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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Sex problems confusion with Vulvodynia

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Sex problems confusion with Vulvodynia

Post  lunadaisy on Wed Oct 30, 2013 10:33 pm

Hi
I have been suffering with the symptoms of vulvo for a long time but did not know what it was. It started years ago and I tried to ignore it. I knew that after I had sex, I would still feel aroused or unfulfilled or just an exaggerated burning feeling in my vulva area... I almost thought I must be "oversexed" but in my head I wasn't. In fact, sex has never been a pleasurable physical thing for me. I would avoid having my partner touch my genital area when ever I could. If they tried to stimulate my clitoris I would cringe in pain it hurt so bad so I would just move their hand away. Instead I would just act like I wanted to please them...to avoid them physically touching me... it was just a natural reaction that I really couldn't explain at the time.
Afterward the sex was over, the throbbing and itching and burning began and made me want to try to climax thinking that since I was aroused during sex but didn't climax then my body wanted to complete the task.. so after my partner was gone or not around I would use a vibrator to try to climax... to get the throbbing and pain to stop...... that was probably the worst thing I could do because it would make the vulvodynia symptoms even worse... and I would try the vibrator again trying to climax thinking that is all I needed to relieve this horrible feeling..... Since I lived alone... sometimes I would try this remedy 4 0r 5 times a day until the symptoms would stop or I would stop thinking about it.... I would also sit in a hot tub of water which did seem to help a little and after a few days eventually my body would settle down... until I had a sexual encounter again... and that whole thing would start over.... So now... I have not had sex in a long time but my acute vulvo has turned into chronic without any sexual stimulus at all... I just hurt, itch burn, feel bloated, and have symptoms of a uti even though I do not have a urinary tract infection and I do not have a yeast infection.....just the symptoms ...and now it is a daily issue. When I am really busy I can some how ignore it but if I am working on the computer, watching tv, or crocheting or anything I do that is not strenuous ... I am uncomfortable, itching and burning and quite irritable. I also feel the pain inside of my vagina too. I have seen a gyn and had a pap smear that hurt like hell ... I felt sorry for the doctor because I was crying while she did that proceedure. I am wondering if that too is a sign of vulvodynia. Anybody else have painful pap smears. Ok... it is a little hard to be so personal but all the women on here have been kind enough to share their very personal stories so I feel I should shed my shyness in describing how I feel. Maybe others can also relate or have some insight as to my story. I am wondering if the vibrator didn't cause more damage to that very tender area too.

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Re: Sex problems confusion with Vulvodynia

Post  mary jane on Thu Oct 31, 2013 11:45 am

@lunadaisy

please see a specialist gyn for your problem as soon as possible and try some plevic floor therapy.
Why do you say pap smears hurt you ?
I have the same issue, mine is due to severe vaginismus
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Re: Sex problems confusion with Vulvodynia

Post  Alana3 on Thu Oct 31, 2013 1:09 pm

pap smears hurt a lot of people with v.

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Re: Sex problems confusion with Vulvodynia

Post  Kathy100 on Thu Oct 31, 2013 2:40 pm

Yes - I had to have my last one under anaesthetic.

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Re: Sex problems confusion with Vulvodynia

Post  lunadaisy on Thu Oct 31, 2013 3:37 pm

Thanks Kathy Good to know they will give you the pap smear with anesthetics because after my last one I swore I would never have another one!! Mary Jane, I don't know why it hurts so bad but it was torture! Maybe the Vulvo is associated with it....a couple of women have responded with the same painful pap smears that have V on this site.
I have an appointment with a urologist in a couple of weeks who works with gyn problems as well... I dread that because he wants to look into my uritha with a camera.... omg that is going to hurt like hell. Which leads me to something else that might have some meaning to someone... when I was 30 I had a lot of uti and kidney infections. My gyn said that she did not want to keep treating it and thought I should see a urologist to find out why I was having these uti/kidney infections so often. So I made the appointment. The urologist said my uritha was too narrow to drain all of the urine in my bladder when I peed and said he was going to "stretch it" ... I was already on the table with my legs spread, and then he took a metal rod and proceeded to stick it up my urita.... omg I almost hit the ceiling in pain and shock... he did not prepare me for such a torture .... I imaged witch hunts... if you scream you must be a witch as they tortured you back in the medival days... who the hell would stick a metal rod in a womans uritha without some kind of anisthtic... after that procedure, I had to go teach a class later in the day. I excused myself from my class to go to the restroom to pee... and omg I had to bite my lip and hold on to the wall as I peed as the pain was even worse than the rod! That lasted over 3 days every time I had to pee. so the urologist decided that I was not a candidate for "stretching torture" so he suggested I have an operation called a urithiatomy or something like that. I was admitted to the hostiptal and under anistesia they cut my urithia to make it wider. The hope was that my bladder would drain more properly and I would not keep getting infections. It took over six months to heal from that but finally I did and stopped having the UTI and kidney infections. However, before I learned about vulvadynia I made the appoint with the urologist becasue my symptoms also extend to my uritha which actually hurts.....I have had two urine test and they came back no bactiria or urinary track infestion, no blood, no sign of any problem with the urine test. So that is why he wants to "take a closer look at the urithia" .....so I told him about the rod issue and he said he would give me a script for one valuim to take before the proceedure(by the way one valium cost me 10 bucks at Walgreens as the drug companies really do rip us off in the United States) Anyway, I still might back out of going back to the urologist as I am so affraid of the pain. Has anyone ever had urinary problems with V? Anyone ever been tortured with a metal rod by a urologist? Any problems at all with the urithia in connection to Vulvadynia by women on this site? I would really like to know if this is also a condition or is a seperate issue. Thanks to everyone who responded to my last letter. Ps I have noticed if I take a motrin it helps sometimes... But the bloating of my belly is driving me crazy as well. I was fine this morning but as I sit here typing... I feel all my syptoms creaping up on me.... yuk

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Re: Sex problems confusion with Vulvodynia

Post  Alana3 on Thu Oct 31, 2013 4:50 pm

Urinary problems are common with vulovdynia, I had them but as soon as I had my vestibulectomy they all went away. Find a gynecologist who specializes in vulva problems rather than a regular urologist. And valium is 10 dollars no matter what the quantity is I get them single or 50 and they're always 10. But yeah, with my vulvodynia I had urinary issues as well, it sometimes goes hand in hand. If you have no bacteria have they tested you for IC?

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Re: Sex problems confusion with Vulvodynia

Post  Leslieg on Thu Oct 31, 2013 4:54 pm

Luna, I've heard of one case (it may have been o this forum) where a woman had yeast overgrowth in urethra that was the cause of all her V issues.  I believe she was treated with long course of antifungals and was OK.  Maybe ask them to swab/culture urethra at your next appointment?  Just a thought........

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Re: Sex problems confusion with Vulvodynia

Post  Sarah001 on Thu Oct 31, 2013 7:31 pm

Mine is caused by pelvic floor dysfunction and when I clench really badly I get urinary symptoms too so I would definitely consider a Women's Health PT. The previous treatments on your urethra may have set off pelvic floor spasm because of the pain and that in turn can cause V. As for smears, I'm years overdue for one because I can't face the extra pain right now, not sensible but if I had any odd symptoms I would go.
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