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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

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Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Steroid ointments/creams

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Steroid ointments/creams

Post  Elc88 on Sun Nov 24, 2013 7:49 pm

I am currently battling away with steroid ointment and Dermol 500 wash to see if that will help with things, but I'm getting increasingly concerned that my genitals feel swollen after I apply them, and I don't feel like they should be.

In particular, I've notices my lady bits feel a lot more pronounced and solid when I apply the Dermol 500, which is a type of antiseptic skin wash for eczema and dermatitis, meant to form a protective barrier to stop whatever is harming you from getting in.

I really don't like the idea of things being constantly swollen in that area, to me it seems like a bad idea, and I feel like it's going to somehow lead me to other skin problems in later life. Anyone tried this out before?

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edit

Post  Elc88 on Sun Nov 24, 2013 7:50 pm

Should add, it means I've not been applying the steroid ointment every day, to give the swelling a chance to go down, which means my pain isn't getting any better either! If it's OK, I'll be more inclined to apply it.

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Re: Steroid ointments/creams

Post  Kathy100 on Mon Nov 25, 2013 2:39 pm

My dr gave me steroid cream to try and after 3 days it made my bits very painful and swollen! Dr said it was a rare allergic reaction to the cream - so I stopped taking it. I haven't tried Dermol 500 though.

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Re: Steroid ointments/creams

Post  Elc88 on Tue Nov 26, 2013 9:31 pm

Do you remember what cream it was?

I was given Betnovate cream, which made me very swollen and painful. I was told it was an allergic reaction, and they allergy tested me for it, but I wasn't allergic to any of the ingredients. I had a spot of dermatitis on my leg, and put a bit on. It helped the dermatitis, but all the normal skin around it went really dry, cracked, painful and blistery. The problem is it's really hard to only apply it to the affected area on that part of the body.

I am now on Eumovate ointment, coupled with Dermol 500. Eumovate has a mild impact, but not as much as betnovate.


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Re: Steroid ointments/creams

Post  Kathy100 on Wed Nov 27, 2013 10:59 am

It was a hydrochoritizone (not sure about spelling) cream - in small tube low strength - I think 1%. I applied on the vulva only a very small amount.

Weirdly enough I've just had a bout of dermatitis on my sides / stomach & the pharmacist gave me the same cream to use & it hasn't irritated me there.

Is the Eumovate helping you?

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Re: Steroid ointments/creams

Post  Elc88 on Sun Dec 08, 2013 8:11 pm

Kathy100 wrote:It was a hydrochoritizone (not sure about spelling) cream - in small tube low strength - I think 1%.  I applied on the vulva only a very small amount.

Weirdly enough I've just had a bout of dermatitis on my sides / stomach & the pharmacist gave me the same cream to use & it hasn't irritated me there.

Is the Eumovate helping you?
Sorry for not responding sooner - I've been very busy, and not had time to log in for a while.

I'm not sure if the eumovate is helping me just now, it's very mild, and apparently will take months to make a difference. I've not managed to get into a good habit of applying it every day, so I haven't notices much of a difference yet.

Elc88

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Cream that I was prescribed.....

Post  Intrestn1 on Wed Dec 11, 2013 1:48 am

Hello. I have the intense itching and then once I begin to rub or scratch, I get the intense burning...... It almost drives me to tears.... I was prescribed a cream for it.... It helps but I wish it would help cure it and not just pit it at bay.... When I have a flare up that is not that bad or sense one coming I apply this cream BUT if the flare up is very very bad, I have to go and wash my "tutsie" to settle it down and then put some cream on it..... It usually helps but......its just NOT A PERMANENT FIX WHICH DRIVES ME CRAZY!! The cream that my gyno at the time prescribed me is DESOXIMETASONE Cream USP, 0.25%... I have never asked him to up the dosage so it may help more if I did.... (gotta find the time to get back to the gyno). I do not use it intravaginally, just on the inside and outside genitalia..... (My panty line along with the crown area of my vagina (the part where the hair is at the top) is the worse.... ) Anyway, that cream helps until the flare up is soo bad until I have to just hold my breath while I bite my lip as it slowly passes......

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Re: Steroid ointments/creams

Post  EviE°Bee on Thu Dec 12, 2013 10:26 am

I was on the same steroid ointment Kathy.

8 freakin months. The first week it was ehh, a lil better. After that, i felt a little swollen, irritated, it just didn't feel right. The dr swore I had dermatitis on my vag, turns out it was a yeast infection.

Steriods are bad bad for the vag, in my opinion. Too many possibilities of what the problem is and steroids is a strong drug.

Good luck and research.

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Re: Steroid ointments/creams

Post  tinkerbelle2 on Thu Dec 12, 2013 10:39 am

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Re: Steroid ointments/creams

Post  EviE°Bee on Fri Dec 13, 2013 3:33 pm

Negative.

I hear Boric Acid stings like a mofo and messes up ur skin.

I was thinking about our normal flora. Its supposed to guard a against other bacterias, our vag guard, if you will. Either we lack normal flora or just don't have any. Different bacteria then thrive and are hard to eliminate.


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Re: Steroid ointments/creams

Post  Kathy100 on Fri Dec 13, 2013 4:00 pm

I think it depends on what's causing your V too. If the cause is muscular like mine - I don't think that creams can help much.

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Re: Steroid ointments/creams

Post  Elc88 on Mon Dec 16, 2013 10:27 pm

Well I definitely have dermatitis, but I don't know if that's the only thing wrong down there!

I've been reading about some alternatives, and they recommend natural coconut or sweet almond oil, Vitamins A, D & E and fish oils, possibly aloe vera extract as well. I don't like the idea of steroids down there because I feel like I'm treating one problem by creating another. But I would like something with results a little more noticeable!

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Re: Steroid ointments/creams

Post  tinkerbelle2 on Tue Dec 17, 2013 9:46 am

Maybe not boric acid then! Not sure if I want to try it
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Re: Steroid ointments/creams

Post  Leslieg on Tue Dec 17, 2013 2:55 pm

Hello!   Boric acid suppositories are usually used for yeast infection.  I had this prescribed for me way back.....5 years ago when all of this started. It sounds far more harsh than it is.

Anyway....I've definitely developed some kind of dermatitis as well.  I had allergy testing that revealed sensitivity to an ingredient in shampoo, hand soaps, and dove sensitive skin soap.  Now I realize this ingredient is pretty much in everything. My dermatologist recommended vanicream soap and shampoo.  The ingredients list for these products seem to contain a lot of sulfates.  I wasn't feeling much better.  Then one day, I had a really bad flare and I couldn't understand why.  Then I remembered adding fabric softener to the laundry because my husband made a comment that the clothes weren't smelling clean. (I had been using only free and clear detergents with extra rinsing.....no fragrance.)  That was the only change I could attribute the increased flare to.  I started to pay attention to the skin on the rest of my body as well.   My arms and belly frequently have red blotches after  shower and tiny hives on my belly and I think by back too but it's hard to see.  I seem itchy a lot.......I thought this was dry skin especially in the winter.  I am fare skinned.  I feel itchy when I wear certain materials.  I guess I just thought all this was normal and it seemed to subside quickly and not bother me too much. I just put moisturizer on to soothe. I guess my vulva had enough.....

I read about a woman who changed to organic and natural everything and felt better.  Her only symptom was provoked pain. She recommended some products that I bought..... Dr Bronner's bar soap and Nellie's laundry soda. I plan to buy some new hand soap too (using dawn dish soap now).......I carry a tiny bottle in my purse and at work.  

Fingers and toes and everything else crossed.........I am feeling better not perfect yet but better for sure.  I get the sting and pinch every now and again but take a deep breath.  I still use lidocaine intermittently.  I have not had a lot of sex recently.......I am scared to tear.  I sometimes tear at 6 o'cock and I fear scar tissue. Hopefully that will be ok too. I struggle to release the fear of pain and the aftermath.  But I bought "slippery stuff" lube that my dr recommended.   Apparently its supposed to be very slippery.  I'm thinking of applying vitamin E to the 6 o'clock spot to help with the scar tissue and hopefully strengthen skin.

To ELC88, I have used pure, fragrance and dye free aloe for a time a while back.  I have always tried to limit the steroid ointments I've been prescribed and lidocaine over the years. They sometimes seemed to make matters worse for me. The aloe seemed to help a lot for a few months but then I began to get what looked like hives on my vulva and a sore near my clitoris.  Sooooooooo itchy. I stopped using the aloe and that reaction went awary. At the time, I thought it was some other disease process (lichen issues) progressing.  I was shocked the aloe took so long to give me a reaction. No regrets, however, because this hew issue prompted a trip to my clinic and the new dr I saw referred me to see the vulvar dermatologist who then recommended allergy testing and who told me I did not have lichen (I was convinced I did) and so began my process of changing products and looking at this with a whole new perspective.

I did not think dermatitis or allergies were an issue at all because 5 years ago I did the recommended change of products to all sensitive skin versions and fragrance free versions and nothing changed.  Ironically enough I am sensitive to the ingredient that is supposed to be mild and is in most products for sensitive and baby skin.  If I continue to improve, I'll write all of the things I've tried in hopes to help someone.  

I am realizing that my skin is sensitive to far more than the one chemical they found in the allergy testing.  Example, I switched to Aveeno oatmeal bar soap.....very few ingredients and had a vulvar flare, bum itching and body skin itching......worse than the soap with the offending chemical.  Go figure.......
Dr. Bronner's soap is my 4th or 5th soap to try.

Hopefully food for thought ladies.  By the way, I really like the Nellie's laundry soda (fingers crossed again).....its only been about a week.  It's pretty cheap (amazon). It smells really clean and you only need a small scoop for a large load so it seems it will last awhile.  
Will see.....  

Best wishes ladies....... xo


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Re: Steroid ointments/creams

Post  Alana3 on Tue Dec 17, 2013 6:44 pm

I didn't read everything just where you're feeling better and I just wanted to say I'm happy for you, hopefully this is a good track for you and you will continue to feel good! Keep us posted Smile

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Re: Steroid ointments/creams

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