Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Just Diagnosed- frustrated and worried please help EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Just Diagnosed- frustrated and worried please help EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Just Diagnosed- frustrated and worried please help EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Just Diagnosed- frustrated and worried please help EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Just Diagnosed- frustrated and worried please help EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Just Diagnosed- frustrated and worried please help EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Just Diagnosed- frustrated and worried please help EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Just Diagnosed- frustrated and worried please help EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Just Diagnosed- frustrated and worried please help EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Just Diagnosed- frustrated and worried please help

5 posters

Go down

Just Diagnosed- frustrated and worried please help Empty Just Diagnosed- frustrated and worried please help

Post  ESR Sun Oct 13, 2013 11:03 pm

Hi all,

I am 18 years old began trying to have sex for the first time 7 months ago with my boyfriend and we never managed it at all due to the pain and probably additional tension in my vaginal muscles.
I found my journey to being diagnosed very emotional and confusing, going on internet sites, a family planning clinic before finally going to a GUM clinic where they did that cotton bud test and decided I have vestibulodynia(?? I have the provoked one, I think that is the name for it) The doctor said the friction involved during attempting penetration causes irritation in four areas/glands around my vagina, in the way of redness, swelling and stinging, similar to the way for example pollen makes hayfever sufferes' eyes itch and go red and puffy . I have very bad hayfever and maybe slight eczema and asthma and this makes me 'atopic' and this could possibly be the cause of my vestibulodynia.
Everywhere I look there seems to be different information about the causes of this condition and I just wonder if anyone really knows enough about it, even when it affects so many people.
The treatment plan the doctor gave me consisted of applying a weak anaesthetic (instillagel) to my vestibule three times a day then when I used that all up move onto a stronger anaesthetic (lidocaine 5%) for two weeks, which I am currently in the middle of doing. After those two weeks she said I could try sex again. She said the aim was to 'retrain' that area to not be so sensitive but I just feel sceptical about this actually working. She also gave me some antihistamine pills (ucerax) and isntructed that I should take one before I have sex. I was wondering whether any of you were given the same treatment and if it's worked because as of yet I have not found anyone else who has been told to continually numb the area for retraining or something.
I would love anyone's opinion or help with my problem and will be so grateful for the support from someone who knows how I feel.

ESR

Posts : 1
Join date : 2013-10-13

Back to top Go down

Just Diagnosed- frustrated and worried please help Empty Re: Just Diagnosed- frustrated and worried please help

Post  Alana3 Mon Oct 14, 2013 12:13 am

Uh its not gonna just stop because you numb it. I used lidocaine but because of pain. Once it wears off it will.come right back.

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Just Diagnosed- frustrated and worried please help Empty Re: Just Diagnosed- frustrated and worried please help

Post  EviE°Bee Mon Oct 14, 2013 7:32 am

ESR,
your gonna be asked to try a whole lot of different treatments and some may work, some may not. Depends on the lady and culprit. Everyone responds differently to meds, creams, injections, ect.

Best thing to do is do a bunch of research regarding VV, keep a daily log of your symptoms and possible irritants (diet, activities, ect), how you respond to treatments.

I know it's overwhelming and I wouldn't wish VV on my worst enemy but your not alone.

I've never heard of "retraining" the vulva back to normal. Keep us posted. Muah.

Evie Bee

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali

Back to top Go down

Just Diagnosed- frustrated and worried please help Empty Re: Just Diagnosed- frustrated and worried please help

Post  mary jane Mon Oct 14, 2013 9:29 am

Don't worry, everyone is different and has different sets of symptoms. You will find something, you're very young and the body recuperates fast !
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

Back to top Go down

Just Diagnosed- frustrated and worried please help Empty Re: Just Diagnosed- frustrated and worried please help

Post  Alana3 Mon Oct 14, 2013 12:13 pm

I've heard of retraining but typically after a diagnosis of vaginismus or surgery. Lidocaine blocks pain while on it but when it wears off the pain is still there. It would work it you had muscle pain but not nerve/skin pain. Maybe get another opinion...

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Just Diagnosed- frustrated and worried please help Empty Re: Just Diagnosed- frustrated and worried please help

Post  Sunflower82 Tue Oct 15, 2013 7:33 pm

When I was first diagnosed I got given the same treatment the strine gleans then lodicaine. Which helped in the shirt term when I used it but didn't give any long term relief. The got given trimovate cream which is a steriod and told to come back in three months! After that was out on anti depressants after 6 months I said it made know difference and I was told, "of course it has" it hadn't it didn't feel any difference!
The only think that helped was Physio, this I had to pay for privately. I am now able to have sex the pain does come back but I have a back related issue that makes my vulvar pain worse.

Hope this helps

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

Back to top Go down

Just Diagnosed- frustrated and worried please help Empty Re: Just Diagnosed- frustrated and worried please help

Post  Sunflower82 Tue Oct 15, 2013 7:35 pm

Oh dear lots of auto corrects !
I had the same gel in the syringe that was supposed to say !!

Sunflower82

Posts : 82
Join date : 2012-02-17

Back to top Go down

Just Diagnosed- frustrated and worried please help Empty Re: Just Diagnosed- frustrated and worried please help

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum