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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Is anybody else on gabapentin??

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Is anybody else on gabapentin??

Post  Nelsonhs30 on Thu Oct 10, 2013 4:19 pm

My Dr. proscribed me Gabapentin and I'm now on 800mg with still no relief. She says that the maximum is 3200 and that different doses work for different people, although I'm afraid that it will never end up working. I'm afraid this isn't the right medicine for me. Has gabapentin been working for anybody else?? What is everybody else taking that is helping them out???

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Re: Is anybody else on gabapentin??

Post  Alana3 on Thu Oct 10, 2013 5:40 pm

I did a topical because I didn't want to deal with the side effects but it didn't help. I wasn't expecting it to really either. I would never get on that much of any drug. That is insane.

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Re: Is anybody else on gabapentin??

Post  Sarah001 on Thu Oct 10, 2013 8:43 pm

I'm not on Gabapentin but I know you do have to work up to a higher dose than you're taking to know if it works, although it sounds like a massive dose it's no worse than being on the maximum 600 mg of Lyrica which is also an anti-convulsant so keep working up and then you'll know if it works or not. I'm on 450 mg of Lyrica which my doctor at the time thought was a better idea than the Gabapentin the specialist recommended. It's a price issue because Lyrica is more expensive so they try Gabapentin first most of the time. Don't get disheartened yet you're a long way from a big dose right now.
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Re: Is anybody else on gabapentin??

Post  Takver on Fri Oct 11, 2013 4:39 pm

I tried it and went up to 3000mg with no relief and a fair number of side effects. Then my doctor took me off it, tapering down at a rate of 300mg a week. What I didn't know was that this was much, much too fast. It can be absolutely demonic to come off, comparable to coming off addictive drugs or alcohol. Even once I was completely off it, it took months for my sleep to return to normal, and six months of insomnia, jitters, gastro-intestinal upset and other symptoms I can't offhand remember are not to be sneezed at. I also started getting convulsive jerking when I was coming off gabapentin, and two years later I still get that from time to time. Please be very careful with this drug. It's heavy-duty stuff.
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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Fri Oct 11, 2013 6:36 pm

Thank you all for the input. I guess I'll have to stay on until I get to a higher dose to see if it will work. I was born with vulvodynia so my dr said it's much harder to treat, so hopefully i just need higher dose. I have experienced no side effects from this medicine. In fact, it has gotten rid of the frequent headaches I used to get, but it has yet to help my vulvodynia. Guess I have to still be patient. Again, thanks for the input!

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Fri Oct 11, 2013 7:22 pm

Hey nelson, I had my first gyne appointment back in April and was prescribed Gaba too. I felt okay on one tablet a day but as I increased the dose I began to feel really weird - a bit kind of hazy with slightly blurred vision and sometimes headaches (although that could've been a coincidence) But every time I tried to take them I definitely had a 'blurry' feeling. They are pretty serious drugs, used to treat epilepsy and all which did alarm me a bit! I personally didn't get any noticeable relief from them. Please don't take my word for it though, it has been a cure for some women so do give it a go unless it makes you feel really funny. X
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Mon Oct 14, 2013 8:08 am

Currently taking 300mg of Gaba 1 at night before bed, I think it helps a tiny tiny bit but I still get flares, and menstration is still a killer. I wwon't really know if it's working unless I stop it completely. May ask for next dose up. I wouldn't ask for the highest dose, gradual is best.

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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Tue Oct 15, 2013 5:13 am

Yeah my doctor is upping the dose on my gaba and I'm going to take it twice a day instead of before bed. Crossing my fingers for a change cause so far I've been been SOL.

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Wed Nov 20, 2013 9:44 am

How are you getting on with the Gabapentin honey?
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Thu Nov 21, 2013 8:52 pm

Heres a little info I found out about Gaba. When taken in low doses it acts as a pain reliever and helps with anxiety, as well. I started out taking 300mg capsules and technically your suppose to start at 900mg for it to have a proper effect. Thats what I was told by the doc. I was taking 300mg, then 600mg, now im on 900mg. My pain still comes and goes and hell week (period time) is still painful but I think the gaba makes the pain lessen, at least for me.

I hope your doing better. Let us know!

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Re: Is anybody else on gabapentin??

Post  lonelyone48 on Sun Dec 01, 2013 5:37 pm

I am taking 1200mg of Gabapentin. I still have severe pain although not every day. Most days are manageable if I'm not doing anything physical. When the severe pain comes, it lasts for 2-3 days. I'm also taking 150mg of Effexor and using Lidocaine5% Ointment.

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re: Is anybody else on Gabapentin?

Post  Celticrose on Sat May 24, 2014 11:40 pm

I was given gabapentin for nerve pain in lower back in 2010 and the side effects were horrible. I had to drop out of university as I had short term memory loss, trouble staying awake, speech slurred to name but a few. It may work for some but I would never take this drug again. Thankfully, I am almost finished my postgrad now!

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Re: Is anybody else on gabapentin??

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