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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Who is from London?

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Who is from London?

Post  mary jane on Thu Oct 10, 2013 10:28 pm

Hello,

I will be going to a The London Vulval Pain Support Group meeting this Saturday, 12 October, at St Cyprian's Church .
If anyone is coming then, OR if anyone ever has the time to meet up, I am a friendly 26 yo student here and would much love to provide and receive some support !
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Re: Who is from London?

Post  Mariahopes on Mon Jan 27, 2014 12:30 pm

Hi Mary Jane,

I am not from London but am in London on Wednesdays and Fridays having physio if you would like to meet to off-load!

x

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Re: Who is from London?

Post  mary jane on Mon Jan 27, 2014 5:27 pm

I'm free next Wednesday and Friday, love!
PM me with the time you're available, I live in central Smile

xxx
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Re: Who is from London?

Post  Mariahopes on Mon Jan 27, 2014 5:31 pm

Well I'm in London this coming Wednesday for physio at 11 at Harley street! Are u able to meet then? I could meet u at say 12:15? Do u know marylebone high street?! Afraid I'm not familiar with London really! Xx

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Re: Who is from London?

Post  Alana3 on Mon Jan 27, 2014 5:45 pm

You guys suck I love london and its been a while! Hope you have a great meeting Smile say hi to Harrods for me Wink

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Re: Who is from London?

Post  Mariahopes on Mon Jan 27, 2014 6:01 pm

We will do Alana! Ur more than welcome to join us if u are free? Xx

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Re: Who is from London?

Post  Alana3 on Mon Jan 27, 2014 6:20 pm

Haha I live in florida otherwise I would!

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Re: Who is from London?

Post  Mariahopes on Mon Jan 27, 2014 6:22 pm

Oh sorry didn't realise- hope ur well at the moment xx

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Re: Who is from London?

Post  Alana3 on Mon Jan 27, 2014 6:47 pm

Nope you're all good. My vulvodynia is.cured but suffering from 3other problems which.arent so good. Have a great meeting tho at least that's one good thing this all brings us. Some friends Smile

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Re: Who is from London?

Post  Mariahopes on Mon Jan 27, 2014 6:57 pm

Really wow! How did u cure it? Sorry to her of your other problems. Yes I agree- thank god for meetings, forums, friends and family! Xxx

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Re: Who is from London?

Post  Alana3 on Mon Jan 27, 2014 7:18 pm

I had the surgery it's all gone Smile

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Re: Who is from London?

Post  Mariahopes on Mon Jan 27, 2014 7:47 pm

Brilliant hun! Fab news! Pretty sure mine is muscular... Having PT for 3 weeks and starting to notice improvements! Fingers crossed! Xx

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Re: Who is from London?

Post  Alana3 on Mon Jan 27, 2014 8:11 pm

Good! I did PT too after my surgery and it helped too

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Re: Who is from London?

Post  mary jane on Mon Jan 27, 2014 9:48 pm

I can't seem to be able to PM you, maria....
yes, this wednesday I can make it because that is EXACTLY where I live Smile harley st is a stone's throw away from me.

can you try and pm me your phone number? 12-ish is good for me !
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Re: Who is from London?

Post  zarli on Mon Jan 27, 2014 10:54 pm

Oh I am sooooooooooo jealous you are meeting up !!!
Any one want to fly to Melbourne ??? haha
I would love to meet another woman with Vulvodynia or nerve pain. To think it takes 4 months to get into a vulva pain clinic in Melbourne must mean there is lots of other women in Melbourne that have V. May be I should walk around Melbourne with a sign around my neck !!! haha
Enjoy your catch up girls xx

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Re: Who is from London?

Post  mary jane on Tue Jan 28, 2014 10:31 am

@ zarli it takes just as long here...2 to 3 months or even 6 months for the best urogyn specialist in the city!
I'm sure there are a lot of women in australia with this issue, it's just hard to organise meetings...the one I go to is like an AA type meeting, we meet in a church (in their basement)...it costs a bit of money...
the only place where I can think of which has australia ladies is here :
http://www.pudendalhope.info/forum/viewforum.php?f=30

perhaps you could try signing up ...


anyway, hope you have a nice week Smile
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Re: Who is from London?

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