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» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Looking for some hope...

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Looking for some hope...

Post  uniqueblacksheep on Thu Nov 21, 2013 7:18 pm

Hello, I am a 38 year old woman. I have suffered from vaginal burning for years and never really knew what it was. My doctor believes it is vulvodynia mainly caused by acidic urine. I am starting a treatment of a couple different things, but really it hasn't made a huge difference lately and the last few days have been just horrible. The horrible thing is it was very hard on my sexual relationship with my husband who I had been with 20 years. He said he understood but 4 months ago walked out on me for a 28 year old whom he was intimate with immediately. I feel so hopeless, thinking will any man ever want to have a relationship with someone with this condition. If someone I was with before it even started left, who is going to want to start up anything with me. I would greatly appreciate any advice anyone could give with a little hope for the future.

uniqueblacksheep

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Re: Looking for some hope...

Post  mary jane on Fri Nov 22, 2013 9:57 am

to hell with that bastard!
I actually made a test on a dating site and mentioned I have a medical condition which prevents me from having intercourse.
Surprisingly, there were still a lot of guys messaging me and asking me out/ etc.
not that I ever went on one of those dates, my vulvodynia is very bad and can walk for a limited amount of time, etc

Don't forget there are a lot of men out there suffering from impotence, ED, or have other health problems themselves.
So don't think there is anything wrong with you, and don't give up on men just yet! you're still young!

good luck
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mary jane

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Re: Looking for some hope...

Post  Mark on Sun Nov 24, 2013 5:05 pm

@ Unique, I'm very sorry that your husband did what he did. Clearly, a man who thinks with his d**k, so you're better off without him.

My wife has v, she told me when I first asked her out and I came onto this forum to ask what the implications might be for dating her. Thankfully it didn't put me off, and my reward was falling in love with the most amazing woman, someone that some very stupid men had foolishly missed out on the opportunity to be with because they were put off by her condition. You should view your situation the same way - your ex wasn't good enough for you, your v put him off, but there will be other men more deserving of you down the line.

Mark

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Re: Looking for some hope...

Post  uniqueblacksheep on Mon Nov 25, 2013 4:16 pm

I'm so happy to hear from you Mark! I saw your posts when I first came on the forum and they were so heartwarming! You actually gave me some hope. I pray I do find someone understandable, I am a very affectionate loving person and I do miss having someone in my life and it's only been 6 months. I guess the best thing I can pull from this situation is my next partner will know upfront, so they can take me or leave me and I pray I find someone as understanding as you. I wish you all the best and keep us updated! I think many of us were touched by what a caring and understandable man you are!

uniqueblacksheep

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Re: Looking for some hope...

Post  Alana3 on Mon Nov 25, 2013 5:25 pm

I felt the same way but than met my boyfriend who has been there and doesn't care. There are other ways of being intimate. Fortunately I had surgery that helped me significantly. I have heard of acidic urine causing problems and heard of a drug that neutralizes it but I'm not sure what it is called. Your ex is an ass and there are plenty of men like Mark and my boyfriend who'd love to date you. But don't consider sex out of the question something will come along for you I promise Smile

Alana3

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Re: Looking for some hope...

Post  Mark on Tue Nov 26, 2013 4:24 pm

uniqueblacksheep wrote:I guess the best thing I can pull from this situation is my next partner will know upfront, so they can take me or leave me and I pray I find someone as understanding as you.
I think this is the most important reason to believe you'll soon find someone new. Yes, there probably are some men whose idea of sex is stick it in and pump away, and if someone like that marries a woman who's happy with that and she then gets v, he's unlikely to stay. But for most of us that's not the most enjoyable part of sex, in fact we can take it or leave it.

That said, I know there are some women with v whose pain and sensitivity affects the clitoris, and I would imagine that's harder for a man to live with. But not impossible. I'm sure there are men who'd be without that part of sex too if it was the only way they could be with someone they love.

Mark

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Re: Looking for some hope...

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