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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Really feel that my pain is a skin or gland thing

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Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Fri Oct 11, 2013 7:38 pm

Rather than muscle or nerve (or is all pain to do with nerves as they create the pain sensation? !). So I'm thinking botox may work better than physiotherapy. But will wait to see gyno's thoughts. After looking with a mirror, I think my burning is located at the glands (bartholins/skenes not sure which is which! )


Last edited by tinkerbelle2 on Tue Nov 19, 2013 1:25 pm; edited 1 time in total
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Fri Oct 11, 2013 9:15 pm

the bartholin glands can become chronically inflamed, so it is possible.
I really hope you will find relief soon !
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Sat Oct 12, 2013 8:34 am

Oh yeah you said one of your symptoms was a cyst maryjane? I think my Vvd is definitely in those glands as it is in 2 points just inside the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Sat Oct 12, 2013 8:49 am

I don't have a cyst right now, a cyst caused this pain and the VVS syndrome. A small pea-sized cyst.
It was infected. I was taking Yasmin and Naproxen at the time. This created a cocktail of chemicals in the area and triggered the pain. Plus the older scar tissue present inside form the other cysts.
Yes that's right, these glands are at the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Thu Oct 31, 2013 1:27 pm

I wonder if I could have a cyst of some sort. I guess they'll be examining me (for the millionth time ha) so they'll see anything. I think the pill might have had something to do with this whole thing too. Or thrush and cystitis. Or the combo. I miss my old vagina so bad! Lol. I think I may have that persistent arousal thing too although often I am not in the mood for sex as I don't want anything in me!
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Re: Really feel that my pain is a skin or gland thing

Post  Alana3 on Thu Oct 31, 2013 1:41 pm

Don't borrow trouble by other people's symptoms concentrate on yourself and see what your doctors says if you had a cyst it more than likely would be found by now. The problem with vulvodynia is there are so many widespread reasons for having vaginal pain that just because someone is having something similar does not mean that's what's happening to you.

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Re: Really feel that my pain is a skin or gland thing

Post  Kathy100 on Thu Oct 31, 2013 3:29 pm

Nerve pain can be caused by the pelvic floor muscles being tight and over stretched which in turn irritates the nerves and causes the pain. The most important thing is to get a treatment plan put together that suits you, then hopefully you'll start to get better.

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Re: Really feel that my pain is a skin or gland thing

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