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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Sex problems confusion with Vulvodynia

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Sex problems confusion with Vulvodynia

Post  lunadaisy on Wed Oct 30, 2013 10:33 pm

Hi
I have been suffering with the symptoms of vulvo for a long time but did not know what it was. It started years ago and I tried to ignore it. I knew that after I had sex, I would still feel aroused or unfulfilled or just an exaggerated burning feeling in my vulva area... I almost thought I must be "oversexed" but in my head I wasn't. In fact, sex has never been a pleasurable physical thing for me. I would avoid having my partner touch my genital area when ever I could. If they tried to stimulate my clitoris I would cringe in pain it hurt so bad so I would just move their hand away. Instead I would just act like I wanted to please them...to avoid them physically touching me... it was just a natural reaction that I really couldn't explain at the time.
Afterward the sex was over, the throbbing and itching and burning began and made me want to try to climax thinking that since I was aroused during sex but didn't climax then my body wanted to complete the task.. so after my partner was gone or not around I would use a vibrator to try to climax... to get the throbbing and pain to stop...... that was probably the worst thing I could do because it would make the vulvodynia symptoms even worse... and I would try the vibrator again trying to climax thinking that is all I needed to relieve this horrible feeling..... Since I lived alone... sometimes I would try this remedy 4 0r 5 times a day until the symptoms would stop or I would stop thinking about it.... I would also sit in a hot tub of water which did seem to help a little and after a few days eventually my body would settle down... until I had a sexual encounter again... and that whole thing would start over.... So now... I have not had sex in a long time but my acute vulvo has turned into chronic without any sexual stimulus at all... I just hurt, itch burn, feel bloated, and have symptoms of a uti even though I do not have a urinary tract infection and I do not have a yeast infection.....just the symptoms ...and now it is a daily issue. When I am really busy I can some how ignore it but if I am working on the computer, watching tv, or crocheting or anything I do that is not strenuous ... I am uncomfortable, itching and burning and quite irritable. I also feel the pain inside of my vagina too. I have seen a gyn and had a pap smear that hurt like hell ... I felt sorry for the doctor because I was crying while she did that proceedure. I am wondering if that too is a sign of vulvodynia. Anybody else have painful pap smears. Ok... it is a little hard to be so personal but all the women on here have been kind enough to share their very personal stories so I feel I should shed my shyness in describing how I feel. Maybe others can also relate or have some insight as to my story. I am wondering if the vibrator didn't cause more damage to that very tender area too.

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Re: Sex problems confusion with Vulvodynia

Post  mary jane on Thu Oct 31, 2013 11:45 am

@lunadaisy

please see a specialist gyn for your problem as soon as possible and try some plevic floor therapy.
Why do you say pap smears hurt you ?
I have the same issue, mine is due to severe vaginismus
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Re: Sex problems confusion with Vulvodynia

Post  Alana3 on Thu Oct 31, 2013 1:09 pm

pap smears hurt a lot of people with v.

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Re: Sex problems confusion with Vulvodynia

Post  Kathy100 on Thu Oct 31, 2013 2:40 pm

Yes - I had to have my last one under anaesthetic.

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Re: Sex problems confusion with Vulvodynia

Post  lunadaisy on Thu Oct 31, 2013 3:37 pm

Thanks Kathy Good to know they will give you the pap smear with anesthetics because after my last one I swore I would never have another one!! Mary Jane, I don't know why it hurts so bad but it was torture! Maybe the Vulvo is associated with it....a couple of women have responded with the same painful pap smears that have V on this site.
I have an appointment with a urologist in a couple of weeks who works with gyn problems as well... I dread that because he wants to look into my uritha with a camera.... omg that is going to hurt like hell. Which leads me to something else that might have some meaning to someone... when I was 30 I had a lot of uti and kidney infections. My gyn said that she did not want to keep treating it and thought I should see a urologist to find out why I was having these uti/kidney infections so often. So I made the appointment. The urologist said my uritha was too narrow to drain all of the urine in my bladder when I peed and said he was going to "stretch it" ... I was already on the table with my legs spread, and then he took a metal rod and proceeded to stick it up my urita.... omg I almost hit the ceiling in pain and shock... he did not prepare me for such a torture .... I imaged witch hunts... if you scream you must be a witch as they tortured you back in the medival days... who the hell would stick a metal rod in a womans uritha without some kind of anisthtic... after that procedure, I had to go teach a class later in the day. I excused myself from my class to go to the restroom to pee... and omg I had to bite my lip and hold on to the wall as I peed as the pain was even worse than the rod! That lasted over 3 days every time I had to pee. so the urologist decided that I was not a candidate for "stretching torture" so he suggested I have an operation called a urithiatomy or something like that. I was admitted to the hostiptal and under anistesia they cut my urithia to make it wider. The hope was that my bladder would drain more properly and I would not keep getting infections. It took over six months to heal from that but finally I did and stopped having the UTI and kidney infections. However, before I learned about vulvadynia I made the appoint with the urologist becasue my symptoms also extend to my uritha which actually hurts.....I have had two urine test and they came back no bactiria or urinary track infestion, no blood, no sign of any problem with the urine test. So that is why he wants to "take a closer look at the urithia" .....so I told him about the rod issue and he said he would give me a script for one valuim to take before the proceedure(by the way one valium cost me 10 bucks at Walgreens as the drug companies really do rip us off in the United States) Anyway, I still might back out of going back to the urologist as I am so affraid of the pain. Has anyone ever had urinary problems with V? Anyone ever been tortured with a metal rod by a urologist? Any problems at all with the urithia in connection to Vulvadynia by women on this site? I would really like to know if this is also a condition or is a seperate issue. Thanks to everyone who responded to my last letter. Ps I have noticed if I take a motrin it helps sometimes... But the bloating of my belly is driving me crazy as well. I was fine this morning but as I sit here typing... I feel all my syptoms creaping up on me.... yuk

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Re: Sex problems confusion with Vulvodynia

Post  Alana3 on Thu Oct 31, 2013 4:50 pm

Urinary problems are common with vulovdynia, I had them but as soon as I had my vestibulectomy they all went away. Find a gynecologist who specializes in vulva problems rather than a regular urologist. And valium is 10 dollars no matter what the quantity is I get them single or 50 and they're always 10. But yeah, with my vulvodynia I had urinary issues as well, it sometimes goes hand in hand. If you have no bacteria have they tested you for IC?

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Re: Sex problems confusion with Vulvodynia

Post  Leslieg on Thu Oct 31, 2013 4:54 pm

Luna, I've heard of one case (it may have been o this forum) where a woman had yeast overgrowth in urethra that was the cause of all her V issues.  I believe she was treated with long course of antifungals and was OK.  Maybe ask them to swab/culture urethra at your next appointment?  Just a thought........

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Re: Sex problems confusion with Vulvodynia

Post  Sarah001 on Thu Oct 31, 2013 7:31 pm

Mine is caused by pelvic floor dysfunction and when I clench really badly I get urinary symptoms too so I would definitely consider a Women's Health PT. The previous treatments on your urethra may have set off pelvic floor spasm because of the pain and that in turn can cause V. As for smears, I'm years overdue for one because I can't face the extra pain right now, not sensible but if I had any odd symptoms I would go.
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Re: Sex problems confusion with Vulvodynia

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