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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New Member - Not Offically Diagnosed, But Frustrated

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New Member - Not Offically Diagnosed, But Frustrated

Post  ehalaska on Tue Oct 29, 2013 8:23 pm

About three months ago my partner and I got into a pretty deep discussion about our lack of sex-life. I told him that I had actually been feeling pain for probably the last two years. Since I was regularly getting bacterial infections and yeast infections I kind of always just assumed that it was something that would go away. But when he brought it up, it sort of blew me away that it had been that long. I realized it was a bigger issue.

So I made an appointment with my regular NP at the local women's clinic. She found a small amount of both bacteria and yeast, but she also suggested that Vulvodynia may be the underlying culprit. The clinic I go to leans towards the natural, so we tried an alkaline cleanse to flush out my system, boric acid suppositories, and we did do a bomber antibiotic to try and deal with the bacteria. The bacteria didn't go away, and I'm still experiencing pain during sex. She's also referred me to a physical therapist for pelvic floor therapy. I haven't yet had my first appointment.

Reading on here, it's clear that what's going on with me is not even remotely as severe as it could be, but yesterday my partner had a bit of a meltdown about our relationship and sex-life. We've been together eight years and for most of those years we were really sexual. But the last couple have dwindled. I've now realized that it's due to the fact that I've been experiencing pain, which I kind of just have been plowing through because I still feel pleasure, and still want him to be fulfilled, but because of the pain, it's really hard for me to initiate. If he initiates and gets me going, I can just kind of ride the train through the pain and then deal with burning afterwards.

I think the most frustrating thing is that it all feels like a guessing game to me. Maybe I have vulvodynia, maybe I don't, but even if I do, that doesn't actually help anything because it seems like every treatment is a guess.

The one definite thing is that I feel sharp pain during vaginal penetration and experience intense burning after sex - every time. The meltdown my relationship had yesterday covered a lot of things, but more than anything, it felt like it was the lack of intimacy, and my seeming lack of interest in sex, at the root of it all. I'm getting worried, and frustrated, and a little scared.

He's a good partner, and I think with this being new to both of us, I'm not sure he realized just how much pain I've been in (probably cause I never told him...). Talking about it last night he suggested I get online and try and find a forum and see if other people have ideas for treatment. Don't know why I haven't done it before, because just reading through these other posts at least made me feel less alone. Really glad I found this site


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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  EviE°Bee on Sun Nov 03, 2013 4:01 am

It could be your hunny giving you an infection, it's not unheard of. Unfortunately, sex and VV go hand in hand regarding pain.

Here are a few tips I've heard of, maybe they will help you:
° Lidocane 10-15 mins before sex, nickel sized amount.
° Cold compresses after sex can really help
° Baking soda bath with warm water, not hot
° Gentle sex
° Try different sex positions, some don't cause as much pain
° Non penetration sex. It's a long list, you should look that up.
° Anal sex (not for everyone)

Personally, I used to have sex often, right now it's 2x a month, maybe 2x a week. It just depends on how your feelin. If I have 2-3 good days (pain is 1-2 on a scale of 10) then i'll try and have sex. If not then he can wait lol.

Hope this helps a little.

Evie bee


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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  Kathy100 on Wed Nov 06, 2013 11:46 am

Hopefully the physical therapy will start to help you - it has done with me. Other things to try are deep breathing and pelvic drops to relax the whole pelvic floor area (which is usually tight if you have v as the muscles tense up) before & after sex. Amy Steins book Heal Pelvic pain has some exercises in to stretch the pelvic floor.

Lidocaine numbs the area - so can work or you could ask your doctor for some painkillers - notriptyline helped me with burning initially.


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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  tinkerbelle2 on Sun Nov 10, 2013 9:59 am

Hey ehalaska,

I totally get what you mean about the guessing game. It seems to be a really vague condition. I was told that vulvodynia is kind of an umbrella term which just means 'unexplained pain in vulva/vaginal area'. It isn't a disease or infection but more of a condition. So if that's what you have then you can call it vulvodynia. I agree with all Evie bee's suggestions. And keep trying with doctors! I try and think to myself, if there was a time when I didn't have this, surely it can go away again.

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Re: New Member - Not Offically Diagnosed, But Frustrated

Post  Fingerscrossed on Tue Nov 12, 2013 10:51 pm

I also only have pain during sex, so I understand your frustrations. My issues started about four years ago and I have always had pain during pelvic exams and at the beginning of sex, but for a while it was fine. I was diagnosed with vulvodynia and pelvic floor dysfunction in March and have since been placed on meds and regular physical therapy. I'm going to have a vestibulectomy in December. My now husband does get frustrated with our lack of a sex life, particularly since I tend to avoid too much intimacy, but he has been wonderful.

I hope that your problems get better without resorting to surgery or medicines! Sounds like you've got a good, supportive guy. Just keep communicating with him.


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Re: New Member - Not Offically Diagnosed, But Frustrated

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