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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


UPDATE ON MY PAIN!

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UPDATE ON MY PAIN!

Post  quell183 on Tue Oct 29, 2013 6:27 am

Hello ladies. So i have had the symptoms since may 2013 as some may already know. My pain was at about a 2 and has progressively turned to about and 8! I havent had any treatment because it is extremely expensive since i do not have health insurance. i have seen 4 different gynecologists and they have all told me different things. The last doctor said he believed i had vestibulitis but didnt give me anything! This was about 2 months ago. I basically don't know who to see next, chiropractor? Physical therapy? Urologist? Dermatologist? I have no idea what to do. I was thinking id see a chiropractor because i have always had lower back problems and when i lay flat or the ground i hear a crack, like my tailbone crack or something. If i squeeze real tight like doing a kegel it cracks also. Anyway, i had sex for the 1st time since i first felt this pain and i was able to do it just fine. i did it three other times but felt some pain after awhile of going at it. The last time was the worst, the sex was pretty rough and went on for some time and after that i was in excruciating pain. I felt like i had a knife stuck in my vagina, i could barely sit or do anything. I took vicodin and xanex and that pain went away. 2 days later i still feel like i have a huge cut and i feel pressure and stinging/burning pain. Vicodin doesnt help in the least. I just feel swollen and it hurts a bit to pee. Ive also had a lot of discharge lately, even before sex, its super watery but whitish also. Would a warm sitz bath in salt water maybe soothe swelling? Is there anything anyone would suggest?

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Tue Oct 29, 2013 4:18 pm

Hi Quell, So sorry to hear you're having such a rough time. People to try would be a vulval dermatologist to rule out any skin conditions, a physio to assess your pelvic floor & help with back pain, your doctor to try different pain relief (have you tried lidocaine yet? it didn't help me but it has helped some of the other ladies on here). I've never seen a chiro so I can't comment about those. You could use an ice pack just as a temporary fix to help with the swelling (don't apply directly to the skin - wrap in a towel or something) & a heat pad for the back pain. Lay off sex for a bit too to give you body a chance to recover. Hope this helps.

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Re: UPDATE ON MY PAIN!

Post  tinkerbelle2 on Wed Oct 30, 2013 9:18 am

Hi quell honey, I was hoping you hadn't posted in a while as you were feeling a lot better! Sorry to hear all this. I'm in the same dilemma as you. I don't know who to see but I'm going to ask to be referred to anyone and everyone! I read something about if you have had anything which disrupts the vagina, such as thrush, cystitis or sex, the pain signals and nerves in the body get confused and still feel pain even if everything is healthy. Sounds weird but i dont know an awful lot about medical stuff, could be the case I guess? ! I'm being seen on the 18th nov. I will tell them everything and bore them with info! I will consider botox and acupuncture even though both terrify me. Me and my vagina have majorly fallen out lol.
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Re: UPDATE ON MY PAIN!

Post  Sarah001 on Wed Oct 30, 2013 10:20 pm

Quell in that situation normally the noise you hear would be your SI joints so try a Women's Health Physio who knows about both V and pelvic alignment.
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Re: UPDATE ON MY PAIN!

Post  quell183 on Sun Nov 03, 2013 11:37 pm

Thanks ladies for the advice. A few days after this happened i saw a dermatologist, who was kind enough to waive the office visit because my friend workds in his office. He took a picture of the area, he was concerned it might be an early stage of lichen sclerosus. He perscribed me clobetasol ointment, and im supposed to use it for a week. Itll be my 3rd day using today and i feel the same, so the next step is a biopsy.

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Wed Nov 06, 2013 12:00 pm

Hi Quell, glad you managed to see the specialist - how are you getting on ? Is the ointment helping yet?

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Re: UPDATE ON MY PAIN!

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