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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Pain and discomfort relief on Naproxen

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Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 3:43 pm

My GP prescribed Naproxen today and so far, so good!
Am feeling much much better, though now I get back pain Sad
But at least it no longer hurts and the discomfort when walking is gone
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Wed Oct 16, 2013 4:32 pm

Lucky nothing helped my pain until my vestibulectomy. Problem solved, but it was 7 years before I found anything to help. And take, this try, this do this... ugh. Yuck. Glad you're feeling better.

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 8:44 pm

I'm not lucky, there is something seriously wrong with me. I tried getting aroused 4 days ago and not only did I have pain and swelling of the affected labia, it gave me swollen painful black veins in the area.
I am desperate
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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 8:45 pm

I'm glad you found the surgery to be of help !
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Wed Oct 16, 2013 8:47 pm

Didn't you say you had cyst problems why not get it removed? Seems you'd feel better if it weren't there anymore? Just asking idk. I suffered for 7 years I get it but there was no pain relief until the surgery no pain killer worked

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Thu Oct 17, 2013 12:24 pm

I think I am getting it removed, but it will take FOREVER IN UK, I see a consultant in 4 weeks time and then she decides what to do,
I have horrible symptoms and some nasty new varicose veins on my labia which hurt with arousal.
I am so desperate, let them just cut the whole labia off, I don't even want it anymore, just want to live like a normal person without horrible symptoms.
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Thu Oct 17, 2013 12:27 pm

Yup I hear you... Sad

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Re: Pain and discomfort relief on Naproxen

Post  tinkerbelle2 on Sat Oct 19, 2013 4:34 pm

Hey hun, glad the naproxen is helping a little!
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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Sat Oct 19, 2013 6:17 pm

actually, i still have discomfort walking with naproxen and a swelling sensation, but it works great for the pain !

thanks, tinkerbelle !

If I'm ever cured of this disease, I shall buy you all a gift Very Happy
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Re: Pain and discomfort relief on Naproxen

Post  EviE°Bee on Sat Oct 26, 2013 1:20 am

How many mg's are you taking MJ?

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Sat Oct 26, 2013 10:04 am

250 mg x2 per day.
they helped the swelling of the vestibule (my bartholin gland which triggered the vulvodynia), but they stopped working for the pain which keeps migrating.
I am now on Ami 10 mg a day.
I think my bartholin gland is now atrophying or something, the labia is shrinking. oh god
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Re: Pain and discomfort relief on Naproxen

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