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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

In college, diagnosed with vulvodynia

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In college, diagnosed with vulvodynia

Post  iwthsap89 on Wed Nov 13, 2013 9:08 pm


I am a 19 year old that starting experiencing symptoms about a year ago during a hook-up. I knew something was completely wrong, I had never experienced something that painful in that area. I just recently went to the doctor and he confirmed what I already thought it was, vulvodynia. It took me a while, I spent a lot of time feeling sorry for myself and being negative but I finally went. He prescribed me with some form of combo of lidocane and something else. I was wondering If anyone had any success with this treatment. Also I read up on something about botox helping vulvodynia and I was wondering if anyone had any success with that? I really want to get a hold of this, at this age its very hard to have a normal dating life. Every time I think about dating I just get sad. I really wanna figure this out!

More Info:
I have chronic yeast infections, but I don't know if this is a direct link to my vulvodynia. I first noticed my vulvodynia after taking a high dose of antibiotics when I had PID. I also have always been really tight in general, even before vulvodynia It would take a little time for me to be able to have something enter me. Also if anyone has any cures to Chronic Yeasts infections that would be awesome! Also a side note I take lexapro and xanax for my anxiety but those have not helped or hindered my condition.

Last edited by iwthsap89 on Wed Nov 13, 2013 11:29 pm; edited 1 time in total


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Re: In college, diagnosed with vulvodynia

Post  mary jane on Wed Nov 13, 2013 10:43 pm


you need to give more details, you are a bit vague. what are your symptoms? What type of pain do you have ?
and don't worry, you're very young, surely you'll get better. And don't worry about dating, focus on your health right now, screw men, they can WAIT ! Dating is fun when you can focus on it without such issues.
You say you're on lidocaine, that's good, what else are you on? Any medication at all ?
when I was your age (I'm 26 now) I had vulvar vestibulitis symptoms (though very mild) and had some pain with intercourse, now I have full blown constant pain recently controlled by medication, and yet I still expect to get BETTER, because that's what bodies do. They try and heal any damage/illness.
Any yeast infections that you know of ? Try taking Optibac, a lady was cured by it.
mary jane

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Re: In college, diagnosed with vulvodynia

Post  mary jane on Wed Nov 13, 2013 10:47 pm

botox helps vulvodynia in some cases, but it helps vaginismus even more. So if your pain is caused by a tight pelvic floor, it might help, but I don't know if nhs pays for that.
there is a cosmo article on botox for vulvodynia.
but from my experience, 100 women can all have vulvodynia and yet have different causes, symptoms and cures.
If you;re really desperate, you can see a vulval specialist privately. Like Wendy Reid. but it's very expensive
mary jane

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Re: In college, diagnosed with vulvodynia

Post  Sarah001 on Thu Nov 14, 2013 9:08 am

I think given you were tight prior to V you should definitely find a Women's Health Physio and give that a try too.

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Re: In college, diagnosed with vulvodynia

Post  21andcounting on Sun Dec 15, 2013 5:38 pm


I'm in college now too (although my symptoms started at age 17). My condition is provoked vestibulitis, and I was given lidocane as a first treatment as well. I tried it a couple times before sex, and it helped a little but not really. I don't have experience with the botox treatments but I've tried a bunch of others (Lyrica, PT, Estrogen gels) that may help you depending on what your exact condition is. I have heard that one bad yeast infection can trigger this, but there are definitely people on this forum more knowledgeable on that topic than I am. I totally get how hard it is to deal with this in college. Everyone just hooks up all the time and they don't seem to have any issues at all!


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Re: In college, diagnosed with vulvodynia

Post  Alana3 on Sun Dec 15, 2013 6:41 pm

I had provoked as well and it started in college too. I tried all the topicals and finally couldn't take it anymore so I had a vestibulectomy a year ago which helped. I also have recurrent yeast infections but hoping im controlling them with azo. Its frustrating for sure.


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Re: In college, diagnosed with vulvodynia

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