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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

In college, diagnosed with vulvodynia

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In college, diagnosed with vulvodynia

Post  iwthsap89 on Wed Nov 13, 2013 9:08 pm


I am a 19 year old that starting experiencing symptoms about a year ago during a hook-up. I knew something was completely wrong, I had never experienced something that painful in that area. I just recently went to the doctor and he confirmed what I already thought it was, vulvodynia. It took me a while, I spent a lot of time feeling sorry for myself and being negative but I finally went. He prescribed me with some form of combo of lidocane and something else. I was wondering If anyone had any success with this treatment. Also I read up on something about botox helping vulvodynia and I was wondering if anyone had any success with that? I really want to get a hold of this, at this age its very hard to have a normal dating life. Every time I think about dating I just get sad. I really wanna figure this out!

More Info:
I have chronic yeast infections, but I don't know if this is a direct link to my vulvodynia. I first noticed my vulvodynia after taking a high dose of antibiotics when I had PID. I also have always been really tight in general, even before vulvodynia It would take a little time for me to be able to have something enter me. Also if anyone has any cures to Chronic Yeasts infections that would be awesome! Also a side note I take lexapro and xanax for my anxiety but those have not helped or hindered my condition.

Last edited by iwthsap89 on Wed Nov 13, 2013 11:29 pm; edited 1 time in total


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Re: In college, diagnosed with vulvodynia

Post  mary jane on Wed Nov 13, 2013 10:43 pm


you need to give more details, you are a bit vague. what are your symptoms? What type of pain do you have ?
and don't worry, you're very young, surely you'll get better. And don't worry about dating, focus on your health right now, screw men, they can WAIT ! Dating is fun when you can focus on it without such issues.
You say you're on lidocaine, that's good, what else are you on? Any medication at all ?
when I was your age (I'm 26 now) I had vulvar vestibulitis symptoms (though very mild) and had some pain with intercourse, now I have full blown constant pain recently controlled by medication, and yet I still expect to get BETTER, because that's what bodies do. They try and heal any damage/illness.
Any yeast infections that you know of ? Try taking Optibac, a lady was cured by it.
mary jane

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Re: In college, diagnosed with vulvodynia

Post  mary jane on Wed Nov 13, 2013 10:47 pm

botox helps vulvodynia in some cases, but it helps vaginismus even more. So if your pain is caused by a tight pelvic floor, it might help, but I don't know if nhs pays for that.
there is a cosmo article on botox for vulvodynia.
but from my experience, 100 women can all have vulvodynia and yet have different causes, symptoms and cures.
If you;re really desperate, you can see a vulval specialist privately. Like Wendy Reid. but it's very expensive
mary jane

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Re: In college, diagnosed with vulvodynia

Post  Sarah001 on Thu Nov 14, 2013 9:08 am

I think given you were tight prior to V you should definitely find a Women's Health Physio and give that a try too.

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Re: In college, diagnosed with vulvodynia

Post  21andcounting on Sun Dec 15, 2013 5:38 pm


I'm in college now too (although my symptoms started at age 17). My condition is provoked vestibulitis, and I was given lidocane as a first treatment as well. I tried it a couple times before sex, and it helped a little but not really. I don't have experience with the botox treatments but I've tried a bunch of others (Lyrica, PT, Estrogen gels) that may help you depending on what your exact condition is. I have heard that one bad yeast infection can trigger this, but there are definitely people on this forum more knowledgeable on that topic than I am. I totally get how hard it is to deal with this in college. Everyone just hooks up all the time and they don't seem to have any issues at all!


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Re: In college, diagnosed with vulvodynia

Post  Alana3 on Sun Dec 15, 2013 6:41 pm

I had provoked as well and it started in college too. I tried all the topicals and finally couldn't take it anymore so I had a vestibulectomy a year ago which helped. I also have recurrent yeast infections but hoping im controlling them with azo. Its frustrating for sure.


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Re: In college, diagnosed with vulvodynia

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