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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


UPDATE ON MY PAIN!

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UPDATE ON MY PAIN!

Post  quell183 on Tue Oct 29, 2013 6:27 am

Hello ladies. So i have had the symptoms since may 2013 as some may already know. My pain was at about a 2 and has progressively turned to about and 8! I havent had any treatment because it is extremely expensive since i do not have health insurance. i have seen 4 different gynecologists and they have all told me different things. The last doctor said he believed i had vestibulitis but didnt give me anything! This was about 2 months ago. I basically don't know who to see next, chiropractor? Physical therapy? Urologist? Dermatologist? I have no idea what to do. I was thinking id see a chiropractor because i have always had lower back problems and when i lay flat or the ground i hear a crack, like my tailbone crack or something. If i squeeze real tight like doing a kegel it cracks also. Anyway, i had sex for the 1st time since i first felt this pain and i was able to do it just fine. i did it three other times but felt some pain after awhile of going at it. The last time was the worst, the sex was pretty rough and went on for some time and after that i was in excruciating pain. I felt like i had a knife stuck in my vagina, i could barely sit or do anything. I took vicodin and xanex and that pain went away. 2 days later i still feel like i have a huge cut and i feel pressure and stinging/burning pain. Vicodin doesnt help in the least. I just feel swollen and it hurts a bit to pee. Ive also had a lot of discharge lately, even before sex, its super watery but whitish also. Would a warm sitz bath in salt water maybe soothe swelling? Is there anything anyone would suggest?

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Tue Oct 29, 2013 4:18 pm

Hi Quell, So sorry to hear you're having such a rough time. People to try would be a vulval dermatologist to rule out any skin conditions, a physio to assess your pelvic floor & help with back pain, your doctor to try different pain relief (have you tried lidocaine yet? it didn't help me but it has helped some of the other ladies on here). I've never seen a chiro so I can't comment about those. You could use an ice pack just as a temporary fix to help with the swelling (don't apply directly to the skin - wrap in a towel or something) & a heat pad for the back pain. Lay off sex for a bit too to give you body a chance to recover. Hope this helps.

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Re: UPDATE ON MY PAIN!

Post  tinkerbelle2 on Wed Oct 30, 2013 9:18 am

Hi quell honey, I was hoping you hadn't posted in a while as you were feeling a lot better! Sorry to hear all this. I'm in the same dilemma as you. I don't know who to see but I'm going to ask to be referred to anyone and everyone! I read something about if you have had anything which disrupts the vagina, such as thrush, cystitis or sex, the pain signals and nerves in the body get confused and still feel pain even if everything is healthy. Sounds weird but i dont know an awful lot about medical stuff, could be the case I guess? ! I'm being seen on the 18th nov. I will tell them everything and bore them with info! I will consider botox and acupuncture even though both terrify me. Me and my vagina have majorly fallen out lol.
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Re: UPDATE ON MY PAIN!

Post  Sarah001 on Wed Oct 30, 2013 10:20 pm

Quell in that situation normally the noise you hear would be your SI joints so try a Women's Health Physio who knows about both V and pelvic alignment.
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Re: UPDATE ON MY PAIN!

Post  quell183 on Sun Nov 03, 2013 11:37 pm

Thanks ladies for the advice. A few days after this happened i saw a dermatologist, who was kind enough to waive the office visit because my friend workds in his office. He took a picture of the area, he was concerned it might be an early stage of lichen sclerosus. He perscribed me clobetasol ointment, and im supposed to use it for a week. Itll be my 3rd day using today and i feel the same, so the next step is a biopsy.

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Wed Nov 06, 2013 12:00 pm

Hi Quell, glad you managed to see the specialist - how are you getting on ? Is the ointment helping yet?

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Re: UPDATE ON MY PAIN!

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