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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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skin tearing

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skin tearing

Post  Delilah1 on Sun Dec 08, 2013 2:24 am

It seems my skin has become much more fragile since having V. There is a small tear or fissure at 6 oclock. Has anyone else experienced this and do you have any advice on how to heal or prevent it?

Delilah1

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Re: skin tearing

Post  Alana3 on Sun Dec 08, 2013 3:58 am

Yes but I also had a cervical infection and.yeast it.only happened when I had sex. If it.happens when youre having sex make sure lube and lots of it. And make sure you dont have any infections!

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Re: skin tearing

Post  Leslieg on Sun Dec 08, 2013 2:37 pm

I get this too with sex.  My doctor recommended Slippery stuff and PT.  she said she thinks I'm tensing up during sex w/out realizing it causing skin tears.  I've had a few sessions w/ PT but started to have increased nerve-like symptoms.  Scared me so I stopped doing exercises.  I'm not sold on PT yet in my case.  I think my skin is tearing due to inflammation that I'm not able to control yet.  I'm currently experimenting with different soaps and started a probiotic.  Waiting game now.  Also, just got my slippery stuff.....haven't tried it yet Smile
I worry about the scar tissue from the tears. :/
xo

Leslieg

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Re: skin tearing

Post  meelie on Mon Dec 09, 2013 9:36 pm

Don't give up on PT if the PT says you are tight. My PT explained to me that sometimes it makes things worse right after a session and sure enough some times the next day is horrible but then in the end the intensity is less. Some sessions don't cause it to get worse and I don't feel a difference. Don't give up though if PT has diagnosed you with pelvic floor dysfunction.

meelie

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Re: skin tearing

Post  Delilah1 on Mon Dec 09, 2013 10:52 pm

Thanks ladies. Can you recommend a lube that is not irritating?

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Re: skin tearing

Post  Alana3 on Mon Dec 09, 2013 11:35 pm

Astroglide works for me

Alana3

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 1:26 am

Yes is wonderful so natural feeling. On internet, comes from UK or you can get it from Amazon.

meelie

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Re: skin tearing

Post  Leslieg on Tue Dec 10, 2013 1:43 pm

I've used "Yes" too , it's good. My dr recommended "Slippery Stuff". I just got it from Amazon. Haven't tried it yet.

Leslieg

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Re: skin tearing

Post  meelie on Tue Dec 10, 2013 7:15 pm

Let us know how the "slippery stuff" works.

meelie

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Re: skin tearing

Post  Leslieg on Thu Jan 02, 2014 3:48 pm

"slippery stuff" is nice, feels natural. I think I like it a bit more than "yes" but I'll keep experimenting as best I can Smile.
I still get a tear at 6 o'clock despite the lubrication. It's starting to freak me out. Sad
I don't like to post negative things but I guess I need to vent today. You would think the coping aspect of this would get easier over the years but I feel like my abilities to cope are getting weaker and weaker. It almost feels like desperation. I have 2 small children and the distraction of this is breaking my heart. I wish I could crawl into bed today and stay there.
I am struggling to understand. I realize I have skin sensitivities to products but there must be something missing. I am better in some ways and worse in others. The puzzle is mind boggling and the fear of products, food, sex, clothing is to the point of ridiculous.
The tearing during sex triggered all of this negativity today. I am sorry to pass it on.
Has anyone had healing of these tears? I pray the skin will heal.

Leslieg

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Re: skin tearing

Post  Alana3 on Thu Jan 02, 2014 5:23 pm

Use a ton of lube my bf and I will put more on as it starts to dry... also there is a surgery they can do to prevent u from tearing. Look into any bcps or condoms your using too. Condoms can be very irritating I did away with them cuz they irritated me so much. But im also in a committed relationship so I don't recommend that if youre not exclusive (I always used them until recently).

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Re: skin tearing

Post  zarli on Sat Jan 04, 2014 6:49 am

Dear Leslieg
Yes its ok to vent negative feelings on here, if you can't vent them on here where can you?

I am in complete agreement with every thing you said. It must be so hard having 2 young children and having 'V'. Mine are all young adults so it is easier for me. I am now going into my seventh year of living with vulvodynia and my resilience to it is ever decreasing. I try to always be positive but I feel it is our right to be able to have a rant too.

Vulvodynia rules my life plain and simple. I forget what I used to feel like before it. What is normal ??
I am actually having a tear writing this as I am at the point of , What do I try next ??

Any way I think you are doing an awesome job having this condition and raising 2 children, give your self a mighty pat on the back.

I use olive oil for lubrication and when I am starting to feel dry and tight down there....I haven't ever torn but I have always used olive oil even before Vulvodynia so maybe that's helped. I am premenopausal and feel like I am getting dryer so the olive oil helps me. Another great cream is bepanthon it is a nappy rash cream and acts like a barrier maybe you could try that.

Much Love sent your way xxx Z

zarli

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Re: skin tearing

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