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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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skin tearing

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skin tearing

Post  Delilah1 on Sun Dec 08, 2013 2:24 am

It seems my skin has become much more fragile since having V. There is a small tear or fissure at 6 oclock. Has anyone else experienced this and do you have any advice on how to heal or prevent it?

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Re: skin tearing

Post  Alana3 on Sun Dec 08, 2013 3:58 am

Yes but I also had a cervical infection and.yeast it.only happened when I had sex. If it.happens when youre having sex make sure lube and lots of it. And make sure you dont have any infections!

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Re: skin tearing

Post  Leslieg on Sun Dec 08, 2013 2:37 pm

I get this too with sex.  My doctor recommended Slippery stuff and PT.  she said she thinks I'm tensing up during sex w/out realizing it causing skin tears.  I've had a few sessions w/ PT but started to have increased nerve-like symptoms.  Scared me so I stopped doing exercises.  I'm not sold on PT yet in my case.  I think my skin is tearing due to inflammation that I'm not able to control yet.  I'm currently experimenting with different soaps and started a probiotic.  Waiting game now.  Also, just got my slippery stuff.....haven't tried it yet Smile
I worry about the scar tissue from the tears. :/
xo

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Re: skin tearing

Post  meelie on Mon Dec 09, 2013 9:36 pm

Don't give up on PT if the PT says you are tight. My PT explained to me that sometimes it makes things worse right after a session and sure enough some times the next day is horrible but then in the end the intensity is less. Some sessions don't cause it to get worse and I don't feel a difference. Don't give up though if PT has diagnosed you with pelvic floor dysfunction.

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Re: skin tearing

Post  Delilah1 on Mon Dec 09, 2013 10:52 pm

Thanks ladies. Can you recommend a lube that is not irritating?

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Re: skin tearing

Post  Alana3 on Mon Dec 09, 2013 11:35 pm

Astroglide works for me

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 1:26 am

Yes is wonderful so natural feeling. On internet, comes from UK or you can get it from Amazon.

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Re: skin tearing

Post  Leslieg on Tue Dec 10, 2013 1:43 pm

I've used "Yes" too , it's good. My dr recommended "Slippery Stuff". I just got it from Amazon. Haven't tried it yet.

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 7:15 pm

Let us know how the "slippery stuff" works.

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Re: skin tearing

Post  Leslieg on Thu Jan 02, 2014 3:48 pm

"slippery stuff" is nice, feels natural. I think I like it a bit more than "yes" but I'll keep experimenting as best I can Smile.
I still get a tear at 6 o'clock despite the lubrication. It's starting to freak me out. Sad
I don't like to post negative things but I guess I need to vent today. You would think the coping aspect of this would get easier over the years but I feel like my abilities to cope are getting weaker and weaker. It almost feels like desperation. I have 2 small children and the distraction of this is breaking my heart. I wish I could crawl into bed today and stay there.
I am struggling to understand. I realize I have skin sensitivities to products but there must be something missing. I am better in some ways and worse in others. The puzzle is mind boggling and the fear of products, food, sex, clothing is to the point of ridiculous.
The tearing during sex triggered all of this negativity today. I am sorry to pass it on.
Has anyone had healing of these tears? I pray the skin will heal.

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Re: skin tearing

Post  Alana3 on Thu Jan 02, 2014 5:23 pm

Use a ton of lube my bf and I will put more on as it starts to dry... also there is a surgery they can do to prevent u from tearing. Look into any bcps or condoms your using too. Condoms can be very irritating I did away with them cuz they irritated me so much. But im also in a committed relationship so I don't recommend that if youre not exclusive (I always used them until recently).

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Re: skin tearing

Post  zarli on Sat Jan 04, 2014 6:49 am

Dear Leslieg
Yes its ok to vent negative feelings on here, if you can't vent them on here where can you?

I am in complete agreement with every thing you said. It must be so hard having 2 young children and having 'V'. Mine are all young adults so it is easier for me. I am now going into my seventh year of living with vulvodynia and my resilience to it is ever decreasing. I try to always be positive but I feel it is our right to be able to have a rant too.

Vulvodynia rules my life plain and simple. I forget what I used to feel like before it. What is normal ??
I am actually having a tear writing this as I am at the point of , What do I try next ??

Any way I think you are doing an awesome job having this condition and raising 2 children, give your self a mighty pat on the back.

I use olive oil for lubrication and when I am starting to feel dry and tight down there....I haven't ever torn but I have always used olive oil even before Vulvodynia so maybe that's helped. I am premenopausal and feel like I am getting dryer so the olive oil helps me. Another great cream is bepanthon it is a nappy rash cream and acts like a barrier maybe you could try that.

Much Love sent your way xxx Z

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Re: skin tearing

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