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    Yesterday at 11:20 pm by Faezeh

    » a video for you guys
    Yesterday at 2:53 am by lavrose

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Yesterday at 2:45 am by lavrose

    » New and need some help
    Fri Feb 23, 2018 1:12 pm by fairlight10

    » Acupuncture gave me my life back!
    Thu Feb 22, 2018 11:25 pm by Bx11

    » Anyone from New Jersey
    Thu Feb 22, 2018 10:47 pm by LindafromNJ

    » vaginal cream
    Thu Feb 22, 2018 10:46 pm by LindafromNJ

    » Acupuncture advice please
    Thu Feb 22, 2018 2:25 am by ryn207

    » Please tell me this can get better
    Mon Feb 19, 2018 2:10 am by anon99

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 3

    Anyone from New Jersey

    Thu Feb 22, 2018 10:47 pm by LindafromNJ

    Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

    Comments: 0

    vaginal cream

    Thu Feb 22, 2018 10:46 pm by LindafromNJ

    I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

    Comments: 0


    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0


    Sat Feb 10, 2018 12:18 am by rockylife


    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    Fibromyalgia and LDN?

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    Fibromyalgia and LDN?

    Post  Mouse on Mon Oct 18, 2010 1:51 am

    I found this really interesting site called curetogether. It allows people to post what ails them, what works to help their pain and then corrolates the data. I can't remember who on here mentioned fibromyalgia but this discussion is interesting especially the comments at the bottom which contradict the title.

    Several people mention getting instant relief from a drug called LDN (Low-Dose Naltrexone). There's also mention of a study on the drug. A couple of the people who comment are in Ireland so it must be available in the UK. I've also posted further comments below. Has anyone tried it? Oh I looked it up on Dr Wiki and I've posted that as well.

    If the link doesn't work just join up and browse, even Vulvodynia gets a mention. You can also track your medical history on there.





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    Re: Fibromyalgia and LDN?

    Post  Mouse on Wed Oct 20, 2010 2:01 pm

    Oh and another thing... I have another disease that makes my life the joy that it is. So when I finished posting all the shizzer that I have, this site matched me up with other people with the same ailments. I have Coeliac Disease and Vulvodynia and wouldn't you know it, I'm not unique! I can now email these people.

    For nearly every symptom I have/had there is a survey to complete. Which in turn produces data for comparison. Treatments are all listed as well.

    That's all I've got for now Smile


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