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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Has anyone been told by the Gyno......

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Has anyone been told by the Gyno......

Post  Intrestn1 on Wed Dec 11, 2013 1:15 am

When I first started havng problems, I noticed that my skin in my vaginal area was changing. I went to the doctor and he did a biopsy to see if there were any cancerous cells. Well, they were not and then he diagnosed me with vulvodynia..... Well, later on down the line, things started to get a little worse and then I was told that I have psoriasis...... Has anyone else been told this? I've looked up information on this but haven't been able to find much on psoriasis of/on the genitals.... Any info will be helpful... THANKS!  Mad 

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Re: Has anyone been told by the Gyno......

Post  tinkerbelle2 on Wed Dec 11, 2013 5:29 pm

Hey, my GP ages ago thought I had psoriasis as she said it seemed quite 'dry' down there. She gave me emollient creams such as dactacourt and cetraben. They didn't really seem to do much, they didn't irritate which is good i guess and did seem to soothe slightly. But no real change. Now she doesn't think i have that :S
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Re: Has anyone been told by the Gyno......

Post  EviE°Bee on Thu Dec 12, 2013 9:59 am

I was never told I had psoriasis but i had 1-3 periods per year and as I got older I started developing menopausal symptoms (dry vagina, hot flashes, urinary frequency) so the dr prescribed me provera to bring my periods down, which I never took, and eventually I started getting my periods regularly.
My very first "regular period" was march of this year and it came with a UTI, a yeast infection, and pain in my vulva. (I experienced vulva pain for the first time 5 yrs ago and it came back with the vengeance this year)

Dry vag can cause a variety of different problems because the skin becomes thin and easily irritated. I had to eliminate perfumed soaps and any other possible irritant. I get why the doc told you that it was psoriasis but i highly doubt it because the vag is still too moist regardless of the dryness. One of my dr's told me to use desitin (diaper rash creame found in baby isle) as a protectant. Not the scented one, the original. It adds moisture which = comfort.

Hope this helps.

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Possible

Post  907hopeful on Wed Jan 08, 2014 6:21 am

Hi, I am not an expert w/ this, so I would encourage you to do some research, but I am 99% sure that psoriasis can be confirmed w/ a skin biopsy. There are a couple dermatologist in the US that soley focus on genital skin issues. I would recommend searching for genital dermatologist to see if there is one near you. If not, call around to clinics to see if you can find a dr that is experienced treating genital dermatology issues. It's my understanding genital dermatology is much different than regular dermatology since it is much different skin.

I know of someone who was able to get her psoriasis into a state of remission by doing an elimination diet to cut out common allergens (dairy, gluten, eggs). She did this with the help of a naturopath and has been able to slowly add done things back iin limit amounts w/ no issues. Hope some of these suggestions help you. Best of luck to you!!!

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Re: Has anyone been told by the Gyno......

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