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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Feeling nosey :-)

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Feeling nosey :-)

Post  Neevi on Thu Nov 07, 2013 10:17 am

Are you in a relationship? And if so how are yous coping with the weight of this? Do you make up for the sexual side by doing other stuff to keep that close connection?

How do you maintain your lady garden? I know i cant use any soaps etc down there because they irritate the crap out of me so im letting it grow out but feel so horrible, really wish i could tidy her up a bit :-P

And have you told all your close friends or any family members about this condition. It can be very hard keeping this to yourself. How open about it are you?

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Re: Feeling nosey :-)

Post  Alana3 on Thu Nov 07, 2013 2:36 pm

I'm in a relationship, its going well, my boyfriend is very understanding, but he has medical problems himself. HOWEVER, I did have surgery before we started having sex so my story is probably different. But I will say I was still nervous when we first started to have sex. But I just told him what was wrong and we worked on what was good for us together. But it's not painful anymore. You could try trimming it. My entire family and most of my friends know what I've been thru. But I also battle endometriosis, so my pain levels some days are thru the roof. It's no one's business though so the world doesn't need to know. You could maybe try a baking soda bath (which helps with odor as well as soothing the area too and apparently balances the pH of your vagina). Hope I helped!

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Re: Feeling nosey :-)

Post  Sarah001 on Thu Nov 07, 2013 9:51 pm

I was in a relationship but not for the last 3 years, I use a bikini trimmer to tidy up and as not using soap didn't help one bit I thought what the hell and started using it again. Hasn't made me worse either so I use bubble bath too. I find lavender oil mixed with vaseline very good for vestibule pain.
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Re: Feeling nosey :-)

Post  tinkerbelle2 on Thu Nov 14, 2013 4:27 pm

Hi Neevi, I am in a relationship have been with him nearly 2 years and had this the whole duration of our relationship! Grrr. Back then it was still bothersome and made me feel kind of hopeless and generally miserable and unsexy ugly even. But I kind of learnt to live with it and kept it to myself. The past year it seems to have got a lot worse and it has been both him and my mum that have supported and cared for me and encouraged me to go to the doctor! My boyfriend has been amazing. He has also had his own genital pain issues while we've been together plus we were long distance for 8 months so we both went without sex for months at a time. Now he lives with me and my parents which is lovely. Atm we only do it occasionally when we both aren't feeling too ouchy down there! But even if he hadn't had a similar thing I think he would've been understanding.

At the moment I have just been leaving things to grow down there! But I usually shave the bikini line. Epilating and waxing is too scary! Sometimes I shave it all! My boyfriend likes that but he is 24 and probably seen a lot of porn. It is kinda strange that some men love it isn't it?! But it grows back so quickly and gets spiky and itchy, not so attractive! Lol. And I have stopped using bubble baths really. I wash with aqueous cream or sensitive soap but don't put anything inside and then rinse with warm water. I have a handheld shower thingy which helps.

I have started to talk to my friends about it. They've all been kind and say it sounds horrible. None have it or have heard of it although a couple have had urine issues with no infection showing up. My mum told me years ago she once had a burning tingling down below which wouldn't budge but she said she thinks it went away on its own
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Re: Feeling nosey :-)

Post  Kathy100 on Fri Nov 15, 2013 12:29 pm

I was in a long term relationship but not anymore. I trim now rather than shave. I stopped using bubble bath years ago as one of the doctors I saw said it could be triggering cystitis & I have showers rather than baths.
Once mine changed to unprovoked I told my family and some friends; most were have been really sympathetic & have helped me through it. (although one of my friends finds it hard to understand why I don't want to go out as much...). With people I don't know so well - I just limit it to saying I've lower back pain.

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Re: Feeling nosey :-)

Post  Mark on Fri Nov 15, 2013 11:25 pm

I'm a man, but am married to a woman who has vulvodynia. Luckily her condition means she sometimes has an itch and only sometimes severe pain. When she's itching she still has a normal sex drive, obviously vaginal sex is out as it would bring on the pain. Yes we do 'other things' when she's just itching, I give her massages or handjobs or go down on her, which I obviously enjoy. When she's in pain I don't have a sex drive either TBH, I'm more concerned about her suffering.

Her condition affects just her vagina and the entrance to it and having anything brush against that area can trigger the pain so she keeps herself hair-free, by epilating about once a week. Being a typical guy as you'd expect I prefer it that way, it looks and feels a lot nicer and is a lot better for oral.

Her family know about it and also her manager, HR and a few close friends at work. The pain episodes last several days at a time, affect her mood and can stop her from working, driving any distance etc or making social plans, so it isn't really an option for her not to tell people.

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Re: Feeling nosey :-)

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