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» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Pain and discomfort relief on Naproxen

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Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 3:43 pm

My GP prescribed Naproxen today and so far, so good!
Am feeling much much better, though now I get back pain Sad
But at least it no longer hurts and the discomfort when walking is gone
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mary jane

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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Wed Oct 16, 2013 4:32 pm

Lucky nothing helped my pain until my vestibulectomy. Problem solved, but it was 7 years before I found anything to help. And take, this try, this do this... ugh. Yuck. Glad you're feeling better.

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 8:44 pm

I'm not lucky, there is something seriously wrong with me. I tried getting aroused 4 days ago and not only did I have pain and swelling of the affected labia, it gave me swollen painful black veins in the area.
I am desperate
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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Wed Oct 16, 2013 8:45 pm

I'm glad you found the surgery to be of help !
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Wed Oct 16, 2013 8:47 pm

Didn't you say you had cyst problems why not get it removed? Seems you'd feel better if it weren't there anymore? Just asking idk. I suffered for 7 years I get it but there was no pain relief until the surgery no pain killer worked

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Thu Oct 17, 2013 12:24 pm

I think I am getting it removed, but it will take FOREVER IN UK, I see a consultant in 4 weeks time and then she decides what to do,
I have horrible symptoms and some nasty new varicose veins on my labia which hurt with arousal.
I am so desperate, let them just cut the whole labia off, I don't even want it anymore, just want to live like a normal person without horrible symptoms.
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Re: Pain and discomfort relief on Naproxen

Post  Alana3 on Thu Oct 17, 2013 12:27 pm

Yup I hear you... Sad

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Re: Pain and discomfort relief on Naproxen

Post  tinkerbelle2 on Sat Oct 19, 2013 4:34 pm

Hey hun, glad the naproxen is helping a little!
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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Sat Oct 19, 2013 6:17 pm

actually, i still have discomfort walking with naproxen and a swelling sensation, but it works great for the pain !

thanks, tinkerbelle !

If I'm ever cured of this disease, I shall buy you all a gift Very Happy
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Re: Pain and discomfort relief on Naproxen

Post  EviE°Bee on Sat Oct 26, 2013 1:20 am

How many mg's are you taking MJ?

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Re: Pain and discomfort relief on Naproxen

Post  mary jane on Sat Oct 26, 2013 10:04 am

250 mg x2 per day.
they helped the swelling of the vestibule (my bartholin gland which triggered the vulvodynia), but they stopped working for the pain which keeps migrating.
I am now on Ami 10 mg a day.
I think my bartholin gland is now atrophying or something, the labia is shrinking. oh god
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Re: Pain and discomfort relief on Naproxen

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