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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Semen allergy? Just when we were doing well, too!

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Semen allergy? Just when we were doing well, too!

Post  Takver on Thu Nov 21, 2013 2:04 pm

I've been with my new boyfriend for just under four months, and having PIV sex for about two months. The vulvodynia, to my delight, has pretty much stopped. It used to be fairly general, worse when provoked by sex, and worse before and during my period. My gynae was thrilled to hear that I was in a relationship with a lovely, loving, talented, generous man, and said that in her experience, the best cure for vulvodynia was a hot new man. She wasn't joking, it turns out! We have been having lots of fantasic sex, and I'm enjoying PIV sex for the first time in my life! I'm even back to using a menstrual cup, having ordered the softest, smallest one I could find (Meluna small soft).

My period finished a couple of days ago, so yesterday we tried PIV sex. I was a smidgen on the tender side, nothing I couldn't handle with some nice lube (Pink silicone lube, our usual). However, once he came in me it started to burn/sting. There have been two instances where I think this may have occurred before with him, although I wasn't quite sure, and on the previous times it didn't hurt as much. He doesn't ejaculate often, he seems to have some sort of orgasm-separate-from-ejaculation thing going which I've only heard of in relation to tantric sex before (no, he's never looked into tantric sex, it's just the way he's wired). I splashed some water about to try to wash a bit, and then he went down on me, but it continued to burn/sting for pretty much the entire evening, though it improved just enough for me to come from the oral sex. This is lousy. If need be, he'll just refrain from ejaculating in me, but it'd be really nice if he could.

I've heard that women can be allergic/sensitive to semen, and I'm guessing that's what's happening here. Does anyone know more about it? Is it something to do with pH? Does it make a difference where I am in my menstrual cycle? Is there anything we can do to prevent it, apart from not having him ejaculate in me?
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Re: Semen allergy? Just when we were doing well, too!

Post  Alana3 on Thu Nov 21, 2013 2:16 pm

No it means your allergic to it put it on another.part of your body and see if you react. Some women are just allergic...

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Re: Semen allergy? Just when we were doing well, too!

Post  Takver on Thu Nov 21, 2013 2:32 pm

I'm not getting allergy-type symptoms, so it seems like more of a sensitivity. Due to his weird accidentally-tantric ways, I've not really been coming into contact with his semen elsewhere, but I was fine with it on my skin and in my mouth with my ex-partner. Anyway, whatever it's called, I don't want it to keep happening.
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Re: Semen allergy? Just when we were doing well, too!

Post  Alana3 on Thu Nov 21, 2013 3:35 pm

Yeah but thats your ex everyones sperm is different have him go somewhere else on you. Or maybe the friction is bugging you?

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Re: Semen allergy? Just when we were doing well, too!

Post  Takver on Thu Nov 21, 2013 5:30 pm

No, because we've been fine all the times we've had PIV sex without ejaculation, and we're using plenty of silicone lube. I've had sex which is painful due to insufficient lubrication, and this isn't it.

Apparently semen allergies don't necessarily show up if it gets on another part of the body, so that's not particularly helpful. They generally advise testing to see whether this is the problem by trying PIV sex with and without condoms, although of course that can be tricky if the condoms are causing problems. Since he rarely ejaculates, and does know when he's done so, it's pretty easy for us to know that it's the semen that's causing the problem.
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Re: Semen allergy? Just when we were doing well, too!

Post  Alana3 on Thu Nov 21, 2013 6:39 pm

Than what's your question if yoh already know the answer...?

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Re: Semen allergy? Just when we were doing well, too!

Post  Takver on Mon Nov 25, 2013 4:42 pm

It seems to be something else. I'm still horribly sore and itchy, in fact it's a lot worse, and it's several days later. Someone helpful on another forum suggested that it might be BV, and I've had that before, so it's a possibility. The gynae gave me a spare set of Relactagel (7 day course, meant to stabilise your pH, worked last time) to use if the BV recurred, so I'm using that, and having just spoken to a GP today, I've been told to use plain emulsifying ointment throughout the day, since I need something to help with the soreness and they don't want me on another topical medication just yet. If the Relactagel doesn't work, they'll come and have a look at me, and hopefully do a swab this time. Probably antibiotics, if it's BV or a YI. I really hope they bother to do a swab - in my experience, they just peer at you briefly and then come up with a diagnosis without doing proper testing, and then you spend months or years trying to find out what it actually is.

And incidentally, Alana, it is not normal to experience burning pain for hours after sex, and you seem to think that I should just refrain from having sex and be lucky that it's not worse. No. None of this pain is something we should just smile and put up with. The fact that someone else has worse pain does not invalidate the pain I experience, nor does it make it any better that I've had worse pain in the past.
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Re: Semen allergy? Just when we were doing well, too!

Post  Alana3 on Mon Nov 25, 2013 5:00 pm

What are you talking about? You asked about an allergy I was telling you what I knew. When have I ever told someone to just deal with it? Oh wait I haven't. I never not one time told you to refrain from sex that is not something I would say considering I have sex and went thru surgery to fix myself so I'm not sure where you get that information from. I said if youre allergic you should probably find out and told you what I Knew but never once did I tell you refrain. Saying the friction is bugging you.is legit certain positions hurt me... I don't really understand but ok.

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Re: Semen allergy? Just when we were doing well, too!

Post  Alana3 on Mon Nov 25, 2013 5:05 pm

But Maybe you should go to a doctor... if its yeast or bv you'll probably need something to help having just had a yeast infection I can tell you sex hurt like hell so hopefully its an easy fix for you. Also if it is they have azo that can alleviate the pain and prevent future infections (supposedly). I just found it last night I'm gonna give it a go cant hurt right?

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Re: Semen allergy? Just when we were doing well, too!

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