Log in

I forgot my password

Latest topics
Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

New and Frustrated

View previous topic View next topic Go down

New and Frustrated

Post  kdh17 on Sat Dec 14, 2013 4:11 am

Hi! I'm new here. I'm 30 years old. I've had vulvodynia for 10 years, though it was only officially diagnosed 5 years ago. My symptoms started with recurrent yeast infections and progressed to pain. My symptoms react very strongly to certain foods. I made a tremendous improvement when I went gluten free 5 years ago and have kept strict to that diet ever since. My symptoms were fairly well controlled between diet, topical lidocaine, and antidepressants for about 4 years.

I went off birth control pills in fall 2012 and my symptoms immediately got bad again and the recurring yeast infections started immediately. My symptoms seem to react to hormonal changes. I had several months this summer where things got better, but I have been in a bad state again since September. I have been on numerous courses of diflucan, both the 250 mg for 3 days and 150 mg daily for 14 days. I cannot take any of the -azole products because they irritate my V so badly. To complicate matters my husband and I have been trying to conceive for many months which is next to impossible with my condition. Even when I do feel well enough to have sex it takes me forever to recover. I am also not able to take the medications my doctor would like me to because I am actively trying to get pregnant and they are not safe for pregnancy. I'm just so desperate at this point I don't know what to do.


Posts : 2
Join date : 2013-12-14

View user profile

Back to top Go down

Re: New and Frustrated

Post  alessandria on Sat Dec 14, 2013 10:46 pm

Many hugs your way, we all know what a tough condition this is to deal with! A quick question, have you tried physical therapy? I've had noticeable progress ever since my physician told me I constantly tense my pelvic floor, which is sometimes a learned response to things like really nasty infections. Absolutely nothing else had helped until I started working on the muscular issues, even though I had always previously been certain it was my skin that was the problem. Some women also experience a complete remission of vulvodynia after childbirth, so it is possible that it may help!

Do you have diagnosed yeast infections, or does it just look like yeast but without positive culture? One potential cause of vulvodynia is cytolytic vaginosis, which is due to an overabundance of acidophilus bacteria in the vaginal flora and a too-low vaginal pH. This will look EXACTLY like yeast discharge, but for a completely different reason. This can usually be alleviated by sitz baths, and failing that, vaginal suppositories to elevate the pH. One suggestive marker of CV is if your pain goes away with menstruation. If you do have positive yeast cultures though, make sure you've addressed all causes of recurrent yeast (get hemoglobin A1C assessed to see if diabetes could be a reason, for example). I know you've had this for 10 years though, have you fully explored all of those possibilities?


Posts : 39
Join date : 2013-12-07

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum