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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Trying to have a Positive Attitude!

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Trying to have a Positive Attitude!

Post  aajoycex on Thu Nov 21, 2013 5:12 pm

Hello, I have had vulvadynia (unknowingly) for 5-6 years. I have read alot of posts from other people who have suffered or still suffering from it. Its been so interesting to see the simalarities in alot of peoples cases! I have had an almost constant internal burning, numb-like feeling down below since the age of 12. I am recently turned 18. At first, like many I think, I was convinced the pain was a water infection or thrush, when the pain continued and results came up negative, I was put on a bit of a downer! I visited doctor after doctor, all telling me it will calm down in a few days. I listened to the doctors and believed the pain was temporary, even though doctors never gave me an answer. As the pain continued and slowly felt worse and more intense, I had more trips to the doctors- all hope still there!!! I was given loads of advice: wear cotton knickers, avoid fragranced products, dont overly clean down there (as am sure you will agree, it can really make you feel unclean), etc etc. I clung onto the advice and followed it to the T. As I got to around 14 the pain still there, I was sent for vaginal examinations at least 4 times that year. Which all concluded I was healthy. You would think it was a relief but I just wanted to know what was wrong with me! As I started to grow more frustrated with being sent from one dr to the other, with no answers. A year passed and I had tried all creams in the book. I was sent for scans which revealed I had polycystic ovaries, I was reassured this wasnt causing my pain. Doctors then tried me on microgynon the contraceptive pill, and later Femodette. Both made me very ill so I stopped taking them. This was to control my hormones however they did not make a change. I was prescribed Gabapentin, which I was reluctant to try. After a few years, I was put in to have investigative surgery as the pain was intense and effecting my mental health and wellbeing. The results came back that I was healthy. At first I was relieved- thinking of disasters that they might tell me. But then the pain set in and so did my disappointment! Still no answers! Before my op, my gynacolagist muttered around the word 'vulvadynia' and said it could possibly be my condition. I have to be honest and say positivity around this subject isnt my strong point and Ive found that difficult! I have had acupunture, physiotherapy to no avail. my doctor said it is unusual for women my age group to suffer with vulvadynia. I am currently going back on Gabapentin and seeing a specialist in January. I have had enough of this awful condition. My head and my body are fed up! I have booked myself a appointment to try attend cognitive behavioural therapy which helps you manage the way you deal with situations. I was skeptical after turning down physco sexual conselling I was offered by my gynaecologist(seem to think its all in your head?), but I would definitely recommend. Thank you.for reading my story. I would love feedback to my massive rant, a big weight has just been lifted!!!


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Re: Trying to have a Positive Attitude!

Post  mary jane on Thu Nov 21, 2013 7:02 pm

1. systemic yeast?
2. it could be pudendal neuralgia
3. ever had a biopsy taken?
4. does your vulva hurt at all?
5. where is the numbness you talk about?
6. you poor thing, so young! I can relate
7. how bad is the pain on a scale from 1 to 10?
mary jane

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Re: Trying to have a Positive Attitude!

Post  mary jane on Thu Nov 21, 2013 7:03 pm

I know what you mean about positive attitude, I'm in my 20s and was so eager to start dating again after a break up from hell
and now this pain happened.
I have vibrating pain, spasms, stabbing, aching. Hoorah !! sometimes it feel as if I had invasive surgery of my labia
mary jane

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Re: Trying to have a Positive Attitude!

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