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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


Just Frustrated

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Just Frustrated

Post  Alana3 on Thu Oct 17, 2013 6:38 pm

I guess I'm frustrated because I feel that every single part of me that makes me a woman is damaged. When I was 16, I found a lump in my boob, and had to have a lumpectomy (luckily it wasn't cancer, but it was humiliating when people found out regardless). I still suffer to this day with cysts. Awful. And they hurt like hell. And I can't wear a bra because theyre huge and bras cause shoulder and back pain (also when I stopped wearing a bra as much, the cysts were 40% better so I don't know maybe its not such a bad thing?)

Then fast forward to when I had sex without thinking about it, all of a sudden, it just started to hurt. Hello vulvodynia! Luckily here, I was able to get a vestibulectomy and am able to be almost as good as new. But it took 7 or so years. And the hell to get to the vestibulectomy wasn't too much fun either.

Than, starting from the point when I got my period, I always had impossibly annoying, painful, and heavy periods. Turns out, I have endometriosis. The pain is excruciating. I hate having my period. In fact, I dread it. Every second of it. It is miserable. I have to be on birth control, and I can't use tampons due to the pain.

I just feel damaged like every part of me that defines me as a woman is fucked up somehow. Everyone keeps telling me not to get depressed, but I can't help it, I am. I'm just waiting for IC to happen or something else, one more way to feel even less like a person. I just want ONE day where I don't hurt, where people aren't like you complain all the time (I'm pretty sure if someone healthy had ONE of these problems for an hour they'd be pretty pissed too). I'm sick of living like this. I hurt, I'm tired and I just want to go to bed. Does anyone else ever feel like what the fuck did I do to deserve this? In my opinion, being a woman is terrible I hate it. Everything to do with it. I just want to feel like someone normal. Sorry, I needed to vent.

Alana3

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Re: Just Frustrated

Post  zarli on Fri Oct 18, 2013 9:27 am

I'm hearing you sweetie !!! I look at my friends and some days I feel like saying "What the fuck do you have to worry about " I know this is an unreasonable bad thought but gee I feel totally ripped off living with this shit thing. Some days I feel its OK to just say FUCK IT this is shit!!!!!!!!!! You have certainly had way too much bad stuff to deal with, my heart goes out to you, keep venting when you need to and allow your self to have the crap days. Although know you are not alone and I always like to believe there are better days ahead. Things never stay the same and just when you think they can't get any worse they can, and just when you think things cant get any BETTER they can.

zarli

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Re: Just Frustrated

Post  zarli on Fri Oct 18, 2013 9:38 am

Sorry about the swearing but its sometimes warranted...

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Re: Just Frustrated

Post  EviE°Bee on Wed Nov 13, 2013 8:27 am

Wowie. That's a lot of shit.

I feel the same way. Im sure many of us do, like you pointed out. Everyone has a breaking point. Whats going on with your body is plenty reason to feel like you were given a crap hand in life. Important thing is to not stay in that negative place.

I dread waking up in the morning because I honestly don't know what it's gonna feel like. I can't sleep sometimes because I don't know if I will ever be NORMAL again. There are days I want to stay in bed and not speak to anyone, most days I suck it up and deal because there isn't anything I can do, not yet anyway.

I can't remember who said it or which discussion I was reading on here but this person said "If I was normal once, I believe I can be normal again." (Not a direct quote but along those lines.)
It made me feel more positive.

I don't know why we were "chosen" to deal with the problems we face. I do not have someone to go with me when I face these stoned-faced Dr's, no one is here with me when im at a store, in pain, and...I look at all these women and I wonder if any of them feel the same pain I feel.
What helps is I know there's an army of people who are having the same problems and issues I have. Mentally, im not alone. You ladies are always in the back of my mind, fighting your own personal hells like me. We're all in the same trench.

Muah! Feel better.
Evie Bee




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Re: Just Frustrated

Post  Alana3 on Wed Nov 13, 2013 1:56 pm

Yeah yesterday I had some weird tearing pain, today, nothing! It's so weird. I think mine had to do with muscles tho cuz I hadn't had sex in awhile and it tightened up. I took a muscle relaxer and the pain went away. Its only on one side and clearly not an infection of any kind but god body suck it up I don't need second guessing every two minutes. ugh. But mostly, now, I feel pretty good.

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Re: Just Frustrated

Post  mary jane on Wed Nov 13, 2013 10:37 pm

@ alana that's great ! focus on those very good days and enjoy them !!!!
mary jane
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Re: Just Frustrated

Post  Alana3 on Wed Nov 13, 2013 11:15 pm

Thank you!

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Re: Just Frustrated

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