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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


UPDATE ON MY PAIN!

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UPDATE ON MY PAIN!

Post  quell183 on Tue Oct 29, 2013 6:27 am

Hello ladies. So i have had the symptoms since may 2013 as some may already know. My pain was at about a 2 and has progressively turned to about and 8! I havent had any treatment because it is extremely expensive since i do not have health insurance. i have seen 4 different gynecologists and they have all told me different things. The last doctor said he believed i had vestibulitis but didnt give me anything! This was about 2 months ago. I basically don't know who to see next, chiropractor? Physical therapy? Urologist? Dermatologist? I have no idea what to do. I was thinking id see a chiropractor because i have always had lower back problems and when i lay flat or the ground i hear a crack, like my tailbone crack or something. If i squeeze real tight like doing a kegel it cracks also. Anyway, i had sex for the 1st time since i first felt this pain and i was able to do it just fine. i did it three other times but felt some pain after awhile of going at it. The last time was the worst, the sex was pretty rough and went on for some time and after that i was in excruciating pain. I felt like i had a knife stuck in my vagina, i could barely sit or do anything. I took vicodin and xanex and that pain went away. 2 days later i still feel like i have a huge cut and i feel pressure and stinging/burning pain. Vicodin doesnt help in the least. I just feel swollen and it hurts a bit to pee. Ive also had a lot of discharge lately, even before sex, its super watery but whitish also. Would a warm sitz bath in salt water maybe soothe swelling? Is there anything anyone would suggest?

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Tue Oct 29, 2013 4:18 pm

Hi Quell, So sorry to hear you're having such a rough time. People to try would be a vulval dermatologist to rule out any skin conditions, a physio to assess your pelvic floor & help with back pain, your doctor to try different pain relief (have you tried lidocaine yet? it didn't help me but it has helped some of the other ladies on here). I've never seen a chiro so I can't comment about those. You could use an ice pack just as a temporary fix to help with the swelling (don't apply directly to the skin - wrap in a towel or something) & a heat pad for the back pain. Lay off sex for a bit too to give you body a chance to recover. Hope this helps.

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Re: UPDATE ON MY PAIN!

Post  tinkerbelle2 on Wed Oct 30, 2013 9:18 am

Hi quell honey, I was hoping you hadn't posted in a while as you were feeling a lot better! Sorry to hear all this. I'm in the same dilemma as you. I don't know who to see but I'm going to ask to be referred to anyone and everyone! I read something about if you have had anything which disrupts the vagina, such as thrush, cystitis or sex, the pain signals and nerves in the body get confused and still feel pain even if everything is healthy. Sounds weird but i dont know an awful lot about medical stuff, could be the case I guess? ! I'm being seen on the 18th nov. I will tell them everything and bore them with info! I will consider botox and acupuncture even though both terrify me. Me and my vagina have majorly fallen out lol.
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Re: UPDATE ON MY PAIN!

Post  Sarah001 on Wed Oct 30, 2013 10:20 pm

Quell in that situation normally the noise you hear would be your SI joints so try a Women's Health Physio who knows about both V and pelvic alignment.
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Re: UPDATE ON MY PAIN!

Post  quell183 on Sun Nov 03, 2013 11:37 pm

Thanks ladies for the advice. A few days after this happened i saw a dermatologist, who was kind enough to waive the office visit because my friend workds in his office. He took a picture of the area, he was concerned it might be an early stage of lichen sclerosus. He perscribed me clobetasol ointment, and im supposed to use it for a week. Itll be my 3rd day using today and i feel the same, so the next step is a biopsy.

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Wed Nov 06, 2013 12:00 pm

Hi Quell, glad you managed to see the specialist - how are you getting on ? Is the ointment helping yet?

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Re: UPDATE ON MY PAIN!

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