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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


Great, I now have a hemorroid! For fuck sake!

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Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Fri Oct 25, 2013 7:23 am

I am literally falling to pieces lol! :'( I think it's because I've eaten loads of junk lately...I'm on the laxido and fybogel now. Now that whole area is so sore :(FML.


Last edited by tinkerbelle2 on Thu Dec 12, 2013 11:28 am; edited 1 time in total
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Re: Great, I now have a hemorroid! For fuck sake!

Post  mary jane on Fri Oct 25, 2013 6:33 pm

don't worry sweetie, you;re not alone. I have a varicose vein near my vagina and my latest symptom is persistent genital arousal syndrome. I walk around like a duck, I might have to quit university soon as I cannot function anymore.
do take something for the piles !
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Re: Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Sat Oct 26, 2013 1:40 pm

Oh no! Bless you :'( what the hell is wrong with us?! I'm using creams and stool softeners, fybogel plus eating more fibre. I just can't be bothered with it all! Try not to drop out of uni! You poor thing must be awful. I had a lot of time off college last year. (Though it was also partially due to laziness haha)
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Re: Great, I now have a hemorroid! For fuck sake!

Post  mary jane on Sat Oct 26, 2013 3:17 pm

@Tinkerbelle, we are just gong through a "bad luck" phase I guess. I'm sure people on every other chronic pain forum are thinking the same things, going through symptoms and possible cures.
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Re: Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Sat Oct 26, 2013 4:55 pm

That is very true. Just wish I knew the cause. It's such a long phase :'( at least we are on the right path with specialists etc. I'd have rather broken my leg or something
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Re: Great, I now have a hemorroid! For fuck sake!

Post  mary jane on Sat Oct 26, 2013 4:59 pm

@tinkerbelle, there is wonderful support group here in london, next meeting is on the 7th of december!
the girls are lovely and you can find out a lot of great information. I went to the 12 oct. meeting, it's being held at st cyprian's church!
it really helps in this tough time to have family and friends close, but especially other girls in your same situation.
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Re: Great, I now have a hemorroid! For fuck sake!

Post  Alana3 on Sat Oct 26, 2013 5:01 pm

No you wouldn't my boyfriends bro broke his arm in half and has zero feeling in it. Deal with what youre given you know how to handle it. Plus at the end of the day this isnt the worst thing my boyfriend had cancer and fought for his life at least you cant die from this. It could be worse. Though vulvodynia sucks it could always be worse. And there are so many treatments you need to find one that works for you and when that happens you'll be like oh no big deal Smile

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Re: Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Sun Oct 27, 2013 4:00 pm

Alana3 wrote:No you wouldn't my boyfriends bro broke his arm in half and has zero feeling in it. Deal with what youre given you know how to handle it. Plus at the end of the day this isnt the worst thing my boyfriend had cancer and fought for his life at least you cant die from this. It could be worse. Though vulvodynia sucks it could always be worse. And there are so many treatments you need to find one that works for you and when that happens you'll be like oh no big deal Smile
Good point but I don't know how to handle it. I'd rather a painful but broken bone that would mend. But that is awful about your boyfriend, I definitely wouldn't compare this to cancer, it isn't life threatening, but just wish it was a more common, treatable condition
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Re: Great, I now have a hemorroid! For fuck sake!

Post  Alana3 on Sun Oct 27, 2013 4:40 pm

I hear you but keep in mind if is treatable it just takes a while to find the right fix for everyone were all different I also have endometriosis and its terrible but I just try and deal I'm looking at losing an ovary and possibly my uterus (which I am stoked about honestly) but theres even less they can do about that :/ just maybe talk to a counselor it helped me she told me how to pinpoint my anger and relax so it wasnt as bad... if that makes sense

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Re: Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Mon Oct 28, 2013 8:26 am

I hope so! Yeah I think some councilling would do be good! Poor you alana that must be really hard. I have been getting cystitis quite a lot. Did you say you have a little boy?
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Re: Great, I now have a hemorroid! For fuck sake!

Post  Alana3 on Mon Oct 28, 2013 1:33 pm

No kids for me def not ready and there's no way I'm getting pregnant haha

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Re: Great, I now have a hemorroid! For fuck sake!

Post  tinkerbelle2 on Sun Nov 17, 2013 1:07 pm

Oh haha! I know what you mean. Can't wait to have kids in the distant future ! If this thing is gone lol
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