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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


How can you tell whether v is caused by a muscular problem or by nerves?

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How can you tell whether v is caused by a muscular problem or by nerves?

Post  The_Joker on Thu Nov 28, 2013 2:11 pm

Just wondering whether anyone has any thoughts on this...Is there a way to tell whether my vulvodynia symptoms are caused by irritated nerves in the vulva area from a UTI/thrush  or by tight pelvic floor muscles etc Would be grateful for any ideas!

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I've wondered the same thing!

Post  Misa1626 on Fri Nov 29, 2013 3:18 am

I've always thought it was a nerve issue with me so I stopped doing physical therapy, but now I've gotten much worse since stopping so I don't know what to think! I have constant burning down there 24/7. I can't wrap my head around this condition! I'm going back to physical therapy starting next week so I guess I'll see if that helps bring it back down from a 8/10 to a 5/10. I'll keep ya posted.

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Thanks

Post  The_Joker on Mon Dec 02, 2013 11:07 pm

Misa1626 wrote:I've always thought it was a nerve issue with me so I stopped doing physical therapy, but now I've gotten much worse since stopping so I don't know what to think!  I have constant burning down there 24/7.  I can't wrap my head around this condition!  I'm going back to physical therapy starting next week so I guess I'll see if that helps bring it back down from a 8/10 to a 5/10.  I'll keep ya posted.
Thanks for taking the time to reply Misa1626. I'll be really fascinated to hear if the physical therapy has any effect on your V ie whether it improves the burning or not! I've been told that my V was caused by a  UTI or thrush aggravating the nerves, but I can't help wondering if a prolonged period of stress caused pelvic floor issues which impinge on the pudendal nerve and that in turn has caused the sore/raw burning feeling at the back of the vestibule... whatever, I just want to get better, wear my jeans and be able to sit down comfortably again...not too much to ask after 5 months surely!!

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Loulou on Tue Dec 03, 2013 12:46 am

Joker, the best way to find out if its pelvic floor tightness is to get yourself referred to a women's health physio and ask for a biofeedback assessment. It involves having a vaginal probe inserted (ouch I know but worth it) and this takes a measure of your pelvic floor tone (they measure it as rest and also get you to do various types of contractions and relaxations). A normal PF tone is 2 or under - any higher and there is PF tightness.

A quick and unscientific method is to see how you feel in the mornings -if you wake up with no V pain but then find pain increases as you get up and move about during the day then its possible that its muscular (as your muscles will have relaxed during sleep but then tense up again once your awake and up). Presume you've had all the tests to rule out UTI/thrush?

And i agree, i think stress can be a factor in tight PF. Mine started after a stressful period and i later found out that I had been clenching my butt and abdominal muscles constantly without even realising it!

Misa, physical therapy (in any format) is a long road unfortunately - took me over a year. I think of it as muscles have memory and they have to be retrained.

Good luck ladies. let us know how you get on.

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Tue Dec 03, 2013 12:08 pm

The Joker, I am wondering the exact same thing about my own vulvodynia. I have initially always assumed mine is more in the skin because of the type of pain that it is, but recently I just don't know anymore. When I press down on the sore areas they almost ache, so I don't know if it could in fact be muscular. Or could it be two things going on at once? Or nerves just being messed up and feeling pain when there isn't any. I can only speculate. My plan is to see a vulvar dermatologist and a gynaecological physiotherapist to sort this shit out. Someone just fix us, please ! Hope I offered you some support x
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Post  The_Joker on Tue Dec 03, 2013 6:56 pm

Thanks for your support Tinkerbelle 2 and Loulou! It's nice to get some expertise and thoughts from other people. I don't wake up with any pain any more at all, it creeps up during the day which I guess points in the direction of pfd/muscular issues. Bring on the Womens Health physio...

Good luck with the vulvar dermatologist and  gynaecological physiotherapist Tinkerbelle2, I hope they can help you to help your body heal..

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Kathy100 on Tue Dec 03, 2013 7:31 pm

Mine is muscular /pfd related & I do get no pain in the mornings and then get worse as the day goes on. At first I thought it was nerves but tight muscles can irritate the nerves and cause pain. So it can be difficult to tell. My pain then spread into my legs which I couldn't relax at all and back & hips which all pointed to muscular.
What is helping me is notriptyline for the v pain & physio to ease my muscles. I do pilates exercises & pelvic floor stretches every day too. My pain levels have dropped and I'm managing now to take 5mg of notriptyline every other day (to start with I was on 10-20mg a day). I not out of the woods yet but I am much better than I was a year ago. I agree that stress plays a part too because when I get stressed I can literally feel all my muscles tightening up.

I'd say it's worth seeing a physio who specialises in pelvic pain to get checked out.
Good luck....

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Wed Dec 04, 2013 11:38 am

Thank you, I hope you do too sweetie! If you don't wake up with pain it definitely sounds like the women's health physio could be helpful! Good luck and keep us posted Smile
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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Misa1626 on Sat Dec 07, 2013 2:20 am

Hi Guys, so I went to physical therapy and decided to ask her what she thought. She said that she thinks it's a bit of a vicious cycle, like you said Kathy. It may start with thrush or a UTI that gets the nerves out of whack but that in turn can cause muscle spasms which then end up causing more pain! I'm hoping I can calm the nerves with amitriptyline and Celebrex which I'm about to start tonight and retrain my muscles with physical therapy. Gotta keep positive. Eyes on the prize. I'm going to get better. In the mean time glad I have the support of you all!!

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Sat Dec 07, 2013 12:43 pm

Hi Misa, that's a really interesting thought on how things could be linked like that. I have a dermatology appointment coming up and it's worth me having a physio one as well I reckon. Thinking of all you girls!
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Re: How can you tell whether v is caused by a muscular problem or by nerves?

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