Log in

I forgot my password

Latest topics
» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Physio (back pain)

Go down

Physio (back pain)

Post  Sunflower82 on Mon Nov 11, 2013 7:48 am

Hi,
    I've been seeing a women's health Physio on and off for well over a year and I don't think I would have got this far if it wasn't for all the treatment she has given me. The only think us half way through this treatment I hurt my back. L4 l5 area impinging in the nerve down my right leg! I recently had a nerve block and the majority of my vulvodynia symptoms disappeared and I am now able to have pain free sex. The only problem is my back and leg still feeling the same, if I have any Physio treatment to release my back it will immediate bring on my vulvodynia symptoms. Waiting for another nerve block ( which is not really the answer)

Wondered if anyone else had a similar experience ?

Thanks

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: Physio (back pain)

Post  zarli on Tue Nov 12, 2013 12:23 am

Hi my specialist is thinking about giving me a nerve block, where did you have your block ?

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Physio (back pain)

Post  Sunflower82 on Tue Nov 12, 2013 6:38 am

Hi,
I had a nerve block at l4 l5 so technically it shouldn't have had an effect on my vulvodynia and the drs can't really explain why it has, it helped by back and leg pain temporary but within four weeks it was back! Were are u planning on having one ?

Thanks for your reply

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: Physio (back pain)

Post  zarli on Tue Nov 12, 2013 10:33 am

Thank you, 15 years ago I started suffering nerve pain in my left shoulder blade, I believe this caused my vulvodynia which also started on my left side 6 years ago. Needless to say I've tried every thing for both problems and been to every one (well it feels like every one). I see a pain specialist who wants to try a puedendal nerve block and I'm thinking why not ??
I apologise for any negative aura but I'm having a pain flare and am struggling to keep up to life in general at present, but I know its just a phase and tomoro could be better.
Thank you for replying to me
Kind Regards Zarli

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re Physio (back pain)

Post  Sunflower82 on Tue Nov 12, 2013 9:04 pm

Zaria,
Sorry to hear u are having a rough time! I know that feeling well! A nerve block could be the way forward it's worth a try if u have tried other options! I'm presuming you have had Physio imput ?

Hope u have a better day tomorrow

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: Physio (back pain)

Post  mary jane on Tue Nov 12, 2013 11:35 pm

@ sunflower, was that a pudendal nerve block you had? oh, wait, you said it was for your back...

@ zarli, pudendal pain usually involves vulva pain, so it might work for you ! do update if it works, I'm interested in it as well
avatar
mary jane

Posts : 331
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Physio (back pain)

Post  zarli on Wed Nov 13, 2013 9:18 am

Thank you girls at this stage I have to wait until March !!! But Im trying to get in sooner my GP is going to pull some strings to try to make it happen sooner so will wait and see..
I will let u know asap.
Thank you for your lovely positive reply's its so comforting to have support, l have 4 young adult children and I hide a lot of my pain from them as I don't want them to get negativity from me, so its quite exhausting some days because I try and fulfil all family life and hide all the drama of having 'V'. I guess its nice to write negative feelings to people that understand, if that makes sense??

Yes I have tried 3 physios I have found a really good one and I am on going with that with very slow progress but I feel I let myself get to this stage as Endep worked for me for 4 years and I didn't try to find a cure I just thought I'd take that and slowly ween off it and tada 'V' would be gone.....very foolish thinking.

Warm wishes to you both


zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: Physio (back pain)

Post  zarli on Wed Nov 13, 2013 9:58 am

Forgot to say ...I know its not a cure but any thing to take away the pain while I am doing physio, my vulva specialist keeps
telling me its important to control the pain through medication while working on physio.Very Happy 

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: Physio (back pain)

Post  Kathy100 on Fri Nov 15, 2013 12:46 pm

Hi Zarli - I know what you mean about the meds, I thought exactly the same as you to start with (wishful thinking I guess) & then my pain spread out to legs, hips and back. Now I've found a really good physio who is helping (the specialist I saw said if physio did not work then nerve blocks would be something to consider). It must be terribly difficult to hide the V from your family life especially when you get a flare - I find it tough enough & I'm single. I hope you start feeling better soon.

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Physio (back pain)

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum