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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Great, I now have a hemorroid! For fuck sake!

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Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Fri Oct 25, 2013 7:23 am

I am literally falling to pieces lol! :'( I think it's because I've eaten loads of junk lately...I'm on the laxido and fybogel now. Now that whole area is so sore :(FML.


Last edited by tinkerbelle2 on Thu Dec 12, 2013 11:28 am; edited 1 time in total
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Re: Great, I now have a hemorroid! For fuck sake!

Post  mary jane on Fri Oct 25, 2013 6:33 pm

don't worry sweetie, you;re not alone. I have a varicose vein near my vagina and my latest symptom is persistent genital arousal syndrome. I walk around like a duck, I might have to quit university soon as I cannot function anymore.
do take something for the piles !
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Post  tinkerbelle2 on Sat Oct 26, 2013 1:40 pm

Oh no! Bless you :'( what the hell is wrong with us?! I'm using creams and stool softeners, fybogel plus eating more fibre. I just can't be bothered with it all! Try not to drop out of uni! You poor thing must be awful. I had a lot of time off college last year. (Though it was also partially due to laziness haha)
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Post  mary jane on Sat Oct 26, 2013 3:17 pm

@Tinkerbelle, we are just gong through a "bad luck" phase I guess. I'm sure people on every other chronic pain forum are thinking the same things, going through symptoms and possible cures.
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Post  tinkerbelle2 on Sat Oct 26, 2013 4:55 pm

That is very true. Just wish I knew the cause. It's such a long phase :'( at least we are on the right path with specialists etc. I'd have rather broken my leg or something
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Post  mary jane on Sat Oct 26, 2013 4:59 pm

@tinkerbelle, there is wonderful support group here in london, next meeting is on the 7th of december!
the girls are lovely and you can find out a lot of great information. I went to the 12 oct. meeting, it's being held at st cyprian's church!
it really helps in this tough time to have family and friends close, but especially other girls in your same situation.
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Re: Great, I now have a hemorroid! For fuck sake!

Post  Alana3 on Sat Oct 26, 2013 5:01 pm

No you wouldn't my boyfriends bro broke his arm in half and has zero feeling in it. Deal with what youre given you know how to handle it. Plus at the end of the day this isnt the worst thing my boyfriend had cancer and fought for his life at least you cant die from this. It could be worse. Though vulvodynia sucks it could always be worse. And there are so many treatments you need to find one that works for you and when that happens you'll be like oh no big deal Smile

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Re: Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Sun Oct 27, 2013 4:00 pm

Alana3 wrote:No you wouldn't my boyfriends bro broke his arm in half and has zero feeling in it. Deal with what youre given you know how to handle it. Plus at the end of the day this isnt the worst thing my boyfriend had cancer and fought for his life at least you cant die from this. It could be worse. Though vulvodynia sucks it could always be worse. And there are so many treatments you need to find one that works for you and when that happens you'll be like oh no big deal Smile
Good point but I don't know how to handle it. I'd rather a painful but broken bone that would mend. But that is awful about your boyfriend, I definitely wouldn't compare this to cancer, it isn't life threatening, but just wish it was a more common, treatable condition
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Post  Alana3 on Sun Oct 27, 2013 4:40 pm

I hear you but keep in mind if is treatable it just takes a while to find the right fix for everyone were all different I also have endometriosis and its terrible but I just try and deal I'm looking at losing an ovary and possibly my uterus (which I am stoked about honestly) but theres even less they can do about that :/ just maybe talk to a counselor it helped me she told me how to pinpoint my anger and relax so it wasnt as bad... if that makes sense

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Post  tinkerbelle2 on Mon Oct 28, 2013 8:26 am

I hope so! Yeah I think some councilling would do be good! Poor you alana that must be really hard. I have been getting cystitis quite a lot. Did you say you have a little boy?
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Post  Alana3 on Mon Oct 28, 2013 1:33 pm

No kids for me def not ready and there's no way I'm getting pregnant haha

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Post  tinkerbelle2 on Sun Nov 17, 2013 1:07 pm

Oh haha! I know what you mean. Can't wait to have kids in the distant future ! If this thing is gone lol
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