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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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Feeling nosey :-)

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Feeling nosey :-)

Post  Neevi on Thu Nov 07, 2013 10:17 am

Are you in a relationship? And if so how are yous coping with the weight of this? Do you make up for the sexual side by doing other stuff to keep that close connection?

How do you maintain your lady garden? I know i cant use any soaps etc down there because they irritate the crap out of me so im letting it grow out but feel so horrible, really wish i could tidy her up a bit :-P

And have you told all your close friends or any family members about this condition. It can be very hard keeping this to yourself. How open about it are you?


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Re: Feeling nosey :-)

Post  Alana3 on Thu Nov 07, 2013 2:36 pm

I'm in a relationship, its going well, my boyfriend is very understanding, but he has medical problems himself. HOWEVER, I did have surgery before we started having sex so my story is probably different. But I will say I was still nervous when we first started to have sex. But I just told him what was wrong and we worked on what was good for us together. But it's not painful anymore. You could try trimming it. My entire family and most of my friends know what I've been thru. But I also battle endometriosis, so my pain levels some days are thru the roof. It's no one's business though so the world doesn't need to know. You could maybe try a baking soda bath (which helps with odor as well as soothing the area too and apparently balances the pH of your vagina). Hope I helped!


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Re: Feeling nosey :-)

Post  Sarah001 on Thu Nov 07, 2013 9:51 pm

I was in a relationship but not for the last 3 years, I use a bikini trimmer to tidy up and as not using soap didn't help one bit I thought what the hell and started using it again. Hasn't made me worse either so I use bubble bath too. I find lavender oil mixed with vaseline very good for vestibule pain.

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Re: Feeling nosey :-)

Post  tinkerbelle2 on Thu Nov 14, 2013 4:27 pm

Hi Neevi, I am in a relationship have been with him nearly 2 years and had this the whole duration of our relationship! Grrr. Back then it was still bothersome and made me feel kind of hopeless and generally miserable and unsexy ugly even. But I kind of learnt to live with it and kept it to myself. The past year it seems to have got a lot worse and it has been both him and my mum that have supported and cared for me and encouraged me to go to the doctor! My boyfriend has been amazing. He has also had his own genital pain issues while we've been together plus we were long distance for 8 months so we both went without sex for months at a time. Now he lives with me and my parents which is lovely. Atm we only do it occasionally when we both aren't feeling too ouchy down there! But even if he hadn't had a similar thing I think he would've been understanding.

At the moment I have just been leaving things to grow down there! But I usually shave the bikini line. Epilating and waxing is too scary! Sometimes I shave it all! My boyfriend likes that but he is 24 and probably seen a lot of porn. It is kinda strange that some men love it isn't it?! But it grows back so quickly and gets spiky and itchy, not so attractive! Lol. And I have stopped using bubble baths really. I wash with aqueous cream or sensitive soap but don't put anything inside and then rinse with warm water. I have a handheld shower thingy which helps.

I have started to talk to my friends about it. They've all been kind and say it sounds horrible. None have it or have heard of it although a couple have had urine issues with no infection showing up. My mum told me years ago she once had a burning tingling down below which wouldn't budge but she said she thinks it went away on its own

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Re: Feeling nosey :-)

Post  Kathy100 on Fri Nov 15, 2013 12:29 pm

I was in a long term relationship but not anymore. I trim now rather than shave. I stopped using bubble bath years ago as one of the doctors I saw said it could be triggering cystitis & I have showers rather than baths.
Once mine changed to unprovoked I told my family and some friends; most were have been really sympathetic & have helped me through it. (although one of my friends finds it hard to understand why I don't want to go out as much...). With people I don't know so well - I just limit it to saying I've lower back pain.


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Re: Feeling nosey :-)

Post  Mark on Fri Nov 15, 2013 11:25 pm

I'm a man, but am married to a woman who has vulvodynia. Luckily her condition means she sometimes has an itch and only sometimes severe pain. When she's itching she still has a normal sex drive, obviously vaginal sex is out as it would bring on the pain. Yes we do 'other things' when she's just itching, I give her massages or handjobs or go down on her, which I obviously enjoy. When she's in pain I don't have a sex drive either TBH, I'm more concerned about her suffering.

Her condition affects just her vagina and the entrance to it and having anything brush against that area can trigger the pain so she keeps herself hair-free, by epilating about once a week. Being a typical guy as you'd expect I prefer it that way, it looks and feels a lot nicer and is a lot better for oral.

Her family know about it and also her manager, HR and a few close friends at work. The pain episodes last several days at a time, affect her mood and can stop her from working, driving any distance etc or making social plans, so it isn't really an option for her not to tell people.


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Re: Feeling nosey :-)

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