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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Is anybody else on gabapentin??

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Is anybody else on gabapentin??

Post  Nelsonhs30 on Thu Oct 10, 2013 4:19 pm

My Dr. proscribed me Gabapentin and I'm now on 800mg with still no relief. She says that the maximum is 3200 and that different doses work for different people, although I'm afraid that it will never end up working. I'm afraid this isn't the right medicine for me. Has gabapentin been working for anybody else?? What is everybody else taking that is helping them out???

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Re: Is anybody else on gabapentin??

Post  Alana3 on Thu Oct 10, 2013 5:40 pm

I did a topical because I didn't want to deal with the side effects but it didn't help. I wasn't expecting it to really either. I would never get on that much of any drug. That is insane.

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Re: Is anybody else on gabapentin??

Post  Sarah001 on Thu Oct 10, 2013 8:43 pm

I'm not on Gabapentin but I know you do have to work up to a higher dose than you're taking to know if it works, although it sounds like a massive dose it's no worse than being on the maximum 600 mg of Lyrica which is also an anti-convulsant so keep working up and then you'll know if it works or not. I'm on 450 mg of Lyrica which my doctor at the time thought was a better idea than the Gabapentin the specialist recommended. It's a price issue because Lyrica is more expensive so they try Gabapentin first most of the time. Don't get disheartened yet you're a long way from a big dose right now.
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Re: Is anybody else on gabapentin??

Post  Takver on Fri Oct 11, 2013 4:39 pm

I tried it and went up to 3000mg with no relief and a fair number of side effects. Then my doctor took me off it, tapering down at a rate of 300mg a week. What I didn't know was that this was much, much too fast. It can be absolutely demonic to come off, comparable to coming off addictive drugs or alcohol. Even once I was completely off it, it took months for my sleep to return to normal, and six months of insomnia, jitters, gastro-intestinal upset and other symptoms I can't offhand remember are not to be sneezed at. I also started getting convulsive jerking when I was coming off gabapentin, and two years later I still get that from time to time. Please be very careful with this drug. It's heavy-duty stuff.
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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Fri Oct 11, 2013 6:36 pm

Thank you all for the input. I guess I'll have to stay on until I get to a higher dose to see if it will work. I was born with vulvodynia so my dr said it's much harder to treat, so hopefully i just need higher dose. I have experienced no side effects from this medicine. In fact, it has gotten rid of the frequent headaches I used to get, but it has yet to help my vulvodynia. Guess I have to still be patient. Again, thanks for the input!

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Fri Oct 11, 2013 7:22 pm

Hey nelson, I had my first gyne appointment back in April and was prescribed Gaba too. I felt okay on one tablet a day but as I increased the dose I began to feel really weird - a bit kind of hazy with slightly blurred vision and sometimes headaches (although that could've been a coincidence) But every time I tried to take them I definitely had a 'blurry' feeling. They are pretty serious drugs, used to treat epilepsy and all which did alarm me a bit! I personally didn't get any noticeable relief from them. Please don't take my word for it though, it has been a cure for some women so do give it a go unless it makes you feel really funny. X
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Mon Oct 14, 2013 8:08 am

Currently taking 300mg of Gaba 1 at night before bed, I think it helps a tiny tiny bit but I still get flares, and menstration is still a killer. I wwon't really know if it's working unless I stop it completely. May ask for next dose up. I wouldn't ask for the highest dose, gradual is best.

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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Tue Oct 15, 2013 5:13 am

Yeah my doctor is upping the dose on my gaba and I'm going to take it twice a day instead of before bed. Crossing my fingers for a change cause so far I've been been SOL.

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Wed Nov 20, 2013 9:44 am

How are you getting on with the Gabapentin honey?
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Thu Nov 21, 2013 8:52 pm

Heres a little info I found out about Gaba. When taken in low doses it acts as a pain reliever and helps with anxiety, as well. I started out taking 300mg capsules and technically your suppose to start at 900mg for it to have a proper effect. Thats what I was told by the doc. I was taking 300mg, then 600mg, now im on 900mg. My pain still comes and goes and hell week (period time) is still painful but I think the gaba makes the pain lessen, at least for me.

I hope your doing better. Let us know!

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Re: Is anybody else on gabapentin??

Post  lonelyone48 on Sun Dec 01, 2013 5:37 pm

I am taking 1200mg of Gabapentin. I still have severe pain although not every day. Most days are manageable if I'm not doing anything physical. When the severe pain comes, it lasts for 2-3 days. I'm also taking 150mg of Effexor and using Lidocaine5% Ointment.

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re: Is anybody else on Gabapentin?

Post  Celticrose on Sat May 24, 2014 11:40 pm

I was given gabapentin for nerve pain in lower back in 2010 and the side effects were horrible. I had to drop out of university as I had short term memory loss, trouble staying awake, speech slurred to name but a few. It may work for some but I would never take this drug again. Thankfully, I am almost finished my postgrad now!

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Re: Is anybody else on gabapentin??

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