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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


New Member - Not Offically Diagnosed, But Frustrated

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New Member - Not Offically Diagnosed, But Frustrated

Post  ehalaska on Tue Oct 29, 2013 8:23 pm

About three months ago my partner and I got into a pretty deep discussion about our lack of sex-life. I told him that I had actually been feeling pain for probably the last two years. Since I was regularly getting bacterial infections and yeast infections I kind of always just assumed that it was something that would go away. But when he brought it up, it sort of blew me away that it had been that long. I realized it was a bigger issue.

So I made an appointment with my regular NP at the local women's clinic. She found a small amount of both bacteria and yeast, but she also suggested that Vulvodynia may be the underlying culprit. The clinic I go to leans towards the natural, so we tried an alkaline cleanse to flush out my system, boric acid suppositories, and we did do a bomber antibiotic to try and deal with the bacteria. The bacteria didn't go away, and I'm still experiencing pain during sex. She's also referred me to a physical therapist for pelvic floor therapy. I haven't yet had my first appointment.

Reading on here, it's clear that what's going on with me is not even remotely as severe as it could be, but yesterday my partner had a bit of a meltdown about our relationship and sex-life. We've been together eight years and for most of those years we were really sexual. But the last couple have dwindled. I've now realized that it's due to the fact that I've been experiencing pain, which I kind of just have been plowing through because I still feel pleasure, and still want him to be fulfilled, but because of the pain, it's really hard for me to initiate. If he initiates and gets me going, I can just kind of ride the train through the pain and then deal with burning afterwards.

I think the most frustrating thing is that it all feels like a guessing game to me. Maybe I have vulvodynia, maybe I don't, but even if I do, that doesn't actually help anything because it seems like every treatment is a guess.

The one definite thing is that I feel sharp pain during vaginal penetration and experience intense burning after sex - every time. The meltdown my relationship had yesterday covered a lot of things, but more than anything, it felt like it was the lack of intimacy, and my seeming lack of interest in sex, at the root of it all. I'm getting worried, and frustrated, and a little scared.

He's a good partner, and I think with this being new to both of us, I'm not sure he realized just how much pain I've been in (probably cause I never told him...). Talking about it last night he suggested I get online and try and find a forum and see if other people have ideas for treatment. Don't know why I haven't done it before, because just reading through these other posts at least made me feel less alone. Really glad I found this site

ehalaska

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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  EviE°Bee on Sun Nov 03, 2013 4:01 am

It could be your hunny giving you an infection, it's not unheard of. Unfortunately, sex and VV go hand in hand regarding pain.

Here are a few tips I've heard of, maybe they will help you:
° Lidocane 10-15 mins before sex, nickel sized amount.
° Cold compresses after sex can really help
° Baking soda bath with warm water, not hot
° Gentle sex
° Try different sex positions, some don't cause as much pain
° Non penetration sex. It's a long list, you should look that up.
° Anal sex (not for everyone)

Personally, I used to have sex often, right now it's 2x a month, maybe 2x a week. It just depends on how your feelin. If I have 2-3 good days (pain is 1-2 on a scale of 10) then i'll try and have sex. If not then he can wait lol.

Hope this helps a little.

Evie bee

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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  Kathy100 on Wed Nov 06, 2013 11:46 am

Hopefully the physical therapy will start to help you - it has done with me. Other things to try are deep breathing and pelvic drops to relax the whole pelvic floor area (which is usually tight if you have v as the muscles tense up) before & after sex. Amy Steins book Heal Pelvic pain has some exercises in to stretch the pelvic floor.

Lidocaine numbs the area - so can work or you could ask your doctor for some painkillers - notriptyline helped me with burning initially.

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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  tinkerbelle2 on Sun Nov 10, 2013 9:59 am

Hey ehalaska,

I totally get what you mean about the guessing game. It seems to be a really vague condition. I was told that vulvodynia is kind of an umbrella term which just means 'unexplained pain in vulva/vaginal area'. It isn't a disease or infection but more of a condition. So if that's what you have then you can call it vulvodynia. I agree with all Evie bee's suggestions. And keep trying with doctors! I try and think to myself, if there was a time when I didn't have this, surely it can go away again.
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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  Fingerscrossed on Tue Nov 12, 2013 10:51 pm

I also only have pain during sex, so I understand your frustrations. My issues started about four years ago and I have always had pain during pelvic exams and at the beginning of sex, but for a while it was fine. I was diagnosed with vulvodynia and pelvic floor dysfunction in March and have since been placed on meds and regular physical therapy. I'm going to have a vestibulectomy in December. My now husband does get frustrated with our lack of a sex life, particularly since I tend to avoid too much intimacy, but he has been wonderful.

I hope that your problems get better without resorting to surgery or medicines! Sounds like you've got a good, supportive guy. Just keep communicating with him.

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Re: New Member - Not Offically Diagnosed, But Frustrated

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