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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Xylocaine (lidocaine) spray is working as a temporary fix
2 posters
Page 1 of 1
Xylocaine (lidocaine) spray is working as a temporary fix
I was in so much pain that I wasn't sleeping and couldn't focus on anything so I went to my local pharmacy/chemist. I spoke with the chemist privately, really nice guy, he said although he didn't know a lot about vvd he had heard of it. A lot of the options I'd already tried, so he suggested this spray. I'd tried a lidocaine gel before that you apply with syringe but it really didn't numb me enough and made me extra sore. However, this spray stuff is really helping! I just needed some relief til my next appointment on Nov 18th. He said this stuff is used by dentists and because it's safe for the delicate mouth membranes, it should be okay for inside the vagina. It even says in the leaflet that it can be used during childbirth. He said to spray every couple hours and see how you go. So far so good! I had a bit of trouble getting the bluddy nozzle to work but if you spray it a few times it starts to. It does sting slightly at first but then really seems to numb the pain for a couple hours. And it contains essence of banana!
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Xylocaine (lidocaine) spray is working as a temporary fix
I love you tinkerbelle ! I didn't know they had these in the uk !!
I am so buying one tomorrow !!!!!!
Thanks for sharing.
Much love
xx
I am so buying one tomorrow !!!!!!
Thanks for sharing.
Much love
xx
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Xylocaine (lidocaine) spray is working as a temporary fix
Aww hun love ya too hope it gives you some relief aswell! Have you had your appointment at st marys yet? Xxmary jane wrote:I love you tinkerbelle ! I didn't know they had these in the uk !!
I am so buying one tomorrow !!!!!!
Thanks for sharing.
Much love
xx
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Xylocaine (lidocaine) spray is working as a temporary fix
I just got my referral letter today ! It says it takes 4 to 6 weeks. They will be performing a biopsy according to their letter.
Right now I am stuffing my face with cod oil (anti-inflammatory), B12, Calcium and Magnesium for my nerve pain and pulsating.
I am very curios if they will be able to help me, St Mary's is one of the few with their own Vulval Pain Clinic.
I'm perfectly realistic though...I have three problems down there: vaginismus, bartholin gland recurring cysts plus VVS.
Right now I am stuffing my face with cod oil (anti-inflammatory), B12, Calcium and Magnesium for my nerve pain and pulsating.
I am very curios if they will be able to help me, St Mary's is one of the few with their own Vulval Pain Clinic.
I'm perfectly realistic though...I have three problems down there: vaginismus, bartholin gland recurring cysts plus VVS.
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Xylocaine (lidocaine) spray is working as a temporary fix
Ahh I see! Hopefully it is closer to 4 weeks then. Bless you having 3 things down there to deal with, 1 is bad enough! if they are specialist I'm sure they will be able to do something for you! If I have no success with my next appointment I will be booking in with a specialist. I really feel we can all get better if we try and try and try!
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Xylocaine (lidocaine) spray is working as a temporary fix
How long have you had your problem, Tinkerbelle? Bless you, I love Brigthon! and you're so young still, be positive! I'm sure the body DOES heal itself in time. It has to !
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Xylocaine (lidocaine) spray is working as a temporary fix
Like 3 years I hope so! Ah you've been to btn? It is a nice place to live, was born here
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Xylocaine (lidocaine) spray is working as a temporary fix
oh no, I hope you get relief soon! Yes, I have been to Brighton. Really lovely
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer