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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Trying to have a Positive Attitude!

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Trying to have a Positive Attitude!

Post  aajoycex on Thu Nov 21, 2013 5:12 pm

Hello, I have had vulvadynia (unknowingly) for 5-6 years. I have read alot of posts from other people who have suffered or still suffering from it. Its been so interesting to see the simalarities in alot of peoples cases! I have had an almost constant internal burning, numb-like feeling down below since the age of 12. I am recently turned 18. At first, like many I think, I was convinced the pain was a water infection or thrush, when the pain continued and results came up negative, I was put on a bit of a downer! I visited doctor after doctor, all telling me it will calm down in a few days. I listened to the doctors and believed the pain was temporary, even though doctors never gave me an answer. As the pain continued and slowly felt worse and more intense, I had more trips to the doctors- all hope still there!!! I was given loads of advice: wear cotton knickers, avoid fragranced products, dont overly clean down there (as am sure you will agree, it can really make you feel unclean), etc etc. I clung onto the advice and followed it to the T. As I got to around 14 the pain still there, I was sent for vaginal examinations at least 4 times that year. Which all concluded I was healthy. You would think it was a relief but I just wanted to know what was wrong with me! As I started to grow more frustrated with being sent from one dr to the other, with no answers. A year passed and I had tried all creams in the book. I was sent for scans which revealed I had polycystic ovaries, I was reassured this wasnt causing my pain. Doctors then tried me on microgynon the contraceptive pill, and later Femodette. Both made me very ill so I stopped taking them. This was to control my hormones however they did not make a change. I was prescribed Gabapentin, which I was reluctant to try. After a few years, I was put in to have investigative surgery as the pain was intense and effecting my mental health and wellbeing. The results came back that I was healthy. At first I was relieved- thinking of disasters that they might tell me. But then the pain set in and so did my disappointment! Still no answers! Before my op, my gynacolagist muttered around the word 'vulvadynia' and said it could possibly be my condition. I have to be honest and say positivity around this subject isnt my strong point and Ive found that difficult! I have had acupunture, physiotherapy to no avail. my doctor said it is unusual for women my age group to suffer with vulvadynia. I am currently going back on Gabapentin and seeing a specialist in January. I have had enough of this awful condition. My head and my body are fed up! I have booked myself a appointment to try attend cognitive behavioural therapy which helps you manage the way you deal with situations. I was skeptical after turning down physco sexual conselling I was offered by my gynaecologist(seem to think its all in your head?), but I would definitely recommend. Thank you.for reading my story. I would love feedback to my massive rant, a big weight has just been lifted!!!


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Re: Trying to have a Positive Attitude!

Post  mary jane on Thu Nov 21, 2013 7:02 pm

1. systemic yeast?
2. it could be pudendal neuralgia
3. ever had a biopsy taken?
4. does your vulva hurt at all?
5. where is the numbness you talk about?
6. you poor thing, so young! I can relate
7. how bad is the pain on a scale from 1 to 10?
mary jane

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Re: Trying to have a Positive Attitude!

Post  mary jane on Thu Nov 21, 2013 7:03 pm

I know what you mean about positive attitude, I'm in my 20s and was so eager to start dating again after a break up from hell
and now this pain happened.
I have vibrating pain, spasms, stabbing, aching. Hoorah !! sometimes it feel as if I had invasive surgery of my labia
mary jane

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Re: Trying to have a Positive Attitude!

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