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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Really feel that my pain is a skin or gland thing

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Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Fri Oct 11, 2013 7:38 pm

Rather than muscle or nerve (or is all pain to do with nerves as they create the pain sensation? !). So I'm thinking botox may work better than physiotherapy. But will wait to see gyno's thoughts. After looking with a mirror, I think my burning is located at the glands (bartholins/skenes not sure which is which! )


Last edited by tinkerbelle2 on Tue Nov 19, 2013 1:25 pm; edited 1 time in total
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Fri Oct 11, 2013 9:15 pm

the bartholin glands can become chronically inflamed, so it is possible.
I really hope you will find relief soon !
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Sat Oct 12, 2013 8:34 am

Oh yeah you said one of your symptoms was a cyst maryjane? I think my Vvd is definitely in those glands as it is in 2 points just inside the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Sat Oct 12, 2013 8:49 am

I don't have a cyst right now, a cyst caused this pain and the VVS syndrome. A small pea-sized cyst.
It was infected. I was taking Yasmin and Naproxen at the time. This created a cocktail of chemicals in the area and triggered the pain. Plus the older scar tissue present inside form the other cysts.
Yes that's right, these glands are at the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Thu Oct 31, 2013 1:27 pm

I wonder if I could have a cyst of some sort. I guess they'll be examining me (for the millionth time ha) so they'll see anything. I think the pill might have had something to do with this whole thing too. Or thrush and cystitis. Or the combo. I miss my old vagina so bad! Lol. I think I may have that persistent arousal thing too although often I am not in the mood for sex as I don't want anything in me!
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Re: Really feel that my pain is a skin or gland thing

Post  Alana3 on Thu Oct 31, 2013 1:41 pm

Don't borrow trouble by other people's symptoms concentrate on yourself and see what your doctors says if you had a cyst it more than likely would be found by now. The problem with vulvodynia is there are so many widespread reasons for having vaginal pain that just because someone is having something similar does not mean that's what's happening to you.

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Re: Really feel that my pain is a skin or gland thing

Post  Kathy100 on Thu Oct 31, 2013 3:29 pm

Nerve pain can be caused by the pelvic floor muscles being tight and over stretched which in turn irritates the nerves and causes the pain. The most important thing is to get a treatment plan put together that suits you, then hopefully you'll start to get better.

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Re: Really feel that my pain is a skin or gland thing

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