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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Flare up during menstrual cycle.

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Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 5:29 am

Does anybody else feel excessive burning during your period? I feel it burn when blood comes out. Does anybody have advice for me?

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Re: Flare up during menstrual cycle.

Post  Alana3 on Thu Oct 10, 2013 12:13 pm

Its normal

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 4:21 pm

Sad

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Re: Flare up during menstrual cycle.

Post  Sarah001 on Thu Oct 10, 2013 8:44 pm

Yes it is a common finding in those of us with V because the blood is touching an already irritated part of the body. You can protect the skin a bit with some vaseline as long as you apply it before the bleeding starts.
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Re: Flare up during menstrual cycle.

Post  Takver on Fri Oct 11, 2013 4:44 pm

The only advice I can give is to read the threads on menstrual products and consider switching to reusable cloth pads, if you haven't already. Tampons and disposable pads make the whole business worse.
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Re: Flare up during menstrual cycle.

Post  Takver on Sun Oct 13, 2013 1:03 pm

I'm not so sure that it's the blood, by the way. I think it might be more to do with the hormone levels. My flare-up begins a few days before my period, sometimes a week before, along with my other premenstrual symptoms. Sometimes it continues very nastily through my period, and occasionally the worst is actually beforehand and it's a lot better by the time I'm actually bleeding (though still never enough to allow me to use a menstrual cup, alas).

But then I'm using cloth pads: as I said before, disposables are definite irritants which will make the whole thing worse.

My gynae did suggest putting me on the pill to see if meddling with my hormones changed anything, but once she saw that I get menstrual migraines, she flatly refused, on the grounds of increased stroke risk. I'm really not bothered about my stroke risk, it doesn't increase it to anything substantial and I'm low-risk in other areas, but them's the rules. I wonder if there are any alternative ways of playing with this? I haven't tried vitex agnus castus or similar herbals for years, for instance.
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Re: Flare up during menstrual cycle.

Post  EviE°Bee on Mon Oct 14, 2013 7:54 am

A few days before, and during menstration the pH in the vagina fluctuates which causes the blood to become more acidic (diet during menstration is a factor, im sure.)

pH is also responsible for infections (YI, BV, what-have-you)

I think that us ladies with VV have some type of common problem regarding pH levels. It seems our lady parts do not maintain a healthy normal flora. Perhaps some type of immune disorder or all completely hormonal.
To lessen the problem, tampons are a No No No. Definitely nothing scented.

All in all, I dread the visit from AUNT ROSE. acid on an irritated vagina is anxiety city for me.

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Tue Oct 15, 2013 5:09 am

Could not have said it better myself. It does feel like acid. I too dread every period. Hopefully my meds kick in soon so I can have a normal period and life!

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YES!

Post  lavrose on Tue Oct 22, 2013 1:14 pm

YES! and a few days before my period starts. The IC gets worse too..
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Re: Flare up during menstrual cycle.

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