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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Pain and discomfort relief on Naproxen

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Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 3:43 pm

My GP prescribed Naproxen today and so far, so good!
Am feeling much much better, though now I get back pain Sad
But at least it no longer hurts and the discomfort when walking is gone
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Wed Oct 16, 2013 4:32 pm

Lucky nothing helped my pain until my vestibulectomy. Problem solved, but it was 7 years before I found anything to help. And take, this try, this do this... ugh. Yuck. Glad you're feeling better.

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 8:44 pm

I'm not lucky, there is something seriously wrong with me. I tried getting aroused 4 days ago and not only did I have pain and swelling of the affected labia, it gave me swollen painful black veins in the area.
I am desperate
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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 8:45 pm

I'm glad you found the surgery to be of help !
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Wed Oct 16, 2013 8:47 pm

Didn't you say you had cyst problems why not get it removed? Seems you'd feel better if it weren't there anymore? Just asking idk. I suffered for 7 years I get it but there was no pain relief until the surgery no pain killer worked

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Thu Oct 17, 2013 12:24 pm

I think I am getting it removed, but it will take FOREVER IN UK, I see a consultant in 4 weeks time and then she decides what to do,
I have horrible symptoms and some nasty new varicose veins on my labia which hurt with arousal.
I am so desperate, let them just cut the whole labia off, I don't even want it anymore, just want to live like a normal person without horrible symptoms.
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Thu Oct 17, 2013 12:27 pm

Yup I hear you... Sad

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Re: Pain and discomfort relief on Naproxen

Post  tinkerbelle2 on Sat Oct 19, 2013 4:34 pm

Hey hun, glad the naproxen is helping a little!
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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Sat Oct 19, 2013 6:17 pm

actually, i still have discomfort walking with naproxen and a swelling sensation, but it works great for the pain !

thanks, tinkerbelle !

If I'm ever cured of this disease, I shall buy you all a gift Very Happy
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Re: Pain and discomfort relief on Naproxen

Post  EviE°Bee on Sat Oct 26, 2013 1:20 am

How many mg's are you taking MJ?

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Sat Oct 26, 2013 10:04 am

250 mg x2 per day.
they helped the swelling of the vestibule (my bartholin gland which triggered the vulvodynia), but they stopped working for the pain which keeps migrating.
I am now on Ami 10 mg a day.
I think my bartholin gland is now atrophying or something, the labia is shrinking. oh god
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Re: Pain and discomfort relief on Naproxen

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