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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Flare up during menstrual cycle.

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Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 5:29 am

Does anybody else feel excessive burning during your period? I feel it burn when blood comes out. Does anybody have advice for me?

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Re: Flare up during menstrual cycle.

Post  Alana3 on Thu Oct 10, 2013 12:13 pm

Its normal

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Thu Oct 10, 2013 4:21 pm

Sad

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Re: Flare up during menstrual cycle.

Post  Sarah001 on Thu Oct 10, 2013 8:44 pm

Yes it is a common finding in those of us with V because the blood is touching an already irritated part of the body. You can protect the skin a bit with some vaseline as long as you apply it before the bleeding starts.
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Re: Flare up during menstrual cycle.

Post  Takver on Fri Oct 11, 2013 4:44 pm

The only advice I can give is to read the threads on menstrual products and consider switching to reusable cloth pads, if you haven't already. Tampons and disposable pads make the whole business worse.
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Re: Flare up during menstrual cycle.

Post  Takver on Sun Oct 13, 2013 1:03 pm

I'm not so sure that it's the blood, by the way. I think it might be more to do with the hormone levels. My flare-up begins a few days before my period, sometimes a week before, along with my other premenstrual symptoms. Sometimes it continues very nastily through my period, and occasionally the worst is actually beforehand and it's a lot better by the time I'm actually bleeding (though still never enough to allow me to use a menstrual cup, alas).

But then I'm using cloth pads: as I said before, disposables are definite irritants which will make the whole thing worse.

My gynae did suggest putting me on the pill to see if meddling with my hormones changed anything, but once she saw that I get menstrual migraines, she flatly refused, on the grounds of increased stroke risk. I'm really not bothered about my stroke risk, it doesn't increase it to anything substantial and I'm low-risk in other areas, but them's the rules. I wonder if there are any alternative ways of playing with this? I haven't tried vitex agnus castus or similar herbals for years, for instance.
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Re: Flare up during menstrual cycle.

Post  EviE°Bee on Mon Oct 14, 2013 7:54 am

A few days before, and during menstration the pH in the vagina fluctuates which causes the blood to become more acidic (diet during menstration is a factor, im sure.)

pH is also responsible for infections (YI, BV, what-have-you)

I think that us ladies with VV have some type of common problem regarding pH levels. It seems our lady parts do not maintain a healthy normal flora. Perhaps some type of immune disorder or all completely hormonal.
To lessen the problem, tampons are a No No No. Definitely nothing scented.

All in all, I dread the visit from AUNT ROSE. acid on an irritated vagina is anxiety city for me.

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Re: Flare up during menstrual cycle.

Post  Nelsonhs30 on Tue Oct 15, 2013 5:09 am

Could not have said it better myself. It does feel like acid. I too dread every period. Hopefully my meds kick in soon so I can have a normal period and life!

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YES!

Post  lavrose on Tue Oct 22, 2013 1:14 pm

YES! and a few days before my period starts. The IC gets worse too..
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Re: Flare up during menstrual cycle.

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