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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


UPDATE ON MY PAIN!

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UPDATE ON MY PAIN!

Post  quell183 on Tue Oct 29, 2013 6:27 am

Hello ladies. So i have had the symptoms since may 2013 as some may already know. My pain was at about a 2 and has progressively turned to about and 8! I havent had any treatment because it is extremely expensive since i do not have health insurance. i have seen 4 different gynecologists and they have all told me different things. The last doctor said he believed i had vestibulitis but didnt give me anything! This was about 2 months ago. I basically don't know who to see next, chiropractor? Physical therapy? Urologist? Dermatologist? I have no idea what to do. I was thinking id see a chiropractor because i have always had lower back problems and when i lay flat or the ground i hear a crack, like my tailbone crack or something. If i squeeze real tight like doing a kegel it cracks also. Anyway, i had sex for the 1st time since i first felt this pain and i was able to do it just fine. i did it three other times but felt some pain after awhile of going at it. The last time was the worst, the sex was pretty rough and went on for some time and after that i was in excruciating pain. I felt like i had a knife stuck in my vagina, i could barely sit or do anything. I took vicodin and xanex and that pain went away. 2 days later i still feel like i have a huge cut and i feel pressure and stinging/burning pain. Vicodin doesnt help in the least. I just feel swollen and it hurts a bit to pee. Ive also had a lot of discharge lately, even before sex, its super watery but whitish also. Would a warm sitz bath in salt water maybe soothe swelling? Is there anything anyone would suggest?

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Tue Oct 29, 2013 4:18 pm

Hi Quell, So sorry to hear you're having such a rough time. People to try would be a vulval dermatologist to rule out any skin conditions, a physio to assess your pelvic floor & help with back pain, your doctor to try different pain relief (have you tried lidocaine yet? it didn't help me but it has helped some of the other ladies on here). I've never seen a chiro so I can't comment about those. You could use an ice pack just as a temporary fix to help with the swelling (don't apply directly to the skin - wrap in a towel or something) & a heat pad for the back pain. Lay off sex for a bit too to give you body a chance to recover. Hope this helps.

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Re: UPDATE ON MY PAIN!

Post  tinkerbelle2 on Wed Oct 30, 2013 9:18 am

Hi quell honey, I was hoping you hadn't posted in a while as you were feeling a lot better! Sorry to hear all this. I'm in the same dilemma as you. I don't know who to see but I'm going to ask to be referred to anyone and everyone! I read something about if you have had anything which disrupts the vagina, such as thrush, cystitis or sex, the pain signals and nerves in the body get confused and still feel pain even if everything is healthy. Sounds weird but i dont know an awful lot about medical stuff, could be the case I guess? ! I'm being seen on the 18th nov. I will tell them everything and bore them with info! I will consider botox and acupuncture even though both terrify me. Me and my vagina have majorly fallen out lol.
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Re: UPDATE ON MY PAIN!

Post  Sarah001 on Wed Oct 30, 2013 10:20 pm

Quell in that situation normally the noise you hear would be your SI joints so try a Women's Health Physio who knows about both V and pelvic alignment.
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Re: UPDATE ON MY PAIN!

Post  quell183 on Sun Nov 03, 2013 11:37 pm

Thanks ladies for the advice. A few days after this happened i saw a dermatologist, who was kind enough to waive the office visit because my friend workds in his office. He took a picture of the area, he was concerned it might be an early stage of lichen sclerosus. He perscribed me clobetasol ointment, and im supposed to use it for a week. Itll be my 3rd day using today and i feel the same, so the next step is a biopsy.

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Re: UPDATE ON MY PAIN!

Post  Kathy100 on Wed Nov 06, 2013 12:00 pm

Hi Quell, glad you managed to see the specialist - how are you getting on ? Is the ointment helping yet?

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Re: UPDATE ON MY PAIN!

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