Vulvodynia Support
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» Hope to all my suffering ladies
Advice for a friend EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Advice for a friend EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Advice for a friend EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Advice for a friend EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Advice for a friend EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Advice for a friend EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Advice for a friend EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Advice for a friend EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Advice for a friend EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Advice for a friend

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Post  Elc88 Sun Dec 08, 2013 9:14 pm

I thought this might be a good place to ask, to try and draw from a wide pool of knowledge and experience. I feel like I've spent so much of the last 4 years researching problems in that part of the body, that I am sad I can't think to suggest anything to a friend who is also suffering from problems in one of our favourite areas!

My friend suffers from recurring UTI's every time she has intercourse, apparently every single time. Various tests show nothing, and several doctors say there is nothing that can be done. She seems to have accepted their diagnosis, as it's come from several different doctors.

My personal experience with doctors is that they often lack understanding about that part of the body, and I'm not entirely convinced they don't just think it doesn't matter because it's not a part of the body others can see, it's not killing us and it's not like it's stopping us from living our lives...

Anyway, I just wanted to ask. As I say, she gets a UTI every time, I don't know what tests she's had, but I'm scratching my head to think what might cause a UTI. Are there any others who've experienced this?

Elc88

Posts : 55
Join date : 2013-07-20

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Post  alessandria Sun Dec 08, 2013 9:53 pm

If nothing has shown up positive on a urine culture, she should probably try to get a referral to a urogynecologist. UTIs tend to make themselves known in a few different ways, such that it'd be pretty hard to get a false negative. To me, I'd be concerned that this is interstitial cystitis rather than UTIs. IC can feel exactly like a UTI, and flares can definitely be provoked by sex (it isn't a condition I have, but I've read a lot about it and there are a few sufferers on this forum). Has she been worked up for IC yet? Best of luck to your friend!

alessandria

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Join date : 2013-12-07

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Post  Alana3 Mon Dec 09, 2013 12:56 am

It's called honeymoon cystitis and can be prevented by taking a low dose antibiotic before sex . Also she may wanna look into IC... tell her to go to a urologist

Alana3

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Post  Leslieg Mon Dec 09, 2013 3:14 am

My sister has this issue. It started when she started to date her current boyfriend.  She had a workup  done and nothing showed up.  Like Alana said, her doctor gave her a low dose antibiotic and she takes a pill each time she has intercourse.  She's been with him a while now and she thinks her body has adjusted to him and hopes to be able to stop taking them. Is your friend drinking lots of water and peeing right after sex?

Leslieg

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Post  Alana3 Mon Dec 09, 2013 2:13 pm

And you should always pee after sex

Alana3

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Post  Elc88 Mon Dec 09, 2013 9:12 pm

Thanks for the suggestions guys - I'm afraid I don't know any more than I've said, I'd just like to be able to suggest something to her the next time I see her. I know how frustrating these problems are, and if there's anything I can suggest to stop someone else I know from having to put up with it, I want to investigate it.

I did wonder about cycstitis, but couldn't remember its name to ask if she'd been checked. She said she takes some over the counter antibiotic/product soon after, but sometimes doesn't get it in time, so it sounds like taking a pill before will help her. I will definitely suggest that one!

Thanks again!

Elc88

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Post  aspaceodyssey Mon Dec 09, 2013 9:24 pm

I had this problem when I was regularly having sex. for me, drinking carbonated beverages (particularly soda) in the same time frame as sex would cause a UTI, so once I was careful about cutting back on soda the problem improved greatly. d-mannose powder is a good natural remedy and preventative for them, but that's assuming she's getting an actual infection. if it's something like interstitial cystitis I don't know if it would still help...hopefully she can find a way to avoid taking antibiotics constantly, because that really does a number on you.  Neutral 

aspaceodyssey

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