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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Having the flu and 'V'

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Having the flu and 'V'

Post  zarli on Wed Oct 23, 2013 10:26 am

Hi Girls
Just been through a gruelling week of the flu (I haven't had the flu since 2002) WOW I couldn't believe how bad I ached but the surprising thing was the highlighted aching in the Vulva and souls of my feet. I have a high pain tolerance and am not a whinger but it was really bad. My Vulvodynia started on the left side and that's what was aching the most. Now I have terrible low back pain and a fairly new symptom of pain on the left side of my head interesting that my hair is falling out on the left side of my head...WEIRD.

Also I have never met another woman personally who has Vulvodynia but today I met a man through a friend of mine who has well you could say Vulvodynia in his penis and groin area, his battles have been all similar to us as far as medication goes.


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Re: Having the flu and 'V'

Post  Alana3 on Wed Oct 23, 2013 1:21 pm

Well yeah, vulvodynia is considered to be in the category of autoimmune diseases, so if you get the flu, it attacks your immune system which in turn would probably make everything a little more pissed off than usual.


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Re: Having the flu and 'V'

Post  Sarah001 on Wed Oct 23, 2013 4:42 pm

I also know a man with V type symptoms in his testicles which happened after he had a hernia repair so they suspect the surgeon damaged a nerve in the groin, he has not found any lasting relief from meds either.

I find it odd your V got worse when you had flu, usually a normal immune system prioritises things so the flu would be the new and acute attacker so it should have been kept too busy with that to throw any inflammation at your vulvar for the first few days. Have you had a blood test for autoimmune antibodies? If an autoimmune disorder was present it would ramp up the response to both which sounds to be what happened in your case.

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Re: Having the flu and 'V'

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