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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Has changing diet actually significantly helped anyone?

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Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Mon Dec 23, 2013 9:47 pm

A food diary is a really good idea, I need to get down to it !
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Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Sat Dec 28, 2013 2:32 pm

The contradictions annoy me the most. Like, I eat a lot of broccoli because it is high in iron and my iron levels are really low probably due to being a veggie. But apparently broccoli is bad for the bladder and vagina ?! Orange juice and cranberry juice have health benefits but are acidic..you can't win! I've started my food diary at least
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Re: Has changing diet actually significantly helped anyone?

Post  Alana3 on Sat Dec 28, 2013 3:17 pm

As long as they aren't hurting you directly you should be ok. Maybe talk to a nutritionist who can help put you in a better direction

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Re: Has changing diet actually significantly helped anyone?

Post  alessandria on Sun Dec 29, 2013 3:50 pm

We shouldn't forget, the official stance in the medical literature on the oxalate diet is that it does not significantly help for women with vulvodynia as a whole. It does work really well for a few individuals, just the way being gluten-free really works for some individuals, and being low yeast works for others. But that's the unfortunate part, VV has a million different causes producing the same symptoms, and so diet will only be the culprit, and thus only be a therapeutic factor, for some sufferers. I have found zero dietary influence in my own symptoms, which has in some ways been awesome (yay, eating what I want!!), and some ways less awesome (boo, no magical cure...). Food diaries are awesome for uncovering the chance that anyone's particular symptoms are related to diet, but I will say that I think the oxalate hypothesis has been pretty thoroughly debunked as a common cause of VV, and it's a pretty challenging diet to adhere to. If you notice no change in symptoms after a cycle or two, it's probably not worth the hassle.

Do keep in mind that weight, rather than diet, can play a role in a couple of ways. Excessive fat is becoming well-known in the literature as a cause of chronic inflammation, and it is also an active secretor of estrogen. One can have the pro-inflammatory variety of fat without even being overweight by BMI standards, so it's absolutely not a matter of being what we term aesthetically overweight. Losing some pounds may help reduce your body's level of inflammatory signaling molecules in the blood, which can then go on to decrease both inflammation and pain with VV. Estrogen is also thought by a few VV experts to play a role in the disease symptoms, though in a really crazy and indirect way that no one has 100% figured out yet. So, losing some fat can be worthwhile, even in the absence of a challenging diet that limits what foods you can eat. Again, no one factor will cure everyone with VV, but we all just have to keep trying until we find something. Smile

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Re: Has changing diet actually significantly helped anyone?

Post  zarli on Sun Dec 29, 2013 9:21 pm

Hi Alessandria
Your responses to forum questions are amazingly detailed and so well informed. It has got me wondering if you may be a Doctor or a professional in some way related to medicine ?
Just curious.....

Thank you for your responses I love reading them they are so helpful.

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Re: Has changing diet actually significantly helped anyone?

Post  samyurai76 on Wed Jan 22, 2014 10:29 am

I was on the anti-Candida diet for years (still am, really). It's difficult to adjust to and I have occasionally succumbed to CAKE and MOAR CAKE! And I never really understood why I couldn't have Marmite, bread and mushrooms - entirely different sorts of yeast\fungus! It did seem to help for quite some time. But it also took time to start helping. Months and months. It's a long haul thing. However, I've recently had a terrible flare up (in spite of the diet) which has ultimately led to my diagnosis (after 20 years) of 'neuropathic pain' - which I'm taking to mean 'vulvodynia'. To cut a long story short - I agree that diet can be a therapeutic measure, but it clearly isn't a solution. That said, a low sugar diet has other huge benefits, so I'll probably keep it up.

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Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Sat Jan 25, 2014 4:00 pm

Samuryai - yum, cake! I agree that a low sugar diet is definitely a good idea. There is so much scientific proof and evidence for it too. Most days I eat very healthily but if I want a few biccies or choccies I have them. Or haggen dazs pralines and cream icecream mmm... My food diary hasn't really helped me at all. Also I don't get how if I was fine eating things before then why would I suddenly develop symptoms? I guess things like coeliac can come on randomly and you can develop intolerances and allergies that you didn't have before etc. My mum is a nurse and she doesn't think my diet would have anything to do with the vaginal burning, but that's only my particular vulvodynia. I reckon for other types of vulvodynia especially those connected to cystitis, what you eat and drink could have some bearing on down below. My GP and one gyno I saw didn't think food would affect it either. But everyone has different opinions
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