Vulvodynia Support
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» Hope to all my suffering ladies
Just released from UCL hospital EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Just released from UCL hospital EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Just released from UCL hospital EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Just released from UCL hospital EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Just released from UCL hospital EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Just released from UCL hospital EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Just released from UCL hospital EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Just released from UCL hospital EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Just released from UCL hospital EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Just released from UCL hospital

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Post  mary jane Tue Oct 29, 2013 5:52 pm

I went there last night complaining with clitoral pain (eek) and a bartholin cyst.
4h later, they tell me the vulvodynia has spread, there is no cyst.
The cause of the spreading is Diflucan. I must of had an allergic reaction to it.
Now I'm all red and swollen everywhere and on 5 different meds.

how is this even possible?
I only had it on one side
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  Alana3 Tue Oct 29, 2013 6:01 pm

I'm confused as to how you know Diflucan was the culprit. And vulvodynia does spread unfortunately.

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  mary jane Tue Oct 29, 2013 7:02 pm

i took one pill for my yeast infection and the very second day I got the new symptoms Sad i'm confused.
mary jane
mary jane

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Location : UK

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Post  Kathy100 Wed Oct 30, 2013 10:17 am

I had a bad reaction to hydrocortisone cream & also Canestan when my doctor was "experimenting" on me to see what would work - my labia almost doubled in size(!) & my pain levels went right up. I stopped using the cream and the swelling went down.

Kathy100

Posts : 95
Join date : 2012-12-17

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Post  mary jane Wed Oct 30, 2013 11:48 am

@Kathy, that's preposterous!
I think we need to go on anti-inflammatory diets and swith to Optibac proibiotics, which have a special candida-eating yeast in them !
I pray for us
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  Sarah001 Wed Oct 30, 2013 10:19 pm

I think alot of the things they have us try worsen symptoms because they're just not what we need. Mary jane I'm glad you've finally had someone look and confirm you don't have another cyst, it's easy to get carried away when you look all the time at what's happening so hopefully it was an allergic reaction and things will start to calm down a bit.
Sarah001
Sarah001

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Join date : 2010-06-11
Age : 50
Location : UK

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