Log in

I forgot my password

Latest topics
Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Vulvodynia in Ireland

View previous topic View next topic Go down

Vulvodynia in Ireland

Post  rubina on Mon Oct 18, 2010 12:07 pm

If anyone had told me the negative impact my vagina/vulva would have on my life I wouldnt have believed them!

I live in Dublin and after 5 years of head wrecking symptoms I might be starting to get some answers. To cut a very long story short I thought I was suffering from recurrent thrush but recently went to see a Gynae who completetly threw it out of the window!She suspects nerve damage and I am now on Neurontin.Its early days so I am keeping my fingers crossed it will work.

I sympathise with all of you who are experiencing something very similar. Remain hopeful and believe that the day will come when you go to bed at night and realise that you didnt think about your vagina once!!!!!

Rubina

rubina

Posts : 6
Join date : 2010-06-16

View user profile

Back to top Go down

Re: Vulvodynia in Ireland

Post  min77 on Wed Oct 20, 2010 1:20 pm

Hi Rubina

I'm also new here and busy soaking up all of the advise and experience everyone is posting here. I think one of the hardest things is to find a practitioner who is experienced and caring. I've just read that you live in Dublin and that reminded me that a lovely lady from the Pelvic Partnership recommended a physio in Dublin to me a while ago. I've kept her contact details, but having to fly somewhere to get treated seems a little excessive at the moment. But it might be useful for you.

Anyway, the physio is called Maeve Whelan, and she treats a variety of pelvic floor problems by manually manipulating the pelvic floor and palpating the pelvic floor muscles internaly through the vagina. Doesn't sound very pleasant, but she seems to have really helped that lady and also some of the other committee members from the pelvic partnership.

Here are her details: www.milltownphysiotherapy.com and www.pelvicphysiotherapy.com.

Hope this might help you.


min77

Posts : 3
Join date : 2010-08-31

View user profile

Back to top Go down

Re: Vulvodynia in Ireland

Post  rubina on Thu Oct 21, 2010 7:01 pm

Hi min77.
Thanks so mush for passing on that info. Can you believe my psychotherapist actually gave me the same name!!!!! That physiotherapist must be really good! Am waiting to see how I get on with the medication but I certainly am not ruling anything out as a possible cure.
Take care
Rubina

rubina

Posts : 6
Join date : 2010-06-16

View user profile

Back to top Go down

Re: Vulvodynia in Ireland

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum