Log in

I forgot my password

Latest topics
» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Has changing diet actually significantly helped anyone?

Page 1 of 2 1, 2  Next

View previous topic View next topic Go down

Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Sun Dec 01, 2013 8:52 pm

I love my food and I don't want to make myself more miserable by cutting out one of the things that gives me some pleasure and fuck about with some diet if it makes no difference. I haven't noticed any correlation between any foods and drinks and pain levels
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  mary jane on Sun Dec 01, 2013 10:06 pm

oh I hear you on this one. In the first 2 months I lost a lot of weight due to the anxiety and shock ("how can I possibly have nerve pain?"), but now I can't stop stuffing my face with Cadbury's chocolate and pizza.
I take a lot of supplements and I really think they are giving me new appetite levels.
I'm on a bunch of stuff for inflammation, nerve regeneration and yeast, but it takes MONTHS to see if anything works.

My insanity has reached epic proportions. I'm actually looking in multiple sclerosis cures.

also, my new favorite blog on this type of condition has got to be Mad Peach. Good writing skills!
http://madpeach.blogspot.co.uk/

but yeah, I'm drinking the occasional latte and chocolate cake because it's the only comfort I have left besides prolonged bed rest.
Also, tinkerbelle, or anyone, do you ever find yourselves searching like crazy for symptoms and cures? i must be active on like, 5 different forums! Some of the stories are VERY DEPRESSING to read Sad
avatar
mary jane

Posts : 328
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Tue Dec 03, 2013 8:12 am

Oh bless you mary Jane, I don't blame you! I haven't had much of an appetite recently as the longer this goes on, the more downtrodden I am feeling. But YES gotta love chocolate and cake. I am just wondering whether this low oxalate diet business will affect anything. Right now I can't be bothered to stick to something without being confident it'll help. I've tried and failed so much already. Also it's so confusing how something that may help you may also have detrimental effects, such as cranberry juice always helps me when I have a urine infection, I notice a difference, but apparently it's burny as it's acidic. Waaaaa! I don't know what to do and what to eat! Lol
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Tue Dec 03, 2013 8:16 am

And yep I'm searching like crazy basically every day !!! I want a new vagina! Or my old one. Sometimes I look at women in the Street and im like 'I wonder if she has this' (then I see she has skinny jeans on and I'm like hmmm..no)! I have become obsessed


Last edited by tinkerbelle2 on Tue Dec 03, 2013 11:54 am; edited 1 time in total
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  mary jane on Tue Dec 03, 2013 11:47 am

@ tinkerbelle - I'm sort of jealous of other women on the street as well....
I remember how I've always had painful intercourse 90% of the time (I had stinging pain at the vaginal entrance?)....and I know think that was the start of my vulvodynia.
Strangely, it was only non-painful after a whole course of antibiotics and diflucan....#


back on the diet, I am taking craploads of supplements these days. Anything anti-inflammatory will do.
I also got some Vit D today (it is supposed to be good for chronic pain?) and Magnesium.
I am also planning on buying some MSM, it helps those with diabetic neuropathy
I also ordered this book from amazon: The Mindfulness Solution to Pain: Step-by-step Techniques for Chronic Pain Management
http://www.amazon.co.uk/Mindfulness-Solution-Pain-Step---step/dp/1572245816/ref=sr_1_1?s=books&ie=UTF8&qid=1386071161&sr=1-1&keywords=the+mindfulness+solution+to+pain

It has a lot of common sense tips for managing pain, like drinking a lot of water and controlling your perception of pain...

However, I am still hoping for some LYRICA, it has great reviews on pudendal forums and interstitial cystitis...
avatar
mary jane

Posts : 328
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Tue Dec 03, 2013 11:59 am

Yes lyrica seems to be the one to try! I will mention it to my GP when I can be bothered to make an appointment and go. I'm waiting to see Liz Derrick the dermatologist to see if she can establish any skin disorder blah blah. When I press hard on the vestibule and the internal walls about 3cm inside it f***ing hurts!
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Tue Dec 03, 2013 12:01 pm

Which leads me to consider if it could in fact be more of a muscular issue rather than skin or tissue. And I know what you mean - I feel jealous of other girls all the time!
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Lms911 on Tue Dec 03, 2013 4:16 pm

Mary Jane I've also had MS on my mine! I want to get an MRI because MS causes alot of nerve pains. I have 2 family member with MS and I was just so upset feeling like what the hell is wrong with me. I like my food too and I refuse to give up something that makes me happy Smile when I read your comments ladies I feel like I'm reading my own writing! I just wish you all didnt live so far awayyy GRRR

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  zarli on Tue Dec 03, 2013 11:00 pm

Me too...I've been reading your posts girls and I feel I could have been writing them...

I've had a brain MRI to rule out MS it was negative, although the more research I've been doing on nerves the more I think Vulvodynia is related.....

I've tried all recommended diets and in most cases my V was worse, I think maybe my mind had something to do with that as I was always hungry.....

I tried drinking lots of water but it put too much pressure on my bladder which irritated every thing.....

I take Lyrica and nortriptyline and together they keep my pain almost gone, I am just very scared they will stop working like amiltriptyline did....

Sorry to be negative...I will never give up I feel at times I'm going insane as its all I think about, I can't enjoy friends as Im
so envious of them and their pain free life, I know that's bad but its the way it is. I would give anything to be able to sit down(not for to long=pain) and share a latte with you all in our leggings or tracksuits haha much love sent all your way
Z xx


zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Wed Dec 04, 2013 11:49 am

Exactly lauren I just want to eat what I want! I don't want this vulvodynia to ruin even that for me.
Zarli, I'd love to all chill together in our trackies with lattes! I love you girls I really do! x
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Kathy100 on Wed Dec 04, 2013 12:12 pm

This thread made me smile. I feel exactly the same - no way am I gonna mess about with a diet on top of all the other crap. I'm like you - jealous of girls in skinny jeans who can sit down without a second thought...

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Lms911 on Wed Dec 04, 2013 1:52 pm

Blahhh to jeans! We can all rock our tights and look sexy doing it! I get jealous a lot too. How dare these women have perfect vaginas lol. Just think ladies if we can get through this, we can get though anything Smile hoping you all have better days
<3 Laur

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Wed Dec 11, 2013 7:21 pm

Exactly kathy and Lms !!  Laughing 
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Alana3 on Wed Dec 11, 2013 7:36 pm

So I watch what I eat today had a salad and vegan cake and I feel really good... don't ask if its a fluke or not haha

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  EviE°Bee on Thu Dec 12, 2013 10:17 am

FOod!!!!

I find myself taking bites of things im not suppose to because I know I shouldn't have it. I'm supposed to try the low oxilate diet for acid levels which hinder the vulva and bladder and the candida diet for yeast problems. At the end of the day, nothing is safe. Both of these diets contradict the other.

If im having a bladder problem I tend to half ass the LOD and if Im having yeast problems I half ass the CD. Im a chubbs at heart (and body lol) and I don't want pain but I also don't want these particular restrictions. Gaaah!

EvieBee

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Thu Dec 12, 2013 10:52 am

Alana, that's good ! I love salad. I'm addicted to pasta! And cheese. Gonna try and eat less of it.
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Thu Dec 12, 2013 10:59 am

Evie, I'm obsessed lol! And I do the same, pick at things I'm not supposed to Razz

That's really frustrating that the low ox and candida diets contradict each other! This is what I mean about diets! Apparently even some fruits and veg you aren't supposed to eat as they're too acidic or sugary, but you're supposed to have you 5 a day. It's like, what the hell do we eat ! ARE WE SUPPOSED TO STARVE !!!! So complicated. I wish I actually knew what foods to avoid, when I had a bad cold I lost my appetite (a rare thing for me hah!!) and I didn't eat hardly a thing for a few days, the vulvodynia was still extremely painful :/
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Alana3 on Thu Dec 12, 2013 11:56 am

Stay away from foods that affect you personally

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  EviE°Bee on Fri Dec 13, 2013 2:53 am

I agree with Alana, I can eat chocolate without it effecting me, some girls can't. Its all about researching and experimenting at least with the oxilate.

But i love carbs too, Tink! White rice and pasta. Bleh.  Mad 

EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 34
Location : Southern Cali

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Fri Dec 13, 2013 9:42 am

I never noticed anything affecting me before. It's hard to tell as the pain fluctuates anyway
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Alana3 on Fri Dec 13, 2013 11:50 am

It could be fluctuating by what you're eating try making a good diary

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Fri Dec 13, 2013 5:24 pm

That's a good idea gonna try and see
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Alana3 on Fri Dec 13, 2013 7:14 pm

Sorry that was supposed to be food diary lol

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  kdh17 on Sat Dec 14, 2013 4:22 am

Diet was a game changer for me, but my symptoms were very obviously affected by food. I would have severe burning 1-2 hours after eating. It took me a while to figure things out, but I realized the culprit was wheat/gluten. I cut out wheat 7 years ago and all gluten 5 years ago and noticed a tremendous difference. I've also noticed that there are certain foods I can eat if I'm in a "good" place that I absolutely cannot eat if I am already having pain. When things are really bad I have a hard time eating fruit, sugar, or acidic drinks like soda. I definitely agree that having a restrictive diet is no fun, especially if you are not sure about the benefits. If you think there may be a link with food, I highly recommend keeping a food/pain diary. It was very helpful for me.

kdh17

Posts : 2
Join date : 2013-12-14

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Mon Dec 23, 2013 9:45 pm

Thanks for replying kdh! I was curious to hear if it had actually worked for some women. Did you have slight vaginal burning too? I want to rule out diet but not sure where to start
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Sponsored content


Sponsored content


Back to top Go down

Page 1 of 2 1, 2  Next

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum