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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


How to go about dating when you have vulvodynia?

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How to go about dating when you have vulvodynia?

Post  kate-123 on Fri Dec 13, 2013 10:54 am

I'm new on this forum and I've never really spoken to anyone about my vulvodynia. I was only diagnosed about 2 months ago. I've been experiencing excruciating pain during sex for almost a year now. The first time it was painful I went to the doctor straight away and she said it looked like an ulcer. I had to ask her to test for STIs because she wasn't going to. All the tests came back clear. At the time I was also looking into possible autoimmune conditions but the specialist I saw only ended up diagnosing me with post-viral syndrome. Anyway, painful sex continued. I spoke to my doctor and she did an examination and more tests but couldn't find anything. I asked her for a referral to a gyn and had to wait about 6 weeks before I finally got an appointment. She initially thought it was thrush and I had to do a horrible 4-week treatment for it. I went back after the treatment but still had the horrible pain so she diagnosed me with vulvodynia. She put me on an increasing dose of Endep (which I hate - makes me like a zombie) and we will reassess in January. She said I would probably need physio after the Endep as well. I went to another doctor for a second opinion and she read it straight out of the textbook. She gave me a topical local anaesthetic to try if I ever want to have sex.

I could usually have sex once with bearable pain, but amy more than that pretty much had me in tears - felt like I was being stabbed, and lots of burning and pain for a day or two afterwards. It destroyed my sex life and I now haven't have sex for almost 5 months. Vulvodynia is so depressing, just knowing that there is no known cure and it could stick around for years. I'm single and I want a relationship. But I am now absolutely terrified of having sex. I feel like vulvodynia is manageable when you're already in a relationship and can be open and honest about it, and have enough trust to be able to work around it. How do you bring it up to a potential partner? I don't know whether I've been cured, and I don't know when or if I will be cured. Has anyone had any experience with vulvodynia whilst dating/looking for a relationship? Sex is an important part of any relationship and I'm nervous about how to bring it up...

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Re: How to go about dating when you have vulvodynia?

Post  21andcounting on Fri Dec 13, 2013 4:24 pm

Hi Kate,

I'm new to this forum as well. It sounds like you had a rough road towards getting your diagnosis. Most doctors I've seen before my current one have been completely oblivious to vulvodynia, it's insanely frustrating. I wish I had advice for you about talking to potential partners, but I haven't exactly figured that out myself. My method has usually been the whole "it will be different this time" approach, going for it, then having to make them stop and explaining why then. So my advice to you would be not to do it like that! It usually doesn't end well... Have you ever been to a vulvodynia specialist? I was also given the bandaid approach (the numbing cream) by my usual GYN, but once I met my specialist she really got me on track with different treatments that were much more effective. In my opinion, figuring out exactly what is going on with you and coming up with a real plan of action is the first step before being ready to seek a relationship.

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Re: How to go about dating when you have vulvodynia?

Post  Mark on Fri Dec 13, 2013 4:32 pm

Welcome to the group  Very Happy . Sorry to hear about your experience with v.

I don't know whether I could or should offer you any advice, being male, but I guess my experience is relevant because my wife has acute v, and has done since long before we met.

Are you single currently? I'm guessing so, based on what you've written. If so, I'd advise being upfront with any potential dates. That's what my wife did when I first asked her out, and the honest and brave way she dealt with what must have been a very difficult conversation for her is something I'll always admire.

As for sex, I came onto this forum to ask for advice myself when my (now) wife told me about her condition, before we'd even been out together. Several people said to me that vulvodynia makes you think differently about sex. Being crude about it, penis-in-vagina sex can be painful for some people who have v, and for others it can trigger their symptoms for several days. Rather than having it as something you tolerate up to once a week I think it would be better to avoid it. If you make yourself do something that hurts you, there's a risk you'll resent the man because you'll know it's just pleasure for him with none of the pain.

Unless a couple are trying for a baby, PIV is the least satisfying kind of sex anyway as most women don't climax from it. Most of us guys would happily do other things but don't always feel confident enough to ask. Ironically, we're having a baby now, and even that we did without PIV, as it triggers an 'episode' for my wife so the NHS gave us assisted conception.

I believe that some women's v extends to the clitoris, in which case oral or handjobs can also cause pain. If that's the case then it may be harder for you to have sex without your symptoms being triggered. If that's the case I don't know a solution other than continuing to look for a sympathetic doctor who can solve your symptoms (some women are successful in this).

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Re: How to go about dating when you have vulvodynia?

Post  mary jane on Sun Dec 15, 2013 3:05 pm

you could do what I did and simply mention this on a dating site with your profile
I did an experiment on myself and wrote "I have a medical condition and can't have intercourse"
I still had people interested...however in my case, I also can't be very active, walk for long, sit for long, as I have bloody pudendal neuralgia symptoms, and the mere act of dating is pretty exhausting...
but yes. with me, I'd rather be very upfront with it so I don't waste my time having to explain I can't function sexually in my 20s.
also, NOT a good idea to say this in the midst of passion!
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