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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Things that can give you infections

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Things that can give you infections

Post  quell183 on Sat Oct 12, 2013 5:48 am

So i just had a thought...i was taking a weight gainer called True-mass twice a day everyday for a couple months and im thinking maybe taking it for as long as i did and maybe the ingredients could have given me an infection? Has anyone heard of anyting like this happening?
These are the ingredients in the product:

A Sustained Release Ultra-Premium Protein & Amino Acid Matrix Comprised Of (Ultrafiltered Whey Protein Concentrate [Milk], (Which Contains Alpha-Lactalbumin), Microfiltered Whey Protein Isolate [Milk], (Which Contains Whey Isolate Peptide Fractions), Calcium Caseinate [Milk], Micellar Alpha And Beta Caseins And Caseinates [Milk], Milk Protein Isolate [Milk], Hydrolyzed Whey Protein [Milk], Egg Whites [Egg], Glutamine Peptides, Glutamine AKG, L-Leucine, L-Isoleucine, L-Valine), Maltodextrin, Dutch Processed Cocoa Powder, Richmix Sunflower Powder Consisting Of (Sunflower Oil, Corn Syrup Solids, Sodium Caseinate [Milk], Mono-Glycerides, Di-Glycerides, Di-Potassium Phosphate), Litesse® II Polydextrose, Natural And Artificial Flavors, Nutrisperse MCT Powder Consisting Of (Medium Chain Triglycerides, Nonfat Dry Milk, Di-Sodium Phosphate, Silicon Dioxide), Vitamin & Mineral Blend Consisting Of (Magnesium Phosphate, Ascorbic Acid, Vitamin E Acetate, Biotin, Chromium Chelate, Niacinamide, Iron, Vitamin A Palmitate, Selenium Chelate, Calcium Pantothenate, Zinc Oxide, Vitamin K1, Copper Gluconate, Vitamin D3, Manganese Sulfate, Pyridoxine HCL, Thiamin Mononitrate, Riboflavin, Vitamin B12, Folic Acid, Potassium Iodide), Qualicel Cellulose Gum, Ticalose® Cellulose Gum, Xanthan Gum, Guar Gum, Gum Acacia, Acesulfame Potassium, Sucralose (Splenda®), Lecithin [Soy], Aminogen®, Papain


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Re: Things that can give you infections

Post  tinkerbelle2 on Sat Oct 12, 2013 6:36 pm

I am not sure but I know that antibiotics can lead to yeast infections and that the pill can make things a bit dry down below and affect your body i.e weight gain. Not sure about those ingredients though a lot of them sound ok like the vitamins and stuff

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