Log in

I forgot my password

Latest topics
» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


How can you tell whether v is caused by a muscular problem or by nerves?

View previous topic View next topic Go down

How can you tell whether v is caused by a muscular problem or by nerves?

Post  The_Joker on Thu Nov 28, 2013 2:11 pm

Just wondering whether anyone has any thoughts on this...Is there a way to tell whether my vulvodynia symptoms are caused by irritated nerves in the vulva area from a UTI/thrush  or by tight pelvic floor muscles etc Would be grateful for any ideas!

The_Joker

Posts : 7
Join date : 2013-09-11
Age : 43
Location : South West, Uk

View user profile

Back to top Go down

I've wondered the same thing!

Post  Misa1626 on Fri Nov 29, 2013 3:18 am

I've always thought it was a nerve issue with me so I stopped doing physical therapy, but now I've gotten much worse since stopping so I don't know what to think! I have constant burning down there 24/7. I can't wrap my head around this condition! I'm going back to physical therapy starting next week so I guess I'll see if that helps bring it back down from a 8/10 to a 5/10. I'll keep ya posted.

Misa1626

Posts : 2
Join date : 2013-11-28
Age : 32
Location : Philadelphia, PA, USA

View user profile

Back to top Go down

Thanks

Post  The_Joker on Mon Dec 02, 2013 11:07 pm

Misa1626 wrote:I've always thought it was a nerve issue with me so I stopped doing physical therapy, but now I've gotten much worse since stopping so I don't know what to think!  I have constant burning down there 24/7.  I can't wrap my head around this condition!  I'm going back to physical therapy starting next week so I guess I'll see if that helps bring it back down from a 8/10 to a 5/10.  I'll keep ya posted.
Thanks for taking the time to reply Misa1626. I'll be really fascinated to hear if the physical therapy has any effect on your V ie whether it improves the burning or not! I've been told that my V was caused by a  UTI or thrush aggravating the nerves, but I can't help wondering if a prolonged period of stress caused pelvic floor issues which impinge on the pudendal nerve and that in turn has caused the sore/raw burning feeling at the back of the vestibule... whatever, I just want to get better, wear my jeans and be able to sit down comfortably again...not too much to ask after 5 months surely!!

The_Joker

Posts : 7
Join date : 2013-09-11
Age : 43
Location : South West, Uk

View user profile

Back to top Go down

Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Loulou on Tue Dec 03, 2013 12:46 am

Joker, the best way to find out if its pelvic floor tightness is to get yourself referred to a women's health physio and ask for a biofeedback assessment. It involves having a vaginal probe inserted (ouch I know but worth it) and this takes a measure of your pelvic floor tone (they measure it as rest and also get you to do various types of contractions and relaxations). A normal PF tone is 2 or under - any higher and there is PF tightness.

A quick and unscientific method is to see how you feel in the mornings -if you wake up with no V pain but then find pain increases as you get up and move about during the day then its possible that its muscular (as your muscles will have relaxed during sleep but then tense up again once your awake and up). Presume you've had all the tests to rule out UTI/thrush?

And i agree, i think stress can be a factor in tight PF. Mine started after a stressful period and i later found out that I had been clenching my butt and abdominal muscles constantly without even realising it!

Misa, physical therapy (in any format) is a long road unfortunately - took me over a year. I think of it as muscles have memory and they have to be retrained.

Good luck ladies. let us know how you get on.

Loulou

Posts : 124
Join date : 2012-01-18

View user profile

Back to top Go down

Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Tue Dec 03, 2013 12:08 pm

The Joker, I am wondering the exact same thing about my own vulvodynia. I have initially always assumed mine is more in the skin because of the type of pain that it is, but recently I just don't know anymore. When I press down on the sore areas they almost ache, so I don't know if it could in fact be muscular. Or could it be two things going on at once? Or nerves just being messed up and feeling pain when there isn't any. I can only speculate. My plan is to see a vulvar dermatologist and a gynaecological physiotherapist to sort this shit out. Someone just fix us, please ! Hope I offered you some support x
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Thanks

Post  The_Joker on Tue Dec 03, 2013 6:56 pm

Thanks for your support Tinkerbelle 2 and Loulou! It's nice to get some expertise and thoughts from other people. I don't wake up with any pain any more at all, it creeps up during the day which I guess points in the direction of pfd/muscular issues. Bring on the Womens Health physio...

Good luck with the vulvar dermatologist and  gynaecological physiotherapist Tinkerbelle2, I hope they can help you to help your body heal..

The_Joker

Posts : 7
Join date : 2013-09-11
Age : 43
Location : South West, Uk

View user profile

Back to top Go down

Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Kathy100 on Tue Dec 03, 2013 7:31 pm

Mine is muscular /pfd related & I do get no pain in the mornings and then get worse as the day goes on. At first I thought it was nerves but tight muscles can irritate the nerves and cause pain. So it can be difficult to tell. My pain then spread into my legs which I couldn't relax at all and back & hips which all pointed to muscular.
What is helping me is notriptyline for the v pain & physio to ease my muscles. I do pilates exercises & pelvic floor stretches every day too. My pain levels have dropped and I'm managing now to take 5mg of notriptyline every other day (to start with I was on 10-20mg a day). I not out of the woods yet but I am much better than I was a year ago. I agree that stress plays a part too because when I get stressed I can literally feel all my muscles tightening up.

I'd say it's worth seeing a physio who specialises in pelvic pain to get checked out.
Good luck....

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Wed Dec 04, 2013 11:38 am

Thank you, I hope you do too sweetie! If you don't wake up with pain it definitely sounds like the women's health physio could be helpful! Good luck and keep us posted Smile
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Misa1626 on Sat Dec 07, 2013 2:20 am

Hi Guys, so I went to physical therapy and decided to ask her what she thought. She said that she thinks it's a bit of a vicious cycle, like you said Kathy. It may start with thrush or a UTI that gets the nerves out of whack but that in turn can cause muscle spasms which then end up causing more pain! I'm hoping I can calm the nerves with amitriptyline and Celebrex which I'm about to start tonight and retrain my muscles with physical therapy. Gotta keep positive. Eyes on the prize. I'm going to get better. In the mean time glad I have the support of you all!!

Misa1626

Posts : 2
Join date : 2013-11-28
Age : 32
Location : Philadelphia, PA, USA

View user profile

Back to top Go down

Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  tinkerbelle2 on Sat Dec 07, 2013 12:43 pm

Hi Misa, that's a really interesting thought on how things could be linked like that. I have a dermatology appointment coming up and it's worth me having a physio one as well I reckon. Thinking of all you girls!
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: How can you tell whether v is caused by a muscular problem or by nerves?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum