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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Need advice on treatments/cures

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Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 2:29 am

Hello! I am new to this site, I am 25 and was diagnosed with Vulvodynia about a year ago. I've only done the lidocaine treatment and I hate it. It's messy and I forget to apply it twice a day. I have never been able to have pain-free sex or orgasm with a man and it is seriously affecting my life. My last boyfriend and I couldn't have sex because I would cry. I haven't had a boyfriend or a successful sexual partner since. I have internal burning that isn't excruciating, but it's enough to make me not enjoy sex. It has seriously affected my relationships, and I consistently turn away from men I care about because I am too scared to let them get close. I also have pain because I'm really tight (sorry for the information!) and I do have trouble getting wet (eek! sorry again!) so sex is just brutal for me in so many ways. I really want to cure this and I refuse to accept the notion that I just have to live with it for the rest of my life. I am going to make a chiropractor appointment and see about acupuncture, does anyone else have any tips or supportive comments? It's so hard to not feel alone even though I know there are so many of us out there! This is the first time I've reached out so hopefully we can all help each other through this horrible battle!

Thanks in advice for all the help and comments Smile


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Re: Need advice on treatments/cures

Post  Alana3 on Thu Dec 05, 2013 2:39 am

Awww dont worry not all men are like that but I felt the same. My boyfriend came to my appointment with me yesterday (tho it was for an infection not v) but after I freaked he reassured me and said "its just sex calm down". And we'll work thru it together..my point being not all men are idiots. Have you considered physical therapy to work on your muscles (tightness) and try some good lube-astroglide is my favorite. Hope I may have helped a little bit... where are you from?


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Re: Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 3:04 am

That's so great that you have a supportive boyfriend Smile I know there are sweet guys out there, it's just so hard to figure out how to bring it up. I haven't considered physical therapy but it is definitely something I would look into. I'm from Canada! It's cold! Razz I have tried lubes before but I feel like a lot of them just dry me out more. My doctor recommended Replens but that didn't work for me, although I may try it again. I will try out the Astroglide and see how it works Smile Thank you so much, it feels good to just talk about everything!


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I feel ya

Post  21andcounting on Thu Dec 05, 2013 6:03 am


I'm in a similar situation. I have a lot of burning during sex, not to the point where it is unbearable or excruciating, but enough so that it is not enjoyable and actually a pretty bad experience. I've tried the numbing cream too without success. Some other treatments i've tried have been PT (which isn't as useful for the burning pain, more useful for people who's defensive muscle contractions cause their pain or inability to have sex), Lyrica (anticonvulsant used for nerve pain), and other topical creams (estrogen testosterone creams). None of those worked for me so now i'm getting a vulvar vestibulectomy and really hopeful that it will be the cure I am looking for. Feel free to message me if you want any more info on some of these other treatments!


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Re: Need advice on treatments/cures

Post  tinkerbelle2 on Sat Dec 07, 2013 12:31 pm

Hey babe, you aren't ever alone believe me! We are all here for you. I also have the internal burning which randomly worsens. If it's at its lowest sex is possible and borders on good, if it's like high I would not let anything near me down there!

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Re: Need advice on treatments/cures

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