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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Need advice on treatments/cures

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Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 2:29 am

Hello! I am new to this site, I am 25 and was diagnosed with Vulvodynia about a year ago. I've only done the lidocaine treatment and I hate it. It's messy and I forget to apply it twice a day. I have never been able to have pain-free sex or orgasm with a man and it is seriously affecting my life. My last boyfriend and I couldn't have sex because I would cry. I haven't had a boyfriend or a successful sexual partner since. I have internal burning that isn't excruciating, but it's enough to make me not enjoy sex. It has seriously affected my relationships, and I consistently turn away from men I care about because I am too scared to let them get close. I also have pain because I'm really tight (sorry for the information!) and I do have trouble getting wet (eek! sorry again!) so sex is just brutal for me in so many ways. I really want to cure this and I refuse to accept the notion that I just have to live with it for the rest of my life. I am going to make a chiropractor appointment and see about acupuncture, does anyone else have any tips or supportive comments? It's so hard to not feel alone even though I know there are so many of us out there! This is the first time I've reached out so hopefully we can all help each other through this horrible battle!

Thanks in advice for all the help and comments Smile


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Re: Need advice on treatments/cures

Post  Alana3 on Thu Dec 05, 2013 2:39 am

Awww dont worry not all men are like that but I felt the same. My boyfriend came to my appointment with me yesterday (tho it was for an infection not v) but after I freaked he reassured me and said "its just sex calm down". And we'll work thru it together..my point being not all men are idiots. Have you considered physical therapy to work on your muscles (tightness) and try some good lube-astroglide is my favorite. Hope I may have helped a little bit... where are you from?


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Re: Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 3:04 am

That's so great that you have a supportive boyfriend Smile I know there are sweet guys out there, it's just so hard to figure out how to bring it up. I haven't considered physical therapy but it is definitely something I would look into. I'm from Canada! It's cold! Razz I have tried lubes before but I feel like a lot of them just dry me out more. My doctor recommended Replens but that didn't work for me, although I may try it again. I will try out the Astroglide and see how it works Smile Thank you so much, it feels good to just talk about everything!


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I feel ya

Post  21andcounting on Thu Dec 05, 2013 6:03 am


I'm in a similar situation. I have a lot of burning during sex, not to the point where it is unbearable or excruciating, but enough so that it is not enjoyable and actually a pretty bad experience. I've tried the numbing cream too without success. Some other treatments i've tried have been PT (which isn't as useful for the burning pain, more useful for people who's defensive muscle contractions cause their pain or inability to have sex), Lyrica (anticonvulsant used for nerve pain), and other topical creams (estrogen testosterone creams). None of those worked for me so now i'm getting a vulvar vestibulectomy and really hopeful that it will be the cure I am looking for. Feel free to message me if you want any more info on some of these other treatments!


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Re: Need advice on treatments/cures

Post  tinkerbelle2 on Sat Dec 07, 2013 12:31 pm

Hey babe, you aren't ever alone believe me! We are all here for you. I also have the internal burning which randomly worsens. If it's at its lowest sex is possible and borders on good, if it's like high I would not let anything near me down there!

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Re: Need advice on treatments/cures

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