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» Please tell me this can get better
Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Physio (back pain)

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Physio (back pain)

Post  Sunflower82 on Mon Nov 11, 2013 7:48 am

Hi,
    I've been seeing a women's health Physio on and off for well over a year and I don't think I would have got this far if it wasn't for all the treatment she has given me. The only think us half way through this treatment I hurt my back. L4 l5 area impinging in the nerve down my right leg! I recently had a nerve block and the majority of my vulvodynia symptoms disappeared and I am now able to have pain free sex. The only problem is my back and leg still feeling the same, if I have any Physio treatment to release my back it will immediate bring on my vulvodynia symptoms. Waiting for another nerve block ( which is not really the answer)

Wondered if anyone else had a similar experience ?

Thanks

Kt

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Re: Physio (back pain)

Post  zarli on Tue Nov 12, 2013 12:23 am

Hi my specialist is thinking about giving me a nerve block, where did you have your block ?

zarli

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Physio (back pain)

Post  Sunflower82 on Tue Nov 12, 2013 6:38 am

Hi,
I had a nerve block at l4 l5 so technically it shouldn't have had an effect on my vulvodynia and the drs can't really explain why it has, it helped by back and leg pain temporary but within four weeks it was back! Were are u planning on having one ?

Thanks for your reply

Kt

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Re: Physio (back pain)

Post  zarli on Tue Nov 12, 2013 10:33 am

Thank you, 15 years ago I started suffering nerve pain in my left shoulder blade, I believe this caused my vulvodynia which also started on my left side 6 years ago. Needless to say I've tried every thing for both problems and been to every one (well it feels like every one). I see a pain specialist who wants to try a puedendal nerve block and I'm thinking why not ??
I apologise for any negative aura but I'm having a pain flare and am struggling to keep up to life in general at present, but I know its just a phase and tomoro could be better.
Thank you for replying to me
Kind Regards Zarli

zarli

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Re Physio (back pain)

Post  Sunflower82 on Tue Nov 12, 2013 9:04 pm

Zaria,
Sorry to hear u are having a rough time! I know that feeling well! A nerve block could be the way forward it's worth a try if u have tried other options! I'm presuming you have had Physio imput ?

Hope u have a better day tomorrow

Kt

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Re: Physio (back pain)

Post  mary jane on Tue Nov 12, 2013 11:35 pm

@ sunflower, was that a pudendal nerve block you had? oh, wait, you said it was for your back...

@ zarli, pudendal pain usually involves vulva pain, so it might work for you ! do update if it works, I'm interested in it as well
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Re: Physio (back pain)

Post  zarli on Wed Nov 13, 2013 9:18 am

Thank you girls at this stage I have to wait until March !!! But Im trying to get in sooner my GP is going to pull some strings to try to make it happen sooner so will wait and see..
I will let u know asap.
Thank you for your lovely positive reply's its so comforting to have support, l have 4 young adult children and I hide a lot of my pain from them as I don't want them to get negativity from me, so its quite exhausting some days because I try and fulfil all family life and hide all the drama of having 'V'. I guess its nice to write negative feelings to people that understand, if that makes sense??

Yes I have tried 3 physios I have found a really good one and I am on going with that with very slow progress but I feel I let myself get to this stage as Endep worked for me for 4 years and I didn't try to find a cure I just thought I'd take that and slowly ween off it and tada 'V' would be gone.....very foolish thinking.

Warm wishes to you both


zarli

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Re: Physio (back pain)

Post  zarli on Wed Nov 13, 2013 9:58 am

Forgot to say ...I know its not a cure but any thing to take away the pain while I am doing physio, my vulva specialist keeps
telling me its important to control the pain through medication while working on physio.Very Happy 

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Re: Physio (back pain)

Post  Kathy100 on Fri Nov 15, 2013 12:46 pm

Hi Zarli - I know what you mean about the meds, I thought exactly the same as you to start with (wishful thinking I guess) & then my pain spread out to legs, hips and back. Now I've found a really good physio who is helping (the specialist I saw said if physio did not work then nerve blocks would be something to consider). It must be terribly difficult to hide the V from your family life especially when you get a flare - I find it tough enough & I'm single. I hope you start feeling better soon.

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Re: Physio (back pain)

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