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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Literally feels like acid has been squirted into my vagina today!

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Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Tue Oct 08, 2013 9:51 am

Sad :'( :@
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Re: Literally feels like acid has been squirted into my vagina today!

Post  EviE°Bee on Thu Oct 10, 2013 1:22 am

Does heat or cold give you a little relief? Sometimes I'll freeze a water bottle and place it on my lady parts. Wrap in wash cloth or something that won't make the cold unpleasant.

What kind of soap do you use TiNK?? Are you on any meds?? Tell me a little about your situation.

I know it's very difficult to not feel like your alone but I know exactly how you feel. We (VV sufferers) have to move forward. Find a solution.

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Sun Nov 17, 2013 1:15 pm

Hi Evie hun, I do feel some relief from ice cubes and cool swimming pools and the sea on holiday! And a hot bath. I was on Gabapentin but had to stop due to bad side effects.
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Re: Literally feels like acid has been squirted into my vagina today!

Post  jen007 on Mon Nov 18, 2013 7:04 pm

Hi tinkerbelle2,

I too have been experiencing an acid like feeling "down there". Its been bothering me for about 3 months now. I've let it go much too long, but I've been to busy to see a doctor. It seems to come and go. TMI: but it seems to get worse when I make a bowel movement. Sometimes I wonder if my urine is too acidic and causing the burning feeling. I could very well be your diet. Do you eat a lot of acidic foods? Try removing all acidic foods from your diet, maybe even do a cleanse and after a few weeks see if you feel different. I've always had this kinda of burning rash feeling down there every once in a while. It almost feels like a yeast infection with out the yeast/ odor. I do need to make an appointment with my gyno, I suggest the same for you.

-Jen

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Re: Literally feels like acid has been squirted into my vagina today!

Post  Alana3 on Mon Nov 18, 2013 7:33 pm

Mine is always yeast yuck

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Re: Literally feels like acid has been squirted into my vagina today!

Post  katinstras on Tue Nov 19, 2013 8:42 pm

jen007 wrote:Hi tinkerbelle2,

I too have been experiencing an acid like feeling "down there". Its been bothering me for about 3 months now. I've let it go much too long, but I've been to busy to see a doctor. It seems to come and go. TMI: but it seems to get worse when I make a bowel movement. Sometimes I wonder if my urine is too acidic and causing the burning feeling.

-Jen
Hi Jen,

I'm just checking in to say that I experience that acidic feeling in EXACTLY the same way and it also gets worse after a BM. I don't think my urine is too acidic (I've ph-tested it), and I've done a low-acid diet for a couple of months and it didn't help. Tomorrow I'm going to see my GP to ask him to refer me to a lab to test for lactobacillosis/cytolitic vaginosis (you can google it if you haven't heard of it, there's one pretty good article written on it, and apparently the acidic feeling can be caused by too many/wrong kind of the good bacteria, lactobacilli). My gyno refuses to test me for it. If you ask your doctor at your next appointment and he/she comes up with a suggestion, could you please post it here? And I will do the same!

Thank you!

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Nov 20, 2013 9:33 am

Hi Jen and katinstras,

I'm not sure what foods actually are acidic? I became a veggie a few years ago so I don't eat meat and rarely eat fish...I eat a lot of fruit and veg and salady stuff. My favourite food is pasta with tomato and basil lol. And I like chocolate and biscuits ?! I suppose I should research it as I don't know that much about it
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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Nov 20, 2013 9:41 am

I guess citrussy things are acidic. Jen, I also seem to flare up worse after a BM or urine. Owwww! It's confusing because I haven't changed my diet in anyway but maybe I should start to. Maybe we could've just developed some sort of intolerance which contributes to the vvd
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Re: Literally feels like acid has been squirted into my vagina today!

Post  katinstras on Wed Nov 20, 2013 9:43 am

Tinkerbelle,

You can check out this link (hope it works): http://www.ic-network.com/patient-resources/diet/diet-introduction/

It talks about the diet for people suffering from interstitial cystitis who normally should avoid acid in their food and beverages.

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Nov 20, 2013 10:57 am

Thanks very much! It does work. I do get cystitis quite a lot and I glug loads of cranberry juice! Oops I suppose water is the best bet. Gonna have a read
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stinging

Post  drruthfree on Sat May 17, 2014 9:39 pm

Any improvement? I get stinging at same location each time I use compounded vaginal estriol. Why that spot? Tests never show yeast but it does respond to Diflucan. Nobody can figure it out.

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Re: Literally feels like acid has been squirted into my vagina today!

Post  tinkerbelle2 on Wed Jun 18, 2014 12:02 am

Very puzzling! I am not sure either. I have had some good days recently but it's still there
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Re: Literally feels like acid has been squirted into my vagina today!

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