Log in
Similar topics
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Does anybody have any tips on how to stay intimate?
+2
Alana3
Nelsonhs30
6 posters
Page 1 of 1
Does anybody have any tips on how to stay intimate?
Since sex isn't an option until I find the right treatment to make my pain go away, does anybody have an tips or advice on other things to do to maintain that closeness with your partner? Blowjobs are getting boring and taking turns on each other is just too much of a chore after so long of this. Any tips to spice things up?
Nelsonhs30- Posts : 15
Join date : 2013-10-09
Age : 32
Location : Wisconsin
Re: Does anybody have any tips on how to stay intimate?
Roleplay I guess would be one way
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Does anybody have any tips on how to stay intimate?
Could you explain which definition of "sex" you're using? PIV sex, or any kind of genital contact? Also what you mean about "taking turns on each other"? It gives us more of an idea of how many options are open to you.Nelsonhs30 wrote:Since sex isn't an option...taking turns on each other is just too much of a chore after so long of this.
Takver- Posts : 41
Join date : 2013-09-11
Location : UK
Re: Does anybody have any tips on how to stay intimate?
Blowjobs do get boring don't they! lol. I'm no expert but maybe you could like dress up for him and talk dirty? my boyfriend loves all that. Or watch something kinky. Or you could just accept that sex isn't right for you at the moment and be intimate and affectionate in other ways such as kissing and cuddling
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
anal-)
anal sex is actually pretty awesome. Especially if hes not too big and you guys take it slow at first. The orgasms (if your stimulating your clit while hes doing it) are incredible. 10 xs more intense, Im serious.
Anal sex has been my standby for 4 years now, and its saved me so much more insanity and frustration dealing with this condition, if you cum, its as satisfying if not more satisfying than vaginal. Once i stated doing it, I understood what all the fuss was about with gay men, lol!! )
Theres something about anal sex that is hard to explain and very intense, and men Love it too, so try it, and remember to keep CLEAN, and shower each and everytime you do it, right after, both of you, do not fall asleep without showing, youll get an infection very easily.
be very careful not to let bacteria get into your vag area, no mishaps, etc..
Anal sex has been my standby for 4 years now, and its saved me so much more insanity and frustration dealing with this condition, if you cum, its as satisfying if not more satisfying than vaginal. Once i stated doing it, I understood what all the fuss was about with gay men, lol!! )
Theres something about anal sex that is hard to explain and very intense, and men Love it too, so try it, and remember to keep CLEAN, and shower each and everytime you do it, right after, both of you, do not fall asleep without showing, youll get an infection very easily.
be very careful not to let bacteria get into your vag area, no mishaps, etc..
lavrose- Posts : 152
Join date : 2012-04-28
Re: Does anybody have any tips on how to stay intimate?
I'm a man and have only ever been intimate with one woman with v (now my wife) so I'm no expert, but I've read that it affects different women differently. For my wife, penetration is an absolute no-no, but oral doesn't cause a flare-up and can sometimes help. If that's the case then maybe just get your man to go down on you. We guys tend to enjoy doing that :-)
Mark- Posts : 53
Join date : 2011-03-28
Re: Does anybody have any tips on how to stay intimate?
I appreciate all the feedback! Thank you! My bf and I have discussed anal but it sounds quite scary to me. I heard that is not an area to penetrate because it can easily tear. It may be something to consider until I am able to have vaginal sex again but I am not 100% sold on the idea.
Nelsonhs30- Posts : 15
Join date : 2013-10-09
Age : 32
Location : Wisconsin
Re: Does anybody have any tips on how to stay intimate?
I don't think you should try vaginal sex if you have any concerns that it could trigger or worsen your condition. No man who loves a woman would want to risk that. Only do things when you feel the desire, and focus on stuff that you enjoy and make you feel better rather than worse.
Mark- Posts : 53
Join date : 2011-03-28
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
|
|
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer