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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


skin tearing

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skin tearing

Post  Delilah1 on Sun Dec 08, 2013 2:24 am

It seems my skin has become much more fragile since having V. There is a small tear or fissure at 6 oclock. Has anyone else experienced this and do you have any advice on how to heal or prevent it?

Delilah1

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Re: skin tearing

Post  Alana3 on Sun Dec 08, 2013 3:58 am

Yes but I also had a cervical infection and.yeast it.only happened when I had sex. If it.happens when youre having sex make sure lube and lots of it. And make sure you dont have any infections!

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Re: skin tearing

Post  Leslieg on Sun Dec 08, 2013 2:37 pm

I get this too with sex.  My doctor recommended Slippery stuff and PT.  she said she thinks I'm tensing up during sex w/out realizing it causing skin tears.  I've had a few sessions w/ PT but started to have increased nerve-like symptoms.  Scared me so I stopped doing exercises.  I'm not sold on PT yet in my case.  I think my skin is tearing due to inflammation that I'm not able to control yet.  I'm currently experimenting with different soaps and started a probiotic.  Waiting game now.  Also, just got my slippery stuff.....haven't tried it yet Smile
I worry about the scar tissue from the tears. :/
xo

Leslieg

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Re: skin tearing

Post  meelie on Mon Dec 09, 2013 9:36 pm

Don't give up on PT if the PT says you are tight. My PT explained to me that sometimes it makes things worse right after a session and sure enough some times the next day is horrible but then in the end the intensity is less. Some sessions don't cause it to get worse and I don't feel a difference. Don't give up though if PT has diagnosed you with pelvic floor dysfunction.

meelie

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Re: skin tearing

Post  Delilah1 on Mon Dec 09, 2013 10:52 pm

Thanks ladies. Can you recommend a lube that is not irritating?

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Re: skin tearing

Post  Alana3 on Mon Dec 09, 2013 11:35 pm

Astroglide works for me

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 1:26 am

Yes is wonderful so natural feeling. On internet, comes from UK or you can get it from Amazon.

meelie

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Re: skin tearing

Post  Leslieg on Tue Dec 10, 2013 1:43 pm

I've used "Yes" too , it's good. My dr recommended "Slippery Stuff". I just got it from Amazon. Haven't tried it yet.

Leslieg

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 7:15 pm

Let us know how the "slippery stuff" works.

meelie

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Re: skin tearing

Post  Leslieg on Thu Jan 02, 2014 3:48 pm

"slippery stuff" is nice, feels natural. I think I like it a bit more than "yes" but I'll keep experimenting as best I can Smile.
I still get a tear at 6 o'clock despite the lubrication. It's starting to freak me out. Sad
I don't like to post negative things but I guess I need to vent today. You would think the coping aspect of this would get easier over the years but I feel like my abilities to cope are getting weaker and weaker. It almost feels like desperation. I have 2 small children and the distraction of this is breaking my heart. I wish I could crawl into bed today and stay there.
I am struggling to understand. I realize I have skin sensitivities to products but there must be something missing. I am better in some ways and worse in others. The puzzle is mind boggling and the fear of products, food, sex, clothing is to the point of ridiculous.
The tearing during sex triggered all of this negativity today. I am sorry to pass it on.
Has anyone had healing of these tears? I pray the skin will heal.

Leslieg

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Re: skin tearing

Post  Alana3 on Thu Jan 02, 2014 5:23 pm

Use a ton of lube my bf and I will put more on as it starts to dry... also there is a surgery they can do to prevent u from tearing. Look into any bcps or condoms your using too. Condoms can be very irritating I did away with them cuz they irritated me so much. But im also in a committed relationship so I don't recommend that if youre not exclusive (I always used them until recently).

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Re: skin tearing

Post  zarli on Sat Jan 04, 2014 6:49 am

Dear Leslieg
Yes its ok to vent negative feelings on here, if you can't vent them on here where can you?

I am in complete agreement with every thing you said. It must be so hard having 2 young children and having 'V'. Mine are all young adults so it is easier for me. I am now going into my seventh year of living with vulvodynia and my resilience to it is ever decreasing. I try to always be positive but I feel it is our right to be able to have a rant too.

Vulvodynia rules my life plain and simple. I forget what I used to feel like before it. What is normal ??
I am actually having a tear writing this as I am at the point of , What do I try next ??

Any way I think you are doing an awesome job having this condition and raising 2 children, give your self a mighty pat on the back.

I use olive oil for lubrication and when I am starting to feel dry and tight down there....I haven't ever torn but I have always used olive oil even before Vulvodynia so maybe that's helped. I am premenopausal and feel like I am getting dryer so the olive oil helps me. Another great cream is bepanthon it is a nappy rash cream and acts like a barrier maybe you could try that.

Much Love sent your way xxx Z

zarli

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Re: skin tearing

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