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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Flare up during menstrual cycle.

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Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 5:29 am

Does anybody else feel excessive burning during your period? I feel it burn when blood comes out. Does anybody have advice for me?

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Re: Flare up during menstrual cycle.

Post  Alana3 on Thu Oct 10, 2013 12:13 pm

Its normal

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 4:21 pm

Sad

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Re: Flare up during menstrual cycle.

Post  Sarah001 on Thu Oct 10, 2013 8:44 pm

Yes it is a common finding in those of us with V because the blood is touching an already irritated part of the body. You can protect the skin a bit with some vaseline as long as you apply it before the bleeding starts.
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Re: Flare up during menstrual cycle.

Post  Takver on Fri Oct 11, 2013 4:44 pm

The only advice I can give is to read the threads on menstrual products and consider switching to reusable cloth pads, if you haven't already. Tampons and disposable pads make the whole business worse.
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Re: Flare up during menstrual cycle.

Post  Takver on Sun Oct 13, 2013 1:03 pm

I'm not so sure that it's the blood, by the way. I think it might be more to do with the hormone levels. My flare-up begins a few days before my period, sometimes a week before, along with my other premenstrual symptoms. Sometimes it continues very nastily through my period, and occasionally the worst is actually beforehand and it's a lot better by the time I'm actually bleeding (though still never enough to allow me to use a menstrual cup, alas).

But then I'm using cloth pads: as I said before, disposables are definite irritants which will make the whole thing worse.

My gynae did suggest putting me on the pill to see if meddling with my hormones changed anything, but once she saw that I get menstrual migraines, she flatly refused, on the grounds of increased stroke risk. I'm really not bothered about my stroke risk, it doesn't increase it to anything substantial and I'm low-risk in other areas, but them's the rules. I wonder if there are any alternative ways of playing with this? I haven't tried vitex agnus castus or similar herbals for years, for instance.
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Re: Flare up during menstrual cycle.

Post  EviEĀ°Bee on Mon Oct 14, 2013 7:54 am

A few days before, and during menstration the pH in the vagina fluctuates which causes the blood to become more acidic (diet during menstration is a factor, im sure.)

pH is also responsible for infections (YI, BV, what-have-you)

I think that us ladies with VV have some type of common problem regarding pH levels. It seems our lady parts do not maintain a healthy normal flora. Perhaps some type of immune disorder or all completely hormonal.
To lessen the problem, tampons are a No No No. Definitely nothing scented.

All in all, I dread the visit from AUNT ROSE. acid on an irritated vagina is anxiety city for me.

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Tue Oct 15, 2013 5:09 am

Could not have said it better myself. It does feel like acid. I too dread every period. Hopefully my meds kick in soon so I can have a normal period and life!

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YES!

Post  lavrose on Tue Oct 22, 2013 1:14 pm

YES! and a few days before my period starts. The IC gets worse too..
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Re: Flare up during menstrual cycle.

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