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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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Has anyone been told by the Gyno......

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Has anyone been told by the Gyno......

Post  Intrestn1 on Wed Dec 11, 2013 1:15 am

When I first started havng problems, I noticed that my skin in my vaginal area was changing. I went to the doctor and he did a biopsy to see if there were any cancerous cells. Well, they were not and then he diagnosed me with vulvodynia..... Well, later on down the line, things started to get a little worse and then I was told that I have psoriasis...... Has anyone else been told this? I've looked up information on this but haven't been able to find much on psoriasis of/on the genitals.... Any info will be helpful... THANKS!  Mad 

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Re: Has anyone been told by the Gyno......

Post  tinkerbelle2 on Wed Dec 11, 2013 5:29 pm

Hey, my GP ages ago thought I had psoriasis as she said it seemed quite 'dry' down there. She gave me emollient creams such as dactacourt and cetraben. They didn't really seem to do much, they didn't irritate which is good i guess and did seem to soothe slightly. But no real change. Now she doesn't think i have that :S
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Re: Has anyone been told by the Gyno......

Post  EviE°Bee on Thu Dec 12, 2013 9:59 am

I was never told I had psoriasis but i had 1-3 periods per year and as I got older I started developing menopausal symptoms (dry vagina, hot flashes, urinary frequency) so the dr prescribed me provera to bring my periods down, which I never took, and eventually I started getting my periods regularly.
My very first "regular period" was march of this year and it came with a UTI, a yeast infection, and pain in my vulva. (I experienced vulva pain for the first time 5 yrs ago and it came back with the vengeance this year)

Dry vag can cause a variety of different problems because the skin becomes thin and easily irritated. I had to eliminate perfumed soaps and any other possible irritant. I get why the doc told you that it was psoriasis but i highly doubt it because the vag is still too moist regardless of the dryness. One of my dr's told me to use desitin (diaper rash creame found in baby isle) as a protectant. Not the scented one, the original. It adds moisture which = comfort.

Hope this helps.

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Possible

Post  907hopeful on Wed Jan 08, 2014 6:21 am

Hi, I am not an expert w/ this, so I would encourage you to do some research, but I am 99% sure that psoriasis can be confirmed w/ a skin biopsy. There are a couple dermatologist in the US that soley focus on genital skin issues. I would recommend searching for genital dermatologist to see if there is one near you. If not, call around to clinics to see if you can find a dr that is experienced treating genital dermatology issues. It's my understanding genital dermatology is much different than regular dermatology since it is much different skin.

I know of someone who was able to get her psoriasis into a state of remission by doing an elimination diet to cut out common allergens (dairy, gluten, eggs). She did this with the help of a naturopath and has been able to slowly add done things back iin limit amounts w/ no issues. Hope some of these suggestions help you. Best of luck to you!!!

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Re: Has anyone been told by the Gyno......

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