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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Really feel that my pain is a skin or gland thing

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Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Fri Oct 11, 2013 7:38 pm

Rather than muscle or nerve (or is all pain to do with nerves as they create the pain sensation? !). So I'm thinking botox may work better than physiotherapy. But will wait to see gyno's thoughts. After looking with a mirror, I think my burning is located at the glands (bartholins/skenes not sure which is which! )


Last edited by tinkerbelle2 on Tue Nov 19, 2013 1:25 pm; edited 1 time in total
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Fri Oct 11, 2013 9:15 pm

the bartholin glands can become chronically inflamed, so it is possible.
I really hope you will find relief soon !
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Sat Oct 12, 2013 8:34 am

Oh yeah you said one of your symptoms was a cyst maryjane? I think my Vvd is definitely in those glands as it is in 2 points just inside the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Sat Oct 12, 2013 8:49 am

I don't have a cyst right now, a cyst caused this pain and the VVS syndrome. A small pea-sized cyst.
It was infected. I was taking Yasmin and Naproxen at the time. This created a cocktail of chemicals in the area and triggered the pain. Plus the older scar tissue present inside form the other cysts.
Yes that's right, these glands are at the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Thu Oct 31, 2013 1:27 pm

I wonder if I could have a cyst of some sort. I guess they'll be examining me (for the millionth time ha) so they'll see anything. I think the pill might have had something to do with this whole thing too. Or thrush and cystitis. Or the combo. I miss my old vagina so bad! Lol. I think I may have that persistent arousal thing too although often I am not in the mood for sex as I don't want anything in me!
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Re: Really feel that my pain is a skin or gland thing

Post  Alana3 on Thu Oct 31, 2013 1:41 pm

Don't borrow trouble by other people's symptoms concentrate on yourself and see what your doctors says if you had a cyst it more than likely would be found by now. The problem with vulvodynia is there are so many widespread reasons for having vaginal pain that just because someone is having something similar does not mean that's what's happening to you.

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Re: Really feel that my pain is a skin or gland thing

Post  Kathy100 on Thu Oct 31, 2013 3:29 pm

Nerve pain can be caused by the pelvic floor muscles being tight and over stretched which in turn irritates the nerves and causes the pain. The most important thing is to get a treatment plan put together that suits you, then hopefully you'll start to get better.

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Re: Really feel that my pain is a skin or gland thing

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