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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Why doesn't it go away?
4 posters
Page 1 of 1
Why doesn't it go away?
tinkerbelle2 Wed Nov 20, 2013 10:24 am
Apologies if I am taking over the boards, on the latest topic thing it seems to be all me lol! I'm off work at the moment so I have a lot of time on my hands. What I fail to understand is, why doesn't it go away on its own?
Okay so there are multiple reasons why it may start, thrush, cystitis, uti, a predisposition to irritation, neurological and physiological issues, or just randomly...no one knows or they all have different ideas. But why doesn't the body sort itself out if there really is no infection or nothing going on. And if there is, why does no one test for these things. This has already ruled 4 years of my life, others even longer and I'm sick of having a headache constantly with thoughts and worries about not being well
Okay so there are multiple reasons why it may start, thrush, cystitis, uti, a predisposition to irritation, neurological and physiological issues, or just randomly...no one knows or they all have different ideas. But why doesn't the body sort itself out if there really is no infection or nothing going on. And if there is, why does no one test for these things. This has already ruled 4 years of my life, others even longer and I'm sick of having a headache constantly with thoughts and worries about not being well
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Why doesn't it go away?
Alana3 Wed Nov 20, 2013 11:25 am
Because it throws everything out of whack and god knows what docs unknowingly did to us be patient
Alana3- Posts : 1093
Join date : 2012-09-25
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Why doesn't it go away?
Alana3 Wed Nov 20, 2013 11:49 am
Haha dont dwell on it it makes it worse be glad youre active in your treatment 
I have endometriosis there is absolutely no cure for that and no spontaneous remission yuck... and to top it off yet yeast infections that are like the devil himself. But seriously something will come along and help you! Patience is the biggest virtue in this although not too fun 
I have endometriosis there is absolutely no cure for that and no spontaneous remission yuck... and to top it off yet yeast infections that are like the devil himself. But seriously something will come along and help you! Patience is the biggest virtue in this although not too fun
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Why doesn't it go away?
zarli Sat Nov 23, 2013 5:04 am
Alana I suffered from Endo from age 16 to 19 I am now 42 so I know it was along time ago but I had laser surgery and it cured my endo you have probably tried this but thought it was worth a mention:D
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Re: Why doesn't it go away?
EviE°Bee Sat Nov 23, 2013 11:14 am
Regardless ladies, our bodies should be able to correct itself but to me its too much or too little of something.
It could be from some form of neglect from a physician (not doing whatever tests necessary to figure out the problem or listening to what us ladies are telling them) and we sit with infections too long, could be hormone related, psychosomatic, possible nerve problem, a form of fibromyalgia, etc.
Still a very good question. ::Scratching head in thought:: Too many variables.
It could be from some form of neglect from a physician (not doing whatever tests necessary to figure out the problem or listening to what us ladies are telling them) and we sit with infections too long, could be hormone related, psychosomatic, possible nerve problem, a form of fibromyalgia, etc.
Still a very good question. ::Scratching head in thought:: Too many variables.
EviE°Bee- Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali
Re: Why doesn't it go away?
tinkerbelle2 Mon Nov 25, 2013 3:46 pm
Evie I think that too! IMO either a vicious cycle is set up and something needs to break it OR the pain nerves in that area area are malfunctioning and remember pain even when nothing is wrong, or an infection or irritation even when cleared up just leaves the whole area very hypersensitive. Those are my theories lol
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
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» Please tell me this can get better
» By no means cured, but doing much better!
» How I cured my Vulvodynia!
» 7 months since the diagnosis
» Gabapentin Gel. or other topical creams
» IMPORTANT FOR UK SUFFERERS
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» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!