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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Need advice on treatments/cures

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Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 2:29 am

Hello! I am new to this site, I am 25 and was diagnosed with Vulvodynia about a year ago. I've only done the lidocaine treatment and I hate it. It's messy and I forget to apply it twice a day. I have never been able to have pain-free sex or orgasm with a man and it is seriously affecting my life. My last boyfriend and I couldn't have sex because I would cry. I haven't had a boyfriend or a successful sexual partner since. I have internal burning that isn't excruciating, but it's enough to make me not enjoy sex. It has seriously affected my relationships, and I consistently turn away from men I care about because I am too scared to let them get close. I also have pain because I'm really tight (sorry for the information!) and I do have trouble getting wet (eek! sorry again!) so sex is just brutal for me in so many ways. I really want to cure this and I refuse to accept the notion that I just have to live with it for the rest of my life. I am going to make a chiropractor appointment and see about acupuncture, does anyone else have any tips or supportive comments? It's so hard to not feel alone even though I know there are so many of us out there! This is the first time I've reached out so hopefully we can all help each other through this horrible battle!

Thanks in advice for all the help and comments Smile

young.sufferer

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Re: Need advice on treatments/cures

Post  Alana3 on Thu Dec 05, 2013 2:39 am

Awww dont worry not all men are like that but I felt the same. My boyfriend came to my appointment with me yesterday (tho it was for an infection not v) but after I freaked he reassured me and said "its just sex calm down". And we'll work thru it together..my point being not all men are idiots. Have you considered physical therapy to work on your muscles (tightness) and try some good lube-astroglide is my favorite. Hope I may have helped a little bit... where are you from?

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Re: Need advice on treatments/cures

Post  young.sufferer on Thu Dec 05, 2013 3:04 am

That's so great that you have a supportive boyfriend Smile I know there are sweet guys out there, it's just so hard to figure out how to bring it up. I haven't considered physical therapy but it is definitely something I would look into. I'm from Canada! It's cold! Razz I have tried lubes before but I feel like a lot of them just dry me out more. My doctor recommended Replens but that didn't work for me, although I may try it again. I will try out the Astroglide and see how it works Smile Thank you so much, it feels good to just talk about everything!

young.sufferer

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I feel ya

Post  21andcounting on Thu Dec 05, 2013 6:03 am

Hi!

I'm in a similar situation. I have a lot of burning during sex, not to the point where it is unbearable or excruciating, but enough so that it is not enjoyable and actually a pretty bad experience. I've tried the numbing cream too without success. Some other treatments i've tried have been PT (which isn't as useful for the burning pain, more useful for people who's defensive muscle contractions cause their pain or inability to have sex), Lyrica (anticonvulsant used for nerve pain), and other topical creams (estrogen testosterone creams). None of those worked for me so now i'm getting a vulvar vestibulectomy and really hopeful that it will be the cure I am looking for. Feel free to message me if you want any more info on some of these other treatments!

21andcounting

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Re: Need advice on treatments/cures

Post  tinkerbelle2 on Sat Dec 07, 2013 12:31 pm

Hey babe, you aren't ever alone believe me! We are all here for you. I also have the internal burning which randomly worsens. If it's at its lowest sex is possible and borders on good, if it's like high I would not let anything near me down there!
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Re: Need advice on treatments/cures

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