all my suffering ladies
Literally feels like acid has been squirted into my vagina today!  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Literally feels like acid has been squirted into my vagina today!  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Literally feels like acid has been squirted into my vagina today!  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Literally feels like acid has been squirted into my vagina today!  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Literally feels like acid has been squirted into my vagina today!  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Literally feels like acid has been squirted into my vagina today!  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Literally feels like acid has been squirted into my vagina today!  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Literally feels like acid has been squirted into my vagina today!  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Literally feels like acid has been squirted into my vagina today!  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Literally feels like acid has been squirted into my vagina today!

+2
EviE°Bee
tinkerbelle2
6 posters

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Literally feels like acid has been squirted into my vagina today!  Empty Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 Tue Oct 08, 2013 9:51 am

Sad :'( :@
tinkerbelle2
tinkerbelle2

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Post  EviE°Bee Thu Oct 10, 2013 1:22 am

Does heat or cold give you a little relief? Sometimes I'll freeze a water bottle and place it on my lady parts. Wrap in wash cloth or something that won't make the cold unpleasant.

What kind of soap do you use TiNK?? Are you on any meds?? Tell me a little about your situation.

I know it's very difficult to not feel like your alone but I know exactly how you feel. We (VV sufferers) have to move forward. Find a solution.

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali

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Post  tinkerbelle2 Sun Nov 17, 2013 1:15 pm

Hi Evie hun, I do feel some relief from ice cubes and cool swimming pools and the sea on holiday! And a hot bath. I was on Gabapentin but had to stop due to bad side effects.
tinkerbelle2
tinkerbelle2

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Post  jen007 Mon Nov 18, 2013 7:04 pm

Hi tinkerbelle2,

I too have been experiencing an acid like feeling "down there". Its been bothering me for about 3 months now. I've let it go much too long, but I've been to busy to see a doctor. It seems to come and go. TMI: but it seems to get worse when I make a bowel movement. Sometimes I wonder if my urine is too acidic and causing the burning feeling. I could very well be your diet. Do you eat a lot of acidic foods? Try removing all acidic foods from your diet, maybe even do a cleanse and after a few weeks see if you feel different. I've always had this kinda of burning rash feeling down there every once in a while. It almost feels like a yeast infection with out the yeast/ odor. I do need to make an appointment with my gyno, I suggest the same for you.

-Jen

jen007

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Post  Alana3 Mon Nov 18, 2013 7:33 pm

Mine is always yeast yuck

Alana3

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Post  katinstras Tue Nov 19, 2013 8:42 pm

jen007 wrote:Hi tinkerbelle2,

I too have been experiencing an acid like feeling "down there". Its been bothering me for about 3 months now. I've let it go much too long, but I've been to busy to see a doctor. It seems to come and go. TMI: but it seems to get worse when I make a bowel movement. Sometimes I wonder if my urine is too acidic and causing the burning feeling.

-Jen
Hi Jen,

I'm just checking in to say that I experience that acidic feeling in EXACTLY the same way and it also gets worse after a BM. I don't think my urine is too acidic (I've ph-tested it), and I've done a low-acid diet for a couple of months and it didn't help. Tomorrow I'm going to see my GP to ask him to refer me to a lab to test for lactobacillosis/cytolitic vaginosis (you can google it if you haven't heard of it, there's one pretty good article written on it, and apparently the acidic feeling can be caused by too many/wrong kind of the good bacteria, lactobacilli). My gyno refuses to test me for it. If you ask your doctor at your next appointment and he/she comes up with a suggestion, could you please post it here? And I will do the same!

Thank you!

katinstras

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Join date : 2013-05-05

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Post  tinkerbelle2 Wed Nov 20, 2013 9:33 am

Hi Jen and katinstras,

I'm not sure what foods actually are acidic? I became a veggie a few years ago so I don't eat meat and rarely eat fish...I eat a lot of fruit and veg and salady stuff. My favourite food is pasta with tomato and basil lol. And I like chocolate and biscuits ?! I suppose I should research it as I don't know that much about it
tinkerbelle2
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Post  tinkerbelle2 Wed Nov 20, 2013 9:41 am

I guess citrussy things are acidic. Jen, I also seem to flare up worse after a BM or urine. Owwww! It's confusing because I haven't changed my diet in anyway but maybe I should start to. Maybe we could've just developed some sort of intolerance which contributes to the vvd
tinkerbelle2
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Post  katinstras Wed Nov 20, 2013 9:43 am

Tinkerbelle,

You can check out this link (hope it works): http://www.ic-network.com/patient-resources/diet/diet-introduction/

It talks about the diet for people suffering from interstitial cystitis who normally should avoid acid in their food and beverages.

katinstras

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Post  tinkerbelle2 Wed Nov 20, 2013 10:57 am

Thanks very much! It does work. I do get cystitis quite a lot and I glug loads of cranberry juice! Oops I suppose water is the best bet. Gonna have a read
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Post  drruthfree Sat May 17, 2014 9:39 pm

Any improvement? I get stinging at same location each time I use compounded vaginal estriol. Why that spot? Tests never show yeast but it does respond to Diflucan. Nobody can figure it out.

drruthfree

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Post  tinkerbelle2 Wed Jun 18, 2014 12:02 am

Very puzzling! I am not sure either. I have had some good days recently but it's still there
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