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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Has changing diet actually significantly helped anyone?

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Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Mon Dec 23, 2013 9:47 pm

A food diary is a really good idea, I need to get down to it !
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Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Sat Dec 28, 2013 2:32 pm

The contradictions annoy me the most. Like, I eat a lot of broccoli because it is high in iron and my iron levels are really low probably due to being a veggie. But apparently broccoli is bad for the bladder and vagina ?! Orange juice and cranberry juice have health benefits but are acidic..you can't win! I've started my food diary at least
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Re: Has changing diet actually significantly helped anyone?

Post  Alana3 on Sat Dec 28, 2013 3:17 pm

As long as they aren't hurting you directly you should be ok. Maybe talk to a nutritionist who can help put you in a better direction

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Re: Has changing diet actually significantly helped anyone?

Post  alessandria on Sun Dec 29, 2013 3:50 pm

We shouldn't forget, the official stance in the medical literature on the oxalate diet is that it does not significantly help for women with vulvodynia as a whole. It does work really well for a few individuals, just the way being gluten-free really works for some individuals, and being low yeast works for others. But that's the unfortunate part, VV has a million different causes producing the same symptoms, and so diet will only be the culprit, and thus only be a therapeutic factor, for some sufferers. I have found zero dietary influence in my own symptoms, which has in some ways been awesome (yay, eating what I want!!), and some ways less awesome (boo, no magical cure...). Food diaries are awesome for uncovering the chance that anyone's particular symptoms are related to diet, but I will say that I think the oxalate hypothesis has been pretty thoroughly debunked as a common cause of VV, and it's a pretty challenging diet to adhere to. If you notice no change in symptoms after a cycle or two, it's probably not worth the hassle.

Do keep in mind that weight, rather than diet, can play a role in a couple of ways. Excessive fat is becoming well-known in the literature as a cause of chronic inflammation, and it is also an active secretor of estrogen. One can have the pro-inflammatory variety of fat without even being overweight by BMI standards, so it's absolutely not a matter of being what we term aesthetically overweight. Losing some pounds may help reduce your body's level of inflammatory signaling molecules in the blood, which can then go on to decrease both inflammation and pain with VV. Estrogen is also thought by a few VV experts to play a role in the disease symptoms, though in a really crazy and indirect way that no one has 100% figured out yet. So, losing some fat can be worthwhile, even in the absence of a challenging diet that limits what foods you can eat. Again, no one factor will cure everyone with VV, but we all just have to keep trying until we find something. Smile

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Re: Has changing diet actually significantly helped anyone?

Post  zarli on Sun Dec 29, 2013 9:21 pm

Hi Alessandria
Your responses to forum questions are amazingly detailed and so well informed. It has got me wondering if you may be a Doctor or a professional in some way related to medicine ?
Just curious.....

Thank you for your responses I love reading them they are so helpful.

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Re: Has changing diet actually significantly helped anyone?

Post  samyurai76 on Wed Jan 22, 2014 10:29 am

I was on the anti-Candida diet for years (still am, really). It's difficult to adjust to and I have occasionally succumbed to CAKE and MOAR CAKE! And I never really understood why I couldn't have Marmite, bread and mushrooms - entirely different sorts of yeast\fungus! It did seem to help for quite some time. But it also took time to start helping. Months and months. It's a long haul thing. However, I've recently had a terrible flare up (in spite of the diet) which has ultimately led to my diagnosis (after 20 years) of 'neuropathic pain' - which I'm taking to mean 'vulvodynia'. To cut a long story short - I agree that diet can be a therapeutic measure, but it clearly isn't a solution. That said, a low sugar diet has other huge benefits, so I'll probably keep it up.

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Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Sat Jan 25, 2014 4:00 pm

Samuryai - yum, cake! I agree that a low sugar diet is definitely a good idea. There is so much scientific proof and evidence for it too. Most days I eat very healthily but if I want a few biccies or choccies I have them. Or haggen dazs pralines and cream icecream mmm... My food diary hasn't really helped me at all. Also I don't get how if I was fine eating things before then why would I suddenly develop symptoms? I guess things like coeliac can come on randomly and you can develop intolerances and allergies that you didn't have before etc. My mum is a nurse and she doesn't think my diet would have anything to do with the vaginal burning, but that's only my particular vulvodynia. I reckon for other types of vulvodynia especially those connected to cystitis, what you eat and drink could have some bearing on down below. My GP and one gyno I saw didn't think food would affect it either. But everyone has different opinions
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Re: Has changing diet actually significantly helped anyone?

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