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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Do I really have vulvodynia? and Has anyone got any experience/advise on electro acupuncture?

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Do I really have vulvodynia? and Has anyone got any experience/advise on electro acupuncture?

Post  min77 on Fri Oct 15, 2010 7:54 pm

Hi. I’ve been suffering with stabbing vaginal pains for about three years now. I’ve got good days and bad days, but I’m never pain-free. Most days I struggle to go about normal life, and there are at least two days a week where I barely manage to walk. After a long odyssey via a whole host of different specialists, I was diagnosed with essential vulvodynia earlier this year.

I’ve now tried Amitryptiline, Gabapentin, Carbamazepine and Pregabalin, and none of those have helped. I’ve read that some women benefitted from electro acupuncture, and I’d like to give that a go. Has anyone got any experience with electro acupuncture? I live in North Warwickshire, and there don’t seem to be many electro acupuncturists near me. I’d prefer to see someone who has an understanding of the condition and is interested and caring. I think it is particularly important for that kind of thing to work if I can build a rapport with the person.

I’ve had more than my share of doctors who didn’t really seem to be genuinely interested in helping me. I feel a bit like I’ve been put into the category ‘vulvodynia’ as there seemed to be no evidence of another problem (CT, MRI and bone scan didn’t show anything), but the specialists have never really asked many questions or wanted to listen to what I was trying to describe. Since I was diagnosed, I have tried to gather as much information as I could, and the more I read, the more confused I get. I keep reading that most women find that they are most comfortable when they stand or walk and that they find sitting quite painful. I’m the complete opposite. I can’t walk long distances, and most days I’m lucky if I make it round the supermarket without wanting to curl up on the floor. But sitting is no problem for me. I’ve also read that most women who suffer from vulvodynia find that their vulva is highly sensitive and that they can’t enjoy a normal sex life. I don’t find that. There seem to be so many different kinds of vulvodynia, and none of them seem to really describe my case. I’d like to know if I definitely have vulvodynia and if so, what kind. I imagine that might narrow down the list of things I need to try to find something that helps.

I’d really like to hear from other women who are going through the same thing. Is there anyone with a similar case to mine? Has anyone got experience/advise on electro acupuncture?

Thanks and take care.


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Re: Do I really have vulvodynia? and Has anyone got any experience/advise on electro acupuncture?

Post  Mouse on Sat Oct 16, 2010 2:54 am

Hey there,

I also struggled with "fitting in" to a support group. I have generalised unprovoked vulvodynia, I can also have sex but have constant pain. I was almost embarrassed to mention that initially.

I can now sit "almost" comfortably most of the time sometimes it's more on my tailbone - which is particularly bad for my back.

I feel like I live a double life and that's probably the same for all of us. I think we are all different and that there are so many variations, comparisons are probably a waste of energy. Vulvodynia is really a broad term for vulval pain, initially I had PGAD which also fits under that general term. People in our every days lives do not get it and a chronic pain condition can steal your soul if you let it. Finding people who understand can be a life saver.

Have you found a specialist in vulval pain or a pain clinic? I now see a sub specialist in vulval pain, she is amazing. She's from the UK - thanks for that I'm hoping she wasn't your only good one Very Happy

Sorry I don't know anything about electro acupuncture. I have done the Ami and am now on Gabepentin, I'm hoping I don't need to keep progressing in the drug stakes.

My therapist said I should be honest with my friends about how bad it is getting through a day. I've tried that. It's not that they don't care, they really don't get it.

I've never heard of essential vulvodynia actually I wish I'd never heard of vulvodynia at all.

I hope you find some answers on here.

Take care, kia kaha.


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Re: Do I really have vulvodynia? and Has anyone got any experience/advise on electro acupuncture?

Post  jules on Sun Oct 17, 2010 3:26 pm


I would agree w/ Mouse. We all have different kinds of Vulvodynia. Unfortunately, the doctors don't know the cause or the cure so we are lumped into a group of women w/ Vulvar pain. Like Mouse, i am the medication regiment. However, I also see a pelvic pain specialist who is a Physical Therapist. She has determined the resting rate of the muscles in my pelvic floor and she is working w/ me on strengthening muscles in my pelvic area. I also will have a tens unit, which has electrodes that attach to areas in your body (lower back in this case)to interrupt the messages the brain gives to the nerves. there are other women on this site who have them. they can comment..but, that may help you. i have not done acupuncture. I have heard it can help some women. maybe others here have. Good luck! Stay positive...we'll figure it out. Like Mouse said, find a Pelvic Pain Specialist who knows what they are talking about.


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Re: Do I really have vulvodynia? and Has anyone got any experience/advise on electro acupuncture?

Post  min77 on Wed Oct 20, 2010 11:29 am

Thank you so much for your comments, Mouse and Joules. It's helps to know that other people are going through the same experience, although it makes me angry to think that there are so many people suffering in silence every day.

I think my next priority will have to be to find a vulval pain specialist who is experienced, caring and willing to work with me. Wish me luck.


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Re: Do I really have vulvodynia? and Has anyone got any experience/advise on electro acupuncture?

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