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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


skin tearing

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skin tearing

Post  Delilah1 on Sun Dec 08, 2013 2:24 am

It seems my skin has become much more fragile since having V. There is a small tear or fissure at 6 oclock. Has anyone else experienced this and do you have any advice on how to heal or prevent it?

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Re: skin tearing

Post  Alana3 on Sun Dec 08, 2013 3:58 am

Yes but I also had a cervical infection and.yeast it.only happened when I had sex. If it.happens when youre having sex make sure lube and lots of it. And make sure you dont have any infections!

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Re: skin tearing

Post  Leslieg on Sun Dec 08, 2013 2:37 pm

I get this too with sex.  My doctor recommended Slippery stuff and PT.  she said she thinks I'm tensing up during sex w/out realizing it causing skin tears.  I've had a few sessions w/ PT but started to have increased nerve-like symptoms.  Scared me so I stopped doing exercises.  I'm not sold on PT yet in my case.  I think my skin is tearing due to inflammation that I'm not able to control yet.  I'm currently experimenting with different soaps and started a probiotic.  Waiting game now.  Also, just got my slippery stuff.....haven't tried it yet Smile
I worry about the scar tissue from the tears. :/
xo

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Re: skin tearing

Post  meelie on Mon Dec 09, 2013 9:36 pm

Don't give up on PT if the PT says you are tight. My PT explained to me that sometimes it makes things worse right after a session and sure enough some times the next day is horrible but then in the end the intensity is less. Some sessions don't cause it to get worse and I don't feel a difference. Don't give up though if PT has diagnosed you with pelvic floor dysfunction.

meelie

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Re: skin tearing

Post  Delilah1 on Mon Dec 09, 2013 10:52 pm

Thanks ladies. Can you recommend a lube that is not irritating?

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Re: skin tearing

Post  Alana3 on Mon Dec 09, 2013 11:35 pm

Astroglide works for me

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 1:26 am

Yes is wonderful so natural feeling. On internet, comes from UK or you can get it from Amazon.

meelie

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Re: skin tearing

Post  Leslieg on Tue Dec 10, 2013 1:43 pm

I've used "Yes" too , it's good. My dr recommended "Slippery Stuff". I just got it from Amazon. Haven't tried it yet.

Leslieg

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 7:15 pm

Let us know how the "slippery stuff" works.

meelie

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Re: skin tearing

Post  Leslieg on Thu Jan 02, 2014 3:48 pm

"slippery stuff" is nice, feels natural. I think I like it a bit more than "yes" but I'll keep experimenting as best I can Smile.
I still get a tear at 6 o'clock despite the lubrication. It's starting to freak me out. Sad
I don't like to post negative things but I guess I need to vent today. You would think the coping aspect of this would get easier over the years but I feel like my abilities to cope are getting weaker and weaker. It almost feels like desperation. I have 2 small children and the distraction of this is breaking my heart. I wish I could crawl into bed today and stay there.
I am struggling to understand. I realize I have skin sensitivities to products but there must be something missing. I am better in some ways and worse in others. The puzzle is mind boggling and the fear of products, food, sex, clothing is to the point of ridiculous.
The tearing during sex triggered all of this negativity today. I am sorry to pass it on.
Has anyone had healing of these tears? I pray the skin will heal.

Leslieg

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Re: skin tearing

Post  Alana3 on Thu Jan 02, 2014 5:23 pm

Use a ton of lube my bf and I will put more on as it starts to dry... also there is a surgery they can do to prevent u from tearing. Look into any bcps or condoms your using too. Condoms can be very irritating I did away with them cuz they irritated me so much. But im also in a committed relationship so I don't recommend that if youre not exclusive (I always used them until recently).

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Re: skin tearing

Post  zarli on Sat Jan 04, 2014 6:49 am

Dear Leslieg
Yes its ok to vent negative feelings on here, if you can't vent them on here where can you?

I am in complete agreement with every thing you said. It must be so hard having 2 young children and having 'V'. Mine are all young adults so it is easier for me. I am now going into my seventh year of living with vulvodynia and my resilience to it is ever decreasing. I try to always be positive but I feel it is our right to be able to have a rant too.

Vulvodynia rules my life plain and simple. I forget what I used to feel like before it. What is normal ??
I am actually having a tear writing this as I am at the point of , What do I try next ??

Any way I think you are doing an awesome job having this condition and raising 2 children, give your self a mighty pat on the back.

I use olive oil for lubrication and when I am starting to feel dry and tight down there....I haven't ever torn but I have always used olive oil even before Vulvodynia so maybe that's helped. I am premenopausal and feel like I am getting dryer so the olive oil helps me. Another great cream is bepanthon it is a nappy rash cream and acts like a barrier maybe you could try that.

Much Love sent your way xxx Z

zarli

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Re: skin tearing

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