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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Xylocaine (lidocaine) spray is working as a temporary fix

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Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Wed Oct 09, 2013 7:39 am

I was in so much pain that I wasn't sleeping and couldn't focus on anything so I went to my local pharmacy/chemist. I spoke with the chemist privately, really nice guy, he said although he didn't know a lot about vvd he had heard of it. A lot of the options I'd already tried, so he suggested this spray. I'd tried a lidocaine gel before that you apply with syringe but it really didn't numb me enough and made me extra sore. However, this spray stuff is really helping! I just needed some relief til my next appointment on Nov 18th. He said this stuff is used by dentists and because it's safe for the delicate mouth membranes, it should be okay for inside the vagina. It even says in the leaflet that it can be used during childbirth. He said to spray every couple hours and see how you go. So far so good! I had a bit of trouble getting the bluddy nozzle to work but if you spray it a few times it starts to. It does sting slightly at first but then really seems to numb the pain for a couple hours. And it contains essence of banana!
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Thu Oct 10, 2013 10:18 pm

I love you tinkerbelle ! I didn't know they had these in the uk !!
I am so buying one tomorrow !!!!!!
Thanks for sharing.
Much love
xx
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Fri Oct 11, 2013 7:03 pm

mary jane wrote:I love you tinkerbelle ! I didn't know they had these in the uk !!
I am so buying one tomorrow !!!!!!
Thanks for sharing.
Much love
xx
Aww hun love ya too Smile hope it gives you some relief aswell! Have you had your appointment at st marys yet? Xx
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Fri Oct 11, 2013 7:24 pm

I just got my referral letter today ! It says it takes 4 to 6 weeks. They will be performing a biopsy according to their letter.
Right now I am stuffing my face with cod oil (anti-inflammatory), B12, Calcium and Magnesium for my nerve pain and pulsating.

I am very curios if they will be able to help me, St Mary's is one of the few with their own Vulval Pain Clinic.
I'm perfectly realistic though...I have three problems down there: vaginismus, bartholin gland recurring cysts plus VVS.
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Fri Oct 11, 2013 7:32 pm

Ahh I see! Hopefully it is closer to 4 weeks then. Bless you having 3 things down there to deal with, 1 is bad enough! Crying or Very sad if they are specialist I'm sure they will be able to do something for you! If I have no success with my next appointment I will be booking in with a specialist. I really feel we can all get better if we try and try and try!
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Fri Oct 11, 2013 8:21 pm

How long have you had your problem, Tinkerbelle? Bless you, I love Brigthon! and you're so young still, be positive! I'm sure the body DOES heal itself in time. It has to !
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  tinkerbelle2 on Sat Oct 12, 2013 8:31 am

Like 3 years Sad I hope so! Ah you've been to btn? It is a nice place to live, was born here Smile
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

Post  mary jane on Sat Oct 12, 2013 8:50 am

oh no, I hope you get relief soon! Yes, I have been to Brighton. Really lovely
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Re: Xylocaine (lidocaine) spray is working as a temporary fix

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