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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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New & feeling lost!

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New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 3:43 pm

I'm 21 and have been suffering with vulvodynia for over 6 months now.
It started when i kept getting UTIs and cystitis frequently which I had become used to until I met my current partner and started experiencing really painful intercourse too.
I'd never had problems before and after visiting the doctors several times they told me nothing was wrong psychically. I decided to see a gynaecologist who then told me about vulvodynia. He put me on 10mg of amitriptyline for two months which made no difference. I was also given instillagel to use before sex which helps!
I've now been put on 25mg of amitriptyline and been told to be patient.... Wondering if anyone else has a successful amitriptyline story or any other helpful advice? I'm not too knowledgeable about it all!
Thanks! Smile

Molly_

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Re: New & feeling lost!

Post  Lms911 on Tue Dec 03, 2013 4:11 pm

I don't have much advice for you love but I'm in the same boat as you. This forum is wonderful for advise and help! Stay strong and praying for relief for us ALL!

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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 4:18 pm

Yeah I'm glad I'm not alone! Ill have a good look through for advice Smile thanks!

Molly_

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Re: New & feeling lost!

Post  mary jane on Tue Dec 03, 2013 4:57 pm

I'm on amitriptyline 50 mg at the moment, my pain was also triggered by a small infection (of the bartholin glands)....
it works for me right now, my pain went from 7/10 to a 2/10..however, mine is a nerve pain...
but at 10/20 mg it did nothing for me!

unfortunately, not everyone reacts the same. I tolerate it very well, but I know others are comatose from this drug....
then again, I am desperate and I would take anything to cope with daily school life.

anyway, just so you know, lyrica is a great drug (efficiency wise) for vulvodynia if ami does not work
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Re: New & feeling lost!

Post  Molly_ on Tue Dec 03, 2013 6:00 pm

Glad its working for you! I'm hoping 25mg will work but if not ill have to ask about this lyrica Smile thanks for the help

Molly_

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Re: New & feeling lost!

Post  zarli on Tue Dec 03, 2013 11:06 pm

Please try Lyrica it works..and keep positive this forum is wonderful, read read read info on here Smile 

zarli

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Re: New & feeling lost!

Post  tinkerbelle2 on Sun Dec 08, 2013 8:18 pm

Hey Molly welcome to the forum! My vulvodynia also started after a bad urine infection, but there were also other things like being on antibiotics and starting the pill. I'm the same age as you. I have had it since I was 17 and I was so so sad and lost. Finding this forum has helped me so much! I also have a bit of relief with a numbing gel during sex and in general but it does burn the skin a bit at first and the effect wears off quickly. I was put on Gabapentin which I initially thought was helping but think the soreness was just lower coincidentally. What type of pain/irritation do you feel?
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Re: New & feeling lost!

Post  Molly_ on Tue Dec 10, 2013 8:14 pm

Thankyou! It's so good to see other people's advice and thanks for sharing your situation with me! Smile
It's painful both inside and outside :/ It's a constant throbbing pain and is really sensitive to touch on the outside. I get cystitis a lot but its mostly pain during intercourse which is the worst! It just came on all of a sudden. I'm thankful for the gel at the minute for that even if its sore afterwards. How about you?

Molly_

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Re: New & feeling lost!

Post  tinkerbelle2 on Thu Dec 12, 2013 11:14 am

I have a constant stinging and burning of the opening of the vagina and around it and inside Sad jeans and tight trousers irritate me and I never wear thongs now - granny pants all the way! - This forum has been the best thing to come out of having this. Talking can be therapeutic! The girls on here have helped me out millions more than any 'healthcare professional'. It's nice to just have people there that care and show interest
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Re: New & feeling lost!

Post  Molly_ on Thu Dec 12, 2013 11:18 am

I hear you there! I always find cotton underwear being the best or sometimes none at all! It is nice! I've been reading every day, glad I found it too Smile just hoping the amitriptyline will help soon!

Molly_

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Re: New & feeling lost!

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