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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Just released from UCL hospital

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Just released from UCL hospital

Post  mary jane on Tue Oct 29, 2013 5:52 pm

I went there last night complaining with clitoral pain (eek) and a bartholin cyst.
4h later, they tell me the vulvodynia has spread, there is no cyst.
The cause of the spreading is Diflucan. I must of had an allergic reaction to it.
Now I'm all red and swollen everywhere and on 5 different meds.

how is this even possible?
I only had it on one side
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Re: Just released from UCL hospital

Post  Alana3 on Tue Oct 29, 2013 6:01 pm

I'm confused as to how you know Diflucan was the culprit. And vulvodynia does spread unfortunately.

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Re: Just released from UCL hospital

Post  mary jane on Tue Oct 29, 2013 7:02 pm

i took one pill for my yeast infection and the very second day I got the new symptoms Sad i'm confused.
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Re: Just released from UCL hospital

Post  Kathy100 on Wed Oct 30, 2013 10:17 am

I had a bad reaction to hydrocortisone cream & also Canestan when my doctor was "experimenting" on me to see what would work - my labia almost doubled in size(!) & my pain levels went right up. I stopped using the cream and the swelling went down.

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Re: Just released from UCL hospital

Post  mary jane on Wed Oct 30, 2013 11:48 am

@Kathy, that's preposterous!
I think we need to go on anti-inflammatory diets and swith to Optibac proibiotics, which have a special candida-eating yeast in them !
I pray for us
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Re: Just released from UCL hospital

Post  Sarah001 on Wed Oct 30, 2013 10:19 pm

I think alot of the things they have us try worsen symptoms because they're just not what we need. Mary jane I'm glad you've finally had someone look and confirm you don't have another cyst, it's easy to get carried away when you look all the time at what's happening so hopefully it was an allergic reaction and things will start to calm down a bit.
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Re: Just released from UCL hospital

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