anyone from ireland please???

Hiya ive been suffering since last dec with burning had biopsy done and it came back non specific inflamation..im at my wits end with this and im trying to find a specialist in ireland please...

Hey I'm from Belfast I had a blood test to see for inflammation and it just said there was a small marker for it...Iv not had much luck it has calmed down a bit but still painful at times x

Hi zbrown thanks for replying..if u dont mind me asking has ur doc giving u anythin to help?

No problem it's good to chat here to start with they tried yeast treatments then antibiotics which didn't help at all, then steroid cream made my skin split open so bad:(, I then had various swabs blood tests at a GUM clinic on referral nothing came back with any answers.
I then paid to go private and they suspected some sort of nerve issue first of had 6-7 acupuncture sessions helped very slightly, then self referred to a woman's physio this helped aloe ad my pelvic floor muscles where quite tight used dilators after 8 sessions I was ok to stop just use them at home but still Had burning was on at the highest 700 mg gapabentin which helped so much I took myself of it to early now have slight burning again but a more severe burning on one side of mouth so strange!!
Sorry for long reply I tend to get my frustrations out here wbu what have u tried xo

Hi zbrown
thanks again for the reply.u poor thing u sure have been through the mill and i can totally understand about getting frustrated.my whole life at the moment is revolving around the pain down their.i had a biopsy in march which came back as non specific inflamation.that dermo doc gave me daktacort cream and that was it.my own doc prescribed amitriptyline only helped for about a wk.then i took trilptal and recently cymbalta with no relief.im just back from seeing a different dermotologist today she was very nice and she said i have lichen scelerous and has prescribed me dermovate ointment.i dont have the usual symptoms for it but she is convinced thats what i have.im feeling very anxious about it maybe because ive read so many horror stories about this skin condition.im just hoping that i will get relief from using this cream.i really hope u get some relief from what ur goin through xxx

It is a frustrating time I try not to stress as I know this triggers aloe of things and brings it on its hard not too thowe :/ well I hope u get some relief and now they finally know what it is hopefully can get sorted how long have u had these symptoms? Did it start just from nowhere xoxo

I know how that feels stress is a bigger trigger and i find it so hard not to stress when im feelin like this.my own doc tried to give me antidepressants cause id saw he thought i had lost the plot i was crying so much in his surgery.i have the symptoms since dec i thought i had thrush but the swab results came back clear twice.i did have a lot of stress beforehand with family stuff so weather that brought it to a head im not sure.im hoping that the dermovate will help me and that maybe ill start feeling a bit better.

Yeah like I notice if I get run down lack of sleep ect I do get cold sores and just general feeling down along with vulvodynia worsening, I hope it helps you feel better too!!!! Is your generalised or vestibule? Xo

Im the exact same my mouth is all broken out at the moment with cold sores and id say its from the stress of it all.i was bein treated for vulvodynia by my doc for the last 6 months and only had relief for a wk with the amitriptyline and then it got worse and i was given few different tablets but none helped so it turns out i dont have vulvodynia at all its lichen scelerous i have even though i dont have the white skin only a burning pain and some pigment discoloration which looks like brusing.i only wish i had been diagnosed earlier but im hoping that i will get some relief as the wks go on with the dermovate cream im using.

Awww well hopefully it helps iv never been to a dermatologist that might be a good.idea just to rule out skin conditions, tbh I'm definitely not as bad as I was at the start of All this! Although it still does get me down at times xx