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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Does anybody have any tips on how to stay intimate?

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Does anybody have any tips on how to stay intimate?

Post  Nelsonhs30 on Sun Oct 20, 2013 4:07 am

Since sex isn't an option until I find the right treatment to make my pain go away, does anybody have an tips or advice on other things to do to maintain that closeness with your partner? Blowjobs are getting boring and taking turns on each other is just too much of a chore after so long of this. Any tips to spice things up?

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Re: Does anybody have any tips on how to stay intimate?

Post  Alana3 on Sun Oct 20, 2013 4:20 am

Roleplay I guess would be one way

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Re: Does anybody have any tips on how to stay intimate?

Post  Takver on Mon Oct 21, 2013 10:15 am

Nelsonhs30 wrote:Since sex isn't an option...taking turns on each other is just too much of a chore after so long of this.
Could you explain which definition of "sex" you're using? PIV sex, or any kind of genital contact? Also what you mean about "taking turns on each other"? It gives us more of an idea of how many options are open to you.
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Re: Does anybody have any tips on how to stay intimate?

Post  tinkerbelle2 on Mon Oct 21, 2013 3:57 pm

Blowjobs do get boring don't they! lol. I'm no expert but maybe you could like dress up for him and talk dirty? my boyfriend loves all that. Or watch something kinky. Or you could just accept that sex isn't right for you at the moment and be intimate and affectionate in other ways such as kissing and cuddling
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anal-)

Post  lavrose on Tue Oct 22, 2013 11:27 pm

anal sex is actually pretty awesome. Especially if hes not too big and you guys take it slow at first. The orgasms (if your stimulating your clit while hes doing it) are incredible. 10 xs more intense, Im serious.

Anal sex has been my standby for 4 years now, and its saved me so much more insanity and frustration dealing with this condition, if you cum, its as satisfying if not more satisfying than vaginal. Once i stated doing it, I understood what all the fuss was about with gay men, lol!! Smile)

Theres something about anal sex that is hard to explain and very intense, and men Love it too, so try it, and remember to keep CLEAN, and shower each and everytime you do it, right after, both of you, do not fall asleep without showing, youll get an infection very easily.
be very careful not to let bacteria get into your vag area, no mishaps, etc..
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Re: Does anybody have any tips on how to stay intimate?

Post  Mark on Wed Oct 23, 2013 7:22 pm

I'm a man and have only ever been intimate with one woman with v (now my wife) so I'm no expert, but I've read that it affects different women differently. For my wife, penetration is an absolute no-no, but oral doesn't cause a flare-up and can sometimes help. If that's the case then maybe just get your man to go down on you. We guys tend to enjoy doing that :-)

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Re: Does anybody have any tips on how to stay intimate?

Post  Nelsonhs30 on Thu Oct 24, 2013 6:23 am

I appreciate all the feedback! Thank you! My bf and I have discussed anal but it sounds quite scary to me. I heard that is not an area to penetrate because it can easily tear. It may be something to consider until I am able to have vaginal sex again but I am not 100% sold on the idea.

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Re: Does anybody have any tips on how to stay intimate?

Post  Mark on Fri Nov 15, 2013 11:35 pm

I don't think you should try vaginal sex if you have any concerns that it could trigger or worsen your condition. No man who loves a woman would want to risk that. Only do things when you feel the desire, and focus on stuff that you enjoy and make you feel better rather than worse.

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Re: Does anybody have any tips on how to stay intimate?

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