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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Is anybody else on gabapentin??

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Is anybody else on gabapentin??

Post  Nelsonhs30 on Thu Oct 10, 2013 4:19 pm

My Dr. proscribed me Gabapentin and I'm now on 800mg with still no relief. She says that the maximum is 3200 and that different doses work for different people, although I'm afraid that it will never end up working. I'm afraid this isn't the right medicine for me. Has gabapentin been working for anybody else?? What is everybody else taking that is helping them out???

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Re: Is anybody else on gabapentin??

Post  Alana3 on Thu Oct 10, 2013 5:40 pm

I did a topical because I didn't want to deal with the side effects but it didn't help. I wasn't expecting it to really either. I would never get on that much of any drug. That is insane.

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Re: Is anybody else on gabapentin??

Post  Sarah001 on Thu Oct 10, 2013 8:43 pm

I'm not on Gabapentin but I know you do have to work up to a higher dose than you're taking to know if it works, although it sounds like a massive dose it's no worse than being on the maximum 600 mg of Lyrica which is also an anti-convulsant so keep working up and then you'll know if it works or not. I'm on 450 mg of Lyrica which my doctor at the time thought was a better idea than the Gabapentin the specialist recommended. It's a price issue because Lyrica is more expensive so they try Gabapentin first most of the time. Don't get disheartened yet you're a long way from a big dose right now.
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Re: Is anybody else on gabapentin??

Post  Takver on Fri Oct 11, 2013 4:39 pm

I tried it and went up to 3000mg with no relief and a fair number of side effects. Then my doctor took me off it, tapering down at a rate of 300mg a week. What I didn't know was that this was much, much too fast. It can be absolutely demonic to come off, comparable to coming off addictive drugs or alcohol. Even once I was completely off it, it took months for my sleep to return to normal, and six months of insomnia, jitters, gastro-intestinal upset and other symptoms I can't offhand remember are not to be sneezed at. I also started getting convulsive jerking when I was coming off gabapentin, and two years later I still get that from time to time. Please be very careful with this drug. It's heavy-duty stuff.
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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Fri Oct 11, 2013 6:36 pm

Thank you all for the input. I guess I'll have to stay on until I get to a higher dose to see if it will work. I was born with vulvodynia so my dr said it's much harder to treat, so hopefully i just need higher dose. I have experienced no side effects from this medicine. In fact, it has gotten rid of the frequent headaches I used to get, but it has yet to help my vulvodynia. Guess I have to still be patient. Again, thanks for the input!

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Fri Oct 11, 2013 7:22 pm

Hey nelson, I had my first gyne appointment back in April and was prescribed Gaba too. I felt okay on one tablet a day but as I increased the dose I began to feel really weird - a bit kind of hazy with slightly blurred vision and sometimes headaches (although that could've been a coincidence) But every time I tried to take them I definitely had a 'blurry' feeling. They are pretty serious drugs, used to treat epilepsy and all which did alarm me a bit! I personally didn't get any noticeable relief from them. Please don't take my word for it though, it has been a cure for some women so do give it a go unless it makes you feel really funny. X
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Mon Oct 14, 2013 8:08 am

Currently taking 300mg of Gaba 1 at night before bed, I think it helps a tiny tiny bit but I still get flares, and menstration is still a killer. I wwon't really know if it's working unless I stop it completely. May ask for next dose up. I wouldn't ask for the highest dose, gradual is best.

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Re: Is anybody else on gabapentin??

Post  Nelsonhs30 on Tue Oct 15, 2013 5:13 am

Yeah my doctor is upping the dose on my gaba and I'm going to take it twice a day instead of before bed. Crossing my fingers for a change cause so far I've been been SOL.

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Re: Is anybody else on gabapentin??

Post  tinkerbelle2 on Wed Nov 20, 2013 9:44 am

How are you getting on with the Gabapentin honey?
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Re: Is anybody else on gabapentin??

Post  EviE°Bee on Thu Nov 21, 2013 8:52 pm

Heres a little info I found out about Gaba. When taken in low doses it acts as a pain reliever and helps with anxiety, as well. I started out taking 300mg capsules and technically your suppose to start at 900mg for it to have a proper effect. Thats what I was told by the doc. I was taking 300mg, then 600mg, now im on 900mg. My pain still comes and goes and hell week (period time) is still painful but I think the gaba makes the pain lessen, at least for me.

I hope your doing better. Let us know!

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Re: Is anybody else on gabapentin??

Post  lonelyone48 on Sun Dec 01, 2013 5:37 pm

I am taking 1200mg of Gabapentin. I still have severe pain although not every day. Most days are manageable if I'm not doing anything physical. When the severe pain comes, it lasts for 2-3 days. I'm also taking 150mg of Effexor and using Lidocaine5% Ointment.

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re: Is anybody else on Gabapentin?

Post  Celticrose on Sat May 24, 2014 11:40 pm

I was given gabapentin for nerve pain in lower back in 2010 and the side effects were horrible. I had to drop out of university as I had short term memory loss, trouble staying awake, speech slurred to name but a few. It may work for some but I would never take this drug again. Thankfully, I am almost finished my postgrad now!

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Re: Is anybody else on gabapentin??

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