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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Just Frustrated

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Just Frustrated

Post  Alana3 on Thu Oct 17, 2013 6:38 pm

I guess I'm frustrated because I feel that every single part of me that makes me a woman is damaged. When I was 16, I found a lump in my boob, and had to have a lumpectomy (luckily it wasn't cancer, but it was humiliating when people found out regardless). I still suffer to this day with cysts. Awful. And they hurt like hell. And I can't wear a bra because theyre huge and bras cause shoulder and back pain (also when I stopped wearing a bra as much, the cysts were 40% better so I don't know maybe its not such a bad thing?)

Then fast forward to when I had sex without thinking about it, all of a sudden, it just started to hurt. Hello vulvodynia! Luckily here, I was able to get a vestibulectomy and am able to be almost as good as new. But it took 7 or so years. And the hell to get to the vestibulectomy wasn't too much fun either.

Than, starting from the point when I got my period, I always had impossibly annoying, painful, and heavy periods. Turns out, I have endometriosis. The pain is excruciating. I hate having my period. In fact, I dread it. Every second of it. It is miserable. I have to be on birth control, and I can't use tampons due to the pain.

I just feel damaged like every part of me that defines me as a woman is fucked up somehow. Everyone keeps telling me not to get depressed, but I can't help it, I am. I'm just waiting for IC to happen or something else, one more way to feel even less like a person. I just want ONE day where I don't hurt, where people aren't like you complain all the time (I'm pretty sure if someone healthy had ONE of these problems for an hour they'd be pretty pissed too). I'm sick of living like this. I hurt, I'm tired and I just want to go to bed. Does anyone else ever feel like what the fuck did I do to deserve this? In my opinion, being a woman is terrible I hate it. Everything to do with it. I just want to feel like someone normal. Sorry, I needed to vent.

Alana3

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Re: Just Frustrated

Post  zarli on Fri Oct 18, 2013 9:27 am

I'm hearing you sweetie !!! I look at my friends and some days I feel like saying "What the fuck do you have to worry about " I know this is an unreasonable bad thought but gee I feel totally ripped off living with this shit thing. Some days I feel its OK to just say FUCK IT this is shit!!!!!!!!!! You have certainly had way too much bad stuff to deal with, my heart goes out to you, keep venting when you need to and allow your self to have the crap days. Although know you are not alone and I always like to believe there are better days ahead. Things never stay the same and just when you think they can't get any worse they can, and just when you think things cant get any BETTER they can.

zarli

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Re: Just Frustrated

Post  zarli on Fri Oct 18, 2013 9:38 am

Sorry about the swearing but its sometimes warranted...

zarli

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Re: Just Frustrated

Post  EviE°Bee on Wed Nov 13, 2013 8:27 am

Wowie. That's a lot of shit.

I feel the same way. Im sure many of us do, like you pointed out. Everyone has a breaking point. Whats going on with your body is plenty reason to feel like you were given a crap hand in life. Important thing is to not stay in that negative place.

I dread waking up in the morning because I honestly don't know what it's gonna feel like. I can't sleep sometimes because I don't know if I will ever be NORMAL again. There are days I want to stay in bed and not speak to anyone, most days I suck it up and deal because there isn't anything I can do, not yet anyway.

I can't remember who said it or which discussion I was reading on here but this person said "If I was normal once, I believe I can be normal again." (Not a direct quote but along those lines.)
It made me feel more positive.

I don't know why we were "chosen" to deal with the problems we face. I do not have someone to go with me when I face these stoned-faced Dr's, no one is here with me when im at a store, in pain, and...I look at all these women and I wonder if any of them feel the same pain I feel.
What helps is I know there's an army of people who are having the same problems and issues I have. Mentally, im not alone. You ladies are always in the back of my mind, fighting your own personal hells like me. We're all in the same trench.

Muah! Feel better.
Evie Bee




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Re: Just Frustrated

Post  Alana3 on Wed Nov 13, 2013 1:56 pm

Yeah yesterday I had some weird tearing pain, today, nothing! It's so weird. I think mine had to do with muscles tho cuz I hadn't had sex in awhile and it tightened up. I took a muscle relaxer and the pain went away. Its only on one side and clearly not an infection of any kind but god body suck it up I don't need second guessing every two minutes. ugh. But mostly, now, I feel pretty good.

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Re: Just Frustrated

Post  mary jane on Wed Nov 13, 2013 10:37 pm

@ alana that's great ! focus on those very good days and enjoy them !!!!
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Re: Just Frustrated

Post  Alana3 on Wed Nov 13, 2013 11:15 pm

Thank you!

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Re: Just Frustrated

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