Log in

I forgot my password

Latest topics
Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Steroid ointments/creams

View previous topic View next topic Go down

Steroid ointments/creams

Post  Elc88 on Sun Nov 24, 2013 7:49 pm

I am currently battling away with steroid ointment and Dermol 500 wash to see if that will help with things, but I'm getting increasingly concerned that my genitals feel swollen after I apply them, and I don't feel like they should be.

In particular, I've notices my lady bits feel a lot more pronounced and solid when I apply the Dermol 500, which is a type of antiseptic skin wash for eczema and dermatitis, meant to form a protective barrier to stop whatever is harming you from getting in.

I really don't like the idea of things being constantly swollen in that area, to me it seems like a bad idea, and I feel like it's going to somehow lead me to other skin problems in later life. Anyone tried this out before?

Elc88

Posts : 55
Join date : 2013-07-20

View user profile

Back to top Go down

edit

Post  Elc88 on Sun Nov 24, 2013 7:50 pm

Should add, it means I've not been applying the steroid ointment every day, to give the swelling a chance to go down, which means my pain isn't getting any better either! If it's OK, I'll be more inclined to apply it.

Elc88

Posts : 55
Join date : 2013-07-20

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Kathy100 on Mon Nov 25, 2013 2:39 pm

My dr gave me steroid cream to try and after 3 days it made my bits very painful and swollen! Dr said it was a rare allergic reaction to the cream - so I stopped taking it. I haven't tried Dermol 500 though.

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Elc88 on Tue Nov 26, 2013 9:31 pm

Do you remember what cream it was?

I was given Betnovate cream, which made me very swollen and painful. I was told it was an allergic reaction, and they allergy tested me for it, but I wasn't allergic to any of the ingredients. I had a spot of dermatitis on my leg, and put a bit on. It helped the dermatitis, but all the normal skin around it went really dry, cracked, painful and blistery. The problem is it's really hard to only apply it to the affected area on that part of the body.

I am now on Eumovate ointment, coupled with Dermol 500. Eumovate has a mild impact, but not as much as betnovate.


Elc88

Posts : 55
Join date : 2013-07-20

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Kathy100 on Wed Nov 27, 2013 10:59 am

It was a hydrochoritizone (not sure about spelling) cream - in small tube low strength - I think 1%. I applied on the vulva only a very small amount.

Weirdly enough I've just had a bout of dermatitis on my sides / stomach & the pharmacist gave me the same cream to use & it hasn't irritated me there.

Is the Eumovate helping you?

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Elc88 on Sun Dec 08, 2013 8:11 pm

Kathy100 wrote:It was a hydrochoritizone (not sure about spelling) cream - in small tube low strength - I think 1%.  I applied on the vulva only a very small amount.

Weirdly enough I've just had a bout of dermatitis on my sides / stomach & the pharmacist gave me the same cream to use & it hasn't irritated me there.

Is the Eumovate helping you?
Sorry for not responding sooner - I've been very busy, and not had time to log in for a while.

I'm not sure if the eumovate is helping me just now, it's very mild, and apparently will take months to make a difference. I've not managed to get into a good habit of applying it every day, so I haven't notices much of a difference yet.

Elc88

Posts : 55
Join date : 2013-07-20

View user profile

Back to top Go down

Cream that I was prescribed.....

Post  Intrestn1 on Wed Dec 11, 2013 1:48 am

Hello. I have the intense itching and then once I begin to rub or scratch, I get the intense burning...... It almost drives me to tears.... I was prescribed a cream for it.... It helps but I wish it would help cure it and not just pit it at bay.... When I have a flare up that is not that bad or sense one coming I apply this cream BUT if the flare up is very very bad, I have to go and wash my "tutsie" to settle it down and then put some cream on it..... It usually helps but......its just NOT A PERMANENT FIX WHICH DRIVES ME CRAZY!! The cream that my gyno at the time prescribed me is DESOXIMETASONE Cream USP, 0.25%... I have never asked him to up the dosage so it may help more if I did.... (gotta find the time to get back to the gyno). I do not use it intravaginally, just on the inside and outside genitalia..... (My panty line along with the crown area of my vagina (the part where the hair is at the top) is the worse.... ) Anyway, that cream helps until the flare up is soo bad until I have to just hold my breath while I bite my lip as it slowly passes......

Intrestn1

Posts : 3
Join date : 2013-12-11

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  EviE°Bee on Thu Dec 12, 2013 10:26 am

I was on the same steroid ointment Kathy.

8 freakin months. The first week it was ehh, a lil better. After that, i felt a little swollen, irritated, it just didn't feel right. The dr swore I had dermatitis on my vag, turns out it was a yeast infection.

Steriods are bad bad for the vag, in my opinion. Too many possibilities of what the problem is and steroids is a strong drug.

Good luck and research.

EvieBee

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 33
Location : Southern Cali

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  tinkerbelle2 on Thu Dec 12, 2013 10:39 am

Have any of you girls tried boric acid suppositories ?
http://www.youtube.com/watch%3Fv%3DFdvnEmUzAbE&cd=4&ved=0CD4QtwIwAw&usg=AFQjCNGaQqaIgX6ycj4hMt_a6eaFQg-UwA
avatar
tinkerbelle2

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  EviE°Bee on Fri Dec 13, 2013 3:33 pm

Negative.

I hear Boric Acid stings like a mofo and messes up ur skin.

I was thinking about our normal flora. Its supposed to guard a against other bacterias, our vag guard, if you will. Either we lack normal flora or just don't have any. Different bacteria then thrive and are hard to eliminate.


EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 33
Location : Southern Cali

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Kathy100 on Fri Dec 13, 2013 4:00 pm

I think it depends on what's causing your V too. If the cause is muscular like mine - I don't think that creams can help much.

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Elc88 on Mon Dec 16, 2013 10:27 pm

Well I definitely have dermatitis, but I don't know if that's the only thing wrong down there!

I've been reading about some alternatives, and they recommend natural coconut or sweet almond oil, Vitamins A, D & E and fish oils, possibly aloe vera extract as well. I don't like the idea of steroids down there because I feel like I'm treating one problem by creating another. But I would like something with results a little more noticeable!

Elc88

Posts : 55
Join date : 2013-07-20

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  tinkerbelle2 on Tue Dec 17, 2013 9:46 am

Maybe not boric acid then! Not sure if I want to try it
avatar
tinkerbelle2

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Leslieg on Tue Dec 17, 2013 2:55 pm

Hello!   Boric acid suppositories are usually used for yeast infection.  I had this prescribed for me way back.....5 years ago when all of this started. It sounds far more harsh than it is.

Anyway....I've definitely developed some kind of dermatitis as well.  I had allergy testing that revealed sensitivity to an ingredient in shampoo, hand soaps, and dove sensitive skin soap.  Now I realize this ingredient is pretty much in everything. My dermatologist recommended vanicream soap and shampoo.  The ingredients list for these products seem to contain a lot of sulfates.  I wasn't feeling much better.  Then one day, I had a really bad flare and I couldn't understand why.  Then I remembered adding fabric softener to the laundry because my husband made a comment that the clothes weren't smelling clean. (I had been using only free and clear detergents with extra rinsing.....no fragrance.)  That was the only change I could attribute the increased flare to.  I started to pay attention to the skin on the rest of my body as well.   My arms and belly frequently have red blotches after  shower and tiny hives on my belly and I think by back too but it's hard to see.  I seem itchy a lot.......I thought this was dry skin especially in the winter.  I am fare skinned.  I feel itchy when I wear certain materials.  I guess I just thought all this was normal and it seemed to subside quickly and not bother me too much. I just put moisturizer on to soothe. I guess my vulva had enough.....

I read about a woman who changed to organic and natural everything and felt better.  Her only symptom was provoked pain. She recommended some products that I bought..... Dr Bronner's bar soap and Nellie's laundry soda. I plan to buy some new hand soap too (using dawn dish soap now).......I carry a tiny bottle in my purse and at work.  

Fingers and toes and everything else crossed.........I am feeling better not perfect yet but better for sure.  I get the sting and pinch every now and again but take a deep breath.  I still use lidocaine intermittently.  I have not had a lot of sex recently.......I am scared to tear.  I sometimes tear at 6 o'cock and I fear scar tissue. Hopefully that will be ok too. I struggle to release the fear of pain and the aftermath.  But I bought "slippery stuff" lube that my dr recommended.   Apparently its supposed to be very slippery.  I'm thinking of applying vitamin E to the 6 o'clock spot to help with the scar tissue and hopefully strengthen skin.

To ELC88, I have used pure, fragrance and dye free aloe for a time a while back.  I have always tried to limit the steroid ointments I've been prescribed and lidocaine over the years. They sometimes seemed to make matters worse for me. The aloe seemed to help a lot for a few months but then I began to get what looked like hives on my vulva and a sore near my clitoris.  Sooooooooo itchy. I stopped using the aloe and that reaction went awary. At the time, I thought it was some other disease process (lichen issues) progressing.  I was shocked the aloe took so long to give me a reaction. No regrets, however, because this hew issue prompted a trip to my clinic and the new dr I saw referred me to see the vulvar dermatologist who then recommended allergy testing and who told me I did not have lichen (I was convinced I did) and so began my process of changing products and looking at this with a whole new perspective.

I did not think dermatitis or allergies were an issue at all because 5 years ago I did the recommended change of products to all sensitive skin versions and fragrance free versions and nothing changed.  Ironically enough I am sensitive to the ingredient that is supposed to be mild and is in most products for sensitive and baby skin.  If I continue to improve, I'll write all of the things I've tried in hopes to help someone.  

I am realizing that my skin is sensitive to far more than the one chemical they found in the allergy testing.  Example, I switched to Aveeno oatmeal bar soap.....very few ingredients and had a vulvar flare, bum itching and body skin itching......worse than the soap with the offending chemical.  Go figure.......
Dr. Bronner's soap is my 4th or 5th soap to try.

Hopefully food for thought ladies.  By the way, I really like the Nellie's laundry soda (fingers crossed again).....its only been about a week.  It's pretty cheap (amazon). It smells really clean and you only need a small scoop for a large load so it seems it will last awhile.  
Will see.....  

Best wishes ladies....... xo


Leslieg

Posts : 86
Join date : 2013-08-09

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Alana3 on Tue Dec 17, 2013 6:44 pm

I didn't read everything just where you're feeling better and I just wanted to say I'm happy for you, hopefully this is a good track for you and you will continue to feel good! Keep us posted Smile

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Steroid ointments/creams

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum