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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


my life story

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my life story

Post  haykay23 on Thu Oct 17, 2013 3:36 am

My name is Hayley and I am twenty years old.  I have been recently officially diagnosed with vulvodynia.  For sometime now I have been hovering around the idea of having it but finally have a NP who gave me diagnosis.

Upon examination it was found that the mucosal glands around the vaginal opening were inflamed and very irriatated.  They hurt upon being touched and just felt burny/ sore.  She concluded that I had vv but it was localized and provoked.  She said that it was referring pain to my bladder, which made it feel like I had to pee, but the burning was actually external. I am currently on ETA cream, 7% lidocain, nortriptyline thirty mg, and ten mg of singulair.  My urgency symptoms still persist and seem to cycle with my period.  I am currently on mirocete after apri, which I was only on for two months and did not like.  I am currently sexually active but have not been since my current symptoms started most recently.  I have only had one partner and so has he.  I have also been checked for STDs, which I knew I did not have but I just needed to be sure.  I have had pretty bland diet and only drink on weekends and chose beer as it seems to be the least deadly choice. Basically what I’m looking for is if anyone else has had the 'gotta go symptoms', found a BC that works best, or has any tips for managing flares.  I am very stressed with school as I am in pharmacy school currently and have a heavy course load.


Last edited by haykay23 on Thu Oct 17, 2013 7:47 pm; edited 1 time in total (Reason for editing : needed to shorten)

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Re: my life story

Post  tinkerbelle2 on Thu Oct 17, 2013 10:37 am

Hey Hayley,

I'm Belle, nice to meet you Smile

I have read your story, sorry to hear that you've had such a rough time!

My vvd is slightly different to yours as I get the pain at 2 points one just inside and one at the opening. I really have no clue as to what triggered mine but I think it could have been a yeast or urine infection.

I too get that need to pee feeling, and sometimes it is very sore just after weeing. If I am at home I dab the area with a wet flannel afterwards. Currently the only relief I get is hot baths and swimming - the water seems to soothe the area. For others this would aggravate their problem further. I have also been using a topical spray called Xylocaine which is not actually meant to be used vaginally but is used to numb the mouth by dentists. The chemist said if it's safe for the moutg it should be okay for down there as it's similar delicate skin. I have also been drinking a lot of cranberry juice.

I think you should keep persisting with doctors, that's what I'm gonna do! It's great that you're close with your mum, I am too and it really helps.

Just remember you're not alone, the girls on this forum are really lovely and will be there for you and support you through whatever!
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Re: my life story

Post  haykay23 on Thu Oct 17, 2013 2:25 pm

Belle,
Thanks for your reply.
I have found that taking aveeno oatmeal baths seems to help. The water seems to subside my symptoms.
Will have to look into the xylocine item.
Thank you for the support

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Re: my life story

Post  Sarah001 on Thu Oct 17, 2013 5:02 pm

Haykay please go and have your pelvic alignment and pelvic floor examined by a Women's Health Physio, the compression shorts could be helping because of an SI problem which could be tightening your pelvic floor up which does lead to UTIs because of incomplete emptying of the bladder (tight muscles don't allow the urine out easily) and a feeling of a UTI when one isn't present due to pelvic floor trigger points. If you do one thing to try and find the answer then please do see someone who knows about both pelvic alignment and pelvic floor trigger points as a first port of call.
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Re: my life story

Post  haykay23 on Thu Oct 17, 2013 5:05 pm

I have had mine checked and monitored but will look into other examinations. Thanks!

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