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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Does anybody have any tips on how to stay intimate?

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Does anybody have any tips on how to stay intimate?

Post  Nelsonhs30 on Sun Oct 20, 2013 4:07 am

Since sex isn't an option until I find the right treatment to make my pain go away, does anybody have an tips or advice on other things to do to maintain that closeness with your partner? Blowjobs are getting boring and taking turns on each other is just too much of a chore after so long of this. Any tips to spice things up?

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Re: Does anybody have any tips on how to stay intimate?

Post  Alana3 on Sun Oct 20, 2013 4:20 am

Roleplay I guess would be one way

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Re: Does anybody have any tips on how to stay intimate?

Post  Takver on Mon Oct 21, 2013 10:15 am

Nelsonhs30 wrote:Since sex isn't an option...taking turns on each other is just too much of a chore after so long of this.
Could you explain which definition of "sex" you're using? PIV sex, or any kind of genital contact? Also what you mean about "taking turns on each other"? It gives us more of an idea of how many options are open to you.
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Re: Does anybody have any tips on how to stay intimate?

Post  tinkerbelle2 on Mon Oct 21, 2013 3:57 pm

Blowjobs do get boring don't they! lol. I'm no expert but maybe you could like dress up for him and talk dirty? my boyfriend loves all that. Or watch something kinky. Or you could just accept that sex isn't right for you at the moment and be intimate and affectionate in other ways such as kissing and cuddling
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anal-)

Post  lavrose on Tue Oct 22, 2013 11:27 pm

anal sex is actually pretty awesome. Especially if hes not too big and you guys take it slow at first. The orgasms (if your stimulating your clit while hes doing it) are incredible. 10 xs more intense, Im serious.

Anal sex has been my standby for 4 years now, and its saved me so much more insanity and frustration dealing with this condition, if you cum, its as satisfying if not more satisfying than vaginal. Once i stated doing it, I understood what all the fuss was about with gay men, lol!! Smile)

Theres something about anal sex that is hard to explain and very intense, and men Love it too, so try it, and remember to keep CLEAN, and shower each and everytime you do it, right after, both of you, do not fall asleep without showing, youll get an infection very easily.
be very careful not to let bacteria get into your vag area, no mishaps, etc..
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Re: Does anybody have any tips on how to stay intimate?

Post  Mark on Wed Oct 23, 2013 7:22 pm

I'm a man and have only ever been intimate with one woman with v (now my wife) so I'm no expert, but I've read that it affects different women differently. For my wife, penetration is an absolute no-no, but oral doesn't cause a flare-up and can sometimes help. If that's the case then maybe just get your man to go down on you. We guys tend to enjoy doing that :-)

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Re: Does anybody have any tips on how to stay intimate?

Post  Nelsonhs30 on Thu Oct 24, 2013 6:23 am

I appreciate all the feedback! Thank you! My bf and I have discussed anal but it sounds quite scary to me. I heard that is not an area to penetrate because it can easily tear. It may be something to consider until I am able to have vaginal sex again but I am not 100% sold on the idea.

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Re: Does anybody have any tips on how to stay intimate?

Post  Mark on Fri Nov 15, 2013 11:35 pm

I don't think you should try vaginal sex if you have any concerns that it could trigger or worsen your condition. No man who loves a woman would want to risk that. Only do things when you feel the desire, and focus on stuff that you enjoy and make you feel better rather than worse.

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Re: Does anybody have any tips on how to stay intimate?

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