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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Looking for some hope...

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Looking for some hope...

Post  uniqueblacksheep on Thu Nov 21, 2013 7:18 pm

Hello, I am a 38 year old woman. I have suffered from vaginal burning for years and never really knew what it was. My doctor believes it is vulvodynia mainly caused by acidic urine. I am starting a treatment of a couple different things, but really it hasn't made a huge difference lately and the last few days have been just horrible. The horrible thing is it was very hard on my sexual relationship with my husband who I had been with 20 years. He said he understood but 4 months ago walked out on me for a 28 year old whom he was intimate with immediately. I feel so hopeless, thinking will any man ever want to have a relationship with someone with this condition. If someone I was with before it even started left, who is going to want to start up anything with me. I would greatly appreciate any advice anyone could give with a little hope for the future.

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Re: Looking for some hope...

Post  mary jane on Fri Nov 22, 2013 9:57 am

to hell with that bastard!
I actually made a test on a dating site and mentioned I have a medical condition which prevents me from having intercourse.
Surprisingly, there were still a lot of guys messaging me and asking me out/ etc.
not that I ever went on one of those dates, my vulvodynia is very bad and can walk for a limited amount of time, etc

Don't forget there are a lot of men out there suffering from impotence, ED, or have other health problems themselves.
So don't think there is anything wrong with you, and don't give up on men just yet! you're still young!

good luck
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Re: Looking for some hope...

Post  Mark on Sun Nov 24, 2013 5:05 pm

@ Unique, I'm very sorry that your husband did what he did. Clearly, a man who thinks with his d**k, so you're better off without him.

My wife has v, she told me when I first asked her out and I came onto this forum to ask what the implications might be for dating her. Thankfully it didn't put me off, and my reward was falling in love with the most amazing woman, someone that some very stupid men had foolishly missed out on the opportunity to be with because they were put off by her condition. You should view your situation the same way - your ex wasn't good enough for you, your v put him off, but there will be other men more deserving of you down the line.

Mark

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Re: Looking for some hope...

Post  uniqueblacksheep on Mon Nov 25, 2013 4:16 pm

I'm so happy to hear from you Mark! I saw your posts when I first came on the forum and they were so heartwarming! You actually gave me some hope. I pray I do find someone understandable, I am a very affectionate loving person and I do miss having someone in my life and it's only been 6 months. I guess the best thing I can pull from this situation is my next partner will know upfront, so they can take me or leave me and I pray I find someone as understanding as you. I wish you all the best and keep us updated! I think many of us were touched by what a caring and understandable man you are!

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Re: Looking for some hope...

Post  Alana3 on Mon Nov 25, 2013 5:25 pm

I felt the same way but than met my boyfriend who has been there and doesn't care. There are other ways of being intimate. Fortunately I had surgery that helped me significantly. I have heard of acidic urine causing problems and heard of a drug that neutralizes it but I'm not sure what it is called. Your ex is an ass and there are plenty of men like Mark and my boyfriend who'd love to date you. But don't consider sex out of the question something will come along for you I promise Smile

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Re: Looking for some hope...

Post  Mark on Tue Nov 26, 2013 4:24 pm

uniqueblacksheep wrote:I guess the best thing I can pull from this situation is my next partner will know upfront, so they can take me or leave me and I pray I find someone as understanding as you.
I think this is the most important reason to believe you'll soon find someone new. Yes, there probably are some men whose idea of sex is stick it in and pump away, and if someone like that marries a woman who's happy with that and she then gets v, he's unlikely to stay. But for most of us that's not the most enjoyable part of sex, in fact we can take it or leave it.

That said, I know there are some women with v whose pain and sensitivity affects the clitoris, and I would imagine that's harder for a man to live with. But not impossible. I'm sure there are men who'd be without that part of sex too if it was the only way they could be with someone they love.

Mark

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Re: Looking for some hope...

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