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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Flare up during menstrual cycle.

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Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 5:29 am

Does anybody else feel excessive burning during your period? I feel it burn when blood comes out. Does anybody have advice for me?

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Re: Flare up during menstrual cycle.

Post  Alana3 on Thu Oct 10, 2013 12:13 pm

Its normal

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 4:21 pm

Sad

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Re: Flare up during menstrual cycle.

Post  Sarah001 on Thu Oct 10, 2013 8:44 pm

Yes it is a common finding in those of us with V because the blood is touching an already irritated part of the body. You can protect the skin a bit with some vaseline as long as you apply it before the bleeding starts.
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Re: Flare up during menstrual cycle.

Post  Takver on Fri Oct 11, 2013 4:44 pm

The only advice I can give is to read the threads on menstrual products and consider switching to reusable cloth pads, if you haven't already. Tampons and disposable pads make the whole business worse.
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Re: Flare up during menstrual cycle.

Post  Takver on Sun Oct 13, 2013 1:03 pm

I'm not so sure that it's the blood, by the way. I think it might be more to do with the hormone levels. My flare-up begins a few days before my period, sometimes a week before, along with my other premenstrual symptoms. Sometimes it continues very nastily through my period, and occasionally the worst is actually beforehand and it's a lot better by the time I'm actually bleeding (though still never enough to allow me to use a menstrual cup, alas).

But then I'm using cloth pads: as I said before, disposables are definite irritants which will make the whole thing worse.

My gynae did suggest putting me on the pill to see if meddling with my hormones changed anything, but once she saw that I get menstrual migraines, she flatly refused, on the grounds of increased stroke risk. I'm really not bothered about my stroke risk, it doesn't increase it to anything substantial and I'm low-risk in other areas, but them's the rules. I wonder if there are any alternative ways of playing with this? I haven't tried vitex agnus castus or similar herbals for years, for instance.
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Re: Flare up during menstrual cycle.

Post  EviE°Bee on Mon Oct 14, 2013 7:54 am

A few days before, and during menstration the pH in the vagina fluctuates which causes the blood to become more acidic (diet during menstration is a factor, im sure.)

pH is also responsible for infections (YI, BV, what-have-you)

I think that us ladies with VV have some type of common problem regarding pH levels. It seems our lady parts do not maintain a healthy normal flora. Perhaps some type of immune disorder or all completely hormonal.
To lessen the problem, tampons are a No No No. Definitely nothing scented.

All in all, I dread the visit from AUNT ROSE. acid on an irritated vagina is anxiety city for me.

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Tue Oct 15, 2013 5:09 am

Could not have said it better myself. It does feel like acid. I too dread every period. Hopefully my meds kick in soon so I can have a normal period and life!

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YES!

Post  lavrose on Tue Oct 22, 2013 1:14 pm

YES! and a few days before my period starts. The IC gets worse too..
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Re: Flare up during menstrual cycle.

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