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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Trying to have a Positive Attitude!

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Trying to have a Positive Attitude!

Post  aajoycex on Thu Nov 21, 2013 5:12 pm

Hello, I have had vulvadynia (unknowingly) for 5-6 years. I have read alot of posts from other people who have suffered or still suffering from it. Its been so interesting to see the simalarities in alot of peoples cases! I have had an almost constant internal burning, numb-like feeling down below since the age of 12. I am recently turned 18. At first, like many I think, I was convinced the pain was a water infection or thrush, when the pain continued and results came up negative, I was put on a bit of a downer! I visited doctor after doctor, all telling me it will calm down in a few days. I listened to the doctors and believed the pain was temporary, even though doctors never gave me an answer. As the pain continued and slowly felt worse and more intense, I had more trips to the doctors- all hope still there!!! I was given loads of advice: wear cotton knickers, avoid fragranced products, dont overly clean down there (as am sure you will agree, it can really make you feel unclean), etc etc. I clung onto the advice and followed it to the T. As I got to around 14 the pain still there, I was sent for vaginal examinations at least 4 times that year. Which all concluded I was healthy. You would think it was a relief but I just wanted to know what was wrong with me! As I started to grow more frustrated with being sent from one dr to the other, with no answers. A year passed and I had tried all creams in the book. I was sent for scans which revealed I had polycystic ovaries, I was reassured this wasnt causing my pain. Doctors then tried me on microgynon the contraceptive pill, and later Femodette. Both made me very ill so I stopped taking them. This was to control my hormones however they did not make a change. I was prescribed Gabapentin, which I was reluctant to try. After a few years, I was put in to have investigative surgery as the pain was intense and effecting my mental health and wellbeing. The results came back that I was healthy. At first I was relieved- thinking of disasters that they might tell me. But then the pain set in and so did my disappointment! Still no answers! Before my op, my gynacolagist muttered around the word 'vulvadynia' and said it could possibly be my condition. I have to be honest and say positivity around this subject isnt my strong point and Ive found that difficult! I have had acupunture, physiotherapy to no avail. my doctor said it is unusual for women my age group to suffer with vulvadynia. I am currently going back on Gabapentin and seeing a specialist in January. I have had enough of this awful condition. My head and my body are fed up! I have booked myself a appointment to try attend cognitive behavioural therapy which helps you manage the way you deal with situations. I was skeptical after turning down physco sexual conselling I was offered by my gynaecologist(seem to think its all in your head?), but I would definitely recommend. Thank you.for reading my story. I would love feedback to my massive rant, a big weight has just been lifted!!!


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Re: Trying to have a Positive Attitude!

Post  mary jane on Thu Nov 21, 2013 7:02 pm

1. systemic yeast?
2. it could be pudendal neuralgia
3. ever had a biopsy taken?
4. does your vulva hurt at all?
5. where is the numbness you talk about?
6. you poor thing, so young! I can relate
7. how bad is the pain on a scale from 1 to 10?
mary jane

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Re: Trying to have a Positive Attitude!

Post  mary jane on Thu Nov 21, 2013 7:03 pm

I know what you mean about positive attitude, I'm in my 20s and was so eager to start dating again after a break up from hell
and now this pain happened.
I have vibrating pain, spasms, stabbing, aching. Hoorah !! sometimes it feel as if I had invasive surgery of my labia
mary jane

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Re: Trying to have a Positive Attitude!

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