Log in

I forgot my password

Latest topics
» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Has changing diet actually significantly helped anyone?

Page 2 of 2 Previous  1, 2

Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Mon Dec 23, 2013 9:47 pm

A food diary is a really good idea, I need to get down to it !
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Sat Dec 28, 2013 2:32 pm

The contradictions annoy me the most. Like, I eat a lot of broccoli because it is high in iron and my iron levels are really low probably due to being a veggie. But apparently broccoli is bad for the bladder and vagina ?! Orange juice and cranberry juice have health benefits but are acidic..you can't win! I've started my food diary at least
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Alana3 on Sat Dec 28, 2013 3:17 pm

As long as they aren't hurting you directly you should be ok. Maybe talk to a nutritionist who can help put you in a better direction

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  alessandria on Sun Dec 29, 2013 3:50 pm

We shouldn't forget, the official stance in the medical literature on the oxalate diet is that it does not significantly help for women with vulvodynia as a whole. It does work really well for a few individuals, just the way being gluten-free really works for some individuals, and being low yeast works for others. But that's the unfortunate part, VV has a million different causes producing the same symptoms, and so diet will only be the culprit, and thus only be a therapeutic factor, for some sufferers. I have found zero dietary influence in my own symptoms, which has in some ways been awesome (yay, eating what I want!!), and some ways less awesome (boo, no magical cure...). Food diaries are awesome for uncovering the chance that anyone's particular symptoms are related to diet, but I will say that I think the oxalate hypothesis has been pretty thoroughly debunked as a common cause of VV, and it's a pretty challenging diet to adhere to. If you notice no change in symptoms after a cycle or two, it's probably not worth the hassle.

Do keep in mind that weight, rather than diet, can play a role in a couple of ways. Excessive fat is becoming well-known in the literature as a cause of chronic inflammation, and it is also an active secretor of estrogen. One can have the pro-inflammatory variety of fat without even being overweight by BMI standards, so it's absolutely not a matter of being what we term aesthetically overweight. Losing some pounds may help reduce your body's level of inflammatory signaling molecules in the blood, which can then go on to decrease both inflammation and pain with VV. Estrogen is also thought by a few VV experts to play a role in the disease symptoms, though in a really crazy and indirect way that no one has 100% figured out yet. So, losing some fat can be worthwhile, even in the absence of a challenging diet that limits what foods you can eat. Again, no one factor will cure everyone with VV, but we all just have to keep trying until we find something. Smile

alessandria

Posts : 39
Join date : 2013-12-07

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  zarli on Sun Dec 29, 2013 9:21 pm

Hi Alessandria
Your responses to forum questions are amazingly detailed and so well informed. It has got me wondering if you may be a Doctor or a professional in some way related to medicine ?
Just curious.....

Thank you for your responses I love reading them they are so helpful.

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  samyurai76 on Wed Jan 22, 2014 10:29 am

I was on the anti-Candida diet for years (still am, really). It's difficult to adjust to and I have occasionally succumbed to CAKE and MOAR CAKE! And I never really understood why I couldn't have Marmite, bread and mushrooms - entirely different sorts of yeast\fungus! It did seem to help for quite some time. But it also took time to start helping. Months and months. It's a long haul thing. However, I've recently had a terrible flare up (in spite of the diet) which has ultimately led to my diagnosis (after 20 years) of 'neuropathic pain' - which I'm taking to mean 'vulvodynia'. To cut a long story short - I agree that diet can be a therapeutic measure, but it clearly isn't a solution. That said, a low sugar diet has other huge benefits, so I'll probably keep it up.

samyurai76

Posts : 2
Join date : 2014-01-21

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  tinkerbelle2 on Sat Jan 25, 2014 4:00 pm

Samuryai - yum, cake! I agree that a low sugar diet is definitely a good idea. There is so much scientific proof and evidence for it too. Most days I eat very healthily but if I want a few biccies or choccies I have them. Or haggen dazs pralines and cream icecream mmm... My food diary hasn't really helped me at all. Also I don't get how if I was fine eating things before then why would I suddenly develop symptoms? I guess things like coeliac can come on randomly and you can develop intolerances and allergies that you didn't have before etc. My mum is a nurse and she doesn't think my diet would have anything to do with the vaginal burning, but that's only my particular vulvodynia. I reckon for other types of vulvodynia especially those connected to cystitis, what you eat and drink could have some bearing on down below. My GP and one gyno I saw didn't think food would affect it either. But everyone has different opinions
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Has changing diet actually significantly helped anyone?

Post  Sponsored content


Sponsored content


Back to top Go down

Page 2 of 2 Previous  1, 2

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum