Vulvodynia Support
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» Hope to all my suffering ladies
Can I have my painful vulva removed? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Can I have my painful vulva removed? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Can I have my painful vulva removed? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Can I have my painful vulva removed? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Can I have my painful vulva removed? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Can I have my painful vulva removed? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Can I have my painful vulva removed? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Can I have my painful vulva removed? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Can I have my painful vulva removed? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Can I have my painful vulva removed?

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Can I have my painful vulva removed? Empty Can I have my painful vulva removed?

Post  mary jane Sat Oct 19, 2013 8:28 pm

is this possible? I am very pessimistic about my outcome, I have provoked pain of one vulva, discomfort walking, and arousal makes it red and swollen and I get painful blood vessels (OH GOD)
mary jane
mary jane

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Join date : 2013-10-05
Location : UK

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Post  Alana3 Sat Oct 19, 2013 9:59 pm

Vestibulectomy...

Alana3

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Join date : 2012-09-25

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Post  mary jane Sun Oct 20, 2013 8:55 am

so is that a total vestibulectomy? so it includes all of the vestibular glands, right?
mary jane
mary jane

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Post  Alana3 Sun Oct 20, 2013 1:06 pm

Why don't you talk to your doctor? I have no idea whats best for you since you have cysts and maybe there's something else they can do because it doesn't sound like you have v like I did

Alana3

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Post  mary jane Sun Oct 20, 2013 2:31 pm

I'll try, I have such weird symptoms they scare me very much. I also have a lot of referral pain in my thighs, my back and buzzing all over my groin area. Plus varicose veins, I feel like I am disintegrating, I was so healthy 6 weeks ago
mary jane
mary jane

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Post  Alana3 Sun Oct 20, 2013 3:19 pm

Maybe you have endo or a pinched nerve. My endo gives me really bad back and thigh pain... or possible your pregnant?

Alana3

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Post  mary jane Sun Oct 20, 2013 3:38 pm

I haven't had sex in 16 months, no pregnancy.
I don't have endo, I'm sure of that. It's my gland, I just don't understand how it's possible for small scar tissue from previous lancing be so innervated and painful.
mary jane
mary jane

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Post  Alana3 Sun Oct 20, 2013 4:40 pm

It makes sense if you have an abscess deal try an epsom salt bath

Alana3

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Post  mary jane Sun Oct 20, 2013 4:54 pm

I don't have cysts, but my but my vulvodynia started when one of these small cysts which was infected ruptured and irritated the gland and boom- nerve pain !
mary jane
mary jane

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Post  tinkerbelle2 Mon Oct 21, 2013 3:53 pm

Sorry to hear you're no better Maryjane Sad was your appointment unsuccessful?
tinkerbelle2
tinkerbelle2

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Age : 31
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Post  mary jane Mon Oct 21, 2013 4:43 pm

MY GP is clueless, sent me home with naproxen.
I'm seeing a specialist in 3-4 weeks time or so.
I keep getting referral pain in the other labia !!!!!!!!!!!!!!!!
mary jane
mary jane

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Post  Alana3 Mon Oct 21, 2013 4:46 pm

Most regular gynos dont know shit youre better off going to a specialist anyway.

Alana3

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