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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Does anybody have any tips on how to stay intimate?

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Does anybody have any tips on how to stay intimate?

Post  Nelsonhs30 on Sun Oct 20, 2013 4:07 am

Since sex isn't an option until I find the right treatment to make my pain go away, does anybody have an tips or advice on other things to do to maintain that closeness with your partner? Blowjobs are getting boring and taking turns on each other is just too much of a chore after so long of this. Any tips to spice things up?

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Re: Does anybody have any tips on how to stay intimate?

Post  Alana3 on Sun Oct 20, 2013 4:20 am

Roleplay I guess would be one way

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Re: Does anybody have any tips on how to stay intimate?

Post  Takver on Mon Oct 21, 2013 10:15 am

Nelsonhs30 wrote:Since sex isn't an option...taking turns on each other is just too much of a chore after so long of this.
Could you explain which definition of "sex" you're using? PIV sex, or any kind of genital contact? Also what you mean about "taking turns on each other"? It gives us more of an idea of how many options are open to you.
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Re: Does anybody have any tips on how to stay intimate?

Post  tinkerbelle2 on Mon Oct 21, 2013 3:57 pm

Blowjobs do get boring don't they! lol. I'm no expert but maybe you could like dress up for him and talk dirty? my boyfriend loves all that. Or watch something kinky. Or you could just accept that sex isn't right for you at the moment and be intimate and affectionate in other ways such as kissing and cuddling
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anal-)

Post  lavrose on Tue Oct 22, 2013 11:27 pm

anal sex is actually pretty awesome. Especially if hes not too big and you guys take it slow at first. The orgasms (if your stimulating your clit while hes doing it) are incredible. 10 xs more intense, Im serious.

Anal sex has been my standby for 4 years now, and its saved me so much more insanity and frustration dealing with this condition, if you cum, its as satisfying if not more satisfying than vaginal. Once i stated doing it, I understood what all the fuss was about with gay men, lol!! Smile)

Theres something about anal sex that is hard to explain and very intense, and men Love it too, so try it, and remember to keep CLEAN, and shower each and everytime you do it, right after, both of you, do not fall asleep without showing, youll get an infection very easily.
be very careful not to let bacteria get into your vag area, no mishaps, etc..
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Re: Does anybody have any tips on how to stay intimate?

Post  Mark on Wed Oct 23, 2013 7:22 pm

I'm a man and have only ever been intimate with one woman with v (now my wife) so I'm no expert, but I've read that it affects different women differently. For my wife, penetration is an absolute no-no, but oral doesn't cause a flare-up and can sometimes help. If that's the case then maybe just get your man to go down on you. We guys tend to enjoy doing that :-)

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Re: Does anybody have any tips on how to stay intimate?

Post  Nelsonhs30 on Thu Oct 24, 2013 6:23 am

I appreciate all the feedback! Thank you! My bf and I have discussed anal but it sounds quite scary to me. I heard that is not an area to penetrate because it can easily tear. It may be something to consider until I am able to have vaginal sex again but I am not 100% sold on the idea.

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Re: Does anybody have any tips on how to stay intimate?

Post  Mark on Fri Nov 15, 2013 11:35 pm

I don't think you should try vaginal sex if you have any concerns that it could trigger or worsen your condition. No man who loves a woman would want to risk that. Only do things when you feel the desire, and focus on stuff that you enjoy and make you feel better rather than worse.

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Re: Does anybody have any tips on how to stay intimate?

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