Vulvodynia Support
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» Hope to all my suffering ladies
Physio (back pain)  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Physio (back pain)  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Physio (back pain)  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Physio (back pain)  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Physio (back pain)  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Physio (back pain)  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Physio (back pain)  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Physio (back pain)  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Physio (back pain)  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Physio (back pain)

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Post  Sunflower82 Mon Nov 11, 2013 7:48 am

Hi,
    I've been seeing a women's health Physio on and off for well over a year and I don't think I would have got this far if it wasn't for all the treatment she has given me. The only think us half way through this treatment I hurt my back. L4 l5 area impinging in the nerve down my right leg! I recently had a nerve block and the majority of my vulvodynia symptoms disappeared and I am now able to have pain free sex. The only problem is my back and leg still feeling the same, if I have any Physio treatment to release my back it will immediate bring on my vulvodynia symptoms. Waiting for another nerve block ( which is not really the answer)

Wondered if anyone else had a similar experience ?

Thanks

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  zarli Tue Nov 12, 2013 12:23 am

Hi my specialist is thinking about giving me a nerve block, where did you have your block ?

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  Sunflower82 Tue Nov 12, 2013 6:38 am

Hi,
I had a nerve block at l4 l5 so technically it shouldn't have had an effect on my vulvodynia and the drs can't really explain why it has, it helped by back and leg pain temporary but within four weeks it was back! Were are u planning on having one ?

Thanks for your reply

Kt

Sunflower82

Posts : 82
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Post  zarli Tue Nov 12, 2013 10:33 am

Thank you, 15 years ago I started suffering nerve pain in my left shoulder blade, I believe this caused my vulvodynia which also started on my left side 6 years ago. Needless to say I've tried every thing for both problems and been to every one (well it feels like every one). I see a pain specialist who wants to try a puedendal nerve block and I'm thinking why not ??
I apologise for any negative aura but I'm having a pain flare and am struggling to keep up to life in general at present, but I know its just a phase and tomoro could be better.
Thank you for replying to me
Kind Regards Zarli

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  Sunflower82 Tue Nov 12, 2013 9:04 pm

Zaria,
Sorry to hear u are having a rough time! I know that feeling well! A nerve block could be the way forward it's worth a try if u have tried other options! I'm presuming you have had Physio imput ?

Hope u have a better day tomorrow

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  mary jane Tue Nov 12, 2013 11:35 pm

@ sunflower, was that a pudendal nerve block you had? oh, wait, you said it was for your back...

@ zarli, pudendal pain usually involves vulva pain, so it might work for you ! do update if it works, I'm interested in it as well
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  zarli Wed Nov 13, 2013 9:18 am

Thank you girls at this stage I have to wait until March !!! But Im trying to get in sooner my GP is going to pull some strings to try to make it happen sooner so will wait and see..
I will let u know asap.
Thank you for your lovely positive reply's its so comforting to have support, l have 4 young adult children and I hide a lot of my pain from them as I don't want them to get negativity from me, so its quite exhausting some days because I try and fulfil all family life and hide all the drama of having 'V'. I guess its nice to write negative feelings to people that understand, if that makes sense??

Yes I have tried 3 physios I have found a really good one and I am on going with that with very slow progress but I feel I let myself get to this stage as Endep worked for me for 4 years and I didn't try to find a cure I just thought I'd take that and slowly ween off it and tada 'V' would be gone.....very foolish thinking.

Warm wishes to you both


zarli

Posts : 182
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Location : Australia

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Post  zarli Wed Nov 13, 2013 9:58 am

Forgot to say ...I know its not a cure but any thing to take away the pain while I am doing physio, my vulva specialist keeps
telling me its important to control the pain through medication while working on physio.Very Happy 

zarli

Posts : 182
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Location : Australia

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Post  Kathy100 Fri Nov 15, 2013 12:46 pm

Hi Zarli - I know what you mean about the meds, I thought exactly the same as you to start with (wishful thinking I guess) & then my pain spread out to legs, hips and back. Now I've found a really good physio who is helping (the specialist I saw said if physio did not work then nerve blocks would be something to consider). It must be terribly difficult to hide the V from your family life especially when you get a flare - I find it tough enough & I'm single. I hope you start feeling better soon.

Kathy100

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