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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Xylocaine (lidocaine) spray is working as a temporary fix

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Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Wed Oct 09, 2013 7:39 am

I was in so much pain that I wasn't sleeping and couldn't focus on anything so I went to my local pharmacy/chemist. I spoke with the chemist privately, really nice guy, he said although he didn't know a lot about vvd he had heard of it. A lot of the options I'd already tried, so he suggested this spray. I'd tried a lidocaine gel before that you apply with syringe but it really didn't numb me enough and made me extra sore. However, this spray stuff is really helping! I just needed some relief til my next appointment on Nov 18th. He said this stuff is used by dentists and because it's safe for the delicate mouth membranes, it should be okay for inside the vagina. It even says in the leaflet that it can be used during childbirth. He said to spray every couple hours and see how you go. So far so good! I had a bit of trouble getting the bluddy nozzle to work but if you spray it a few times it starts to. It does sting slightly at first but then really seems to numb the pain for a couple hours. And it contains essence of banana!
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Thu Oct 10, 2013 10:18 pm

I love you tinkerbelle ! I didn't know they had these in the uk !!
I am so buying one tomorrow !!!!!!
Thanks for sharing.
Much love
xx
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Fri Oct 11, 2013 7:03 pm

mary jane wrote:I love you tinkerbelle ! I didn't know they had these in the uk !!
I am so buying one tomorrow !!!!!!
Thanks for sharing.
Much love
xx
Aww hun love ya too Smile hope it gives you some relief aswell! Have you had your appointment at st marys yet? Xx
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Fri Oct 11, 2013 7:24 pm

I just got my referral letter today ! It says it takes 4 to 6 weeks. They will be performing a biopsy according to their letter.
Right now I am stuffing my face with cod oil (anti-inflammatory), B12, Calcium and Magnesium for my nerve pain and pulsating.

I am very curios if they will be able to help me, St Mary's is one of the few with their own Vulval Pain Clinic.
I'm perfectly realistic though...I have three problems down there: vaginismus, bartholin gland recurring cysts plus VVS.
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Fri Oct 11, 2013 7:32 pm

Ahh I see! Hopefully it is closer to 4 weeks then. Bless you having 3 things down there to deal with, 1 is bad enough! Crying or Very sad if they are specialist I'm sure they will be able to do something for you! If I have no success with my next appointment I will be booking in with a specialist. I really feel we can all get better if we try and try and try!
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Fri Oct 11, 2013 8:21 pm

How long have you had your problem, Tinkerbelle? Bless you, I love Brigthon! and you're so young still, be positive! I'm sure the body DOES heal itself in time. It has to !
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Sat Oct 12, 2013 8:31 am

Like 3 years Sad I hope so! Ah you've been to btn? It is a nice place to live, was born here Smile
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Sat Oct 12, 2013 8:50 am

oh no, I hope you get relief soon! Yes, I have been to Brighton. Really lovely
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

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