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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Sex problems confusion with Vulvodynia

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Sex problems confusion with Vulvodynia

Post  lunadaisy on Wed Oct 30, 2013 10:33 pm

Hi
I have been suffering with the symptoms of vulvo for a long time but did not know what it was. It started years ago and I tried to ignore it. I knew that after I had sex, I would still feel aroused or unfulfilled or just an exaggerated burning feeling in my vulva area... I almost thought I must be "oversexed" but in my head I wasn't. In fact, sex has never been a pleasurable physical thing for me. I would avoid having my partner touch my genital area when ever I could. If they tried to stimulate my clitoris I would cringe in pain it hurt so bad so I would just move their hand away. Instead I would just act like I wanted to please them...to avoid them physically touching me... it was just a natural reaction that I really couldn't explain at the time.
Afterward the sex was over, the throbbing and itching and burning began and made me want to try to climax thinking that since I was aroused during sex but didn't climax then my body wanted to complete the task.. so after my partner was gone or not around I would use a vibrator to try to climax... to get the throbbing and pain to stop...... that was probably the worst thing I could do because it would make the vulvodynia symptoms even worse... and I would try the vibrator again trying to climax thinking that is all I needed to relieve this horrible feeling..... Since I lived alone... sometimes I would try this remedy 4 0r 5 times a day until the symptoms would stop or I would stop thinking about it.... I would also sit in a hot tub of water which did seem to help a little and after a few days eventually my body would settle down... until I had a sexual encounter again... and that whole thing would start over.... So now... I have not had sex in a long time but my acute vulvo has turned into chronic without any sexual stimulus at all... I just hurt, itch burn, feel bloated, and have symptoms of a uti even though I do not have a urinary tract infection and I do not have a yeast infection.....just the symptoms ...and now it is a daily issue. When I am really busy I can some how ignore it but if I am working on the computer, watching tv, or crocheting or anything I do that is not strenuous ... I am uncomfortable, itching and burning and quite irritable. I also feel the pain inside of my vagina too. I have seen a gyn and had a pap smear that hurt like hell ... I felt sorry for the doctor because I was crying while she did that proceedure. I am wondering if that too is a sign of vulvodynia. Anybody else have painful pap smears. Ok... it is a little hard to be so personal but all the women on here have been kind enough to share their very personal stories so I feel I should shed my shyness in describing how I feel. Maybe others can also relate or have some insight as to my story. I am wondering if the vibrator didn't cause more damage to that very tender area too.

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Re: Sex problems confusion with Vulvodynia

Post  mary jane on Thu Oct 31, 2013 11:45 am

@lunadaisy

please see a specialist gyn for your problem as soon as possible and try some plevic floor therapy.
Why do you say pap smears hurt you ?
I have the same issue, mine is due to severe vaginismus
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Re: Sex problems confusion with Vulvodynia

Post  Alana3 on Thu Oct 31, 2013 1:09 pm

pap smears hurt a lot of people with v.

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Re: Sex problems confusion with Vulvodynia

Post  Kathy100 on Thu Oct 31, 2013 2:40 pm

Yes - I had to have my last one under anaesthetic.

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Re: Sex problems confusion with Vulvodynia

Post  lunadaisy on Thu Oct 31, 2013 3:37 pm

Thanks Kathy Good to know they will give you the pap smear with anesthetics because after my last one I swore I would never have another one!! Mary Jane, I don't know why it hurts so bad but it was torture! Maybe the Vulvo is associated with it....a couple of women have responded with the same painful pap smears that have V on this site.
I have an appointment with a urologist in a couple of weeks who works with gyn problems as well... I dread that because he wants to look into my uritha with a camera.... omg that is going to hurt like hell. Which leads me to something else that might have some meaning to someone... when I was 30 I had a lot of uti and kidney infections. My gyn said that she did not want to keep treating it and thought I should see a urologist to find out why I was having these uti/kidney infections so often. So I made the appointment. The urologist said my uritha was too narrow to drain all of the urine in my bladder when I peed and said he was going to "stretch it" ... I was already on the table with my legs spread, and then he took a metal rod and proceeded to stick it up my urita.... omg I almost hit the ceiling in pain and shock... he did not prepare me for such a torture .... I imaged witch hunts... if you scream you must be a witch as they tortured you back in the medival days... who the hell would stick a metal rod in a womans uritha without some kind of anisthtic... after that procedure, I had to go teach a class later in the day. I excused myself from my class to go to the restroom to pee... and omg I had to bite my lip and hold on to the wall as I peed as the pain was even worse than the rod! That lasted over 3 days every time I had to pee. so the urologist decided that I was not a candidate for "stretching torture" so he suggested I have an operation called a urithiatomy or something like that. I was admitted to the hostiptal and under anistesia they cut my urithia to make it wider. The hope was that my bladder would drain more properly and I would not keep getting infections. It took over six months to heal from that but finally I did and stopped having the UTI and kidney infections. However, before I learned about vulvadynia I made the appoint with the urologist becasue my symptoms also extend to my uritha which actually hurts.....I have had two urine test and they came back no bactiria or urinary track infestion, no blood, no sign of any problem with the urine test. So that is why he wants to "take a closer look at the urithia" .....so I told him about the rod issue and he said he would give me a script for one valuim to take before the proceedure(by the way one valium cost me 10 bucks at Walgreens as the drug companies really do rip us off in the United States) Anyway, I still might back out of going back to the urologist as I am so affraid of the pain. Has anyone ever had urinary problems with V? Anyone ever been tortured with a metal rod by a urologist? Any problems at all with the urithia in connection to Vulvadynia by women on this site? I would really like to know if this is also a condition or is a seperate issue. Thanks to everyone who responded to my last letter. Ps I have noticed if I take a motrin it helps sometimes... But the bloating of my belly is driving me crazy as well. I was fine this morning but as I sit here typing... I feel all my syptoms creaping up on me.... yuk

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Re: Sex problems confusion with Vulvodynia

Post  Alana3 on Thu Oct 31, 2013 4:50 pm

Urinary problems are common with vulovdynia, I had them but as soon as I had my vestibulectomy they all went away. Find a gynecologist who specializes in vulva problems rather than a regular urologist. And valium is 10 dollars no matter what the quantity is I get them single or 50 and they're always 10. But yeah, with my vulvodynia I had urinary issues as well, it sometimes goes hand in hand. If you have no bacteria have they tested you for IC?

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Re: Sex problems confusion with Vulvodynia

Post  Leslieg on Thu Oct 31, 2013 4:54 pm

Luna, I've heard of one case (it may have been o this forum) where a woman had yeast overgrowth in urethra that was the cause of all her V issues.  I believe she was treated with long course of antifungals and was OK.  Maybe ask them to swab/culture urethra at your next appointment?  Just a thought........

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Re: Sex problems confusion with Vulvodynia

Post  Sarah001 on Thu Oct 31, 2013 7:31 pm

Mine is caused by pelvic floor dysfunction and when I clench really badly I get urinary symptoms too so I would definitely consider a Women's Health PT. The previous treatments on your urethra may have set off pelvic floor spasm because of the pain and that in turn can cause V. As for smears, I'm years overdue for one because I can't face the extra pain right now, not sensible but if I had any odd symptoms I would go.
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Re: Sex problems confusion with Vulvodynia

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