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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New and Frustrated

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New and Frustrated

Post  kdh17 on Sat Dec 14, 2013 4:11 am

Hi! I'm new here. I'm 30 years old. I've had vulvodynia for 10 years, though it was only officially diagnosed 5 years ago. My symptoms started with recurrent yeast infections and progressed to pain. My symptoms react very strongly to certain foods. I made a tremendous improvement when I went gluten free 5 years ago and have kept strict to that diet ever since. My symptoms were fairly well controlled between diet, topical lidocaine, and antidepressants for about 4 years.

I went off birth control pills in fall 2012 and my symptoms immediately got bad again and the recurring yeast infections started immediately. My symptoms seem to react to hormonal changes. I had several months this summer where things got better, but I have been in a bad state again since September. I have been on numerous courses of diflucan, both the 250 mg for 3 days and 150 mg daily for 14 days. I cannot take any of the -azole products because they irritate my V so badly. To complicate matters my husband and I have been trying to conceive for many months which is next to impossible with my condition. Even when I do feel well enough to have sex it takes me forever to recover. I am also not able to take the medications my doctor would like me to because I am actively trying to get pregnant and they are not safe for pregnancy. I'm just so desperate at this point I don't know what to do.

kdh17

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Re: New and Frustrated

Post  alessandria on Sat Dec 14, 2013 10:46 pm

Many hugs your way, we all know what a tough condition this is to deal with! A quick question, have you tried physical therapy? I've had noticeable progress ever since my physician told me I constantly tense my pelvic floor, which is sometimes a learned response to things like really nasty infections. Absolutely nothing else had helped until I started working on the muscular issues, even though I had always previously been certain it was my skin that was the problem. Some women also experience a complete remission of vulvodynia after childbirth, so it is possible that it may help!

Do you have diagnosed yeast infections, or does it just look like yeast but without positive culture? One potential cause of vulvodynia is cytolytic vaginosis, which is due to an overabundance of acidophilus bacteria in the vaginal flora and a too-low vaginal pH. This will look EXACTLY like yeast discharge, but for a completely different reason. This can usually be alleviated by sitz baths, and failing that, vaginal suppositories to elevate the pH. One suggestive marker of CV is if your pain goes away with menstruation. If you do have positive yeast cultures though, make sure you've addressed all causes of recurrent yeast (get hemoglobin A1C assessed to see if diabetes could be a reason, for example). I know you've had this for 10 years though, have you fully explored all of those possibilities?

alessandria

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