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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

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It's all in my head.... you'll never guess why!

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It's all in my head.... you'll never guess why!

Post  EviE°Bee on Wed Oct 16, 2013 2:25 am

I am sooooo pissed and livid. Im baring part of my soul with this....

Had a gyno appt today and he examined me something fierce. It was so painful, tears and all.

Afterwards, I couldn't sit properly. He said he wanted to ask me a couple of questions to aide in him properly diagnosing me. He said they could get unplesant. I understood. Anything to get proper treatment.
How old were you when you lost your virginity (18)

why? (Why what?)

Why did you wait so long? (Because me and my bf broke up because I relocated and we ended up back together)

Have you ever had an STD? (No.)

Any pregnancies? (No :-\ )

Why not? (You diagnosed me with polycystic ovarian syndrome a few years ago which is why I didnt get periods regularly and I wasn't really ready to have babies yet)

Did sex always hurt, or did you have any problems with pain when you were younger? (No, just lack of regular periods)

Were you ever molested? (Uh...yea, I was)

How old were you? ( i think i was 6-7 years old)

Who was it? ( my biological father)

How long did it go on? (It happened once)

What did he do? (I remember touching but nothing further. I never really saw him. He and my mothet separated before I was born due to alcohol and drug abuse.)

You would stay with him? ( No, i would go visit my grandma and he would be there once in a while. What does this have to do with the pain im feeling?)

You say these things so casually, I think your pain is psychosomatic. (What?)

I don't think you have VV, you have an infection which has caused this pain. But its not VV. (Casually? You said for me to answer your questions and now your saying its all in my head because of molestation?)

You could lose a little weight, too. (If this were psychosomatic which it's not but if it were, why now? Why would it effect me now? Why not when I started having sex?)

You dont have to be upset- ( are you kidding me? Im offended!)

He gave me 900mg of Gaba and more diflucan ( he said diflucan wont help but he gave it anyway) and wants to see me in 3 months.

Im..... i can't get over it. Opinions please.

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Re: It's all in my head.... you'll never guess why!

Post  zarli on Wed Oct 16, 2013 4:08 am

OMG !!!! I can't believe him........I would be so angry too!!! You poor girl I don't know what else to say at this moment but gosh that's un acceptable from any one let alone a Doctor....My heart goes out to you xxxxoooo

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Re: It's all in my head.... you'll never guess why!

Post  Alana3 on Wed Oct 16, 2013 10:22 am

I don't understand why he wouls give you a drug that wouldn't work... but second he might have a slight point although he went about it the wrong way. There is evidence that it can be in your head because youre expecting thr pain. I'm not siding with him just simply stating I've read stuff that says after an experience like yours you could react that way. Maybe someone dod.something similar to your dad and you subconsciously remembered it. The brain works in weird ways... and I'm not saying you're crazy just that something bad did happen to you and maybe your subconsciously remembering... don't get mad trying to help...

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Re: It's all in my head.... you'll never guess why!

Post  EviE°Bee on Wed Oct 16, 2013 2:34 pm

I was reading articles on it last night, I know its possible but I highly doubt this is my case. If it were a problem sexually then it would have come out when I started engaging in sex, not 12 years later. I had an appt with a shrink a couple years ago from anxiety (bladder problems) and I told her exactly what I told the dr. She didnt mention any surpression or any abnormalities regarding that subject. Either way I would have to see a shrink for it to exclude the possibility.

Thanks so much for the xxxoooo's Zarli, muah!

I'm not mad Alana :'( i want honesty. The situation just sucks.

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Re: It's all in my head.... you'll never guess why!

Post  Alana3 on Wed Oct 16, 2013 2:41 pm

New doctor... move on dont take a med for no reason when you do need it it won't work..

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Re: It's all in my head.... you'll never guess why!

Post  Sarah001 on Wed Oct 16, 2013 4:38 pm

He's a bit of a prick because he didn't actually listen to your replies properly either, as you said if it was to do with your childhood experience it would have surfaced earlier. If it was in anticipation of pain it would likely be muscular so still physical. I don't think it matters if you take the diflucan or not, it won't hurt anything and at least he wasn't stupid enough to give you the topical versions so that's something! I've seen doctors like him before for my joints and I think they have a theory and want to make it fit when it doesn't so go at it quite aggressively and end up offending. I'm not sure where you are but if you're in the UK you can make a complaint about him and ask to see someone else. If you're elsewhere I believe the options to move doctor are much easier than here. Some doctors really believe they are so much better than the rest of the population but they are just providing a service the same as other occupations and as with other occupations if they fuck up or offend they should be reported, we wouldn't get away with it in our jobs would we?

The Gabapentin is worth a try though and your usual doctor could increase the dose for you without the need to see this guy, don't let one silly "man" put you off pursuing treatment though. x
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Re: It's all in my head.... you'll never guess why!

Post  tinkerbelle2 on Thu Oct 17, 2013 10:18 am

Evie, he sounds like an inconsiderate, unprofessional arse!

I am so sorry to hear of the experience you had as a child. It is nice that you feel able to speak openly to us about it. I really don't think that it can be in your head if you are feeling actual pain, maybe it could contribute. I can understand the whole learning to expect pain thing. I don't know a lot about biology and anatomy but I really think there must be something going on.

Also I don't see how weight could affect it either.

Try and find a different doctor sweetie and don't give up! Xxxxx
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Re: It's all in my head.... you'll never guess why!

Post  Kathy100 on Thu Oct 17, 2013 11:02 am

Evie,

I had a similar set of questions from my GP & pain specialist (even though I'd had 20 years of problem, pain free sex) and told her I'd never suffered any abuse - she then wanted to put it down to the fact I'd split up with my partner - even though none of the timings matched up. They just seem too keen to label it as all in your head. I've subsequently found that mine is due to a mis-aligned pelvis, coccyx - so all my pelvis floor muscles were completely knotted up - real physical reasons. I agree that your muscles can tense to some extent if they are expecting pain.

I'd change your doctor (no need to put up with all that crap on top of everything else). The thing that's helped me the most is physio (and now pilates) to relax and retrain all my muscles.

Good luck, keep going - it takes time but you'll start to get there xx

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Re: It's all in my head.... you'll never guess why!

Post  EviE°Bee on Thu Oct 17, 2013 7:51 pm

Thanks so much for the support and advice ladies.

This is a serious subject and accusation and its something I should rule out regardless. I know my pain is real and I believe it's hormone related. My periods regulated and this VV flare started. Its been 7 months. I'm trying to get a referral to a psychologist which may take months.

His examination set me back big time, im still sore and my urethra has been acting up. I have developed a type of phobia, I get worried about anything that can possibly increase my pain. Soaps, pants, fabrics, pads, touching, my diet, uuugghhh its so frustrating!

Ill keep updating regarding this issue. Im sure im not the only one out there. Molestation or rape is something that should never happen and unfortunately it happens regularly, an everyday tragedy. It is easy for physicians to pin pain to a tragety, it makes sense depending on the facts and different variables, but it could also be a lazy way to misdiagnose someone.

We'll see what happens. Muah! Thanx my babes.

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Re: It's all in my head.... you'll never guess why!

Post  zarli on Fri Oct 18, 2013 9:48 am

Hi Evie
I believe living with enormous stress (I don't wish to go into details) has affected my nervous system and I guess my brain has had something to do with vulvodynia, I hate the term" its all in your head" Ive heard that way too much in my life. I too live with so much anxiety about the triggers that cause the pain to be unbearable and the thought of my medication not working any more. I am working really hard on my positive thoughts and not letting my anxiety rule my brain. I have lived with anxiety all my life , lets just say some of my life experiences have been like yours.... The brain is so powerful I have learn't never to under estimate it. Find a new doctor sweetie who will help you move onto better days. You are never alone you have all these amazing women on this forum xxoo

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Re: It's all in my head.... you'll never guess why!

Post  EviE°Bee on Mon Oct 21, 2013 3:17 am

Thanks so much Zarli. I don't know anyone else who has VV but I don't see how it could not be traumatic. I get more positive the more pain free days I have, but when the pain lasts for more then a week or two then I feel like I am doomed to feel this way all my life then I dwell on all the things I am unable to do, perfumes I cannot wear, drinks I can't drink, sex I cannot have...ugh! But I understand what your saying Z. Our minds are our biggest enemies majority of the time.

Thanks for your story.
Muah!

Evie Bee

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Re: It's all in my head.... you'll never guess why!

Post  burningturning on Mon Oct 21, 2013 11:02 am

Evie, so sorry for you Sad your dr is such a misfortune.
I really hate this "psychological" approach of doctors! Nowadays, almost every doctor tend to diagnose "it's psychological" to conditions they don't understand! It's the easiest way for them.


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Re: It's all in my head.... you'll never guess why!

Post  EviE°Bee on Mon Oct 21, 2013 3:46 pm

I agree. Dr's will take the psychological route with those that show no physical signs of a medical condition. I look completely normal, no redness, no abnormal attributes.

I think it depends on medical history, facts and other circumstances. Either way, regardless if I don't like that assh%#e's approach or how unprofessional he was, since it was brought up I have no choice but to go see a psychologist to rule out that 1% chance. I say 1% because I am unconvinced of these accusations.

Thanks B, muah.

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Avelox

Post  lavrose on Tue Oct 22, 2013 1:21 pm

You prolly have a bacterial infection. mant times BV does not get cured easily for many people. The standard drugs for BV is Flagyl (Oral Metronizidal) and Vaginal Clindamycin cream and flagyl cream. many times it takes a few rounds to get rid of a problem, plus more yeast treatments, in addition, (kills off the good bacteria in your system) sometimes they dont work at all, and women are reduced to the infamous hydrogen peroxide douche.

(which doesnt work)

However. many women are talking about Avelox on the BV forums. Its a strong, and new controvercial antibiotic. some people claim to experience dangerous side effects, but many women claim to get success with NO REOCCURANCE of their vaginal problems after using it with no side effects. Please research. The hurtle is getting your doctor to prescribe.

God Bless keep strong in the fight.

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Re: It's all in my head.... you'll never guess why!

Post  Alana3 on Tue Oct 22, 2013 1:26 pm

I'm sorry but where did anyone say anything about BV?

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Re: It's all in my head.... you'll never guess why!

Post  Elc88 on Tue Oct 22, 2013 10:21 pm

Wow, sorry to hear your story. I have heard it suggested that molestation can lead to vulval pain in later life, but I don't think your doctor can diagnose that after so few questions! I get really confused by all the conflicting diagnoses too. When I was first told I had vulvodynia, they said it was simply a sign there was pain there once, but when the cause went away, the signals in my brain got confused and continued to think there was pain there. While I explain my 'skin condition on my thigh' to people, I always say I have a psychosomatic illness for ease, but when I asked the Dr if this is what it was, she said it's definitely not psychosomatic. Have they changed their mind again?

He doesn't sound like a very approachable doctor, if he was, he would have broached the subject a little more subtly than that, it sounds really horrible! Gabapentin is worth a try though, it was one of the medicines they tried to put me on when they thought I had true vulvodynia. It belongs to the anti-depressant family, but in the quantities you will be taking, it's a mild painkiller instead.

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Re: It's all in my head.... you'll never guess why!

Post  EviE°Bee on Thu Oct 24, 2013 10:13 pm

Ha ha! Your funny Alana. Direct and to the point, love it!

I get what you mean El, it seems like they are pullin ideas out of a hat or somethin. I know Dr's don't have magic wands to cure us instantly but its our job to make dr's aware of what is going on with our bodies. That challenge has negative results majority of the time.
Example: endometriosis, when first discovered, dr's were baffled and women had to undergo different treatments (experiments) like us with VV. Today, endometriosis is a "known" complication and Dr's have figured out the best treatments for it. All I can hope for is a cure, if not then cut it off.

Evie Bee.

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alana baby

Post  lavrose on Sat Oct 26, 2013 1:25 pm

Hey Alana. I realize not all women suffering from V have an infection.

Im saying SOME womens problem did turn out to be an infection after all. So its nice to get all perspectives. Not everyone is the same, and V is still a mystery condition with no cure yet, so its nice to explore all possibilities and get everyones side of the story.

to me, they symptoms of V mimic an infection, (burning, itching, pain during intercourse, dryness, or unusual discharge).  Also, the condition seems to spring up suddenly during womens sexually active lives, (they arent born with it, SUM not ALL).

Once again i will say, not everyone V is caused by the same thing. For some people its a physical, muscle problem, for some, something else??

Everytime I was on antibioitics, or did my essential oil suppositories, Id feel normal again, and/or better for a little while, so my problem is prolly some kind if an infection. In my opinion.

And yes Ive been tested for STDS many times.
Also, these women many times have a history of re-occuring, yeast or bacterial infections in the vagina. it stand to reason it might be an indomitable infection of some kind, they are many organisms out there that can cause an imbalance,and the vagina is a wet warm dark place, so it stands to reason.

i think being so dead set negative on what this problem might possibly be is pretty dangerous, since we are all trying to find a cure. Im glad your cure for you is working, and you are feeling so much better.

However, antibiotic resistance is an issue. Doctors not wanting to prescribe long term, or different antibiotics is also an issue. Yeast, and diet are an issue. There are many possibilities.
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..

Post  lavrose on Sat Oct 26, 2013 1:30 pm

also, BV can be hard to cure, if you go on the health boards, or just google "my chronic BV infection that wont go away" women struggle just to cure that infection, its very common. Metronizidal resistance is an issue, as women ended up trying some other kind of antibiotic like Tindamax, Clindamycin (orally) which can cause c-diff, its a dangerous antiiotic not commonly prescribed for this reason, and Avelox.
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Re: It's all in my head.... you'll never guess why!

Post  Alana3 on Sat Oct 26, 2013 2:09 pm

I never said it wasnt relax I have had it all bv yeast reoccurring bull shit I just wasnt sure where someone had said they had that or you were just saying its possible... bv is a bitch I got it from being over medicated for no reason because my doc.had no idea what he was doing. Shit happens. Im honestly not sure how im negative when I asked where.some one mentioned bv because it wasn't mentioned ever. I'm sure everyone has been tested for infection I'd hope so anyway if its that easy of a fix great I'm happy but I either didnt read the same thing as you or I misunderstood what you were trying to say.

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Re: It's all in my head.... you'll never guess why!

Post  EviE°Bee on Sat Nov 02, 2013 8:54 am

Hey my babes, update here...

Saw psychologist today. Learned some useful info.

First off, she concluded that my "condition" is not psychosomatic. She believes that it is an actual physical condition, not necessarily VV which is in her words "a very rare condition."

She also informed me that there was a way to prove if pain is in fact psychosomatic pain. There are 2 hormones (Of course I did not write the names of these hormones down Embarassed) that cause muscles to contract and cause pain but only if your brain/body is producing a very high amount of these hormones.

As far as you ladies, all information is welcomed and encouraged. It is easy to feel negative about our V's.

Thanks,
Evie bee

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Re: It's all in my head.... you'll never guess why!

Post  zarli on Sat Nov 02, 2013 9:18 am

Thanks for the update Evie, very similar to what my psychologist said to me. Although I believe our brains can have a lot to do with what we believe we may or may not have. I have had a life time of experience with anxiety and panic attacks etc. I have been through a lot of unnecessary health issues due to my negative approach to fear of illness etc. Vulvodynia for me I believe came from psychological reasons. I believe anxiety in its extreme and I mean extreme has caused problems in my nervous system. We all have our own set of Vulvodynia problems some are very unique and some are more common. I hope you are feeling better on your journey to better health xxxx

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Re: It's all in my head.... you'll never guess why!

Post  EviE°Bee on Sat Nov 02, 2013 7:49 pm

I understand, Z

I was speaking in terms of my situation; molestation or some kind of sexual assault.

Stress/anxiety/depression can definitely cause flare-ups or possibly cause VV. At this point, there is no evidence that everyone's VV is caused by the same culprit.

Either way, the psychologist did not specify nor hint that my pain was caused by anxiey or depression.

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Re: It's all in my head.... you'll never guess why!

Post  Alana3 on Sat Nov 02, 2013 7:59 pm

Yeah mine was a documented nerve condition. Tho it did hurt when I started having sex cuz I was expecting pain that never happened. When I relaxed it was fine so I think it can be medical and psychological

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Re: It's all in my head.... you'll never guess why!

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