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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Is anybody else on gabapentin??

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Is anybody else on gabapentin??

Post  Nelsonhs30 on Thu Oct 10, 2013 4:19 pm

My Dr. proscribed me Gabapentin and I'm now on 800mg with still no relief. She says that the maximum is 3200 and that different doses work for different people, although I'm afraid that it will never end up working. I'm afraid this isn't the right medicine for me. Has gabapentin been working for anybody else?? What is everybody else taking that is helping them out???

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Re: Is anybody else on gabapentin??

Post  Alana3 on Thu Oct 10, 2013 5:40 pm

I did a topical because I didn't want to deal with the side effects but it didn't help. I wasn't expecting it to really either. I would never get on that much of any drug. That is insane.

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Re: Is anybody else on gabapentin??

Post  Sarah001 on Thu Oct 10, 2013 8:43 pm

I'm not on Gabapentin but I know you do have to work up to a higher dose than you're taking to know if it works, although it sounds like a massive dose it's no worse than being on the maximum 600 mg of Lyrica which is also an anti-convulsant so keep working up and then you'll know if it works or not. I'm on 450 mg of Lyrica which my doctor at the time thought was a better idea than the Gabapentin the specialist recommended. It's a price issue because Lyrica is more expensive so they try Gabapentin first most of the time. Don't get disheartened yet you're a long way from a big dose right now.
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Re: Is anybody else on gabapentin??

Post  Takver on Fri Oct 11, 2013 4:39 pm

I tried it and went up to 3000mg with no relief and a fair number of side effects. Then my doctor took me off it, tapering down at a rate of 300mg a week. What I didn't know was that this was much, much too fast. It can be absolutely demonic to come off, comparable to coming off addictive drugs or alcohol. Even once I was completely off it, it took months for my sleep to return to normal, and six months of insomnia, jitters, gastro-intestinal upset and other symptoms I can't offhand remember are not to be sneezed at. I also started getting convulsive jerking when I was coming off gabapentin, and two years later I still get that from time to time. Please be very careful with this drug. It's heavy-duty stuff.
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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Fri Oct 11, 2013 6:36 pm

Thank you all for the input. I guess I'll have to stay on until I get to a higher dose to see if it will work. I was born with vulvodynia so my dr said it's much harder to treat, so hopefully i just need higher dose. I have experienced no side effects from this medicine. In fact, it has gotten rid of the frequent headaches I used to get, but it has yet to help my vulvodynia. Guess I have to still be patient. Again, thanks for the input!

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Fri Oct 11, 2013 7:22 pm

Hey nelson, I had my first gyne appointment back in April and was prescribed Gaba too. I felt okay on one tablet a day but as I increased the dose I began to feel really weird - a bit kind of hazy with slightly blurred vision and sometimes headaches (although that could've been a coincidence) But every time I tried to take them I definitely had a 'blurry' feeling. They are pretty serious drugs, used to treat epilepsy and all which did alarm me a bit! I personally didn't get any noticeable relief from them. Please don't take my word for it though, it has been a cure for some women so do give it a go unless it makes you feel really funny. X
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Mon Oct 14, 2013 8:08 am

Currently taking 300mg of Gaba 1 at night before bed, I think it helps a tiny tiny bit but I still get flares, and menstration is still a killer. I wwon't really know if it's working unless I stop it completely. May ask for next dose up. I wouldn't ask for the highest dose, gradual is best.

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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Tue Oct 15, 2013 5:13 am

Yeah my doctor is upping the dose on my gaba and I'm going to take it twice a day instead of before bed. Crossing my fingers for a change cause so far I've been been SOL.

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Wed Nov 20, 2013 9:44 am

How are you getting on with the Gabapentin honey?
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Thu Nov 21, 2013 8:52 pm

Heres a little info I found out about Gaba. When taken in low doses it acts as a pain reliever and helps with anxiety, as well. I started out taking 300mg capsules and technically your suppose to start at 900mg for it to have a proper effect. Thats what I was told by the doc. I was taking 300mg, then 600mg, now im on 900mg. My pain still comes and goes and hell week (period time) is still painful but I think the gaba makes the pain lessen, at least for me.

I hope your doing better. Let us know!

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Re: Is anybody else on gabapentin??

Post  lonelyone48 on Sun Dec 01, 2013 5:37 pm

I am taking 1200mg of Gabapentin. I still have severe pain although not every day. Most days are manageable if I'm not doing anything physical. When the severe pain comes, it lasts for 2-3 days. I'm also taking 150mg of Effexor and using Lidocaine5% Ointment.

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re: Is anybody else on Gabapentin?

Post  Celticrose on Sat May 24, 2014 11:40 pm

I was given gabapentin for nerve pain in lower back in 2010 and the side effects were horrible. I had to drop out of university as I had short term memory loss, trouble staying awake, speech slurred to name but a few. It may work for some but I would never take this drug again. Thankfully, I am almost finished my postgrad now!

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Re: Is anybody else on gabapentin??

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