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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

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How can you tell whether v is caused by a muscular problem or by nerves?

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How can you tell whether v is caused by a muscular problem or by nerves?

Post  The_Joker on Thu Nov 28, 2013 2:11 pm

Just wondering whether anyone has any thoughts on this...Is there a way to tell whether my vulvodynia symptoms are caused by irritated nerves in the vulva area from a UTI/thrush  or by tight pelvic floor muscles etc Would be grateful for any ideas!

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I've wondered the same thing!

Post  Misa1626 on Fri Nov 29, 2013 3:18 am

I've always thought it was a nerve issue with me so I stopped doing physical therapy, but now I've gotten much worse since stopping so I don't know what to think! I have constant burning down there 24/7. I can't wrap my head around this condition! I'm going back to physical therapy starting next week so I guess I'll see if that helps bring it back down from a 8/10 to a 5/10. I'll keep ya posted.

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Thanks

Post  The_Joker on Mon Dec 02, 2013 11:07 pm

Misa1626 wrote:I've always thought it was a nerve issue with me so I stopped doing physical therapy, but now I've gotten much worse since stopping so I don't know what to think!  I have constant burning down there 24/7.  I can't wrap my head around this condition!  I'm going back to physical therapy starting next week so I guess I'll see if that helps bring it back down from a 8/10 to a 5/10.  I'll keep ya posted.
Thanks for taking the time to reply Misa1626. I'll be really fascinated to hear if the physical therapy has any effect on your V ie whether it improves the burning or not! I've been told that my V was caused by a  UTI or thrush aggravating the nerves, but I can't help wondering if a prolonged period of stress caused pelvic floor issues which impinge on the pudendal nerve and that in turn has caused the sore/raw burning feeling at the back of the vestibule... whatever, I just want to get better, wear my jeans and be able to sit down comfortably again...not too much to ask after 5 months surely!!

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Loulou on Tue Dec 03, 2013 12:46 am

Joker, the best way to find out if its pelvic floor tightness is to get yourself referred to a women's health physio and ask for a biofeedback assessment. It involves having a vaginal probe inserted (ouch I know but worth it) and this takes a measure of your pelvic floor tone (they measure it as rest and also get you to do various types of contractions and relaxations). A normal PF tone is 2 or under - any higher and there is PF tightness.

A quick and unscientific method is to see how you feel in the mornings -if you wake up with no V pain but then find pain increases as you get up and move about during the day then its possible that its muscular (as your muscles will have relaxed during sleep but then tense up again once your awake and up). Presume you've had all the tests to rule out UTI/thrush?

And i agree, i think stress can be a factor in tight PF. Mine started after a stressful period and i later found out that I had been clenching my butt and abdominal muscles constantly without even realising it!

Misa, physical therapy (in any format) is a long road unfortunately - took me over a year. I think of it as muscles have memory and they have to be retrained.

Good luck ladies. let us know how you get on.

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Tue Dec 03, 2013 12:08 pm

The Joker, I am wondering the exact same thing about my own vulvodynia. I have initially always assumed mine is more in the skin because of the type of pain that it is, but recently I just don't know anymore. When I press down on the sore areas they almost ache, so I don't know if it could in fact be muscular. Or could it be two things going on at once? Or nerves just being messed up and feeling pain when there isn't any. I can only speculate. My plan is to see a vulvar dermatologist and a gynaecological physiotherapist to sort this shit out. Someone just fix us, please ! Hope I offered you some support x
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Thanks

Post  The_Joker on Tue Dec 03, 2013 6:56 pm

Thanks for your support Tinkerbelle 2 and Loulou! It's nice to get some expertise and thoughts from other people. I don't wake up with any pain any more at all, it creeps up during the day which I guess points in the direction of pfd/muscular issues. Bring on the Womens Health physio...

Good luck with the vulvar dermatologist and  gynaecological physiotherapist Tinkerbelle2, I hope they can help you to help your body heal..

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Kathy100 on Tue Dec 03, 2013 7:31 pm

Mine is muscular /pfd related & I do get no pain in the mornings and then get worse as the day goes on. At first I thought it was nerves but tight muscles can irritate the nerves and cause pain. So it can be difficult to tell. My pain then spread into my legs which I couldn't relax at all and back & hips which all pointed to muscular.
What is helping me is notriptyline for the v pain & physio to ease my muscles. I do pilates exercises & pelvic floor stretches every day too. My pain levels have dropped and I'm managing now to take 5mg of notriptyline every other day (to start with I was on 10-20mg a day). I not out of the woods yet but I am much better than I was a year ago. I agree that stress plays a part too because when I get stressed I can literally feel all my muscles tightening up.

I'd say it's worth seeing a physio who specialises in pelvic pain to get checked out.
Good luck....

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Wed Dec 04, 2013 11:38 am

Thank you, I hope you do too sweetie! If you don't wake up with pain it definitely sounds like the women's health physio could be helpful! Good luck and keep us posted Smile
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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Misa1626 on Sat Dec 07, 2013 2:20 am

Hi Guys, so I went to physical therapy and decided to ask her what she thought. She said that she thinks it's a bit of a vicious cycle, like you said Kathy. It may start with thrush or a UTI that gets the nerves out of whack but that in turn can cause muscle spasms which then end up causing more pain! I'm hoping I can calm the nerves with amitriptyline and Celebrex which I'm about to start tonight and retrain my muscles with physical therapy. Gotta keep positive. Eyes on the prize. I'm going to get better. In the mean time glad I have the support of you all!!

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Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Sat Dec 07, 2013 12:43 pm

Hi Misa, that's a really interesting thought on how things could be linked like that. I have a dermatology appointment coming up and it's worth me having a physio one as well I reckon. Thinking of all you girls!
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Re: How can you tell whether v is caused by a muscular problem or by nerves?

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