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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Need advice on treatments/cures

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Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 2:29 am

Hello! I am new to this site, I am 25 and was diagnosed with Vulvodynia about a year ago. I've only done the lidocaine treatment and I hate it. It's messy and I forget to apply it twice a day. I have never been able to have pain-free sex or orgasm with a man and it is seriously affecting my life. My last boyfriend and I couldn't have sex because I would cry. I haven't had a boyfriend or a successful sexual partner since. I have internal burning that isn't excruciating, but it's enough to make me not enjoy sex. It has seriously affected my relationships, and I consistently turn away from men I care about because I am too scared to let them get close. I also have pain because I'm really tight (sorry for the information!) and I do have trouble getting wet (eek! sorry again!) so sex is just brutal for me in so many ways. I really want to cure this and I refuse to accept the notion that I just have to live with it for the rest of my life. I am going to make a chiropractor appointment and see about acupuncture, does anyone else have any tips or supportive comments? It's so hard to not feel alone even though I know there are so many of us out there! This is the first time I've reached out so hopefully we can all help each other through this horrible battle!

Thanks in advice for all the help and comments Smile


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Re: Need advice on treatments/cures

Post  Alana3 on Thu Dec 05, 2013 2:39 am

Awww dont worry not all men are like that but I felt the same. My boyfriend came to my appointment with me yesterday (tho it was for an infection not v) but after I freaked he reassured me and said "its just sex calm down". And we'll work thru it together..my point being not all men are idiots. Have you considered physical therapy to work on your muscles (tightness) and try some good lube-astroglide is my favorite. Hope I may have helped a little bit... where are you from?


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Re: Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 3:04 am

That's so great that you have a supportive boyfriend Smile I know there are sweet guys out there, it's just so hard to figure out how to bring it up. I haven't considered physical therapy but it is definitely something I would look into. I'm from Canada! It's cold! Razz I have tried lubes before but I feel like a lot of them just dry me out more. My doctor recommended Replens but that didn't work for me, although I may try it again. I will try out the Astroglide and see how it works Smile Thank you so much, it feels good to just talk about everything!


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I feel ya

Post  21andcounting on Thu Dec 05, 2013 6:03 am


I'm in a similar situation. I have a lot of burning during sex, not to the point where it is unbearable or excruciating, but enough so that it is not enjoyable and actually a pretty bad experience. I've tried the numbing cream too without success. Some other treatments i've tried have been PT (which isn't as useful for the burning pain, more useful for people who's defensive muscle contractions cause their pain or inability to have sex), Lyrica (anticonvulsant used for nerve pain), and other topical creams (estrogen testosterone creams). None of those worked for me so now i'm getting a vulvar vestibulectomy and really hopeful that it will be the cure I am looking for. Feel free to message me if you want any more info on some of these other treatments!


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Re: Need advice on treatments/cures

Post  tinkerbelle2 on Sat Dec 07, 2013 12:31 pm

Hey babe, you aren't ever alone believe me! We are all here for you. I also have the internal burning which randomly worsens. If it's at its lowest sex is possible and borders on good, if it's like high I would not let anything near me down there!

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Re: Need advice on treatments/cures

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