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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Really feel that my pain is a skin or gland thing

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Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Fri Oct 11, 2013 7:38 pm

Rather than muscle or nerve (or is all pain to do with nerves as they create the pain sensation? !). So I'm thinking botox may work better than physiotherapy. But will wait to see gyno's thoughts. After looking with a mirror, I think my burning is located at the glands (bartholins/skenes not sure which is which! )


Last edited by tinkerbelle2 on Tue Nov 19, 2013 1:25 pm; edited 1 time in total
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Fri Oct 11, 2013 9:15 pm

the bartholin glands can become chronically inflamed, so it is possible.
I really hope you will find relief soon !
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Sat Oct 12, 2013 8:34 am

Oh yeah you said one of your symptoms was a cyst maryjane? I think my Vvd is definitely in those glands as it is in 2 points just inside the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  mary jane on Sat Oct 12, 2013 8:49 am

I don't have a cyst right now, a cyst caused this pain and the VVS syndrome. A small pea-sized cyst.
It was infected. I was taking Yasmin and Naproxen at the time. This created a cocktail of chemicals in the area and triggered the pain. Plus the older scar tissue present inside form the other cysts.
Yes that's right, these glands are at the opening.
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Re: Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 on Thu Oct 31, 2013 1:27 pm

I wonder if I could have a cyst of some sort. I guess they'll be examining me (for the millionth time ha) so they'll see anything. I think the pill might have had something to do with this whole thing too. Or thrush and cystitis. Or the combo. I miss my old vagina so bad! Lol. I think I may have that persistent arousal thing too although often I am not in the mood for sex as I don't want anything in me!
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Re: Really feel that my pain is a skin or gland thing

Post  Alana3 on Thu Oct 31, 2013 1:41 pm

Don't borrow trouble by other people's symptoms concentrate on yourself and see what your doctors says if you had a cyst it more than likely would be found by now. The problem with vulvodynia is there are so many widespread reasons for having vaginal pain that just because someone is having something similar does not mean that's what's happening to you.

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Re: Really feel that my pain is a skin or gland thing

Post  Kathy100 on Thu Oct 31, 2013 3:29 pm

Nerve pain can be caused by the pelvic floor muscles being tight and over stretched which in turn irritates the nerves and causes the pain. The most important thing is to get a treatment plan put together that suits you, then hopefully you'll start to get better.

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Re: Really feel that my pain is a skin or gland thing

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