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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New & feeling lost!

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New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 3:43 pm

I'm 21 and have been suffering with vulvodynia for over 6 months now.
It started when i kept getting UTIs and cystitis frequently which I had become used to until I met my current partner and started experiencing really painful intercourse too.
I'd never had problems before and after visiting the doctors several times they told me nothing was wrong psychically. I decided to see a gynaecologist who then told me about vulvodynia. He put me on 10mg of amitriptyline for two months which made no difference. I was also given instillagel to use before sex which helps!
I've now been put on 25mg of amitriptyline and been told to be patient.... Wondering if anyone else has a successful amitriptyline story or any other helpful advice? I'm not too knowledgeable about it all!
Thanks! Smile

Molly_

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Re: New & feeling lost!

Post  Lms911 on Tue Dec 03, 2013 4:11 pm

I don't have much advice for you love but I'm in the same boat as you. This forum is wonderful for advise and help! Stay strong and praying for relief for us ALL!

Lms911

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 4:18 pm

Yeah I'm glad I'm not alone! Ill have a good look through for advice Smile thanks!

Molly_

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Re: New & feeling lost!

Post  mary jane on Tue Dec 03, 2013 4:57 pm

I'm on amitriptyline 50 mg at the moment, my pain was also triggered by a small infection (of the bartholin glands)....
it works for me right now, my pain went from 7/10 to a 2/10..however, mine is a nerve pain...
but at 10/20 mg it did nothing for me!

unfortunately, not everyone reacts the same. I tolerate it very well, but I know others are comatose from this drug....
then again, I am desperate and I would take anything to cope with daily school life.

anyway, just so you know, lyrica is a great drug (efficiency wise) for vulvodynia if ami does not work
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mary jane

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 6:00 pm

Glad its working for you! I'm hoping 25mg will work but if not ill have to ask about this lyrica Smile thanks for the help

Molly_

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Re: New & feeling lost!

Post  zarli on Tue Dec 03, 2013 11:06 pm

Please try Lyrica it works..and keep positive this forum is wonderful, read read read info on here Smile 

zarli

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Re: New & feeling lost!

Post  tinkerbelle2 on Sun Dec 08, 2013 8:18 pm

Hey Molly welcome to the forum! My vulvodynia also started after a bad urine infection, but there were also other things like being on antibiotics and starting the pill. I'm the same age as you. I have had it since I was 17 and I was so so sad and lost. Finding this forum has helped me so much! I also have a bit of relief with a numbing gel during sex and in general but it does burn the skin a bit at first and the effect wears off quickly. I was put on Gabapentin which I initially thought was helping but think the soreness was just lower coincidentally. What type of pain/irritation do you feel?
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tinkerbelle2

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 10, 2013 8:14 pm

Thankyou! It's so good to see other people's advice and thanks for sharing your situation with me! Smile
It's painful both inside and outside :/ It's a constant throbbing pain and is really sensitive to touch on the outside. I get cystitis a lot but its mostly pain during intercourse which is the worst! It just came on all of a sudden. I'm thankful for the gel at the minute for that even if its sore afterwards. How about you?

Molly_

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Re: New & feeling lost!

Post  tinkerbelle2 on Thu Dec 12, 2013 11:14 am

I have a constant stinging and burning of the opening of the vagina and around it and inside Sad jeans and tight trousers irritate me and I never wear thongs now - granny pants all the way! - This forum has been the best thing to come out of having this. Talking can be therapeutic! The girls on here have helped me out millions more than any 'healthcare professional'. It's nice to just have people there that care and show interest
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tinkerbelle2

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Re: New & feeling lost!

Post  Molly_ on Thu Dec 12, 2013 11:18 am

I hear you there! I always find cotton underwear being the best or sometimes none at all! It is nice! I've been reading every day, glad I found it too Smile just hoping the amitriptyline will help soon!

Molly_

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Re: New & feeling lost!

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