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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

New and Frustrated

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New and Frustrated

Post  kdh17 on Sat Dec 14, 2013 4:11 am

Hi! I'm new here. I'm 30 years old. I've had vulvodynia for 10 years, though it was only officially diagnosed 5 years ago. My symptoms started with recurrent yeast infections and progressed to pain. My symptoms react very strongly to certain foods. I made a tremendous improvement when I went gluten free 5 years ago and have kept strict to that diet ever since. My symptoms were fairly well controlled between diet, topical lidocaine, and antidepressants for about 4 years.

I went off birth control pills in fall 2012 and my symptoms immediately got bad again and the recurring yeast infections started immediately. My symptoms seem to react to hormonal changes. I had several months this summer where things got better, but I have been in a bad state again since September. I have been on numerous courses of diflucan, both the 250 mg for 3 days and 150 mg daily for 14 days. I cannot take any of the -azole products because they irritate my V so badly. To complicate matters my husband and I have been trying to conceive for many months which is next to impossible with my condition. Even when I do feel well enough to have sex it takes me forever to recover. I am also not able to take the medications my doctor would like me to because I am actively trying to get pregnant and they are not safe for pregnancy. I'm just so desperate at this point I don't know what to do.


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Re: New and Frustrated

Post  alessandria on Sat Dec 14, 2013 10:46 pm

Many hugs your way, we all know what a tough condition this is to deal with! A quick question, have you tried physical therapy? I've had noticeable progress ever since my physician told me I constantly tense my pelvic floor, which is sometimes a learned response to things like really nasty infections. Absolutely nothing else had helped until I started working on the muscular issues, even though I had always previously been certain it was my skin that was the problem. Some women also experience a complete remission of vulvodynia after childbirth, so it is possible that it may help!

Do you have diagnosed yeast infections, or does it just look like yeast but without positive culture? One potential cause of vulvodynia is cytolytic vaginosis, which is due to an overabundance of acidophilus bacteria in the vaginal flora and a too-low vaginal pH. This will look EXACTLY like yeast discharge, but for a completely different reason. This can usually be alleviated by sitz baths, and failing that, vaginal suppositories to elevate the pH. One suggestive marker of CV is if your pain goes away with menstruation. If you do have positive yeast cultures though, make sure you've addressed all causes of recurrent yeast (get hemoglobin A1C assessed to see if diabetes could be a reason, for example). I know you've had this for 10 years though, have you fully explored all of those possibilities?


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