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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Feeling nosey :-)

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Feeling nosey :-)

Post  Neevi on Thu Nov 07, 2013 10:17 am

Are you in a relationship? And if so how are yous coping with the weight of this? Do you make up for the sexual side by doing other stuff to keep that close connection?

How do you maintain your lady garden? I know i cant use any soaps etc down there because they irritate the crap out of me so im letting it grow out but feel so horrible, really wish i could tidy her up a bit :-P

And have you told all your close friends or any family members about this condition. It can be very hard keeping this to yourself. How open about it are you?

Neevi

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Re: Feeling nosey :-)

Post  Alana3 on Thu Nov 07, 2013 2:36 pm

I'm in a relationship, its going well, my boyfriend is very understanding, but he has medical problems himself. HOWEVER, I did have surgery before we started having sex so my story is probably different. But I will say I was still nervous when we first started to have sex. But I just told him what was wrong and we worked on what was good for us together. But it's not painful anymore. You could try trimming it. My entire family and most of my friends know what I've been thru. But I also battle endometriosis, so my pain levels some days are thru the roof. It's no one's business though so the world doesn't need to know. You could maybe try a baking soda bath (which helps with odor as well as soothing the area too and apparently balances the pH of your vagina). Hope I helped!

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Re: Feeling nosey :-)

Post  Sarah001 on Thu Nov 07, 2013 9:51 pm

I was in a relationship but not for the last 3 years, I use a bikini trimmer to tidy up and as not using soap didn't help one bit I thought what the hell and started using it again. Hasn't made me worse either so I use bubble bath too. I find lavender oil mixed with vaseline very good for vestibule pain.
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Re: Feeling nosey :-)

Post  tinkerbelle2 on Thu Nov 14, 2013 4:27 pm

Hi Neevi, I am in a relationship have been with him nearly 2 years and had this the whole duration of our relationship! Grrr. Back then it was still bothersome and made me feel kind of hopeless and generally miserable and unsexy ugly even. But I kind of learnt to live with it and kept it to myself. The past year it seems to have got a lot worse and it has been both him and my mum that have supported and cared for me and encouraged me to go to the doctor! My boyfriend has been amazing. He has also had his own genital pain issues while we've been together plus we were long distance for 8 months so we both went without sex for months at a time. Now he lives with me and my parents which is lovely. Atm we only do it occasionally when we both aren't feeling too ouchy down there! But even if he hadn't had a similar thing I think he would've been understanding.

At the moment I have just been leaving things to grow down there! But I usually shave the bikini line. Epilating and waxing is too scary! Sometimes I shave it all! My boyfriend likes that but he is 24 and probably seen a lot of porn. It is kinda strange that some men love it isn't it?! But it grows back so quickly and gets spiky and itchy, not so attractive! Lol. And I have stopped using bubble baths really. I wash with aqueous cream or sensitive soap but don't put anything inside and then rinse with warm water. I have a handheld shower thingy which helps.

I have started to talk to my friends about it. They've all been kind and say it sounds horrible. None have it or have heard of it although a couple have had urine issues with no infection showing up. My mum told me years ago she once had a burning tingling down below which wouldn't budge but she said she thinks it went away on its own
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Re: Feeling nosey :-)

Post  Kathy100 on Fri Nov 15, 2013 12:29 pm

I was in a long term relationship but not anymore. I trim now rather than shave. I stopped using bubble bath years ago as one of the doctors I saw said it could be triggering cystitis & I have showers rather than baths.
Once mine changed to unprovoked I told my family and some friends; most were have been really sympathetic & have helped me through it. (although one of my friends finds it hard to understand why I don't want to go out as much...). With people I don't know so well - I just limit it to saying I've lower back pain.

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Re: Feeling nosey :-)

Post  Mark on Fri Nov 15, 2013 11:25 pm

I'm a man, but am married to a woman who has vulvodynia. Luckily her condition means she sometimes has an itch and only sometimes severe pain. When she's itching she still has a normal sex drive, obviously vaginal sex is out as it would bring on the pain. Yes we do 'other things' when she's just itching, I give her massages or handjobs or go down on her, which I obviously enjoy. When she's in pain I don't have a sex drive either TBH, I'm more concerned about her suffering.

Her condition affects just her vagina and the entrance to it and having anything brush against that area can trigger the pain so she keeps herself hair-free, by epilating about once a week. Being a typical guy as you'd expect I prefer it that way, it looks and feels a lot nicer and is a lot better for oral.

Her family know about it and also her manager, HR and a few close friends at work. The pain episodes last several days at a time, affect her mood and can stop her from working, driving any distance etc or making social plans, so it isn't really an option for her not to tell people.

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Re: Feeling nosey :-)

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