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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New and Frustrated

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New and Frustrated

Post  kdh17 on Sat Dec 14, 2013 4:11 am

Hi! I'm new here. I'm 30 years old. I've had vulvodynia for 10 years, though it was only officially diagnosed 5 years ago. My symptoms started with recurrent yeast infections and progressed to pain. My symptoms react very strongly to certain foods. I made a tremendous improvement when I went gluten free 5 years ago and have kept strict to that diet ever since. My symptoms were fairly well controlled between diet, topical lidocaine, and antidepressants for about 4 years.

I went off birth control pills in fall 2012 and my symptoms immediately got bad again and the recurring yeast infections started immediately. My symptoms seem to react to hormonal changes. I had several months this summer where things got better, but I have been in a bad state again since September. I have been on numerous courses of diflucan, both the 250 mg for 3 days and 150 mg daily for 14 days. I cannot take any of the -azole products because they irritate my V so badly. To complicate matters my husband and I have been trying to conceive for many months which is next to impossible with my condition. Even when I do feel well enough to have sex it takes me forever to recover. I am also not able to take the medications my doctor would like me to because I am actively trying to get pregnant and they are not safe for pregnancy. I'm just so desperate at this point I don't know what to do.

kdh17

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Re: New and Frustrated

Post  alessandria on Sat Dec 14, 2013 10:46 pm

Many hugs your way, we all know what a tough condition this is to deal with! A quick question, have you tried physical therapy? I've had noticeable progress ever since my physician told me I constantly tense my pelvic floor, which is sometimes a learned response to things like really nasty infections. Absolutely nothing else had helped until I started working on the muscular issues, even though I had always previously been certain it was my skin that was the problem. Some women also experience a complete remission of vulvodynia after childbirth, so it is possible that it may help!

Do you have diagnosed yeast infections, or does it just look like yeast but without positive culture? One potential cause of vulvodynia is cytolytic vaginosis, which is due to an overabundance of acidophilus bacteria in the vaginal flora and a too-low vaginal pH. This will look EXACTLY like yeast discharge, but for a completely different reason. This can usually be alleviated by sitz baths, and failing that, vaginal suppositories to elevate the pH. One suggestive marker of CV is if your pain goes away with menstruation. If you do have positive yeast cultures though, make sure you've addressed all causes of recurrent yeast (get hemoglobin A1C assessed to see if diabetes could be a reason, for example). I know you've had this for 10 years though, have you fully explored all of those possibilities?

alessandria

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