Vulvodynia Support
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» Hope to all my suffering ladies
Looking for some hope... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Looking for some hope... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Looking for some hope... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Looking for some hope... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Looking for some hope... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Looking for some hope... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Looking for some hope... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Looking for some hope... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Looking for some hope... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Looking for some hope...

4 posters

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Post  uniqueblacksheep Thu Nov 21, 2013 7:18 pm

Hello, I am a 38 year old woman. I have suffered from vaginal burning for years and never really knew what it was. My doctor believes it is vulvodynia mainly caused by acidic urine. I am starting a treatment of a couple different things, but really it hasn't made a huge difference lately and the last few days have been just horrible. The horrible thing is it was very hard on my sexual relationship with my husband who I had been with 20 years. He said he understood but 4 months ago walked out on me for a 28 year old whom he was intimate with immediately. I feel so hopeless, thinking will any man ever want to have a relationship with someone with this condition. If someone I was with before it even started left, who is going to want to start up anything with me. I would greatly appreciate any advice anyone could give with a little hope for the future.

uniqueblacksheep

Posts : 4
Join date : 2013-11-21

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Post  mary jane Fri Nov 22, 2013 9:57 am

to hell with that bastard!
I actually made a test on a dating site and mentioned I have a medical condition which prevents me from having intercourse.
Surprisingly, there were still a lot of guys messaging me and asking me out/ etc.
not that I ever went on one of those dates, my vulvodynia is very bad and can walk for a limited amount of time, etc

Don't forget there are a lot of men out there suffering from impotence, ED, or have other health problems themselves.
So don't think there is anything wrong with you, and don't give up on men just yet! you're still young!

good luck
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  Mark Sun Nov 24, 2013 5:05 pm

@ Unique, I'm very sorry that your husband did what he did. Clearly, a man who thinks with his d**k, so you're better off without him.

My wife has v, she told me when I first asked her out and I came onto this forum to ask what the implications might be for dating her. Thankfully it didn't put me off, and my reward was falling in love with the most amazing woman, someone that some very stupid men had foolishly missed out on the opportunity to be with because they were put off by her condition. You should view your situation the same way - your ex wasn't good enough for you, your v put him off, but there will be other men more deserving of you down the line.

Mark

Posts : 53
Join date : 2011-03-28

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Post  uniqueblacksheep Mon Nov 25, 2013 4:16 pm

I'm so happy to hear from you Mark! I saw your posts when I first came on the forum and they were so heartwarming! You actually gave me some hope. I pray I do find someone understandable, I am a very affectionate loving person and I do miss having someone in my life and it's only been 6 months. I guess the best thing I can pull from this situation is my next partner will know upfront, so they can take me or leave me and I pray I find someone as understanding as you. I wish you all the best and keep us updated! I think many of us were touched by what a caring and understandable man you are!

uniqueblacksheep

Posts : 4
Join date : 2013-11-21

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Post  Alana3 Mon Nov 25, 2013 5:25 pm

I felt the same way but than met my boyfriend who has been there and doesn't care. There are other ways of being intimate. Fortunately I had surgery that helped me significantly. I have heard of acidic urine causing problems and heard of a drug that neutralizes it but I'm not sure what it is called. Your ex is an ass and there are plenty of men like Mark and my boyfriend who'd love to date you. But don't consider sex out of the question something will come along for you I promise Smile

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Mark Tue Nov 26, 2013 4:24 pm

uniqueblacksheep wrote:I guess the best thing I can pull from this situation is my next partner will know upfront, so they can take me or leave me and I pray I find someone as understanding as you.
I think this is the most important reason to believe you'll soon find someone new. Yes, there probably are some men whose idea of sex is stick it in and pump away, and if someone like that marries a woman who's happy with that and she then gets v, he's unlikely to stay. But for most of us that's not the most enjoyable part of sex, in fact we can take it or leave it.

That said, I know there are some women with v whose pain and sensitivity affects the clitoris, and I would imagine that's harder for a man to live with. But not impossible. I'm sure there are men who'd be without that part of sex too if it was the only way they could be with someone they love.

Mark

Posts : 53
Join date : 2011-03-28

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