Vulvodynia Support
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» Hope to all my suffering ladies
Having the flu and 'V' EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Having the flu and 'V' EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Having the flu and 'V' EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Having the flu and 'V' EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Having the flu and 'V' EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Having the flu and 'V' EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Having the flu and 'V' EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Having the flu and 'V' EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Having the flu and 'V' EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Having the flu and 'V'

3 posters

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Having the flu and 'V' Empty Having the flu and 'V'

Post  zarli Wed Oct 23, 2013 10:26 am

Hi Girls
Just been through a gruelling week of the flu (I haven't had the flu since 2002) WOW I couldn't believe how bad I ached but the surprising thing was the highlighted aching in the Vulva and souls of my feet. I have a high pain tolerance and am not a whinger but it was really bad. My Vulvodynia started on the left side and that's what was aching the most. Now I have terrible low back pain and a fairly new symptom of pain on the left side of my head interesting that my hair is falling out on the left side of my head...WEIRD.

Also I have never met another woman personally who has Vulvodynia but today I met a man through a friend of mine who has well you could say Vulvodynia in his penis and groin area, his battles have been all similar to us as far as medication goes.

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Having the flu and 'V' Empty Re: Having the flu and 'V'

Post  Alana3 Wed Oct 23, 2013 1:21 pm

Well yeah, vulvodynia is considered to be in the category of autoimmune diseases, so if you get the flu, it attacks your immune system which in turn would probably make everything a little more pissed off than usual.

Alana3

Posts : 1093
Join date : 2012-09-25

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Having the flu and 'V' Empty Re: Having the flu and 'V'

Post  Sarah001 Wed Oct 23, 2013 4:42 pm

I also know a man with V type symptoms in his testicles which happened after he had a hernia repair so they suspect the surgeon damaged a nerve in the groin, he has not found any lasting relief from meds either.

I find it odd your V got worse when you had flu, usually a normal immune system prioritises things so the flu would be the new and acute attacker so it should have been kept too busy with that to throw any inflammation at your vulvar for the first few days. Have you had a blood test for autoimmune antibodies? If an autoimmune disorder was present it would ramp up the response to both which sounds to be what happened in your case.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Having the flu and 'V' Empty Re: Having the flu and 'V'

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