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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


skin tearing

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skin tearing

Post  Delilah1 on Sun Dec 08, 2013 2:24 am

It seems my skin has become much more fragile since having V. There is a small tear or fissure at 6 oclock. Has anyone else experienced this and do you have any advice on how to heal or prevent it?

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Re: skin tearing

Post  Alana3 on Sun Dec 08, 2013 3:58 am

Yes but I also had a cervical infection and.yeast it.only happened when I had sex. If it.happens when youre having sex make sure lube and lots of it. And make sure you dont have any infections!

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Re: skin tearing

Post  Leslieg on Sun Dec 08, 2013 2:37 pm

I get this too with sex.  My doctor recommended Slippery stuff and PT.  she said she thinks I'm tensing up during sex w/out realizing it causing skin tears.  I've had a few sessions w/ PT but started to have increased nerve-like symptoms.  Scared me so I stopped doing exercises.  I'm not sold on PT yet in my case.  I think my skin is tearing due to inflammation that I'm not able to control yet.  I'm currently experimenting with different soaps and started a probiotic.  Waiting game now.  Also, just got my slippery stuff.....haven't tried it yet Smile
I worry about the scar tissue from the tears. :/
xo

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Re: skin tearing

Post  meelie on Mon Dec 09, 2013 9:36 pm

Don't give up on PT if the PT says you are tight. My PT explained to me that sometimes it makes things worse right after a session and sure enough some times the next day is horrible but then in the end the intensity is less. Some sessions don't cause it to get worse and I don't feel a difference. Don't give up though if PT has diagnosed you with pelvic floor dysfunction.

meelie

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Re: skin tearing

Post  Delilah1 on Mon Dec 09, 2013 10:52 pm

Thanks ladies. Can you recommend a lube that is not irritating?

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Re: skin tearing

Post  Alana3 on Mon Dec 09, 2013 11:35 pm

Astroglide works for me

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 1:26 am

Yes is wonderful so natural feeling. On internet, comes from UK or you can get it from Amazon.

meelie

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Re: skin tearing

Post  Leslieg on Tue Dec 10, 2013 1:43 pm

I've used "Yes" too , it's good. My dr recommended "Slippery Stuff". I just got it from Amazon. Haven't tried it yet.

Leslieg

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 7:15 pm

Let us know how the "slippery stuff" works.

meelie

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Re: skin tearing

Post  Leslieg on Thu Jan 02, 2014 3:48 pm

"slippery stuff" is nice, feels natural. I think I like it a bit more than "yes" but I'll keep experimenting as best I can Smile.
I still get a tear at 6 o'clock despite the lubrication. It's starting to freak me out. Sad
I don't like to post negative things but I guess I need to vent today. You would think the coping aspect of this would get easier over the years but I feel like my abilities to cope are getting weaker and weaker. It almost feels like desperation. I have 2 small children and the distraction of this is breaking my heart. I wish I could crawl into bed today and stay there.
I am struggling to understand. I realize I have skin sensitivities to products but there must be something missing. I am better in some ways and worse in others. The puzzle is mind boggling and the fear of products, food, sex, clothing is to the point of ridiculous.
The tearing during sex triggered all of this negativity today. I am sorry to pass it on.
Has anyone had healing of these tears? I pray the skin will heal.

Leslieg

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Re: skin tearing

Post  Alana3 on Thu Jan 02, 2014 5:23 pm

Use a ton of lube my bf and I will put more on as it starts to dry... also there is a surgery they can do to prevent u from tearing. Look into any bcps or condoms your using too. Condoms can be very irritating I did away with them cuz they irritated me so much. But im also in a committed relationship so I don't recommend that if youre not exclusive (I always used them until recently).

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Re: skin tearing

Post  zarli on Sat Jan 04, 2014 6:49 am

Dear Leslieg
Yes its ok to vent negative feelings on here, if you can't vent them on here where can you?

I am in complete agreement with every thing you said. It must be so hard having 2 young children and having 'V'. Mine are all young adults so it is easier for me. I am now going into my seventh year of living with vulvodynia and my resilience to it is ever decreasing. I try to always be positive but I feel it is our right to be able to have a rant too.

Vulvodynia rules my life plain and simple. I forget what I used to feel like before it. What is normal ??
I am actually having a tear writing this as I am at the point of , What do I try next ??

Any way I think you are doing an awesome job having this condition and raising 2 children, give your self a mighty pat on the back.

I use olive oil for lubrication and when I am starting to feel dry and tight down there....I haven't ever torn but I have always used olive oil even before Vulvodynia so maybe that's helped. I am premenopausal and feel like I am getting dryer so the olive oil helps me. Another great cream is bepanthon it is a nappy rash cream and acts like a barrier maybe you could try that.

Much Love sent your way xxx Z

zarli

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Re: skin tearing

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