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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

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Literally feels like acid has been squirted into my vagina today!

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Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Tue Oct 08, 2013 9:51 am

Sad :'( :@
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Re: Literally feels like acid has been squirted into my vagina today!

Post  EviE°Bee on Thu Oct 10, 2013 1:22 am

Does heat or cold give you a little relief? Sometimes I'll freeze a water bottle and place it on my lady parts. Wrap in wash cloth or something that won't make the cold unpleasant.

What kind of soap do you use TiNK?? Are you on any meds?? Tell me a little about your situation.

I know it's very difficult to not feel like your alone but I know exactly how you feel. We (VV sufferers) have to move forward. Find a solution.

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Sun Nov 17, 2013 1:15 pm

Hi Evie hun, I do feel some relief from ice cubes and cool swimming pools and the sea on holiday! And a hot bath. I was on Gabapentin but had to stop due to bad side effects.
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Re: Literally feels like acid has been squirted into my vagina today!

Post  jen007 on Mon Nov 18, 2013 7:04 pm

Hi tinkerbelle2,

I too have been experiencing an acid like feeling "down there". Its been bothering me for about 3 months now. I've let it go much too long, but I've been to busy to see a doctor. It seems to come and go. TMI: but it seems to get worse when I make a bowel movement. Sometimes I wonder if my urine is too acidic and causing the burning feeling. I could very well be your diet. Do you eat a lot of acidic foods? Try removing all acidic foods from your diet, maybe even do a cleanse and after a few weeks see if you feel different. I've always had this kinda of burning rash feeling down there every once in a while. It almost feels like a yeast infection with out the yeast/ odor. I do need to make an appointment with my gyno, I suggest the same for you.

-Jen

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Re: Literally feels like acid has been squirted into my vagina today!

Post  Alana3 on Mon Nov 18, 2013 7:33 pm

Mine is always yeast yuck

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Re: Literally feels like acid has been squirted into my vagina today!

Post  katinstras on Tue Nov 19, 2013 8:42 pm

jen007 wrote:Hi tinkerbelle2,

I too have been experiencing an acid like feeling "down there". Its been bothering me for about 3 months now. I've let it go much too long, but I've been to busy to see a doctor. It seems to come and go. TMI: but it seems to get worse when I make a bowel movement. Sometimes I wonder if my urine is too acidic and causing the burning feeling.

-Jen
Hi Jen,

I'm just checking in to say that I experience that acidic feeling in EXACTLY the same way and it also gets worse after a BM. I don't think my urine is too acidic (I've ph-tested it), and I've done a low-acid diet for a couple of months and it didn't help. Tomorrow I'm going to see my GP to ask him to refer me to a lab to test for lactobacillosis/cytolitic vaginosis (you can google it if you haven't heard of it, there's one pretty good article written on it, and apparently the acidic feeling can be caused by too many/wrong kind of the good bacteria, lactobacilli). My gyno refuses to test me for it. If you ask your doctor at your next appointment and he/she comes up with a suggestion, could you please post it here? And I will do the same!

Thank you!

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Nov 20, 2013 9:33 am

Hi Jen and katinstras,

I'm not sure what foods actually are acidic? I became a veggie a few years ago so I don't eat meat and rarely eat fish...I eat a lot of fruit and veg and salady stuff. My favourite food is pasta with tomato and basil lol. And I like chocolate and biscuits ?! I suppose I should research it as I don't know that much about it
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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Nov 20, 2013 9:41 am

I guess citrussy things are acidic. Jen, I also seem to flare up worse after a BM or urine. Owwww! It's confusing because I haven't changed my diet in anyway but maybe I should start to. Maybe we could've just developed some sort of intolerance which contributes to the vvd
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Re: Literally feels like acid has been squirted into my vagina today!

Post  katinstras on Wed Nov 20, 2013 9:43 am

Tinkerbelle,

You can check out this link (hope it works): http://www.ic-network.com/patient-resources/diet/diet-introduction/

It talks about the diet for people suffering from interstitial cystitis who normally should avoid acid in their food and beverages.

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Nov 20, 2013 10:57 am

Thanks very much! It does work. I do get cystitis quite a lot and I glug loads of cranberry juice! Oops I suppose water is the best bet. Gonna have a read
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stinging

Post  drruthfree on Sat May 17, 2014 9:39 pm

Any improvement? I get stinging at same location each time I use compounded vaginal estriol. Why that spot? Tests never show yeast but it does respond to Diflucan. Nobody can figure it out.

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Jun 18, 2014 12:02 am

Very puzzling! I am not sure either. I have had some good days recently but it's still there
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Re: Literally feels like acid has been squirted into my vagina today!

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