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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Physio (back pain)

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Physio (back pain)

Post  Sunflower82 on Mon Nov 11, 2013 7:48 am

Hi,
    I've been seeing a women's health Physio on and off for well over a year and I don't think I would have got this far if it wasn't for all the treatment she has given me. The only think us half way through this treatment I hurt my back. L4 l5 area impinging in the nerve down my right leg! I recently had a nerve block and the majority of my vulvodynia symptoms disappeared and I am now able to have pain free sex. The only problem is my back and leg still feeling the same, if I have any Physio treatment to release my back it will immediate bring on my vulvodynia symptoms. Waiting for another nerve block ( which is not really the answer)

Wondered if anyone else had a similar experience ?

Thanks

Kt

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Re: Physio (back pain)

Post  zarli on Tue Nov 12, 2013 12:23 am

Hi my specialist is thinking about giving me a nerve block, where did you have your block ?

zarli

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Physio (back pain)

Post  Sunflower82 on Tue Nov 12, 2013 6:38 am

Hi,
I had a nerve block at l4 l5 so technically it shouldn't have had an effect on my vulvodynia and the drs can't really explain why it has, it helped by back and leg pain temporary but within four weeks it was back! Were are u planning on having one ?

Thanks for your reply

Kt

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Re: Physio (back pain)

Post  zarli on Tue Nov 12, 2013 10:33 am

Thank you, 15 years ago I started suffering nerve pain in my left shoulder blade, I believe this caused my vulvodynia which also started on my left side 6 years ago. Needless to say I've tried every thing for both problems and been to every one (well it feels like every one). I see a pain specialist who wants to try a puedendal nerve block and I'm thinking why not ??
I apologise for any negative aura but I'm having a pain flare and am struggling to keep up to life in general at present, but I know its just a phase and tomoro could be better.
Thank you for replying to me
Kind Regards Zarli

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Re Physio (back pain)

Post  Sunflower82 on Tue Nov 12, 2013 9:04 pm

Zaria,
Sorry to hear u are having a rough time! I know that feeling well! A nerve block could be the way forward it's worth a try if u have tried other options! I'm presuming you have had Physio imput ?

Hope u have a better day tomorrow

Kt

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Re: Physio (back pain)

Post  mary jane on Tue Nov 12, 2013 11:35 pm

@ sunflower, was that a pudendal nerve block you had? oh, wait, you said it was for your back...

@ zarli, pudendal pain usually involves vulva pain, so it might work for you ! do update if it works, I'm interested in it as well
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Re: Physio (back pain)

Post  zarli on Wed Nov 13, 2013 9:18 am

Thank you girls at this stage I have to wait until March !!! But Im trying to get in sooner my GP is going to pull some strings to try to make it happen sooner so will wait and see..
I will let u know asap.
Thank you for your lovely positive reply's its so comforting to have support, l have 4 young adult children and I hide a lot of my pain from them as I don't want them to get negativity from me, so its quite exhausting some days because I try and fulfil all family life and hide all the drama of having 'V'. I guess its nice to write negative feelings to people that understand, if that makes sense??

Yes I have tried 3 physios I have found a really good one and I am on going with that with very slow progress but I feel I let myself get to this stage as Endep worked for me for 4 years and I didn't try to find a cure I just thought I'd take that and slowly ween off it and tada 'V' would be gone.....very foolish thinking.

Warm wishes to you both


zarli

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Re: Physio (back pain)

Post  zarli on Wed Nov 13, 2013 9:58 am

Forgot to say ...I know its not a cure but any thing to take away the pain while I am doing physio, my vulva specialist keeps
telling me its important to control the pain through medication while working on physio.Very Happy 

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Re: Physio (back pain)

Post  Kathy100 on Fri Nov 15, 2013 12:46 pm

Hi Zarli - I know what you mean about the meds, I thought exactly the same as you to start with (wishful thinking I guess) & then my pain spread out to legs, hips and back. Now I've found a really good physio who is helping (the specialist I saw said if physio did not work then nerve blocks would be something to consider). It must be terribly difficult to hide the V from your family life especially when you get a flare - I find it tough enough & I'm single. I hope you start feeling better soon.

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Re: Physio (back pain)

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