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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Feeling nosey :-)

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Feeling nosey :-)

Post  Neevi on Thu Nov 07, 2013 10:17 am

Are you in a relationship? And if so how are yous coping with the weight of this? Do you make up for the sexual side by doing other stuff to keep that close connection?

How do you maintain your lady garden? I know i cant use any soaps etc down there because they irritate the crap out of me so im letting it grow out but feel so horrible, really wish i could tidy her up a bit :-P

And have you told all your close friends or any family members about this condition. It can be very hard keeping this to yourself. How open about it are you?

Neevi

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Re: Feeling nosey :-)

Post  Alana3 on Thu Nov 07, 2013 2:36 pm

I'm in a relationship, its going well, my boyfriend is very understanding, but he has medical problems himself. HOWEVER, I did have surgery before we started having sex so my story is probably different. But I will say I was still nervous when we first started to have sex. But I just told him what was wrong and we worked on what was good for us together. But it's not painful anymore. You could try trimming it. My entire family and most of my friends know what I've been thru. But I also battle endometriosis, so my pain levels some days are thru the roof. It's no one's business though so the world doesn't need to know. You could maybe try a baking soda bath (which helps with odor as well as soothing the area too and apparently balances the pH of your vagina). Hope I helped!

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Re: Feeling nosey :-)

Post  Sarah001 on Thu Nov 07, 2013 9:51 pm

I was in a relationship but not for the last 3 years, I use a bikini trimmer to tidy up and as not using soap didn't help one bit I thought what the hell and started using it again. Hasn't made me worse either so I use bubble bath too. I find lavender oil mixed with vaseline very good for vestibule pain.
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Re: Feeling nosey :-)

Post  tinkerbelle2 on Thu Nov 14, 2013 4:27 pm

Hi Neevi, I am in a relationship have been with him nearly 2 years and had this the whole duration of our relationship! Grrr. Back then it was still bothersome and made me feel kind of hopeless and generally miserable and unsexy ugly even. But I kind of learnt to live with it and kept it to myself. The past year it seems to have got a lot worse and it has been both him and my mum that have supported and cared for me and encouraged me to go to the doctor! My boyfriend has been amazing. He has also had his own genital pain issues while we've been together plus we were long distance for 8 months so we both went without sex for months at a time. Now he lives with me and my parents which is lovely. Atm we only do it occasionally when we both aren't feeling too ouchy down there! But even if he hadn't had a similar thing I think he would've been understanding.

At the moment I have just been leaving things to grow down there! But I usually shave the bikini line. Epilating and waxing is too scary! Sometimes I shave it all! My boyfriend likes that but he is 24 and probably seen a lot of porn. It is kinda strange that some men love it isn't it?! But it grows back so quickly and gets spiky and itchy, not so attractive! Lol. And I have stopped using bubble baths really. I wash with aqueous cream or sensitive soap but don't put anything inside and then rinse with warm water. I have a handheld shower thingy which helps.

I have started to talk to my friends about it. They've all been kind and say it sounds horrible. None have it or have heard of it although a couple have had urine issues with no infection showing up. My mum told me years ago she once had a burning tingling down below which wouldn't budge but she said she thinks it went away on its own
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Re: Feeling nosey :-)

Post  Kathy100 on Fri Nov 15, 2013 12:29 pm

I was in a long term relationship but not anymore. I trim now rather than shave. I stopped using bubble bath years ago as one of the doctors I saw said it could be triggering cystitis & I have showers rather than baths.
Once mine changed to unprovoked I told my family and some friends; most were have been really sympathetic & have helped me through it. (although one of my friends finds it hard to understand why I don't want to go out as much...). With people I don't know so well - I just limit it to saying I've lower back pain.

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Re: Feeling nosey :-)

Post  Mark on Fri Nov 15, 2013 11:25 pm

I'm a man, but am married to a woman who has vulvodynia. Luckily her condition means she sometimes has an itch and only sometimes severe pain. When she's itching she still has a normal sex drive, obviously vaginal sex is out as it would bring on the pain. Yes we do 'other things' when she's just itching, I give her massages or handjobs or go down on her, which I obviously enjoy. When she's in pain I don't have a sex drive either TBH, I'm more concerned about her suffering.

Her condition affects just her vagina and the entrance to it and having anything brush against that area can trigger the pain so she keeps herself hair-free, by epilating about once a week. Being a typical guy as you'd expect I prefer it that way, it looks and feels a lot nicer and is a lot better for oral.

Her family know about it and also her manager, HR and a few close friends at work. The pain episodes last several days at a time, affect her mood and can stop her from working, driving any distance etc or making social plans, so it isn't really an option for her not to tell people.

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Re: Feeling nosey :-)

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