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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


New & feeling lost!

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New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 3:43 pm

I'm 21 and have been suffering with vulvodynia for over 6 months now.
It started when i kept getting UTIs and cystitis frequently which I had become used to until I met my current partner and started experiencing really painful intercourse too.
I'd never had problems before and after visiting the doctors several times they told me nothing was wrong psychically. I decided to see a gynaecologist who then told me about vulvodynia. He put me on 10mg of amitriptyline for two months which made no difference. I was also given instillagel to use before sex which helps!
I've now been put on 25mg of amitriptyline and been told to be patient.... Wondering if anyone else has a successful amitriptyline story or any other helpful advice? I'm not too knowledgeable about it all!
Thanks! Smile

Molly_

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Re: New & feeling lost!

Post  Lms911 on Tue Dec 03, 2013 4:11 pm

I don't have much advice for you love but I'm in the same boat as you. This forum is wonderful for advise and help! Stay strong and praying for relief for us ALL!

Lms911

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 4:18 pm

Yeah I'm glad I'm not alone! Ill have a good look through for advice Smile thanks!

Molly_

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Re: New & feeling lost!

Post  mary jane on Tue Dec 03, 2013 4:57 pm

I'm on amitriptyline 50 mg at the moment, my pain was also triggered by a small infection (of the bartholin glands)....
it works for me right now, my pain went from 7/10 to a 2/10..however, mine is a nerve pain...
but at 10/20 mg it did nothing for me!

unfortunately, not everyone reacts the same. I tolerate it very well, but I know others are comatose from this drug....
then again, I am desperate and I would take anything to cope with daily school life.

anyway, just so you know, lyrica is a great drug (efficiency wise) for vulvodynia if ami does not work
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mary jane

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 6:00 pm

Glad its working for you! I'm hoping 25mg will work but if not ill have to ask about this lyrica Smile thanks for the help

Molly_

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Re: New & feeling lost!

Post  zarli on Tue Dec 03, 2013 11:06 pm

Please try Lyrica it works..and keep positive this forum is wonderful, read read read info on here Smile 

zarli

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Re: New & feeling lost!

Post  tinkerbelle2 on Sun Dec 08, 2013 8:18 pm

Hey Molly welcome to the forum! My vulvodynia also started after a bad urine infection, but there were also other things like being on antibiotics and starting the pill. I'm the same age as you. I have had it since I was 17 and I was so so sad and lost. Finding this forum has helped me so much! I also have a bit of relief with a numbing gel during sex and in general but it does burn the skin a bit at first and the effect wears off quickly. I was put on Gabapentin which I initially thought was helping but think the soreness was just lower coincidentally. What type of pain/irritation do you feel?
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Re: New & feeling lost!

Post  Molly_ on Tue Dec 10, 2013 8:14 pm

Thankyou! It's so good to see other people's advice and thanks for sharing your situation with me! Smile
It's painful both inside and outside :/ It's a constant throbbing pain and is really sensitive to touch on the outside. I get cystitis a lot but its mostly pain during intercourse which is the worst! It just came on all of a sudden. I'm thankful for the gel at the minute for that even if its sore afterwards. How about you?

Molly_

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Re: New & feeling lost!

Post  tinkerbelle2 on Thu Dec 12, 2013 11:14 am

I have a constant stinging and burning of the opening of the vagina and around it and inside Sad jeans and tight trousers irritate me and I never wear thongs now - granny pants all the way! - This forum has been the best thing to come out of having this. Talking can be therapeutic! The girls on here have helped me out millions more than any 'healthcare professional'. It's nice to just have people there that care and show interest
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Re: New & feeling lost!

Post  Molly_ on Thu Dec 12, 2013 11:18 am

I hear you there! I always find cotton underwear being the best or sometimes none at all! It is nice! I've been reading every day, glad I found it too Smile just hoping the amitriptyline will help soon!

Molly_

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Re: New & feeling lost!

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