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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New & feeling lost!

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New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 3:43 pm

I'm 21 and have been suffering with vulvodynia for over 6 months now.
It started when i kept getting UTIs and cystitis frequently which I had become used to until I met my current partner and started experiencing really painful intercourse too.
I'd never had problems before and after visiting the doctors several times they told me nothing was wrong psychically. I decided to see a gynaecologist who then told me about vulvodynia. He put me on 10mg of amitriptyline for two months which made no difference. I was also given instillagel to use before sex which helps!
I've now been put on 25mg of amitriptyline and been told to be patient.... Wondering if anyone else has a successful amitriptyline story or any other helpful advice? I'm not too knowledgeable about it all!
Thanks! Smile

Molly_

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Re: New & feeling lost!

Post  Lms911 on Tue Dec 03, 2013 4:11 pm

I don't have much advice for you love but I'm in the same boat as you. This forum is wonderful for advise and help! Stay strong and praying for relief for us ALL!

Lms911

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 4:18 pm

Yeah I'm glad I'm not alone! Ill have a good look through for advice Smile thanks!

Molly_

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Re: New & feeling lost!

Post  mary jane on Tue Dec 03, 2013 4:57 pm

I'm on amitriptyline 50 mg at the moment, my pain was also triggered by a small infection (of the bartholin glands)....
it works for me right now, my pain went from 7/10 to a 2/10..however, mine is a nerve pain...
but at 10/20 mg it did nothing for me!

unfortunately, not everyone reacts the same. I tolerate it very well, but I know others are comatose from this drug....
then again, I am desperate and I would take anything to cope with daily school life.

anyway, just so you know, lyrica is a great drug (efficiency wise) for vulvodynia if ami does not work
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mary jane

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 6:00 pm

Glad its working for you! I'm hoping 25mg will work but if not ill have to ask about this lyrica Smile thanks for the help

Molly_

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Re: New & feeling lost!

Post  zarli on Tue Dec 03, 2013 11:06 pm

Please try Lyrica it works..and keep positive this forum is wonderful, read read read info on here Smile 

zarli

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Re: New & feeling lost!

Post  tinkerbelle2 on Sun Dec 08, 2013 8:18 pm

Hey Molly welcome to the forum! My vulvodynia also started after a bad urine infection, but there were also other things like being on antibiotics and starting the pill. I'm the same age as you. I have had it since I was 17 and I was so so sad and lost. Finding this forum has helped me so much! I also have a bit of relief with a numbing gel during sex and in general but it does burn the skin a bit at first and the effect wears off quickly. I was put on Gabapentin which I initially thought was helping but think the soreness was just lower coincidentally. What type of pain/irritation do you feel?
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Re: New & feeling lost!

Post  Molly_ on Tue Dec 10, 2013 8:14 pm

Thankyou! It's so good to see other people's advice and thanks for sharing your situation with me! Smile
It's painful both inside and outside :/ It's a constant throbbing pain and is really sensitive to touch on the outside. I get cystitis a lot but its mostly pain during intercourse which is the worst! It just came on all of a sudden. I'm thankful for the gel at the minute for that even if its sore afterwards. How about you?

Molly_

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Re: New & feeling lost!

Post  tinkerbelle2 on Thu Dec 12, 2013 11:14 am

I have a constant stinging and burning of the opening of the vagina and around it and inside Sad jeans and tight trousers irritate me and I never wear thongs now - granny pants all the way! - This forum has been the best thing to come out of having this. Talking can be therapeutic! The girls on here have helped me out millions more than any 'healthcare professional'. It's nice to just have people there that care and show interest
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Re: New & feeling lost!

Post  Molly_ on Thu Dec 12, 2013 11:18 am

I hear you there! I always find cotton underwear being the best or sometimes none at all! It is nice! I've been reading every day, glad I found it too Smile just hoping the amitriptyline will help soon!

Molly_

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Re: New & feeling lost!

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