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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
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» Gabapentin gel and pregnancy
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» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


In college, diagnosed with vulvodynia

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In college, diagnosed with vulvodynia

Post  iwthsap89 on Wed Nov 13, 2013 9:08 pm

Hello,

I am a 19 year old that starting experiencing symptoms about a year ago during a hook-up. I knew something was completely wrong, I had never experienced something that painful in that area. I just recently went to the doctor and he confirmed what I already thought it was, vulvodynia. It took me a while, I spent a lot of time feeling sorry for myself and being negative but I finally went. He prescribed me with some form of combo of lidocane and something else. I was wondering If anyone had any success with this treatment. Also I read up on something about botox helping vulvodynia and I was wondering if anyone had any success with that? I really want to get a hold of this, at this age its very hard to have a normal dating life. Every time I think about dating I just get sad. I really wanna figure this out!

More Info:
I have chronic yeast infections, but I don't know if this is a direct link to my vulvodynia. I first noticed my vulvodynia after taking a high dose of antibiotics when I had PID. I also have always been really tight in general, even before vulvodynia It would take a little time for me to be able to have something enter me. Also if anyone has any cures to Chronic Yeasts infections that would be awesome! Also a side note I take lexapro and xanax for my anxiety but those have not helped or hindered my condition.


Last edited by iwthsap89 on Wed Nov 13, 2013 11:29 pm; edited 1 time in total

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Re: In college, diagnosed with vulvodynia

Post  mary jane on Wed Nov 13, 2013 10:43 pm

Hello,

you need to give more details, you are a bit vague. what are your symptoms? What type of pain do you have ?
and don't worry, you're very young, surely you'll get better. And don't worry about dating, focus on your health right now, screw men, they can WAIT ! Dating is fun when you can focus on it without such issues.
You say you're on lidocaine, that's good, what else are you on? Any medication at all ?
when I was your age (I'm 26 now) I had vulvar vestibulitis symptoms (though very mild) and had some pain with intercourse, now I have full blown constant pain recently controlled by medication, and yet I still expect to get BETTER, because that's what bodies do. They try and heal any damage/illness.
Any yeast infections that you know of ? Try taking Optibac, a lady was cured by it.
http://madpeach.blogspot.co.uk/2011/10/hannahs-story-success-with-yeast.html
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Re: In college, diagnosed with vulvodynia

Post  mary jane on Wed Nov 13, 2013 10:47 pm

botox helps vulvodynia in some cases, but it helps vaginismus even more. So if your pain is caused by a tight pelvic floor, it might help, but I don't know if nhs pays for that.
there is a cosmo article on botox for vulvodynia.
but from my experience, 100 women can all have vulvodynia and yet have different causes, symptoms and cures.
If you;re really desperate, you can see a vulval specialist privately. Like Wendy Reid. but it's very expensive
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Re: In college, diagnosed with vulvodynia

Post  Sarah001 on Thu Nov 14, 2013 9:08 am

I think given you were tight prior to V you should definitely find a Women's Health Physio and give that a try too.
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Re: In college, diagnosed with vulvodynia

Post  21andcounting on Sun Dec 15, 2013 5:38 pm

Hi!

I'm in college now too (although my symptoms started at age 17). My condition is provoked vestibulitis, and I was given lidocane as a first treatment as well. I tried it a couple times before sex, and it helped a little but not really. I don't have experience with the botox treatments but I've tried a bunch of others (Lyrica, PT, Estrogen gels) that may help you depending on what your exact condition is. I have heard that one bad yeast infection can trigger this, but there are definitely people on this forum more knowledgeable on that topic than I am. I totally get how hard it is to deal with this in college. Everyone just hooks up all the time and they don't seem to have any issues at all!

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Re: In college, diagnosed with vulvodynia

Post  Alana3 on Sun Dec 15, 2013 6:41 pm

I had provoked as well and it started in college too. I tried all the topicals and finally couldn't take it anymore so I had a vestibulectomy a year ago which helped. I also have recurrent yeast infections but hoping im controlling them with azo. Its frustrating for sure.

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Re: In college, diagnosed with vulvodynia

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